Lenire — Bimodal Stimulation Treatment by Neuromod

The treatment is helping me, I'm on week five. It's a bit of a rollercoaster because my tinnitus still fluctuates but the really unpleasant spikes seem to have stopped and the quieter periods are quieter. Also, sounds that used to irritate my tinnitus like my Labrador's claws on laminate flooring seem to not be causing a reaction. Another thing is that my ear spasms are much improved, I went 4 days without a single spasm, they used to go off all day.

Like so many people, I've been through absolute misery since getting tinnitus, seriously felt like offing myself, my girlfriend who had been very loving and supportive until she ruthlessly kicked me out of her life recently due to me being so depressed.

If Lenire doesn't help you then I really believe that other similar approaches will.

I still have tinnitus but trust me it's better than it was and there's a ways to go yet.

 

I leave on the 10th since I will have to go back for the unit. But might stay longer than that if fellow Tinnitus Talk members are around!

 

Sounds awesome. That's about the same time I will be done so let's meet for a Guiness.

 

@BigNick Do you have hyperacusis or reactive tinnitus?

 

My appointment is in early November. If my audiogram shows too much hearing loss then I'll have to cancel. I'm mostly concerned with my left ear. I think my right ear is pretty close to full volume in the frequencies that I can still hear.

 

Not things I've been diagnosed with but I am reactive to certain sounds, kettle boiling one of them. Not sure about hyperacusis, perhaps I did in the beginning but mild compared to others I think. Like I said before my ears would freak out because of my dogs feet on laminate flooring, also some loud voices at work caused a reaction.

I don't get any pain from sounds.

 

For the Germans here...

Today I contacted the tinnitus clinic in Regensburg via eMail. As far as I thought, this is the clinic that would make Lenire available in Germany. At least I remember that the clinic was also working with Neuromod, but I can be wrong.

Whatever, there are no plans currently to offer Lenire. They say, there is "nothing new" about it. That can mean anything... They say, if there is something new to report, they will publish it on their website.

I even have heard rumors (but only from one person) that they do not work together with Neuromod currently.

Hence I do not expect any immediate availability in Germany. Maybe in Regensburg they do not see the device as a success story. But I really don't know. Seems the only option currently would still be flying to Dublin.

I am still optimistic that one of the devices (Neuromod, Shore, Minnesota) will help us to reduce the tinnitus volume. At least some people will benefit. But I also keep in mind that other sound devices (yes, I know it is now bi-modal) in the past cost a fortune, but did nothing.

 

I would convert predictors to dummies.

https://en.wikipedia.org/wiki/Dummy_variable_(statistics)

 

Interesting, I reached out to them and the Berlin Charité Tinnitus Center a few days ago via email and they haven’t gotten back to me yet. I also sent some emails to German tinnitus clinics and they either didn’t reply so far or just said that they’re not planning on offering Lenire. I don’t expect any tinnitus clinic to offer bimodal neurostimulation but at least they’ve heard of it now and know people are asking for medical treatments.

 

As a Slovakian living very close to Austrian, Czech and Hungarian borders I was closely looking for opportunity to undergo the treatment in Regensburg so this very bad news ...

So who were those German speaking consultants on-site in Ireland at Neuromod Clinic during the assessment sessions and why were they there?

 

Mine is fucking worse.

 

@Martin69 thank you, so nothing new on the German front?
I've emailed Dr. Langguth asking for any studies with bimodal stimulation but he said there is no ongoing study.

Remember there were German audiologists reported to be onsite at Neuromod, so there must be something going on.
But probably not from a university, but some kind of private company.

Maybe someone could ask them during their appointment visit where the German audiologists are/were from?

 

I don't know either whether Neuromod plans to establish a German partner.

I just know that many ENTs have offered in the past laser therapy, oxygen pressure chamber and finally ACRN accoustic neurostimulation. Almost everyone stoppped offering them, after they realized that they don't help the patients.
So most ENTs and clinics are very sensitive about new treatments.

It is not understandable why Regensburg isn't involved yet and have no clear picture of a German launch...

 

@Allan1967

I’m devastated for you Allan. I have the photo of you outside the Heritage Centre in my mind.

Is your tinnitus worse because of Lenire or could it be the alarms in your home?

Eve

 

Maybe your tinnitus is better because your (now ex) girlfriend isn't bitching around you anymore.

Less stress.

I hope Lenire will do something for me too.

 

Did you scroll down? That’s what ANOVA does...

 

Interesting. Are your ear spasms like the frequency of your tinnitus sound? For example my high pitched tinnitus ear makes a kind of high-pitched bird chirp sound. Like the nerve is spasming or the timing of my tinnitus is temporarily out of sync and makes a tick like sound.

 

That's pretty disappointing. If not Regensburg, who else in the first place? Maybe the Tinnitus Liga is too powerful in Germany...

 

I think Neuromod is keeping the light red until the first wave of patients give their testimonies out before committing to a worldwide launch.

 

How do you describe your change on a scale of 1 to 10?

My way of describing the level of tinnitus is for example over what you can hear it. Were you able to hear it over the TV and you stopped hearing it over the TV?

 

Hi,

How long have you had tinnitus? Thanks.

 

10 months.

 

Yes and I can still hear it over TV. I still have quite bad tinnitus, it's just not as bad...

In saying that it depends what's on t.v and how loud it is.

As I said previously my tinnitus fluctuate s quite a bit. So hard to rate out of ten but let's say it's gone from a 7 to a 5 overall.

 

I hope by the end of the 3 months, you get a significant reduction.

 

You have much room left to improve, people had improvements after treatment.

 

Hey everyone. @Krolo and I are sitting in an Irish pub drinking some Guinness after our first Lenire appointments. Both of us got cleared to use it! Just thinking of everyone on here and wishing you all well!

I'll write a short note of what my experiences were later.

 

So what can exclude you:

Hearing loss
Psychiatric issues
Possibly being too desperate and not accepting anything less than a cure
Any mechanical cause that can be fixed before trying Lenire

Anything else?

 

Congratulations! : D

When do you pick up your Lenire? How about @Krolo?

[I have an appointment in a week and I wonder if there are chances for picking Lenire up in three or four weeks after the initial appointment...]

 

I'm really sorry to hear that, but from what you've said in the other thread, you've both had noise exposure, and you're not adhering to the treatment protocol.

This stuff isn't like aspirin, you can't use it PRN, and the neurological effects of starting and stopping a whole bunch of times haven't actually, uh, been studied, in humans or even in animals as far as I can tell.

 

My pickup is in mid November. Their schedule seems way overwhelmed which is kind of understandable. If they are seeing 9 patients a day counting new and old there is an insane cumulative effect on the scheduling since every time you see a new patient you add 3 more visits which means that time slots are scarce.

I must say that I think Neuromod was a pleasant, professional and caring environment. I come from it with a good feeling about my upcoming treatment. As always me going into an audiology booth spikes my tinnitus to crazy levels. They got this vibrating sound to help with the identification of hearing and that helped me out immensely. My hearing is normal except that at 16 kHz it drops off quite a bit. But yeah. Can't wait til I get the unit and can start doing my 2 sessions a day. I will try and have a 12h schedule on my sessions so it's spaced out properly.