I Believe I Will Be on Lifelong Antidepressants If I Am to Live Out My Life with Pulsatile Tinnitus

Discussion in 'Support' started by Myra Cingolani, Feb 7, 2016.

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    1. Myra Cingolani

      Myra Cingolani Member

      Tinnitus Since:
      06/2014
      I am a 66-year-old female. I experienced an episode of extreme vertigo, night sickness, dizziness, and a whooshing ear one night during June, 2014. I went through the usual visits to many types of doctors, had the carotid artery Doppler, and also head MRIs. The concentration at the beginning was to get rid of the dizziness with head maneuvers by a physical therapist. Also for several weeks I suffered through a type of night sickness where I felt like I was likely to die. It was hard to distinguish the ear pulsing from the other problems for many many weeks. However, the other problems gradually began to disappear, and I began to realize I had a permanent pulsing in my left ear.

      I began making trips to a well-known ear clinic out-of-state, which involved a 360 mile round trip. During this time, which was August, 2014, my husband died totally unexpectedly. I felt as if my grief and my ear pulsing were going to cause me to go mad. The specialist at this ear clinic thought I might have had the beginnings of Meniere's disease. He performed two ear perfusions, which didn't stop the pulsing. He told me at that point there was nothing else to be done, that I had pulsatile tinnitus--that they didn't really know the cause, that there was no medication for it, nor surgery for it. He advocated "white noise" whenever possible, a salt-free diet, no caffeine, and walking. I was already on Zoloft, given by my local GP, just trying to survive my extreme grief and ear-pulsing.

      I have begun having problems distinguishing what people are saying now, and know I probably need to get a hearing aid. My grief over my husband is subsiding a bit, but oh, the ear whooshing is enough to cause any sane person to go off the deep end! Sometimes, it seems to wane a bit where I can barely hear it, then other times, it stays very pronounced for long periods of time. There seems to be no rhyme or reason to the intensity of the pulsing.

      I am new to this site so will be interested to read other blogs. And--most especially--if there is ever any research to help!!! It's overwhelming to think of living out what is to be the rest of my life with this terrible terrible condition.
       
      • Hug Hug x 2
    2. Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      Hi, Myra. I don't have pulsatile tinnitus and can't address your questions, but I'm tagging @Karen who is extremely knowledgeable about it. She has pulsatile tinnitus and has helped many people here.

      Edit to add, if you click on her name, it will take you to her profile and you can read messages she's posted on Tinnitus Talk. That will help to ease your anxiety. :huganimation:
       
    3. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi,@Myra Cingolani,

      I'm so sorry you're struggling with pulsatile tinnitus, and my heart goes out to you on the loss of your husband.

      I also have pulsatile tinnitus, and have been to a number of doctors and had several tests. So far, a cause hasn't been found for mine. I've been taking a break from going from doctor to doctor about my PT, and have been trying to live with it. For me, the things that seem to work best are distraction (keeping busy), following a healthy diet, getting daily exercise, and taking natural supplements such as magnesium. I've heard that for some people, a magnesium deficiency may be the cause of their PT, so it is possible that you could benefit from taking it (at least 500 mg per day).

      You could consider going to a different type of specialist, such as a neurologist or neurosurgeon, to see if they can help you or do additional testing to find the cause. Also, I've heard that there is a recently opened clinic in the San Francisco Bay area that specializes in pulsatile tinnitus, and you could consider sending your scans there for a second opinion.

      Did you ever get rid of the dizziness/vertigo? Also, what type of night sickness did you experience, and are you still having it?

      I hope you are doing all right this evening, and I certainly understand what you're going through.

      Best wishes and hugs,
      Karen
       
      • Friendly Friendly x 1
    4. James
      No Mood

      James Member Benefactor

      Location:
      California
      Tinnitus Since:
      Pulsing 03/2013
      Hello @Myra Cingolani

      Sorry to read about your pulsing tinnitus. I have it too. What gets me is when the pulsing gets loud - its terrible. I can relate to what you wrote. The more I think about it, seems like medication caused mine. I have taken an anti-depressant to help, but thats becoming an issue in itself now. So I wonder too, will I be on AD medcation for the rest of my life? How can any one sleep like this?

      I sure wish the medical field solves this condition. And I wish I had one thing I could do to make it better, I have not found that. I hope we all get better. Take care.
       
      • Like Like x 1
    5. aida

      aida Member

      Tinnitus Since:
      november 2015
      Cause of Tinnitus:
      unknown
      Sorry to read this but must be positive and have faith. Try the apple cider vinegar with honey and water. All organic. drink 3 times a day and use fresh mashed garlic juice mixed with castor or sesame oil and drop 2 or 3 in ear at bedtime. All are antibiotic, antiviral, anti inflamatory and help in reducing if not ending the noise and ringing, pusling, etc... eat alot of pineapple or drink organix pinapple juice pure 100 percent... I blend a whole pineapple and make sure I drink it all mixed with purified water during the day, alot of water also... keep dehydrated. I am also doing all the above ... stay in touch, do not despair and I also
       
    6. Sara_Bond
      Cool

      Sara_Bond Member Benefactor

      Location:
      France
      Tinnitus Since:
      28.10.2015
      Cause of Tinnitus:
      Noise exposure

      @aida

      Hi Aida,

      I've been told for the apple cider vinegar, have bought a bottle but didn't try the treatment. Does it work for only for PT?

      Thank you
       
    7. James
      No Mood

      James Member Benefactor

      Location:
      California
      Tinnitus Since:
      Pulsing 03/2013
      Hi @aida

      Funny that you mentioned the pineapple. I was eating a (whole) pinapple slices, beleive it or not, I thought it helped.
      Don't know why, maybe there's something to pineapple. Thanks for the reminder, to eat pineapple.
       
      • Like Like x 1

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