Lenire — Bimodal Stimulation Treatment by Neuromod

Discussion in 'Treatments' started by Tinnitus Talk, Apr 20, 2019.

    1. alex1975

      alex1975 Member Benefactor

      Location:
      Las Vegas
      Tinnitus Since:
      January 2019
      Cause of Tinnitus:
      Probably sound induced
      Shoot, I haven’t gotten any email from Neuromod but I just signed up three weeks ago. So probably I’m in the next round? April perhaps :-/
       
      • Like Like x 3
    2. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      US
      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Noise
      You never know, they might have cancellations.
       
      • Like Like x 4
    3. F-u-T

      F-u-T Member

      Location:
      AZ USA
      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Acoustic Trama
      Got my invitation to the dance as well!
       
      • Like Like x 4
      • Winner Winner x 3
    4. nuno1976
      Jaded

      nuno1976 Member

      Tinnitus Since:
      11/2016
      Cause of Tinnitus:
      Unkown
      Being happy about getting an appointment has nothing to do with the treatment effectiveness...
       
      • Funny Funny x 2
      • Like Like x 1
    5. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Unknown, viral?
      July.
       
      • Like Like x 1
    6. Ruse
      No Mood

      Ruse Member Podcast Patron Benefactor

      Tinnitus Since:
      03/2019
      Cause of Tinnitus:
      NIHL & TMJ
      Neither does writing sad comments on a forum late at night.
       
      • Funny Funny x 3
      • Agree Agree x 2
      • Winner Winner x 2
      • Like Like x 1
    7. nuno1976
      Jaded

      nuno1976 Member

      Tinnitus Since:
      11/2016
      Cause of Tinnitus:
      Unkown
      I had no intention of being rude.
      I just tried to be short and straightforward.
      I'm sorry if it sounded different.

      Have a great night.
       
      • Like Like x 2
    8. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      US
      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Noise
      Actually it does. People are happy to get an appointment because they've been following the reviews and this thread, like I said earlier, myself included.

      Now we could use more reviews to further verify what we are seeing, but so far it looks along the lines of what Neuromod has been saying all along: this is the first treatment that actually works.
       
      • Like Like x 3
      • Agree Agree x 3
      • Winner Winner x 1
    9. vttbx

      vttbx Member Benefactor

      Tinnitus Since:
      01/2001
      When did you submit your request?
       
      • Like Like x 1
    10. MRItechssuck
      Disappointed

      MRItechssuck Member

      Location:
      USA
      Tinnitus Since:
      Mild 2000-2018 sev 10/17/2019
      Cause of Tinnitus:
      Loud noise, MRI
      I need to look into this... if it is still open... so is the travel and hotel on your personal dime?
       
      • Agree Agree x 1
    11. ajc

      ajc Member

      Tinnitus Since:
      11/2002; spike 2009; worse 2017-18
      Cause of Tinnitus:
      Loud music - noise damage
      Obviously travel and accommodation is on your personal dime.
       
      • Like Like x 1
    12. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      US
      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Noise
      Yes, but if you book ahead the flights probably won't be too bad and you can look for a hostel to minimize expenses.
       
      • Like Like x 3
    13. F-u-T

      F-u-T Member

      Location:
      AZ USA
      Tinnitus Since:
      10/2018
      Cause of Tinnitus:
      Acoustic Trama
      June.
       
      • Like Like x 1
    14. MRItechssuck
      Disappointed

      MRItechssuck Member

      Location:
      USA
      Tinnitus Since:
      Mild 2000-2018 sev 10/17/2019
      Cause of Tinnitus:
      Loud noise, MRI
      Thank you... I have some catching up to do!
       
      • Like Like x 1
    15. Eric N

      Eric N Member Benefactor

      Location:
      Montreal QC Canada
      Tinnitus Since:
      10/2012, 03/2016, 05/2017, 05/2018
      Cause of Tinnitus:
      noise + 3 major increases via (shouting / MRI/ flu+Tylenol)
      I got my first appoint offer for Friday, 27th of March 2020 and I signed up in June of 2019.

      Now I need to think whether to go or not, based on the reviews it does not seem that it works very well but there isn't going to be another treatment anytime soon and my severe tinnitus is very difficult to live with. I also need to consider the risk of taking a plane and its noise.

      What would you do?
       
      • Like Like x 4
      • Winner Winner x 2
      • Good Question Good Question x 1
      • Friendly Friendly x 1
    16. nuno1976
      Jaded

      nuno1976 Member

      Tinnitus Since:
      11/2016
      Cause of Tinnitus:
      Unkown
      Hi,

      Is there any structured analysis of the Lenire Users Feedback/Reviews?

      I have been reading the Lenire - User Experiences and Reviews thread and made my own summary, but wonder if anyone has any more data.

      Here is my summary:
      Total: 10
      5 Slight Improvement
      3 No Effect
      1 Slightly worsened
      1 Worsened



      RedKnight: Slight Improvement
      Liz Windsor: Slight Improvement

      CojackB: No Effect
      TinMan2019: No Effect

      ruud1boy: No Effect

      BigNick: Slight Improvement

      Allan1967: Worsened

      Gee82: Slightly Worsened (new tone)

      josh1994: Slight Improvement

      Drone Drapper: Slight Improvement
       
      • Informative Informative x 7
      • Like Like x 2
    17. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Unknown, viral?
      I am in the same quandary you are, although my flights are going to be much much longer.

      In the face of uncertain results I wasn't sure if it was worth the money and time to do it. It was my wife that convinced me otherwise. She told me to put it on the other foot, if it were her or our kid that had this condition would I push for them to spend the money to give it a try even knowing it may not make much or any difference.

      The answer was yes of course I would tell her to go.

      So it might be a good thought exercise to imagine that if it were your wife or child or parent (whoever you might have in your life) who was struggling through the same pain you are whether you would encourage them to give it a shot.
       
      • Like Like x 2
      • Agree Agree x 1
      • Winner Winner x 1
    18. AliceW

      AliceW Member

      Location:
      France
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      Acoustic trauma - loud noise
      I’m actually talking to a person who Lenire works very very very well for.
      No more tinnitus at all after 7 weeks of tretment.
      He probably will provide his feedback here on Tinnitus Talk later on.

      Lenire really can work.
      The first real available treatment in tinnitus history...
      Let’s keep up the hope!
       
      • Winner x 10
      • Like x 4
      • Hug x 2
      • Informative x 1
      • Optimistic x 1
    19. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      US
      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Noise
      I would go get the device. Appointment, flights, and lodging all booked.

      I wrote the same for someone else earlier, but some of the users also updated on this thread with a little more success and also members have reported people they know having success with the device that aren't on the forum.

      It's ultimately up to you, but so far the data looks in line with their trial results. This is the first thing that actually works. Even if not for all, it appears to work for most, just not miracle level for most of the most.
       
      • Agree Agree x 2
    20. UKBloke

      UKBloke Member Podcast Patron Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      Ultimately, I'd grab a piece of paper and list the pros and cons, see which ones (if any) cancel each other out then try and find my lead in what remains.

      I don't mean to sound facetious but if flying presents a problem could sailing be an option? I know boats are slow and tend to be expensive but a boat won't pressurise your ears! If flying is the only option I'd talk to my GP or ENT first.

      In terms of Lenire's efficacy, there's one main thing that I think I've noticed in this thread, and that's that the longer term tinnitus sufferers like us may only see marginal improvement in the condition. That said, from my own point of view, if the treatment dialed down the volume in my left ear just a little bit then I think it would be worthwhile.

      What I would add is that personally I don't yet feel I'm at the point where I need the treatment. Given that Neuromod is far away, I guess whether or not you feel same is a question you should perhaps ask yourself. Another option of course is to wait until Lenire or a similar treatment is available closer to home. Again, it depends on how long you feel you can wait it out.
       
      • Agree Agree x 2
    21. UKBloke

      UKBloke Member Podcast Patron Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      If possible, would you be able to ask him how long he's had tinnitus for?
       
      • Good Question Good Question x 3
      • Like Like x 1
    22. UKBloke

      UKBloke Member Podcast Patron Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      There will be in the New Year some time. Check the beginning of the thread.

      @PeterPan is compiling stats that should prove very useful to us.
       
      • Agree Agree x 2
    23. ChrisBoyMonkey

      ChrisBoyMonkey Member Podcast Patron

      Location:
      US
      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Noise
      @PeterPan is working on it.

      It looks like you are missing some people, but it could be that they only posted on this thread and not on the actual User Experiences & Reviews page.

      @Redknight has updated he is having days of no tinnitus on here, and when he does I think he said it is only "5-10%" of what it used to be... which would probably be a huge improvement.

      I remember for sure @Lucky97 and @hans799, both have last posted seeing some success, despite not being finished with the treatment.

      There are also quite a few reports of members knowing people using the device or users chatting to other users at the Neuromod office reporting success with the device. There is one just added above this post and @El BUZZ knows someone too.
       
      • Informative Informative x 1
      • Optimistic Optimistic x 1
    24. Ivkopivko
      Speechless

      Ivkopivko Member Podcast Patron

      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      don't know, probably motorsport + headphones for last years
      I'd also like to add something to the section called "hope".

      I have occasional contact with a person that has taken part in the TENT-A2 trial and his tinnitus got greatly reduced. This guy had had tinnitus for 3 years and was a musician who never protected his hearing.

      After completing the trial, he experienced that his 4 kHz tinnitus has got reduced to a level where he doesn't notice it (measured as a 20 dB decrease - I guess during the MML test). He also mentioned that during this period (in 6 months he attended many loud concerts including Metallica (measured 105 dB) with no spike or increase afterwards.

      Unfortunately, the tinnitus slowly crept back up after the mentioned 6 months but not to the original pre-trial level. After commercialization he got his Lenire unit and repeated the treatment. Since he repeated the treatment, the loudness began to drop afterwards. He finished 12 weeks and is now doing 1 session per day (I guess he's somewhere between week 13-15) and the most recent statement is "to be honest my tinnitus is barely noticeable in everyday life"

      For me, it is a signal that the treatment can be repeated and this repetition is again effective, which I guess is good news?
       
      • Informative Informative x 7
      • Winner Winner x 4
      • Agree Agree x 1
      • Optimistic Optimistic x 1
    25. AliceW

      AliceW Member

      Location:
      France
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      Acoustic trauma - loud noise
      Yes, 13 months and no hearing loss.
      But he will explain himself later.
       
      • Like Like x 3
      • Winner Winner x 1
    26. raymilf

      raymilf Member

      Tinnitus Since:
      6/2018
      Cause of Tinnitus:
      noise trauma
      New appointments, new user reports. Great news.
       
      • Agree Agree x 4
      • Like Like x 1
    27. threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Was he the guy you mentioned in the User Experiences thread?
       
    28. LongWait

      LongWait Member

      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      Loud Concert
      I'm trying to find any convincing success stories... Lenire has not ticked the box yet in my eyes.

      Desyncra arrived on the market, and there's no proof that unit achieved anything.

      Baffled, gotta say.
       
    29. AfroSnowman
      Balanced

      AfroSnowman Member Podcast Patron Benefactor

      Tinnitus Since:
      April 16 2019
      Cause of Tinnitus:
      Unknown, viral?
      Looks like they are speeding up the process.

      “We are currently obtaining more clinic days and staff to ensure the wait time between the initial assessment and fitting appointment is closer ie, 0 - 2 weeks. Your fitting appointment will be booked when you are in the clinic for your initial assessment as we cannot reserve appointments.“
       
      • Like Like x 2
      • Informative Informative x 1
    30. vttbx

      vttbx Member Benefactor

      Tinnitus Since:
      01/2001
      Wow! That's great news for anyone coming from a far distance.
       
      • Like Like x 1
      • Agree Agree x 1

Share This Page

Loading...