Don’t Know If I Can Keep Going

You have all of us, fishbone.

Your strength, determination and sheer will to live, despite your struggles, inspires so many of us here on TT. ❤️

 

We love you fishbone,and sending you lots of hugs xxx
love glynis x

 

Courage can grow inside of us Dave.

Thank-"You" for being such a shining example!❤️

 

Dear fishbone, I am so sorry that you, and others on this site, don’t have the companionship of a partner to support you.
If we all lived close by, we could show you.
But I need to repeat that you are very dearly loved and respected by those in this community.
You must know that.
Small consolation perhaps, but these feelings are absolutely genuine my friend.
Dave x
Jazzer

 

Thank you Ems - so glad you are back, by the way.
Dave x
Jazzer

 

@TracyJS
This is a wonderful idea, I hope it works out for both you and @valeri.

 

It’s tough going Jazzer, but we can live a happy life again. I could quite easily have gone off the rails permanently; it was HARD to get back to any kind of normality. The tragedy for me was the loss of my live music career. I’m not sure if anyone can really understand the devastation this causes unless it has happened to them, and in your case Jazzer, I know you understand what it’s like: to dedicate your life to music only to have the rug ripped from beneath you is an incredibly difficult situation to deal with. You can’t just switch off a lifetimes worth of work overnight, and at the same time I miss the comradery of rehearsals and having a drink afterwards. I also miss not regularly seeing other bands perform, especially when it’s a friends band.

However, I had a clear choice: continue to be miserable and let the depression consume me, or take stock and rebuild my life from the ground up. I reluctantly took the second option and managed to turn my life around. Don’t get me wrong I still have down days but I frequently find they are more than likely not tinnitus related. My biggest issues right now relate to my chest and joints, particularly my shoulders. It seems cruel but the gym was my second sanctuary and I feel like that’s been robbed from me as well with the way things are going. But I can only dust myself down and take happiness from other things such as my daughter and all the memories I can create.

Life would be so dull if we were constantly happy though wouldn’t it . How would we even know the difference after a while? We sometimes need a bit of hardship to shake things up somewhat, and to allow us to appreciate what true happiness feels like when we finally experience it again. It tastes so much better and you savour it a lot more when you have been in the trenches.

It’s my belief that everybody (at some point in their life) faces times of torment and misery. It’s inescapable, even if you believe others have it better, I can assure you they most likely don’t. I have a few friends who are multi-millionaires and have mansions with pools, cinemas, studios, arcade rooms, bars, etc, and super cars parked outside. Truly the stuff of dreams. I’ve had heart to hearts with one wealthy friend in particular, many times, and it’s amazing how quickly and easily our barometer to life adjusts, regardless how much money you have, or what car/s you drive. At the end of the day the only thing that matters is our sanity and that’s often the one thing that we neglect the most. Creating happy memories is worth more than any tangible asset, so we shouldn’t let tinnitus take this from us.

When I see thread after thread of people sufferering it honestly affects me. I wish I could do more.

 

@Ed209

Another insightful post from you, Ed. You speak from your heart and your soul every. single. time.

So very true, Ed. We all know people who seem to have it all. They really don't though. We all struggle at some point in our lives.

We cannot let our struggle define us.

 

@Ed209,
My ears are so loud 24/7 but at the moment my hands are a big problem and excruciating pain and wrists needing to wear hand braces.
The base of my thumbs have a bone lump due to Ostio Arthritis that cause pain but they now think I have Carple Tunnel and awaiting scans on my hands.
Pain killers,freeze spray and splint so it's hard to post in them.
Life keeps throwing me lemons but I'm fighting back...look like I have boxing gloves on my hands ..love glynis

 

@glynis

It breaks my heart to know that you struggle so much. You are our rock here on TT. Where would we be without you?

 

I looked like that when I was on holiday in Florida a few years back. This is a persistent wrist problem I have which is obviously related to playing guitar. I had it so bad at the time it nearly ruined the holiday as I couldn’t grip anything or swim.

It’s horrible Glynis having multiple problems, but my philosophy is to try not to dwell on the doom and gloom of life. I know you are an absolute warrior and have endured far too much.

 

There are So many warriors here and their strength is what helps others.

Ed, is there a story behind your friend? Care to share? He is very interesting looking!

 

Yea, he’s supposed to be the Doc from Back To The Future. I cropped the photo but in the original you can see more of the DeLorean at the side.

 

we all love you fishbone.

 

My dear lady, although I am in great amounts of pain 24-7, I wish I could take some of your pain away from you and give you comfort....

As sad as it may sound, I have never known and lived a life without pain.

 

@Ed209,
I have the light colour thumb splints also ,can only just about pick up a cup.
you look cool and love your friends outfit .
Had a lovely catch up with my twin today and off out having fun tonight with hubby and family .
love glynis

 

I thought there was something familiar about his costume.

 

@fishbone,
I'll be fine ,it's just a bump in my path of life..it will take a gob stopper stop me laughing and smiling...
Life is to short for doom and gloom so when problems pop up we deal with them the best we can and keep bouncing back

 

Dear Glynis - I really don’t know how you manage to come through for every one of us, while suffering so much yourself.
You truly amaze me.
If only life treated us all fairly, but I know that’s too much to ask.
Much love
Dave x
Jazzer

 

@fishbone You are doing it all right including exercise. I just want to pass this on to you. In this article it quotes that 42% of patients have their symptoms worsen after eating certain foods. I know a dietary nutritionist who said that it's actually 90%.


https://www.webmd.com/fibromyalgia/features/fibromyalgia-the-diet-connection#1

 

You'll need nerve conduction studies you poor love.

I was meant to have bilateral CT surgery but decided against it because of the length of time I would be required to have off.

I tried the splints but did nothing for me unfortunately.

very painful. hope you get some relief Glynis xxx

 

@DebInAustralia,
Thank you, needs sorting soon but got wait for scans.

love glynis xxx

 

@Jazzer,
Thank you for your lovely words.
We are all helpful supportive members on here and makes Tinnitus Talk a lovely place to come for support and give support and off topics about ourselves and pets and your lovely cats .
love glynis x

 

@glynis - basically Glynis
We’re simply the best......xx

 

Hi, please i need advice.
Since January after a headphone use to listen to 2 movies and some music at low volume one night, develop hyperacusis, now all fans (including PC), TV sound, music from anywhere, air conditioning .. Spike my T.
I almost always play Sound Enrichment (nature) with my sound machine when I go to sleep, I tried to play pink noise but spike my T and i can not sleep.

Am I doing it right? Is it the right path?

I've had to change my job and I've lost my social life, now I'm losing my mind day by day.
Thanks fishbone for your words, you are a wonderful person.

 

@Acufénico ,
You might find Whit noise generators helpful along with counselling as it can help and for some cure Hyperacusis.
They need to be set bellow your tinnitus.
Try not over use earplugs as will make your ears more sensitive and you need to build up time around sounds again slowly.
love glynis

 

Hi Sean,
Can any of the supplements you listed for anxiety be used with benzos?
I take small amount of Rivotril before sleep but also during the day sometimes.
I would love to use something not so harmful.

 

Thanks glynis, your answer is much appreciated

 

You could ask your doctor but personally I wouldn't mix them. I would find how long the particular Benzo you are taking stays in your system and then when its out, try the supplement. they very greatly. some are in for up to 12 hours.

 

It’s up to 60 hours for Rivotril!
Which supplement helped you the most? What’s your first choice?
I guess you didn’t take them all together.