CrystalB

I can feel a weird like inflamed filling in my ears. How did yours get better? I’ve tried steroids, steroid nose sprays and it feels okay at first and the fullness comes right back.

I think my ears have just had it, I don’t think there is any way they could get better. My Eustachian tubes I think won’t be back to normal :(

They aren't totally better. I still get some fullness, but I can usually fake yawn it away now. ETs still do suction/clicks up way up inside my nose sometimes. They were much worse for a long time though is what I meant and slowly have improved.

Same! I'm pretty sure its my head.

what is sleep?

Yes, my head kinda vibrates/low hums sometimes at night. I can sleep through it ok. The higher frequency stuff disturbs my sleek more.

Until you get flashbanged and it plays a fake tinnitus sound for a few seconds.

Yes, I played Stardew Valley all day after onset. Very therapeutic game.

I have been playing red dead redemption 2 online, I love it!

Keep us posted!

I also have low b12 and iron deficiency. I take a lot of supplements but it may be that I need to eat meat again. Tinnitus got better after starting iron supplements, but it might be coincidental.

If T is because of iron deficiency, you get it in your left ear. Blood vessel related.

That great your T lowered even if it wasn’t because of your B12. My B12 I was told was on the verge of being the lowest.

Thanks, Happy New Year to you too :)

Thank you:)

It sounds so weird lol. Mine is a very high pitch,I woke up and it’s back to high pitch just not as loud.

Yes so is mine!

Often it flips back and forth between a high pitch tone and a hiss, and eventually becomes a hiss most of the time. A hiss is easier to ignore.

You and me both!

Me too, it's ridiculously hard because food is one of the main things I live for these days

I feel you both! I love food! I just wish the good stuff wasn’t so bad for you!

I know my first hearing test they done speech but no background noise and made me listen to little beeps as I pushed a button when I heard them, I don’t know what they are going to do today. I’ve heard you can have high frequency hearing loss but I don’t know if I have that or not, I know last time they told me my hearing was good.

Those hearing test are extremely inaccurate. The whole idea is they only test for hearing loss in the human voice range in quiet, while us tinnitus sufferers need need our full range of hearing tested. https://www.aarp.org/health/conditions-treatments/info-2017/hows-your-hearing-kb.html

Well I did take the hearing test and it came back good again. Odd how they can’t check for high frequency hearing loss

Yes, my T is almost always the quietest right when I wake up.

I'll pray for your mother & brother, I hope their health improves. God bless you and your family.

Thank you so much

same old same old

I don’t have no hearing loss, I go back to my ent in a week or so for another test. How did you get your T?

Good luck with your test. My tinnitus started after ear surgery, after a football burst my eardrum and caused damage to my inner ear during a football match. How did yours start?

i had a Ocular migraine, two days later I woke up that morning and had tinnitus, don’t know what caused it!

As soon as the movie came on I put in my earplugs, I could still hear the movie but it lowered the volume a lot and it wasn’t so loud, I watched the movie and enjoyed it, it didn’t hurt my ears. I don’t want to stop living, it took some courage to go back into a movie theater, but I did and I used caution with my ear plugs and it seemed to not cause a spike.

It’s been two days since the movie and my tinnitus is still the fluctuating sound it’s always been.

Thanks for updating!

Usually better in the am, softer, becoming more harsh through the day. What do you experience?

Mine is also softer in the morning and as the day goes on it becomes louder, then some mornings it’s loud. It’s just hard to hibernate when it fluctuates so much.

I don't know how long you've had t. Have you noticed the quiet time in the morning increasing for you? I'm hoping it does.

The t is at a level for me that if I keep decent masking around, or it's a lovely rainy day, I can almost not notice it/forget about it.

they say that 10% of the population has it to some degree. but i think that percentage is possibly bigger than we know. even just talking with people i meet in public and at work, i find more people have it than i realized.

Hello Manny and CrystalB. Nice to meet you. Sorry your T is such a burden.

My T is horrible, currently I use exercise and nutrition to deal with T. It's hard to motivate myself but I always feel better after getting my blood flowing and this also helps me sleep.

My current theory is that physical fitness promotes mental fitness which both together help us cope with T. (@fishbone's approach influenced me.)

Mine sounds like a 'FULL ORCHESTRA' of people inside my head, wetting their fingers and playing the rim of a wine glass, ok, thats enough party piece over...I said party piece over.....!

Me!

I would suggest going to see your ENT to potentially get some prednisone since your recent spike is so intense. It may be able to help.

I've felt that way. Like, there must be some help - but there is none. It so frightens me.

I feel that way at times also! :(

In the years since I aquired T I met and talked to countless people who have it also, some of them colleagues and friends , but most have it very mild , there is just one colleague who says she can hear it most of the time , she is or seems rather unphased by it , but she has it since childhood so I gues she is completely habituated to it .

How did you get your tinnitus?

Stay strong. Let's hope it will start to fade

I don’t know how I got tinnitus it happened one morning, I know i have ETD, but the ENT doesn’t know if my tinnitus comes from ETD or not.