I just came across Wolfgang's story. Too bad I did not earlier, I was into cars, not much into motorsports, but this could have been news that would have saved me if I came across it in time.
My realization is this - a disease needs to be common enough and bad enough in order to spread awareness. Turns out tinnitus is common enough, but not bad enough for most, making the awareness poor, and not talking about it makes things worse. It is very insidious, but I can believe that not talking about it is part of the coping strategy.
The awareness will remain poor until someone very famous gets hit by it bad. I guess if it was Schumacher who got hyperacusis that put him out of racing career, we would have all known about it by now, just like we know about his unfortunate skiing accident. This poor guy, Wolfgang, unfortunately is not famous enough.
We know about Parkinson's mostly because of Michael J. Fox and John Paul II. Both famous enough for the disease to reach public awareness. In this case, the awareness is useless in prevention, though obviously Fox and others contributed greatly to fundraising to sponsor research.
The irony is, while we sufferers would like to see similar fundraising for tinnitus and hyperacusis to help find a cure, just plain awareness would be sufficient for many to avoid it. And that's before noise regulations and enforcement which could further improve the situation.
I don't wish hyperacusis on anyone, but indeed if some mogul like Musk or Bezos, a celebrity like Clooney or Cruise, or a politician like Obama or Trump, suddenly got a bad case of hyperacusis, the tide would change.