Ideas and Suggestions for Future Episodes

Discussion in 'Podcast' started by Tinnitus Talk, Mar 3, 2019.

    1. Jurger

      Jurger Member

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Hearing loss
      A thousand times this.

      Also someone from the Bionics Intitute. They made the news around a year ago with a new method for nanoparticles in the inner ear.

      “I used to say to my patients, forget it, not in my lifetime; you are not going to see a cure for hearing loss. Now, I’m back to dreaming again, and it’s really exciting.” Dr Sherryl Wagstaff (ENT surgeon and clinical collaborator).”

      http://www.bionicsinstitute.org/restoring-the-magic-of-hearing/

      https://www.abc.net.au/news/2018-11...ible-for-common-form-of-hearing-loss/10477498
       
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    2. UKBloke
      Caffeine

      UKBloke Member Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      There's something so compelling about the work that V S Ramachandran did with his Mirror Box treatment of Phantom Limb Pain that I can't help thinking there must be some important and potentially useful similarities between this and the presentation and treatment of tinnitus. I've actually posted a link to this incredible video in another area of Tinnitus Talk today but I'd like to post it again:

      Phantom Limb Mirror Box video


      Although he doesn't appear to specialise in tinnitus it'd be fascinating to hear his views on it and even potential treatments. Could we reach out to him to see if he would give an interview? His contact details are on this page: http://cbc.ucsd.edu/people.html
       
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    3. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
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    4. all to gain
      No Mood

      all to gain Member Podcast Patron Benefactor

      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      I've not listened to any of the Tinnitus Talk Podcast episodes yet.

      Has anything been done on ototoxic medications?

      1. How about getting Neil Bauman on? He wrote a book on the matter. I know some people on here maybe don't see him as legit as he isn't a medical doctor, but it would be good to get his take on the subject and why medical doctors know so little about it. And you could ask him what the medical community thinks of his work.

      2. Someone form Nottingham University (UK) such as Professor David Baguley. He studies about ototoxicity:
      Could also ask him why there is so little/no drug research being done in the UK to find a cure.
       
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    5. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Can you do a podcast with Julian Cowan Hill?
       
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    6. Defiant-Decay

      Defiant-Decay Member

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Loud noise/ music in headphones
      Could you maybe get Sierra Domb and Dr. Peter Goadsby on to talk about visual snow and its relationship to tinnitus?
       
    7. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Hey! Good idea :) As it happens, we've been in touch with VSI already last year and Sierra has said yes to being on the Tinnitus Talk Podcast. I'm confident we can get Dr. Goadsby to join her. I'm sure it's going to be a great episode!
       
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    8. Badger19

      Badger19 Member

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Unknown
      I second Stefan Heller. A brilliant and very nice person.
       
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    9. Defiant-Decay

      Defiant-Decay Member

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Loud noise/ music in headphones
      THANK YOU SO MUCH.
       
    10. MrCrybaby

      MrCrybaby Member Benefactor

      Tinnitus Since:
      2014, 10/2019
      Cause of Tinnitus:
      School Band, Noxious Car Radio
      Talking to Dr. Liberman from Mass Eye and Ear about his research on hidden hearing loss/synaptopathy and mechanisms of noise induced pain could be really informative and interesting. I think it would be good for more patients to be aware of his research.
       
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    11. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Deepak Chopra
      upload_2020-3-1_12-47-52.png

      The many worlds interpretation of Quantum Physics tells us that the particles that make up your damaged cochlea in this Universe are also existing in an alternative Universe where your cochlea is healthy and normal. You can tap into the realm of the Quantum and cure yourself!

      upload_2020-3-1_12-51-43.png
       
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    12. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Okay seriously, you guys should go with Dr. Liberman and his research on cochlear neuropathy!
       
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    13. serendipity1996
      No Mood

      serendipity1996 Member Podcast Patron Hall of Fame

      Tinnitus Since:
      2011 - T, 2016- H, relapsed 2019
      Cause of Tinnitus:
      noise-induced
      Yess seconded. He's also appeared in a number of TV segments about hearing problems e.g a news report on Joyce Cohen and also other cases of severe hyperacusis so he seems very genuinely receptive to engaging with the patient community.
       
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    14. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
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    15. aot
      Depressed

      aot Member Benefactor Hall of Fame

      Location:
      USA
      Tinnitus Since:
      2016. Worsened 11/2019.
      Cause of Tinnitus:
      Probably noise induced, worsened due to noise exposur + flu
      Is the VSI interview still planned? I know things are crazy with COVID-19, but I'm just curious. (And a bad experience with my VS this morning has me a bit on edge.)
       
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    16. humptydumpty69
      Cowabunga

      humptydumpty69 Member

      Location:
      Southeastern USA
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Noise exposure
      So, this might be a stupid question, but since I imagine there are others here besides myself who not able to listen to audio, is there any way that you guys could publish transcripts of some of the episodes? Perhaps you already do but I'm just ignorant to it? I'm really not trying to make more work for volunteers.
       
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    17. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Hey there, thanks for asking. Indeed, we do! It's an extra effort we make to accomodate those with hearing issues.

      You can find the transcript on the episode page, by clicking the CC button to the right-hand side of the player (I've circled it below in red):

      Screenshot 2020-05-15 at 15.53.29.png
       
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    18. vermillion
      Whistles

      vermillion Member Podcast Patron Benefactor

      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Possibly from Fluconazole / H + Dysacusis later on
      I guess it might have been mentioned already on previous pages (I haven't read the whole thread), but an interview with Prof. Charles Liberman would be interesting as well, wouldn't it be?
       
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    19. Lucifer

      Lucifer Member Podcast Patron Benefactor Hall of Fame

      Location:
      Prison
      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      Any possibility of interviewing the FDA?
       
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    20. LostOutWest
      Not amused

      LostOutWest Member Benefactor

      Tinnitus Since:
      09/2019
      Cause of Tinnitus:
      Unknown
      @Hazel, @Markku huge thank you for all you do for this community with these hopeful interviews.

      Suggestion: on the heels of the wonderful FX-322 episode, it would be interesting to get Pipeline Therapeutics' CEO Carmine Stengone on the Tinnitus Talk Podcast. Their drug is not specifically testing for tinnitus as an efficacy endpoint, but it is focused on cochlear synapse repair and hearing regeneration. Perhaps we could get more information as to whether they believe their drug could help tinnitus.
       
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    21. Michael01
      Frustrated

      Michael01 Member

      Location:
      Grafton,NSW,Australia.
      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown
      I'd second that.

      Maybe also another interview with Frequency Therapeutics for updates on FX-322 and how's it going?
       
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    22. Philip83
      Jaded

      Philip83 Member Podcast Patron Benefactor

      Location:
      Sweden
      Tinnitus Since:
      2001
      Cause of Tinnitus:
      Moped (2001) Noise blast (2014) Club (2017) Snowboard (2018)
      Sound Pharmaceuticals?
       
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    23. zozil_radical

      zozil_radical Member

      Tinnitus Since:
      09/2020
      Cause of Tinnitus:
      Noise from MRI Machine
      Maybe Dr. Karl Koehler would be interesting, if he could explain his research in a way that is accessible to non-experts. He does interviews/podcasts.
       
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    24. Aaron91
      Gloomy

      Aaron91 Member Podcast Patron Benefactor Ambassador Advocate

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Loud music/headphones/concerts - Hyperacusis from motorbike
      1 vote for Liberman.
      2 votes for Liberman.
      3 votes for Liberman.
      4 votes for Liberman.

      And here's a fifth vote for Liberman. Perhaps you have already tried to make this happen or are already working on it, but if not, please, please try to get this man on the Tinnitus Talk Podcast. Perhaps Bryan Pollard can put us in touch?

      I'd be more than happy to help with any prep for this, and if my ears can handle it, sit through the podcast on the day as well and jump in if needed.
       
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    25. Nobody19

      Nobody19 Member Podcast Patron Benefactor

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Clubbing
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    26. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Just confirmed: Dr. De Ridder will be joining us for the Tinnitus Talk Podcast this spring. (y)

      Next up, as previously announced, will be Otonomy in March.
       
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    27. weab00
      Gloomy

      weab00 Member Benefactor

      Location:
      Joe Dart's basement
      Tinnitus Since:
      05/2019
      Cause of Tinnitus:
      some good mf music
      I wonder if they'll be allowed to discuss the recent trial delay?
       
    28. Nobody19

      Nobody19 Member Podcast Patron Benefactor

      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Clubbing
      I'm really looking forward to both episodes, keep up the good work!
       
    29. Aaron91
      Gloomy

      Aaron91 Member Podcast Patron Benefactor Ambassador Advocate

      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Loud music/headphones/concerts - Hyperacusis from motorbike
      In addition to Liberman, I would also like to see if we could have Paul Fuchs on the Tinnitus Talk Podcast - I'm sure others would too.
       
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    30. VeryUnfortunate
      Stressed

      VeryUnfortunate Member Benefactor

      Tinnitus Since:
      2020
      Cause of Tinnitus:
      Acoustic Trauma
      I agree with @Philip83. I think Sound Pharmaceuticals would be a good idea to interview as well.
       
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