Anxiety and Tinnitus Taking Over My Life

Discussion in 'Support' started by Stefaniie, Jun 18, 2019.

    1. Stefaniie

      Stefaniie Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Hereditary hearing loss/noise exposure
      I have had loud tinnitus for about 3 years now.

      Just when I think I'm coping with it okay I either get a spike or I read something online that makes me a nervous wreck and subsequently makes my tinnitus worse.

      That's what happened tonight. I usually only come on here to look at treatment updates but I stupidly ventured into other forums and now I feel like I'm on the verge of an anxiety attack and my tinnitus is bothering me so much. I'm just scared.

      The more anxious I get the more scared of sounds I become and I know that isn't good.

      It's at the point where I'm afraid of leaving my house.

      I'm just so exhausted. I feel like 10 years of my life have been shaved off from all this stress. I've been thinking about taking anti-anxiety meds but I have heard horror stories of tinnitus becoming worse that way.

      But I'm starting to realize that might be my only option as the paranoia and fear of making tinnitus worse is taking over my life.
       
      • Hug Hug x 11
    2. Jackjohnson183

      Jackjohnson183 Member Benefactor

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Ear wax removal
      There could be a possibility that Lenire may reduce your tinnitus in the meantime before Regain or Frequency Therapeutics release their hearing regeneration drugs in a few years time. Where are you based?
       
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    3. Rb86

      Rb86 Member

      Tinnitus Since:
      5/31/19
      Cause of Tinnitus:
      Noise
      Best not to read in here much. Everyone agrees it can make it worse and the bottom line is nobody has the exact same causes and symptoms I've found. Don't let it get to you, you ARE going to improve. :)
       
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    4. AUTHOR
      AUTHOR
      Stefaniie

      Stefaniie Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Hereditary hearing loss/noise exposure
      The United States. I am hoping they get Lenire here quickly. Didn't the CEO say he was aiming to get it FDA approved before 2019 ends? But does that mean the device will be available immediately after that or will we have to wait a while more while they get devices sent over and audiologists trained to deliver the treatment? If so, hopefully it won't take long.
       
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    5. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      How does anxiety make it worse exactly? No one can explain.

      If it does, many are screwed. If your tinnitus is loud and high pitched or very intrusive, it is inevitable to cause stress and anxiety.

      I don't think this cycle can be avoided. If the tinnitus is mild, cbt might help but when tinnitus is severe, it is almost impossible to cope.

      Loud high pitched tinnitus is not a normal condition for people.
       
      • Agree Agree x 2
    6. bellecooper77
      Bookworm

      bellecooper77 Member

      Tinnitus Since:
      04/19
      Cause of Tinnitus:
      unknown
      I totally relate to this. Im 18 and ive had tinnitus for 3 months, with it getting slightly, but not much better. I get scared and anxious every day about having this since im going to college soon, where the noise level is so much higher than my life right now.
      But, my dad also has tinnitus, and one thing that he said to do is to try to not worry about it or think about it. If you focus all your energy on something else, I have found that it tends to go down for the time being.
       
    7. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      I still would like to know how many people who have super high pitched and loud tinnitus have (ever) had theirs improve or reduce.

      It's almost like a ringing power line for lack of a better description.

      How do you reduce anxiety when you have that? I believe I have anxiety even when I am asleep - thus, out of my control? :(
       
      • Hug Hug x 1
    8. Chester

      Chester Member

      Tinnitus Since:
      late 2016
      Cause of Tinnitus:
      heavy earwax buildup
      I visited this forum as a guest 2~3 times back in 2016 when I first got tinnitus, read a lot and realized that it had better to stay away from tinnitus forums and discussion boards which I believe was the best decision I ever made in my life. Since then, I never read or search anything about tinnitus for two good years. After thirty long months, just very recently, I joined this forum to write my story hoping that it would help people here at least to some extent. I live a very normal life today with barely noticeable tinnitus at times, mostly only when I am in bed getting ready to sleep. Judging by where I am at this point, I strongly believe that I will be able to get rid of this condition in 2~3 months time from now.
       
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    9. Denver

      Denver Member

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Supplemnts
      Mine reduced from a 10/10 to a 2.5/10 over 9 months.
       
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    10. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      One thing that helps me overcome feeling a particular way is when I read the stories I keep an objective point of view: these are other people's experiences, they are not mine, I do not know what the future has in store for me. There are many factors that come into play so don't discredit yourself and your own journey.

      The stories are scary, but they are cautionary tales at best. They do not foreshadow your fate, they merely remind you to be wiser/smarter about your own choices.

      "Nothing in life is to be feared, it is only to be understood. Now is the time to understand more, so that we may fear less. " - Marie Curie
       
      • Like Like x 5
    11. BobDigi
      Kick ass

      BobDigi Member

      Location:
      UK
      Tinnitus Since:
      5.6.14
      Cause of Tinnitus:
      Loud noise
      These things usually turn out to be bollocks. I remember AM-101 or something being the next big thing last year and that turned out to be bollocks too. I'm not saying this to be unkind but there's no point in keep fooling for the next big thing only to be let down once again. It's a mugs game.
       
    12. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      Los Angeles, CA
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      U.S. Army/Field Artillery Veteran
      AM-101 was a drug only in trials, and it may have not succeeded only because of bad testing paramerers and short lasting effects. Lenire has mostly completed the trials and is working on a concept that the science community is proving to be an effective treatment for tinnitus: bimodal neuromodulation. There are two universities creating treatment devices under the same principle, Neuromod even hired one of those universities' lead researcher: Dr. Hubert Lim. They are not at all alike except for their underlying purpose in treating tinnitus, and Lenire's trial results show that it likely will be our first effective treatment.
       
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    13. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      What convinced me that there is a chance this time is the experience of @kelpiemsp who had suffered from loud T for decades, who was part of a U of Michigan trial over a year ago, and who is still enjoying quiet T:
       
    14. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      One person doesn't mean anything.
       
    15. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      I think it is the other way around. No matter how many people are not getting better after a treatment, one will never be able to say that the treatment won't work. One person getting better proves that the treatment can work.
       
      • Agree Agree x 3
    16. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      It can also mean it is a fluke. :(
       
    17. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      If someone has loud T for more than 20 years, then has the treatment, and the volume of T goes down and stays down, and then the treatment is rolled out to the general public (by the people who stand to lose a lot of money if the treatment doesn't work), it is Not a fluke.
       
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    18. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      By itself, it is by definition, a fluke unless there is more context, more data.

      Just because it's released to the public means little. The tinnitus treatments now doesn't 'work' for everyone and doesn't change the volume either, but there is a large industry of it even though the effectiveness is limited and perhaps negligible for severe sufferers.

      Yet, it's widely available for the public.
       
      • Like Like x 1
    19. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      Btw, I am not trying to be a downer on anyone's hopes. I want to be wrong on this one. I don't see it as a cure but I suspect everyone is desperate for an improvement and reduction. I just hope that severe sufferers are included.

      I am honest though. I find it difficult to be optimistic.
       
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    20. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      Los Angeles, CA
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      U.S. Army/Field Artillery Veteran
      They are not claiming it to be a cure. They are saying it is a treatment, and since their primary measurement was THI, the data says that vast majority of those who get the treatment see a clinically significant improvement in THI. The data suggests it is regardless of initial THI. The testimonials reveal that even though THI was the primary measure, the loudness and/or severity is what is actually being affected.

      You should watch the Tinnitus Talk interview with their CEO Ross O'Neill; it is very informative. So far they appear to have been very transparent, and the results suggest that their treatment is not a "fluke".
       
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    21. PeteJ
      Depressed

      PeteJ Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      acoustic trauma?
      That is all vague with no specifics, no concrete meaningful data. No subjective claims with empirical evidence etc.
       
    22. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      Los Angeles, CA
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      U.S. Army/Field Artillery Veteran
      When it comes to tinnitus, it is as close as it gets. They also measured minimum making level but they chose THI over it because of how the treatment also affects severity. You can take a look at the leaked data from one of their presentations yourself.
       

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