Has Anyone Had Distortion/Reactive Tinnitus Go Completely Away?

Discussion in 'Support' started by GBB, Oct 8, 2020.

    1. GBB

      GBB Member

      Location:
      NYC
      Tinnitus Since:
      2020
      Cause of Tinnitus:
      Microsuction / Additional Acoustic Trauma in Close Proximity
      I realized today if I stay in near silence, my tinnitus goes down to very low levels, almost imperceptible. However, as soon as I turn on a TV or take a shower or anything, 2 things happen.

      1) External noise carries with it a squeaky sound - this for me is the worst. If I could get rid of this I could mask my tinnitus. It seems to come with everything. My understanding is this is distortion/reactive tinnitus which are part of hyperacusis.

      2) My baseline tinnitus goes up after exposure to noise, which is bothersome but not as problematic as 1.

      Everywhere I look, people talk about H sort of subsiding, and distortion sort of getting better, but it’s never clear cut. I can’t live my life with a squeak plying after every noise. I need to know someone has had distortion go completely away to give me hope, otherwise I’m gonna go nuts.

      I will try Keppra, but has anyone has this distortion go away?
       
      • Hug Hug x 1
    2. StayCalm
      No Mood

      StayCalm Member

      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      SSHL (moderate) in LE
      Following this thread like my life depends on it ; )

      I truly believe if it I could get past the reaction/distortion effect, either because it fades or because I don't notice it, I'd be on my way back to a normal life.
       
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    3. Selah1281

      Selah1281 Member Benefactor

      Location:
      Bustown, OH10
      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Unknown
      I believe @Jason C had total resolution of reactive tinnitus. He has mentioned in his posts that music sounded broken to him, but I’m not sure if he had the sound overlay issue you are having. He does mention his tinnitus volume reacted to external noise.

      He now seems to have silence besides several episodes of fleeting tinnitus per day from his reports on here. Maybe you should message him.
       
      • Informative Informative x 1
    4. weab00
      Alone

      weab00 Member Benefactor

      Location:
      depression-ville
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      noise, whiplash; 08/20 H
      Same man. Music sounds distorted. And if I get a spike or setback the reactivity gets 10x worse. Fans, running water, wind, fridges, and any loud noise sounds like there's a whistling sound on top of it. Most maddening part of hyperacusis besides the pain.

      If I can get past the pain and distortions and be able to listen to music, my life would be nearly normal again and I'd have enough patience to wait for regenerative cures in the pipeline.
       
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    5. Zigs

      Zigs Member

      Tinnitus Since:
      2009
      Cause of Tinnitus:
      Ear infection
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    6. Selah1281

      Selah1281 Member Benefactor

      Location:
      Bustown, OH10
      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Unknown
      Your profile says you’ve had tinnitus since 2009. When did it become reactive?

      I’ve only had mine a little over a year now, but it’s been reactive the whole time.
       
    7. Raphael7713
      Alone

      Raphael7713 Member

      Location:
      Stockholm, Sweden.
      Tinnitus Since:
      January 14, 2017.
      Cause of Tinnitus:
      Not sure
      I've had distortion and reactive tinnitus several times. It went away every single time.

      *knock on wood*
       
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    8. PugDog1

      PugDog1 Member Benefactor

      Tinnitus Since:
      January 2019
      Cause of Tinnitus:
      Low iron, low b12, chronic sinusitis
      I get the distortion really bad sometimes.

      After a CT scan it was found I had really diseased sinuses on that side and when they were really infected my tinnitus/distortion would go through the roof.

      Maybe worth getting a scan done to rule it out! X
       
      • Useful Useful x 1
    9. StayCalm
      No Mood

      StayCalm Member

      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      SSHL (moderate) in LE
      @GBB @Zigs @weab00 @Selah1281 do any of you have a vaguely foggy head sensation most of the time? I'm getting an MRI next week but for some reason I feel like it's just my brain being overtaxed with all the weird signals. I'm also just now tapered off prednisone, and my ENT thinks that could be the cause, or maybe just lingering issues from whatever caused my sudden hearing loss. It's not vertigo or even really dizziness.

      Also, are any of you still working full time? I'm hanging on for dear life, but a big part of my job is being "on" for video calls with colleagues and clients, and I'm not sure how I'm going to pull this off. Would love to trade tips if you have any

      (apologies for presuming that we are all in the same boat if it comes across that way)
       
    10. AUTHOR
      AUTHOR
      GBB

      GBB Member

      Location:
      NYC
      Tinnitus Since:
      2020
      Cause of Tinnitus:
      Microsuction / Additional Acoustic Trauma in Close Proximity
      I have had a weird head buzzing sensation that felt like my brain was getting bombarded at times, almost like there were hidden frequencies zapping my brain, but not all of the time, just infrequently. It's very weird and particular so may not be what you are describing.

      I'm on leave from my job right now since September, but hoping I can improve enough to return at some point. I likely will be out at least until December, if not longer.

      I know what you mean about dealing with client and colleagues - since this has happened I've had a crazy short temper - especially for people just shooting the shit and talking about non work-related stuff. I feel like my ears have a budget now, especially with compressed phone and video chat noise which is really grating for me. It's really damn tough in that regard.

      Weirdly, one thing which is helping me is @R. David Case's Tinnitus Mix. It's kind of abominable to listen to and almost comically cacophonous, but it's so busy that I can't isolate and hear my tinnitus among it. Before this nothing would mask my tinnitus because it would be too steady, and so my brain would hear and isolate the tinnitus tone, but this is so unpredictable, I can sort of give my brain a rest. I know it sounds nuts but it feels really nice to just shut off - I think my brain is being hypervigilant and just creating the tinnitus wherever it can - with this, it is utterly perplexed. I have multiple sounds that cycle, and sometimes it seems like listening to this for a while will kind of give me a skip track on the more annoying ones.

      Edit: It's also so random that even though I'm sure my brain is distorting tones, I can't discern the distortion from the rest of the chaos, so it really feels like a break from the tinnitus.
       
      • Informative Informative x 1
    11. Selah1281

      Selah1281 Member Benefactor

      Location:
      Bustown, OH10
      Tinnitus Since:
      06/2019
      Cause of Tinnitus:
      Unknown
      No, I don’t have a foggy feeling. I have lots of pressure in my face and jaw. I also have a constant feeling of imbalance, but I had a ear surgery that I think has caused this vestibular issue.

      No, I don’t work and I haven’t since I got tinnitus, hyperacusis and TTTS.
       
    12. StayCalm
      No Mood

      StayCalm Member

      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      SSHL (moderate) in LE
      This is 100% me right now. I literally just drop off calls if it's internal and people are rambling or even remotely off topic. My coworkers know what's going on with and I'm probably still coming across as a psycho haha.

      @Selah1281 I think my fogginess is more like imbalance, actually. I haven't noticed much in the way of memory or critical thinking issues now that I think of it, and all things being equal, I was half expecting them.

      Sorting of jumping topics, buy if it helps anyone, I forced myself to meet up with friends at the beach today, and it wasn't half bad. The super loud NorCal wind and surf, which is not supposed to be the most pleasant part of the beach experience here, really helped cover up the sound distortions. I was terrified to go but I'm so far I'm glad I did. Home now in the quiet and not paying the iron price yet, so we'll see.
       
      • Hug Hug x 2
    13. Margrietje
      Stalking

      Margrietje Member

      Location:
      Belgium
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Probably eczema
      I've only experienced it once, two years ago. I was terrified really, I heard my own voice twice each time I spoke. Luckily it was bed time so I had an excuse to disappear. I remember that the next morning, I whispered something to myself - scared to death - and I had to try a few times before I dared to use my "normal" voice. The echo was gone, and it came back only once one year later, also in the evening. Maybe it's a coincidence, but both times were during the exams so I link my experience to stress. However, if it's continuous I have no idea...

      One of my friends was born deaf, but she can hear thanks to a very expensive hearing machine (not sure about the English terms here, sorry!). She has this "metal plate" in her head which is connected to two magnets on both sides of her head. She told me that when her left and right magnets aren't getting an update regularly, she also gets hearing distortion because one ear (and so one side of the brain) gets different information compared to the other one. This won't probably help you...
       
    14. StayCalm
      No Mood

      StayCalm Member

      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      SSHL (moderate) in LE
      @GBB ok, just tried Tinnitus Mix and you weren't joking - it not only overwhelmed my tinnitus, but also sent my cat fleeing in terror haha.
       
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    15. weab00
      Alone

      weab00 Member Benefactor

      Location:
      depression-ville
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      noise, whiplash; 08/20 H
      This distortion sucks man, still have it 2 months later.
       
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    16. AUTHOR
      AUTHOR
      GBB

      GBB Member

      Location:
      NYC
      Tinnitus Since:
      2020
      Cause of Tinnitus:
      Microsuction / Additional Acoustic Trauma in Close Proximity
      Ya, I'm not sure if it has any healing properties, but it was a nice change from the incessant tones I had been experiencing...
       
    17. weab00
      Alone

      weab00 Member Benefactor

      Location:
      depression-ville
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      noise, whiplash; 08/20 H
      I always have distortion, although I find it tends to get worse after too much noise exposure or a setback. Probably has to do with inflammation.
       
      • Agree Agree x 1
    18. StayCalm
      No Mood

      StayCalm Member

      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      SSHL (moderate) in LE
      @GBB how are you doing? I'm having maybe some not-as-bad days, I think.
       
    19. AUTHOR
      AUTHOR
      GBB

      GBB Member

      Location:
      NYC
      Tinnitus Since:
      2020
      Cause of Tinnitus:
      Microsuction / Additional Acoustic Trauma in Close Proximity
      I've been having some better days on Pramipexole, but last night I decided to watch a movie on my laptop at 50% volume - it was a 3 hr film so maybe a bit long. I woke up this morning as bad as ever, so maybe shot myself in the foot a bit with that one.

      Hoping it goes back down as I feel pretty miserable today. I'm glad to hear you are faring better!
       
      • Hug Hug x 1
    20. StayCalm
      No Mood

      StayCalm Member

      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      SSHL (moderate) in LE
      @GBB hope you have more good days coming up as well!
       
    21. AUTHOR
      AUTHOR
      GBB

      GBB Member

      Location:
      NYC
      Tinnitus Since:
      2020
      Cause of Tinnitus:
      Microsuction / Additional Acoustic Trauma in Close Proximity
      If my tinnitus lowers I swear to God I'll become an activist.

      Has your tinnitus improved? If so congrats!
       
    22. StayCalm
      No Mood

      StayCalm Member

      Tinnitus Since:
      08/2020
      Cause of Tinnitus:
      SSHL (moderate) in LE
      I can't tell yet to be honest, but I'm definitely doing a little better in the past week or so. I'm not obsessing over it as much, and can do some simple things like have a phone or Zoom call and not be consumed by listening for distortions. When I'm not obsessing over it, I believe I perceive the volume as being a little lower. Then, sometimes because I foolishly check in on it and other times because it has a life of its own, it becomes very loud again.

      I'm still a long ways out from being even 50% of my old self - like, right now I couldn't meet with up friends (outdoors and safe etc etc) and be truly present for them and not constantly thinking about (and feeling sorry for myself about) my tinnitus, hearing loss, sound distortions, and so forth. But, doing something like that doesn't seem entirely impossible in the future now, and in the first half of October I had almost no hope for anything along those lines.

      Have you tried working with a tinnitus counselor or similar yet? I just started working with one and it has helped.

      Also, and I won't knock this board because it has been a lifeline to me in so many ways, cutting back on my visits to Tinnitus Talk and other online tinnitus resources has been a helpful.
       
      • Like Like x 1
    23. Ava Lugo

      Ava Lugo Member

      Tinnitus Since:
      10/03/19
      Cause of Tinnitus:
      Virus
      In a way, you are lucky you have to “look for“ your distortions because mine are right there. I notice mine every single second except when in a quiet room. I would love for mine to be mild enough to have to “look for” or “check in” on them because it would at least give me some hope it would go away someday. The more noise I’m around, it seems the louder the distortions get...
       
    24. weab00
      Alone

      weab00 Member Benefactor

      Location:
      depression-ville
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      noise, whiplash; 08/20 H
      Agreed that the distortions are terrible, probably the second worst part of hyperacusis besides the stabbing pain. Basically I have had to stop listening to music because of sound distortions; it makes the frequencies blend together and the mix sounds like a mess. I think it's probably either caused by damaged OHCs or inflammation or both. Our brains have trouble processing all the sound due to hearing loss so some of the frequencies sound like a "whistling."
       
    25. Ava Lugo

      Ava Lugo Member

      Tinnitus Since:
      10/03/19
      Cause of Tinnitus:
      Virus
      What do you do to get through the day without music and YouTube?
       
    26. weab00
      Alone

      weab00 Member Benefactor

      Location:
      depression-ville
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      noise, whiplash; 08/20 H
      Nothing with sound. All sound triggers hyperacusis. Although sound from my family is unavoidable. Trying to learn graphic design, browsing Reddit, crying. Hate my new hyperacusis life.
       
      • Hug Hug x 1
    27. Ava Lugo

      Ava Lugo Member

      Tinnitus Since:
      10/03/19
      Cause of Tinnitus:
      Virus
      Hey have you ever read on here from people who say their tinnitus is severe but yet they say they don’t hear tinnitus when listening to music so they enjoy it just fine?

      I don’t understand how some who claim their tinnitus is severe talk about how they still go to cinemas with ear plugs and music sounds fine but yet when I try and listen to music and it doesn’t really matter what type of music it is but I’ll hear a whistle or beeps on top of it so I don’t understand how you can have severe tinnitus and not hear it in music yet these same people hear tinnitus over everything and music sounds great to them? I don’t get it.

      I think maybe their tinnitus is not really that severe or maybe they don’t have dysacusis? As dysacusis is a bit different than just hearing tinnitus over everything?

      I’m still learning about this.
       
    28. weab00
      Alone

      weab00 Member Benefactor

      Location:
      depression-ville
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      noise, whiplash; 08/20 H
      Tinnitus is scary at every level so everyone thinks they're a severe case. I try not to participate in the suffering Olympics.
       
    29. dan
      Chatty

      dan Member Hall of Fame

      Location:
      Toronto, Canada
      Tinnitus Since:
      06/2011
      Cause of Tinnitus:
      Loud noise
      Free Willy activist? :rockingbanana:
       

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