Lenire — Bimodal Stimulation Treatment by Neuromod

I just got my appointment in January.

I usually need a couple of days to recover after a flight so not looking forward to that.

I have horrible tinnitus when I wake up and when I fly, so... I once fell asleep on a flight! Never again

 

The assessment is 250 euros, goes towards the cost of the the device / treatment.

The device / treatment is about 2150 euro if paid up front.

Not sure about flights for you but I've found lodging totalling 60 dollars American for 3 nights using a hostel. Depending on the flights you might not need that much lodging.

 

For those who went to Dublin, what hotel did you stay at? Clayton Hotel Liffey Valley seems to be the closest to Hermitage Medical Clinic at a 16 minutes walking distance. The Price is around $100 US a night.

Also there does not seem to be a direct flight to Dublin from Montreal Canada which sucks, so I might go through Toronto Airport

 

What is the name of the hostel? Clayton Hotel is around $125CAN a night and I will probably need to stay for two to three nights depending on the best deal I can get for the plane tickets.

 

I'm gonna stay at The Times hostel, about a 14 minute cab ride from the clinic. I got the cheapest option at about 14 bucks a night for the weeknights, the Friday is gonna be about 22 bucks, has good reviews, and a nightly pub route.

 

I have free accommodation. Flights will be around $2,000 NZD return. I've been waiting for this for the best part of a year, but now that it's here I seem to be managing OK. Just wondering really how long I will need to be in Ireland, and hence take off work?

 

Free accommodation is nice, I would've liked that option haha.

It depends on how you set up your flights! The initial assessment appointment itself is only about 1 hour and 45 minutes. The tricky part is finding flights to work with your appointment date time to minimize your stay.

 

I don't recall why Neuromod opted for 2x 30 minutes or 1x 60 minutes per day for the treatment duration. Was it for user compliance reasons or was doing 2x 60 minutes worse or not better? Or was it not tested?

 

I've been thinking this over a bit. I'm definitely going to ask at my appointment.

Perhaps you as a current user can email them, I'd love to know if anyone has tried this yet and how it turned out.

 

Sorry I followed the thread but severe tinnitus is making my brain into a pulp. Are there people with REACTIVE tinnitus who benefited from Lenire? I mean really reactive. I am aware of Allan's negative case.

My tinnitus reacts to white noise. I have hearing aids with white noise up to 8 kHz designed around my hearing loss, but when I remove them the tinnitus is worse for quite some time. Also, other sound therapies like violet noise or white noise played from speakers tend to irritate the tinnitus and make it louder. Have any patients with these features benefited from Lenire?

Pro: I'm desperate for relief, there is not much else with even limited clinical studies support.

Con: I am concerned it can worsen my tinnitus and my tinnitus is so distressful that even a temporary worsening would be a disaster.

It's not super-expensive but all together with travelling etc it's relevant money for me.

 

One of the patients in the testimonials (Ken?) had severe reactive tinnitus.

I believe he mentions in the video that the reactivity was significantly improved and I also believe that someone on here contacted him and he reported a 1/3 reduction in volume.

 

How long did you use Lenire then?

 

It was for compliance reasons. I think if you asked people to devote more time than that, you'd see compliance fall off. I've done more sessions on the weekend, when I have more free time. It's hard to say if it had a massive effect, but I didn't experience a spike or anything like that afterwards.

 

Apparently it’s reactive cases that respond the best.

 

That's good news, thanks. Just for clarity, by reactivity I mean that listening to white noise and the likes spikes the tinnitus, I don't refer to hyperacusis. I had heard that hyperacusis patients are super-responders but I was not sure about reactive tinnitus like mine.

 

One of the reasons that it's recommended by Neuromod to do up to 60 minute of treatment a day is to give your ears and brain enough time to rest between the sessions.

 

Lenire helps reactive tinnitus the most?? Mine is somatic too... If I sit in a silent room, my tinnitus is very low. If my tinnitus wasn't reactive and sounds masked it I would be fine.

 

I finally got an appointment for March 2020, after applying in June. Still on the fence to go through with it, since my tinnitus has somewhat improved and become a little more manageable.

 

That’s what they said and what my own personal research suggests. I suspect somatic sufferers also get more of a reduction, but this is based on Susan Shore, not Lenire.

 

If you need more time to think you could have my May appointment!

 

It made me wonder if the benefit isn't just down to desensitizing the auditory system like they used to do with white noise generators.

Ah well as long as it works who cares

 

My tinnitus is very reactive, especially to white noise. Lenire made my tinnitus louder for a week or so and from then onwards just for an hour or so after each treatment.

 

It was 100% for compliance reasons. I asked a few times.

It is far more important to maintain treatment each day than doing extra sessions. Trust me when I say that maintaining even 2x30 minutes per day is incredibly disruptive to life and work.

For me at least, doing more per day actually caused more severe tinnitus volume increases. I've had to do 1x60mins a few times and it give me severe headaches and tinnitus loudness when 2x30 minutes is manageable.

Same goes for messing with the volume and tongue tip intensity. This isn't Top Gear, more power doesn't equal better results, it just aggravates my reactive tinnitus. That's one of the main reasons I know Lenire is doing something. Messing with the settings has a direct and noticeable effect on my tinnitus.

 

I don't believe Neuromod have said that, are you confusing it with hyperacusis?

Neuromod told me that they did not see the same response from hyperacusis in TENT-A2.

 

That would scare me shitless!

 

From where did you get this info?

 

Users can control volume and tongue tip intensity? Have they given you any pointers on that? Have you mentioned this to Neuromod?

 

They said hyperacusis but it’s also believed reactivity is a form of hyperacusis. From what I’ve seen people who tried it with reactive tinnitus had good results.

 

They walk you through it all when you get your device. I learnt quickly to trust the device fitter and to stop messing with the settings.

 

Hello, Redknight. I hope you are well.

From what I've gathered, you seemed to be a super responder to Lenire.

You said you had very reactive tinnitus? Do you also have/had hyperacusis?

In my experience, my reactive tinnitus manifested itself at the same time as my hyperacusis and TTTS. And they spike in conjecture with each other, so in my experience they are highly related. Is this true for you too?

I have had the same fear that Lenire would just spike my tinnitus instead of making it better because all sound therapies seem to spike all my symptoms for the rest of the day even at very low volumes. My theory was that I would need to resolve my hyperacusis (and thus reactive tinnitus) before Lenire would benefit me.

Do you also have dysacusis (sound distortion)? I sometimes have a hard time distinguishing between the sound distortion and reactive tinnitus. I seem to have both.