Lenire — Bimodal Stimulation Treatment by Neuromod

I blasted my ears with headphones for 15 years, used to crank it through an audio interface so trauma highly likely. Often wonder why I didn't get tinnitus sooner.

 

Kam, that isn't really true. Pretty much all users in their testimonials reported their tinnitus was related to hearing loss. Testimonials

It is possible they also have hidden hearing loss which an audiogram may not show.

I don't believe it has anything to do with the hair cells in the cochlea even though that is where hearing loss occurs. My basic understanding is that when hearing is lost the DCN and/or somatosensory system becomes overactive to compensate for the loss, thus causing the ringing. This technology stimulates the DCN through the trigeminal nerve. This is all very similar to what the University of Michigan and Minnesota are doing here in the United States. They are just using different delivery systems for the electrical stimulation (Michigan is using the neck and TMJ area and Minnesota is using the ear).

Probably someone could better explain it than me, but that is the gist of it.

 

On the testimonials from Neuromod - there were users who had got their tinnitus from noise (1 guy had worked in construction/anther guy from night clubs).

There is nothing from Neuromod to suggest otherwise and the percentages they give of users benefiting isn’t likely just on other causes of tinnitus as noise induced tinnitus is the most common.

 

Pas de panique! Maybe I am wrong but some of the trial participants who experienced an improvement after using Lenire had noise induced tinnitus.

 

@Kam75

What is the cause of @BigNick's tinnitus?

 

@AliceW,

@BigNick's tinnitus cause is "unknown" according to his profile, that is why I guessed that he didn't get his tinnitus because of noise

Ok thanks for your answers all!

 

My tinnitus is absolutely noise induced - too many gigs & clubs when I was younger without a second's though to hearing protection. I'm still optimistic that Lenire will sort me out. I've started looking forward to my 30 minute sessions - I get half an hour where I don't have to listen to / hear my tinnitus and it *might* be doing something to get rid of the the fkin thing.

 

If you look a few posts back he is suggesting he thinks it is noise induced.

 

I am just curious what people's thoughts are that if they got some relief from Lenire and then it was found that Susan Shore's device had better results, but using Lenire would disqualify you from using Shore's device.

I wouldn't think so, but just wondering what others thoughts were?

 

I emailed her about it, she answered the other questions but didn't say anything about being disqualified from her device from using Lenire.

 

Do you mean that theoretically something Lenire does could make it improbable/impossible for Shore's device to work on you? Or that you wouldn't be able to participate in a trial for Shore's device if you used Lenire first (or at the very least, you couldn't be one of the first people it is sold to)?

For the former, I don't imagine that a device that's meant to work on your neuroplasticity would prevent other devices that are meant to do the same from doing their thing. But then I am not even remotely a scientist or understand this field very well so... *shrugs*

Hopefully having one device doesn't medically exclude you from being able to use the others, because if you have the money, it would be worth trying all 3 when they're available to see if that would maximize benefit.

 

I'm giving Lenire a break for 7 days to see how things compare.

 

Hi Allan, before you do take a break give Lenire a ring and ask for advice. You may be undoing any improvements that may not show until later. From my understanding it takes a few weeks to take effect.

 

They have advised me to do this previously but I have emailed them anyway.

 

I’m not an expert but your tinnitus may be aggravated by the white noise component, reactive tinnitus is a bitch!

Personally I would not be able to tolerate white noise at all and would end up worse even from short exposure.

Hopefully they can find a suitable alternative for you.

Don’t give up just yet!

 

I think it is.

 

Mine does. I don't even sleep with a fan on anymore because it is almost guaranteed to give me a nasty spike the following day. Besides, my tinnitus goes away at night now so there is no need.

 

I see I am not the only one to have reactive tinnitus that reacts to white noise / fan noise.

Is there a thread on this? Do we know how many people are concerned?

@Allan1967 @JohnAdams were your tinnitus onset because of noise trauma?

Also: why is there no update on the Lenire thread since August 7th, while several people have already started the treatment a few weeks ago?

 

I was taking too much BC Powder (NSAIDs) because of back pain while also shredding electric guitar too loud. I think the NSAIDs lowered my noise tolerance threshold.

 

They are not posting anything because they all committed suicide as Lenire didn't work.
I'm joking lol, I also can't wait to have more feedback from users.

My tinnitus got worse for no particular reason 4 days ago, I'm now at a point where I can no longer sleep at night...

 

Infection initially, then exacerbated by noise.

 

Little update:

I emailed Neuromod this morning to tell them I was giving it a few days break [they did say to keep them informed]... In fairness they rang me within an hour and said that was the right thing to do if I felt that was necessary and to see if they could get me in earlier to remove the hiss etc.

So I have booked my appointment back to the original day which was the 3rd of September and just hope Ryanair doesn't f*ck things up. I had moved it to the 17th of September.

Again... In fairness to them I can't fault them for their follow-up; after care and willingness to help.

 

Can I... borrow it for a week, I'm in London, kthx.

 

I guess many of us wished and hoped for an immediate improvement... But it’s obviously not the case

Where are the super responders?

 

I think this is kind of dangerous thinking, honestly.

University of Michigan's device is based on similar technology, they made no warnings about "may cause short term increases!" and nowhere in their literature did I see this. The clinicians I spoke to about the experience of other subjects did not mention any such thing.

Maybe Neuromod is different in some critical way such that it "has" to make things worse before better, but this is counterintuitive to me. I'd be more suspicious that the timings are not actually correct. UMich warned me that incorrect timing could make tinnitus worse, at least for a period of time.

People should do whatever they want, but after using the UMich thing, any treatment which seemed to be making me actively worse is something I would be deeply concerned about using.

 

Those lukewarm testimonial videos are starting to make a lot more sense.

 

Whole treatment is 12 weeks, none of the users are even half way through, what do you expect at this stage?

 

At least no worsening.

 

If one has reactive tinnitus which reacts to white noise, and white noise is a component of sound therapy then I'm not surprised tinnitus can spike. None of the other users reported worsening.

 

I personally think it's the white noise hiss/rain effect which my tinnitus is reacting to. I'm told this can be removed.

So I DONT think it doesnt work I just think there is an element about it that doesn't sit well with my tinnitus.

If your tinnitus is ok with white noise (I used to be before my noise trauma) it should be ok.