Lenire — Bimodal Stimulation Treatment by Neuromod

Ah. A tippy. Well damn, then what did they change?

 

Timing of the signals if I recall correctly.

 

Just going to throw this out there, especially for @kelpiemsp.

After MuteButton was withdrawn in 2015 and Neuromod brought in Lim, are we confident he made changes to the technology based on his experience with the University of Minnesota that we know helped @kelpiemsp?

A daft question perhaps, I just need to know that there is a glimmer of hope for us.

 

I think they also learned that switching from timing pattern after a few weeks is boosting the results. I hope they continue finding these improvements so maybe they can completely destroy tinnitus of people who respond to this treatment.

 

There’s more than a glimmer of hope Allan.

Lim certainly brought his expertise and experience.

Stay positive, banish negative thinking.
Early days brother, don’t overthink.

Get some serious exercise in and a clean diet to compliment the whole experience.

Stay strong.

 

I totally agree.
In addition, they announced that they had clinically significant results for 2 out of 3 patients.

So trust THEM!

 

As they say, trust...but verify.

 

Text is small I know. Zoom in!

 

Thanks. I pick my device up soon.

 

I can't wait to see how it works for you.

 

So happy for you and jealous of you for getting one of the first devices.

 

The results from the TENT-A2 trial that were shown on the Neuromod video presentation that Lim gave at the ENT conference looked VERY encouraging to me.

 

I don't get that. TENT-A2 trial results are out?

 

Just wanted to add I like your username, I totally agree lol.

 

Not released out publicly (to my knowledge). But they showed TENT-A2 data in that leaked video presentation.

 

I'm so excited for you. What a great opportunity. This must bring about some interesting emotions.

 

I don't quite know how to put into words what I feel. I want to be hopeful but the tinnitus addled brain and knowing how complex this condition is stops me from getting over excited, yet I know I'm in a better position than some because of my location so I should be grateful. So it's a weird conflict.

 

Can you post the video presentation or PM it to me?

 

I'm going to take a break from this forum for a while (I also did this for the last month in an attempt to think less about my tinnitus) and when I'll be back let's say at the end of September, I really hope that I will see something like:

"Hi everyone, this is Allan. I don't know how to explain this as I'm still in shock and enjoying every second but in short, I experienced noticeable decrease of my noise since week 4, then my device got adjusted and since week 6, I've had total silence. By the way I went to a Metallica concert last week, stayed just under the speakers in front row, measured 110dB in there for 3 hours and there is not a single indication of tinnitus returning back and my ears are completely fine. Go for it and get your unit ASAP."

This is the most utopic and silly post in the history of this forum, but I really wish it to you, to everyone here and to me as well from the bottom of my heart.

 

Didn't mean to offend anyone by it but when you've suffered this as long as I have and are hit hard by depression as a result, emotionally it's a horrible rollercoaster.

 

I'm in agreement with Paulmanlike's thoughts on this one.

I have high frequency hearing loss up to 50 dB in the left ear, 30/40 dB in the right and pretty bad bilateral tinnitus for 17 months.

I've booked an assessment, now waiting to hear back from them.

I'm thinking if the damage is done, how is it going stop the signals repeating.

At €2500 what can I expect. 40% reduction is my impression if I'm lucky. Plus some of the patient testimonials leave me anxious.

 

Why do they leave you anxious?

If they were glowing testimonials people would be saying they're paid actors. Neuromod have been up front and said 2 out of 3 people report a beneficial change and it's not touted as a cure all.

 

If you read back, there has been all manner of accusations thrown at Neuromod in this thread.

 

A 40% reduction in my tinnitus would be huge for me. That would mean on my good days I actually might be able to hear silence again! Any reduction in tinnitus is a big step forward. Up until now there has been no treatments that show these kind of results. All of the patient testimonials pointed to an increase in the quality of their lives IMO.

 

Completed the questionnaire form on day 1, still haven't got any phone call or anything from Neuromod.

 

8 days to go and we will begin to have all of the answers we need. In the meantime, we should spend our time doing what we can to advance a cure, raise awareness, writing representatives, etc.

 

Is this device designed to treat a specific tinnitus sound, like a single tone, or without any limitation?

 

In layman's terms it's because it stops the neurons that are causing the noise.

 

This isn't required now, as the notion of Neuromod controlling information has been debunked by other sources, but for the sake of clarity I'm happy to confirm that nothing was mentioned in my assessment along these lines.