Ideas and Suggestions for Future Episodes

Discussion in 'Podcast' started by Tinnitus Talk, Mar 3, 2019.

    1. Tinnitus Talk is a podcast on all things tinnitus.

      We aim to engage and inform you, bringing you fresh insights and updates on research, treatments, personal experiences and public awareness. Our hosts – who all have tinnitus themselves – interview tinnitus researchers, healthcare providers and advocates, and bring you real life stories from tinnitus patients.

      We want our podcast to be as interactive as possible and fulfil real needs and interests you might have.

      So…. Do you have an idea for a future episode? Let us know about it!

      Please comment below with your suggestions for guests to invite or topics/themes to explore, or anything else you’d like to see us feature in the podcast.

      We put a lot of time and effort into our podcast!

      There's a lot more that goes into creating a podcast than you might think. Check out below an overview of the number of volunteer hours that go into just one episode.

      hours-per-tinnitus-talk-podcast-episode.png

      Are you keen to help with our podcast?

      Let us know here, or send a PM to @Markku and @Hazel.

      Help is needed in areas like: finding and inviting interesting guests, hosting episodes, recording short segments that we can feature in our episodes, audio editing, and social media outreach.

      Looking forward to hearing from you guys!

      Would you support us financially?

      Podcasts are not created out of thin air. Apart from the 100s of volunteer hours that go into this, we spend money on it as well - partly out of our own pockets, since we operate on a very limited budget.

      We set up a Patreon page for listeners who would like to directly support the podcast with financial donations. Patreon is a crowdfunding membership platform where creators can run a subscription content service, build relationships and provide exclusive experiences to their subscribers, or "patrons".



      become-a-tinnitus-talk-patron.png

      Thank you!
       
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    2. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Try if it is possible to get Hyperacusis Research and their president Bryan Pollard to do a discussion on hyperacusis, noise induced pain and how they may relate to tinnitus in both the sufferers' lives and related pathologies.

      https://hyperacusisresearch.org/

      Thank you.
       
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    3. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Excellent suggestion! We have been in touch with them in the past, so this should be possible, Bryan's schedule permitting of course. Thanks!
       
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    4. jay777

      jay777 Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      benzo/ headphones
      Professor Dirk De Ridder should be interviewed in an episode of Tinnitus Talk Podcast.
       
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    5. TimmyC
      Innocent

      TimmyC Member Benefactor

      Location:
      Vancouver, WA
      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      ETD possibly, or neck and jaw, or maybe anxiety?
      Hubert Lim or Susan Shore. Although both are very busy, I bet Susan Shore is not as busy as Lim, as he is currently touring the conference circuit.

      An expert on bimodal stimulation would make for a very fun podcast guest.
       
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    6. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Great ideas!

      Susan Shore has already tentatively agreed to be on the podcast, due for hopefully later this year. She wanted to postpone the interview a bit because of the trial.

      Richard Tyler has already been confirmed and interview date set (the podcast will likely be out in April) -- he was just recently appointed to Neuromod's Clinical Advisory Board.
       
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    7. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      A comprehensive analysis of all the methods they are using to attempt to regenerate damaged cochleas.
       
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    8. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Who would be your ideal interviewee for this topic? Give a few names if you will.
       
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    9. lapidus

      lapidus Member Benefactor

      Location:
      Sweden
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Noise induced
      Bryan Pollard for sure.
       
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    10. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Maybe no one. Just a breakdown of what's out there?
       
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    11. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Interview Contrast about hunting scammers!
       
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    12. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      I like that idea a lot. An episode on scams and charlatans. Contrast could join in for a segment, Jack could do a bit, someone else could be interviewed as well for a part, etc.
       
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    13. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Fantastic idea - and totally agree, having Bryan Pollard on the podcast would be great.

      I have now sent him an invite.
       
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    14. TuxedoCat
      No Mood

      TuxedoCat Member Podcast Patron Benefactor Ambassador Advocate

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      Is there someone at BTA (doesn't have to be David) or ATA who knows the regulatory aspect of these products and how they can make the claims they do?
       
      • Good Question Good Question x 1
    15. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      Can it be famous people with tinnitus or political/key people that can push for more funding for tinnitus??
      Or even key people that can provide funding for research?? Just thinking outside the box.

      Instead of making one 45 minute podcast for each person, maybe we can combine small 15 min interviews with some of these into one podcast?

      Love all the work you guys are doing.
      Once
       
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    16. Manny
      Dead

      Manny Member Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      Don't know if this is realistic and timely, but - Will McLean!
       
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    17. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Wow that nested comment makes me feel like a baby marsupial nested in the pouch of my mommy kangaroo @Markku.
       
    18. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I have reached out to Frequency Therapeutics a couple of times and haven’t really heard back. Will keep trying though.
       
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    19. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      I was thinking we should do a dedicated episode on scams. Ideas on who to interview for that are welcome!
       
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    20. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      I'll think about participating in this episode sometime in the future, likely yes, I just need time.
       
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    21. TuxedoCat
      No Mood

      TuxedoCat Member Podcast Patron Benefactor Ambassador Advocate

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      ATA did a podcast on OTCs, the guest was Dr. Robert DiSogra who is an audiologist. To quote Starthrower it's more blah, blah, blah.

      DiSogra says right at the start that "the real story is ... the [US] Food and Drug Administration has not approved any of these products for tinnitus relief. There are over 80 products on the market right now coming from all different parts of the world, mostly here in the US. These are dietary supplements blah, blah, blah, the research is vague. There's loopholes in the law here (US) that allow manufacturers to make these claims for tinnitus relieve... they don't have to prove it. Blah, blah, blah. But as long as you put the disclaimer on the label that says "These statements have not been evaluated by the FDA. The product is not intended to diagnose, treat , cure or prevent any disease."

      Tinnitus is not a disease, it's a symptom.

      So unless the loopholes are closed these products can be sold legally. Is that a scam?

      Why isn't closing the loopholes an ATA objective? It just goes back to the question, what does ATA do all day?

      So, as far as a Podcast goes, it would be fun to hear how Contrast chases these guys down and gives them a hard time, but in the long run is anything going to change? These scams may become like a phoenix rising from the ashes.

      If there were effective treatments and a cure, there would be no market for this stuff and it would go away or people would take it for what it is, a dietary supplement for health reasons and not for relief and cures.

      Just keep that in mind. Maybe @Contrast has more up his sleeve!


      TC
       
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    22. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      Could you discuss this on an episode?: How do you get people whose tinnitus is no issue to them to understand the full extent of tinnitus and how debilitating it can get.

      We would have more people on our side if the amount of suffering tinnitus can cause was more widely known.
       
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    23. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      I think it's an excellent idea to do an episode on how tinnitus severity is a scale. Not just in terms of loudness variance, presence of hyperacusis and other co-morbidities, but also just how people experience it differently and can be impacted differently. "My tinnitus is not your tinnitus," basically.

      I actually think this goes both ways, because I also see severe sufferers on this forum telling others that they shouldn't complain when they struggle with milder tinnitus or with other life issues. That seems very insensitive to me, and I sort of resent this attitude of "my suffering is worse than yours." We can never truly understand what someone else is going through, and therefore we shouldn't try to compare, and certainly not judge. Well, that's my opinion anyway :)

      In any case, yes, let's do an episode on severity!
       
      • Agree Agree x 5
    24. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Update on Bryan Pollard (Hyperacusis Research)

      He graciously accepted the invite. We're hoping to do the interview this April.

      (Thanks @lapidus / @Contrast for the idea.)
       
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    25. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      @Hazel - yes let me know when.
       
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    26. Tanni
      Devilish

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      Not sure where this forum is actually based? But someone like Sarah Newton, MP for Disabled People, Health and Work (or a representative from that office) would be pretty cool.

      Would be interesting to see what the government's stance on tinnitus actually is.
       
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    27. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      We're not based in any particular place, all in different countries. But the great thing is we don't have to visit people in person to record interviews with them (although that is of course preferable where possible).

      Really good idea, duly noted. Maybe it could be part of an episode on tinnitus and work, for instance.
       
      • Agree Agree x 1
    28. Tinniger

      Tinniger Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Uncertain, now very somatic, started with noise?
      Maybe something about somatic tinnitus. :)

      Is Dr. Robert Aaron Levine still practicing?
       
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    29. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Noise-induced
      • Agree Agree x 4
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    30. Tanni
      Devilish

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      Another idea that I've been thinking about recently...

      Maybe you could get hold of a charity marketing expert to talk about how best to fund raise. Someone in the same sort of area as Dan Pallotta, who specialises in fundraising specifically for charities. Tinnitus for sure has a public perception problem, as mentioned recently by David from BTA I believe...
       
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