Introducing My New Book "Living With Tinnitus"

Discussion in 'Support' started by Cheza, Jan 10, 2018.

    1. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      My apologies, it is available in Canada. :)

      Freebie available through Monday so hopefully you still have time to let your group know. Three out of eight, that's a lot!
       
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    2. Cal18
      Nerdy

      Cal18 Member Benefactor Advocate

      Location:
      San Diego
      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      2010 / 2016 Both SSRI Withdrawal and Mild Hearing Loss
      @Cheza I loved your section on cycling tinnitus which is exactly what I have. I also agree that someone with this type of tinnitus is a novel test subject since they can be ultimately tested against themselves.

      I have really been researching this in depth and I feel it seems to be linked with cortisol. I'm going to be doing some cortisol testing on myself on high, medium and low days for comparison. Please let me know if you're interested in seeing the results.
       
    3. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      Yes, I'm interested, definitely. Also please see the section on BDNF (brain derived neurotrophic factor). If you can get tested for that, it might add more clarification. Low BDNF plasma levels are linked to greater tinnitus severity, but I don't know how closely related timewise the levels are to severity.

      What product are you using to do the testing?
       
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    4. attheedgeofscience
      No Mood

      attheedgeofscience Member Mighty Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Resolved since 2016
      Cause of Tinnitus:
      See information page
      You could simply ask me for peer-reviewed statistics on tinnitus prevalence and I will gladly share my knowledge and provide access to paywalled journals so that you do not have to rely on informal hypothesis testing such as book sales (which ultimately does not confirm anything in the scientific sense).
       
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    5. PamelaNY

      PamelaNY Member

      Location:
      New York
      Tinnitus Since:
      09/2017
      Cause of Tinnitus:
      Unknown
      Thanks so much for making this available, Cheza! I downloaded it and look forward to reading it. Good luck with the book!
       
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    6. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      I didn't download because any reading on tinnitus that doesn't help me get closer to a reduction is wasting my time.
       
    7. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      You're very welcome, and to answer your question about the doxylamine succinate, I have never had any side effects from taking it. I still take only 12.5mg (I'm about 115 pounds), and I take it more often than not. In other words, I never stopped taking it for more than a few days at a time. I tend to work late hours now, and it makes it easier for me to go to sleep instead of thinking about work.

      It's never given me any kind of side effects at all, and I'm not on any other medication. I don't take melatonin anymore, but honestly that would probably be a healthier choice and I should think about switching back to that, and to use the doxylamine succinate only when absolutely necessary. The tinnitus really doesn't keep me from falling asleep anymore, and it doesn't wake me up during the night. Mother Nature is responsible for that. :D
       
    8. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      Actually there are millions who have tinnitus, but only about 2% of those millions have the severe or debilitating tinnitus. I was one of them, and had to stop working for 9 months while trying to cope with it.

      I did not spend two years writing this book with the expectation of profiting from it. I wrote Living With Tinnitus to share what I've learned. I also want to help others avoid going through what I went through, when I felt like there was no hope at all that things could be better.

      Amazon allows 5 days in each 3-month period for a free book promotion. This is my way of thanking everyone on Tinnitus Talk for helping me through what was a very difficult time in my life.
       
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    9. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      I think it's actually higher than that, if I look at the ATA page: "Millions of Americans experience tinnitus, often to a debilitating degree, making it one of the most common health conditions in the country. The U.S. Centers for Disease Control estimates that nearly 15% of the general public — over 50 million Americans — experience some form of tinnitus. Roughly 20 million people struggle with burdensome chronic tinnitus, while 2 million have extreme and debilitating cases."

      2 million of extreme/debilitating cases out of either 50 million or 20 million (depending on whether you think that "experiencing some form of tinnitus" qualifies as being a T sufferer or "having T" as you put it). At any rate, it makes the percentage be between 4% and 10%. It's quite significant.
       
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    10. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      @Cheza BDNF as you mention above should always be considered with tinnitus. I think that this subject matter with continued research to sensory input which finally gets transmitted to the hippocampus is important.

      The hippocampal volume decreases with decreasing plasma levels of BDNF. BDNF is needed in developmental stages and is a long term process per aging as it's also a long-term inhibitor of pain sensitivity. Exercise is important either every day or every other day. Some guidelines say 30 minutes. Many links promote sunshine.

      https://en.wikipedia.org/wiki/Brain-derived_neurotrophic_factor
       
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    11. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      I was going by memory and trying to be conservative in the estimate, but I agree with your assessment.
       
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    12. billie48
      Sunshine

      billie48 Member Benefactor Ambassador Hall of Fame

      Location:
      Canada
      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      not sure
      Nice work @Cheza. I downloaded it and looking forward to learning from the book so I can be more informed about the different aspects of this tinnitus ailment. Thank you for the generosity of sharing it to the members here.

      I especially like your introduction which mention Tinnitus Talk. Hopefully this will bring people who need more interactive help to this forum and will hopefully speed up their recovery.

      Thanks again and salute you for a great job well done. Cheers.
       
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    13. BobK544

      BobK544 Member Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      suspect sulfur medication
      Hi Cheza, thanks again for getting back about your Doxylamine Succinate experiences and yes it sounds like the best alternative out there for sleep based on what I've read so far and also from posts on the BENZO forum, especially the post where someone found it as “effective as Remeron” and that’s great to hear as I was thinking about asking for Remeron when I visit an ENT this week.

      And it took more that 2 weeks to finally get an appt with an ENT, probably because of the flu epidemic, but I'm not expecting much based on what I've read on posts about ENT visits, but I’m also going to be seeing an Audiologist in the same appt and maybe i can help determining what my T Hz level/s are as I’m having a time trying to determine the exact range, sometimes it sounds like in the 5k+ Hz range and other times in the 7k+- Hz range. And so once I have that I will be able to generate an Audio Notch wav file.

      And also many thanks for detailing step by step instructions on how to create a Audio Notch file as I haven’t found anything out there that details how to do it from top to bottom, excellent!

      You’re a caring and courageous person Cheza and I wish you all the best with your book and your own suffering as well!

      BENSO posts:
      I too am delighted I discovered doxy. I “find it as effective as remeron”, and I have not taken any remeron since.

      You know the funny thing is that when there is an OTC med like doxy available, that would appear to be fairly safe to take on a semi-regular basis, why on earth are benzos prescribed for sleep? I wish I had known about doxy 2 years ago. Then I would never have touched valium.

      I agree with you -- why on earth do drs want to prescribe benzos for sleep when these OTC products seem to work for a lot of people? They ought to at least suggest that their insomniac patients give them a try. My pdoc did suggest camomille tea, which is helpful, but also wanted to prescribe a cocktail of xanax and ambien. It was only after I came to the BB that I found about Unisom.
       
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    14. Maureen777

      Maureen777 Member Benefactor

      Location:
      Vancouver Canada
      Tinnitus Since:
      2007
      Cause of Tinnitus:
      Listening to loud music w earbuds & recent ear irrigation
      Thanks very much for offering this book for free! I've downloaded it and look forward to reading it!
       
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    15. Michael B
      Supportive

      Michael B Member Benefactor

      Location:
      San Diego, CA
      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Stupidity
      Just wanted to drop in and thank you for your generosity and this wonderful book!
       
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    16. Dubbyaman
      Angry

      Dubbyaman Member Advocate

      Location:
      Northern Indiana
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Excessive loud noise
      @Cheza I missed the deadline... ah well... I chose to buy the paperback. I would have done this anyways. You deserve something for your work. Thank you and I look forward to reading.
       
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    17. JMobile
      Fine

      JMobile Member Benefactor

      Location:
      Toronto, ON
      Tinnitus Since:
      1986
      Cause of Tinnitus:
      Suspected vocal noise trauma
      Oh my Gosh! That's wonderful. Thank you VERY much @Cheza. God Bless You.
       
    18. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      Book is still available today (Monday) through midnight Pacific Time. I do appreciate you buying the paperback, but if you want to cancel it and get the free ebook, there's probably still time. :)
       
    19. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      You're welcome!
       
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    20. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      How to create audio notch and ACRN confused me so much at the beginning, that I put off using those therapies because I couldn't understand how to do it. I figured others might have the same problem, and definitely wanted to include them in the book because studies back up their effectiveness.

      Just remember, it takes a l-o-n-g time, probably 6 weeks to notice a slight difference, and then maybe a year or more to notice a definite difference, but it's worth it. (It doesn't work for everybody, though, unfortunately.)
       
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    21. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      That means a lot to me, coming from you. There probably isn't much in the book you don't already know. You're one of the sources of wisdom on this forum, and have given a lot of comfort to others when they need it most.

      Definitely I want to draw more people to this forum. I wonder if I would have survived without it, and I know there are many others on here who feel the same way.
       
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    22. BobK544

      BobK544 Member Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      suspect sulfur medication
      HI Cheza, I’ve been able to create several audio notch files for different Hz ranges just for practice and can now create one in about 5 minutes using your step by step instructions, so I will continue creating test files until I think I’ve found the closest Hz value or can get a reading from my ENT this week.

      And I think this notched therapy makes a lot of sense because it sounds like when using a notched masking noise, the good ear cells adjacent to the bad tinnitus cells also get activated and the good cells may try to synchronize with the adjacent bad tinnitus cells. And I think I noticed a similar effect the other day when I had a mind bending screeching sound in my left ear and used a higher toned masking noise that I created from the Dr Pigeon site and that screeching sound seem to subside to a tolerable level!

      And yes this notched approach sounds like the approach that Dr. Shore may be using in her Michigan trials along with applying an electrical stimulus, possibly to know acupuncture points, and when the electrical stimulus merges with the physical vibrations from the masking noise, maybe some kind of chemical rewiring takes place, because the results she’s gotten so far sound very hopeful
      https://labblog.uofmhealth.org/lab-report/first-test-specially-timed-signals-ease-tinnitus-symptoms

      And your link to an earlier study also appears to have gotten good results as well, so I think I’m going to continue to be practically optimistic and hopeful!
      https://www.hindawi.com/journals/bmri/2015/569052/

      And also thanks for mentioning the Salicylates foods as I’m now on an almost zero Salicylate diet and definitely notice a reduction of the intensity in the screeching sounds in my left ear, excellent research Cheza, you’re a God send for us all!
       
    23. Fangen
      Anime

      Fangen Member Benefactor

      Location:
      Stockholm, Sweden
      Tinnitus Since:
      December 2nd, 2015
      Cause of Tinnitus:
      Acoustic trauma (loud concert for 1h)
      Thank you so much! I have been reading a few chapters and you're amazing! I am so grateful you have taken so much time and dedication to write this book and it feels great to read your thoughts and all the information you have gathered. Thank you again!
       
    24. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      I actually had doubts about whether to include the salicylate info or not because the odds of it contributing to tinnitus were so small. Now I'm glad I did, because it seems there may be more to it after all. Thanks for letting me know. :)
       
    25. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      You are very welcome! I read your review, and want to thank you for your touching words. It almost brought tears to my eyes. You have no idea how much it means to me that people are being helped by what I've written. It makes it all worthwhile. :joyful:
       
    26. Fangen
      Anime

      Fangen Member Benefactor

      Location:
      Stockholm, Sweden
      Tinnitus Since:
      December 2nd, 2015
      Cause of Tinnitus:
      Acoustic trauma (loud concert for 1h)
      I think I can speak for all that we are greatly thankful for you taking all this effort and time to help others both here on TT and by the book. I hope you have great success with the book and that you'll keep doing great (in terms of health) and with anything else you set your mind to! You surely have proven that with the book! ❤
       
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    27. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Laura Cole’s book
      “Living With Tinnitus,”
      is a veritable compendium of collected wisdom, approaches, treatments, experiences, personal stories, and much more.
      I have read many books on Tinnitus, which have without fail, left me disappointed.
      I read this particular excerpt in Laura’s terrific book; which is a ‘gem.’
      The item is referred to as Dr Hubbard’s Story.
      • “Rather than give up, I decided to make tinnitus sounds themselves the object of mindfulness. I used the same approach I'd learned to help my patients soften their experience of depression, stress and anxiety to soften my experience of tinnitus. I practiced listening to tinnitus sounds, and feeling tinnitus sensations with open, accepting attention, allowing them to exist as part of my new soundscape. As you can imagine, the first weeks of mindfully listening to tinnitus were extremely challenging. But through patient, persistent effort, it got easier, and I believe, greatly accelerated my recovery.”
      • This is also my own approach.
      • Instead of actively wishing to reduce my Tinnitus noise, or trying not to hear it, or attempting to develop a mental avoidance technique, I have adopted this same method.
      From the first opportunity each morning, I expose myself willingly to its noise.
      I allow it to be there.
      I accept it.
      I do twenty minutes meditation, and I start off by listening to the noise, until I drift off into a peaceful state.
      Then I get up and get on with my day.
      Many times I am unaware of it, and many times I am aware of it, but I don’t attempt to join battle.
      Since adopting this approach there are times when I perceive it to be quieter; perhaps it is, and perhaps it isn’t.
      I seem to have escaped from despair, and am well into toleration.
      Who knows, perhaps habituation will come next.
      Already, it feels like a wise choice, and a good way forward.
      Incidentally, I would not be without this book.
      Part of its provenance is that it was compiled and written by a genuine Tinnitus sufferer,
      just like you and I.

      Jazzer
       
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    28. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      I follow a somewhat opposite approach, in that I don't deliberately listen to it. Instead I do my best to follow the four "don'ts" of the Back to Silence method:
      1 - Don't measure it
      2 - Don't monitor it
      3 - Don't describe it
      4 - Don't compare it
      I truly believe people need to choose a method which resonates with their own attitudes and beliefs and lifestyle. That's why this forum is such a great resource, because a lot of folks participate with their own viewpoints and experiences.

      I like that you've found a way to cope with your tinnitus. It also sounds like you're on a path to where it will recede into the background of your awareness and you'll seldom notice it at all. :)
       
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    29. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      @Cheza - thank you for coming back.
      This excellent book is so choc full of different ideas, methods, and suggestions, that I feel we can experiment with them, obviously over a period of time.
      Currently this is my preferred flavour.
      I’ll let you know how I get on.
      Very best wishes
      Jazzer xx
       
    30. AUTHOR
      AUTHOR
      Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      If it works for you, stick with the program. Tinnitus is as much a mind thing as it is a brain thing.

      Thanks for the compliment! :)
       
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