Can You "Feel" Your Tinnitus?

Discussion in 'Support' started by RaZaH, Jun 11, 2014.

tinnitus forum
    1. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      For me that is the worst , I can actually feel my T, sometimes I even dont really hear it but can still feel it.
      I wonder if that is "normal" ?
       
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    2. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      I think it is normal. Or at least not uncommon...
       
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    3. JAKUB
      Worried

      JAKUB Member

      Tinnitus Since:
      05/14
      Fullness in the ears/head?
       
    4. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      No, more like an electric feeling in my brain. That is the one that drives me nuts.
      I did have the fullness thing but only for the first few months .
      I am two years in now ..not doing much better to be honest . :confused:
       
    5. Grace
      No Mood

      Grace Member

      Tinnitus Since:
      11/14/2013
      My first two days of T before it dropped down to what it is now, i had a middle tone ring that litterly felt the vibration coming through my ear, that was the worst.
       
    6. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      I think the perception of tinnitus possibly can also depend on the original cause eg. noise induced, ototoxicity induced (which can affect both the cochlea and the auditory nerve), head trauma, etc.
       
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    7. washashore
      Fine

      washashore Member Benefactor

      Location:
      Massachusetts
      Tinnitus Since:
      04/2014
      Yeah, I sometimes feel a slight vibration from the higher pitch tone that I have. Not overwhelming, but noticeable. Hang in there dude.
       
      • Helpful Helpful x 1
    8. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      For me , that is the overwhelming part, I wake up everyday like I slept inside a Skrillex soundsystem while someone bashed my head in with a baseball bat. My head is coming apart. Awful way to start the day .
      Mostly that is felt rather then heard . My head literally buzzes .
       
    9. washashore
      Fine

      washashore Member Benefactor

      Location:
      Massachusetts
      Tinnitus Since:
      04/2014
      I'm sorry to hear that you're struggling @RaZaH. Perhaps one of the doctors on this site has some insight into habituating to this type of T? From what I've read, it seems like people with all different variations of noises/vibrations can find a way to habituate.
       
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    10. citigirl13
      Dreaming

      citigirl13 Member

      Location:
      North Yorkshire, England
      Tinnitus Since:
      17/1/14
      Sometimes mine feels like my ears are vibrating with the sound.
       
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    11. My left ear is vibrating right now..so odd..I find it happens more after waking which makes me wonder if tiny muscles are involved from clenching...I don't know but it is disturbing. .
       
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    12. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Thing is , I am confident that If I would not "feel" it , I would stop caring.
      Right now I am getting a break from feeling it and I am not bothered at all.
      Sucks...heheh
       
    13. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      I agree with you on that, RaZaH! I'm sure it must be easier to habituate if you can't feel the tinnitus, but only hear it.

      Mine vibrates, too. The best time of the day for me is in the morning (the opposite from you), when it seems so much calmer. Then, it builds up through the day, and is at its worst in the late afternoon (right now where I'm at). I have both pulsating and hissing/ringing in that ear, and I can actually feel the vibration.

      I hope yours calms down for you. That electronic buzzing sounds like it would be very difficult to deal with!
       
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    14. mmacabre
      Ape-like

      mmacabre Member

      Tinnitus Since:
      2011
      I "feel it". Very much so.
       
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    15. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Sometimes I am not even sure it comes from my ears , just feels like my brain is buzzing.
      No way to mask that crap, its so annoying that I feel serious relief when it stops and I get "regular "T.
      I guess that is the flipside , get this crap under control and "normal" T will not bother me .

      That might even be "progress" and I am just not seeing it ? It sure as hell did not behave like that for the first year or so. It has changed a lot , I just feel that this buzz is more annoying then the " Wheeeee" sound.
      So its inverse progress ! :p
       
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    16. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Well, let's hope for progress, in any form!! Regular T will seem like a piece of cake after what you've been experiencing, I'm sure.

      Take care, and stay strong!!
       
      • Optimistic Optimistic x 1
    17. john2012

      john2012 Member

      Location:
      Germany
      Tinnitus Since:
      2012
      my partner hears succession of random high pitch notes which he says
      can feel like electrical cables flashing around in water, sharp spiky type things,
      says his loud background sound can drive into him but in a different way.
      if only there was a way to desensitize from this, maybe there is.
      there have been some occasions when he can hear but not fully feel these
      sounds so that tells us there is hope.

      i wish you all calm brains, really i do. god bless.


      hazar, just noticed you said hardly hear but feel it, yes that's exactly right
      my guess is that this is more common than people realize. my hope is that
      my partner and you and others can somehow defocus from it.
       
    18. Hattukoira
      Tired

      Hattukoira Member

      Location:
      Finland
      Tinnitus Since:
      07/2010
      I can feel my T. It feels like low voltage current going through my head + weird pressure/tension(inside my head).
       
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    19. washashore
      Fine

      washashore Member Benefactor

      Location:
      Massachusetts
      Tinnitus Since:
      04/2014
      I can feel it this afternoon. Sucks big time. Going for a run to see if that takes mind off it.
       
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    20. Marlene
      English

      Marlene Member Benefactor

      Location:
      Poole Dorset England
      Tinnitus Since:
      July 1996
      Cause of Tinnitus:
      Bacterial virus
      My tinnitus has gotten worse over the years,the way in which it behaves,when High or Low it goes inwards only way I can describe it,never a good day,and my tinnitus I have a balance problem with,been this way for 3 yrs came on,but not at the start of tinnitus.Just got to hang on in there all you can do.lots have different tinnitus behaviours.totally mystifying.
       
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    21. Mark McDill
      Curious

      Mark McDill Member Benefactor

      Location:
      Papillion, NE
      Tinnitus Since:
      03/2013
      Cause of Tinnitus:
      Likely stress, anxiety, an antibiotic and nsaids
      @RaZaH
      Some days my T seems like a distant ring in my head (vice the 'normal' T in my ear). I had one really bad spike about a year ago where it was extremely loud (in my head) -- that one scared me; but it subsided after a day.

      Now, when it's in my head (vs. ear) it's very distant and I find it easy to ignore; however, I notice my 'head T' really shoots up when I'm stressed (way more than the normal T in my ear).
       
    22. citigirl13
      Dreaming

      citigirl13 Member

      Location:
      North Yorkshire, England
      Tinnitus Since:
      17/1/14
      I just wanted to say thank you Karen, for all the advice you give people and all the help you give when, by most people's standards, your T is quite bad. I can't imagine having both regular T and PT - I think I would be a wreck. But you cope with it and manage to help out people who are having a bad day. Thank you so much and well done! :)
       
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    23. Valentin

      Valentin Member

      Location:
      Thailand
      Tinnitus Since:
      17/08/2013
      sometime i have a sound that actually feels like two hair cells touching each others, producing a sound of electric short circuit and that's heard and 'felt'
       
      • Helpful Helpful x 1
    24. Grace
      No Mood

      Grace Member

      Tinnitus Since:
      11/14/2013
      You know how there investigating mdma for a potential "cure" or treatment, well some have said after taking it that the noise was still there but felt real distant.. I feel like if they could even come up with something that makes the T actually feel like a backround noise and not so much in our ears/brains that some may find relief from that. Idk theres so much research and possiblities that they will come up in the future that its actually exciting.
       
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    25. Denny

      Denny Member

      Tinnitus Since:
      Jan 2013
      Tinnitus is similar to autoimmune diseases in the sense the body literally
      turns on itself. But it is not the immune system involved but the brain,ears
      and limbic system.
       
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    26. john2012

      john2012 Member

      Location:
      Germany
      Tinnitus Since:
      2012
      may i elaborate on the question about 'feeling' your tinnitus
      clearly a lot of you 'feel' it just as my partner does.
      but how many of you find the feeling has a particularly distressing quality.
      my partner feels it 'sharply' to the point where it 'hurts' he says
      (for some maybe the feeling is not unpleasant, i don't know)
      i'm hoping to get him to reframe it in his mind somehow,
      hopefully the brain can then change what he 'feels'

      we really need to find out how many here have this sort
      of problem so techniques can be shared, developed, etc.
       
    27. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @citigirl13

      Thank you for your kind comments. I'd like to know that something good has come from this life-changing condition we all share, and if I've been able to help or support anyone else, then that makes me happy, too!
       
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    28. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @john2012,

      I think your idea to share our experiences with "feeling" tinnitus is a good one. Speaking for myself, being able to both hear and feel one's tinnitus is doubly distressing. Even though we may know that our condition is not dangerous, it still is very upsetting and stressful to have a vibration or sensation in your head that you cannot control. Mine has often felt like my whole head was vibrating. It is also much harder to sleep with this type of tinnitus.

      I'd like to hear what others with similar conditions have to say.
       
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    29. Mr. Cartman
      Artistic

      Mr. Cartman Member Benefactor

      Location:
      Norway
      Tinnitus Since:
      12/2013
      Hi Karen :)

      Just wanted to share what Im experiencing.

      I too kinda feel my tinnitus. It could even be very painful, sometimes a vibrating sensation like some of you describe. Electrical buzzes and so forth. First I though it was the sound that actually kept alive all those sensations,
      but for me it seems like there are nerves misfiring and creating the T together with this sensation.

      I had very bad headaches that came and went regulary. I then found a position in bed where I lay down on my stomach, I put two pillows under each my shoulders so they would be placed in a higher position than my spine, I have my head facing down and slightly opening my jaw who is then resting at the mattress.

      This is the exact opposite position than I had before regarding bad posture.

      I clenched teeth, now Im using the muscles in the opposite direction than chewing.
      My shoulders were bent down and forward, now they are bent backwards above my spine.
      My lumbar was in a very bad position, but now it is strightened out.
      My head was in a forward position, now it is in a more correct position to the spine.

      When I held this position I realized that my jaw losened up, so did the headaches and everything else. Muscles started to spasm but it didnt hurt and I could no longer "feel" my tinnitus. Even though, the tinnitus was still there but now fluctuating a bit more.

      I did this about 3 times yesterday, 30 minutes each time. And every time I do it, my head sensations seems to normalize pretty much instantly.

      For me, it seems like there are nerves (I would guess in my neck for the most part due to a stuck cervical vertebrae I had) that are misfiring and creating these very weird sensations.

      I have to add that the third time I was lying down in this position, it felt like someone slapped my right ear, the sensation of fullness went away and the tinnitus kinda went out of my hearing range by travelling upwards in frequncy (this is how my temporarily T's have resolved in the past). It was a very weird sensation. Something did happen at that time, but I dont know for sure why and how.

      So my guess is that if nerves are misfiring or has an information flaw due to compression in the neck, back or wherever, they will not only affect muscles and pain signals sent to the brain, creating this "weird" sensation, but also affect the information sent to the the auditory part as well. For example the dorsal cochlear nucleus and creating the noise we percieve as T.

      Its just a wild guess based on my own experiences, and I hope it can be helpful to someone else.

      Thanks for being such a supporatative resource Karen! :)

      @RaZaH
       
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    30. Laura89
      Tired

      Laura89 Member

      Location:
      Calgary, Canada
      Tinnitus Since:
      Feb 14, 2014
      Hey hazar, I don't have t, but I have vascular t, and I can feel the pulsing of my blood flow on that side of my head. I agree with u that perhaps if I didn't feel it would be easier to habituate. It is very bizarre.
       
      • Agree Agree x 1

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