Lenire — Bimodal Stimulation Treatment by Neuromod

Discussion in 'Treatments' started by Tinnitus Talk, Apr 20, 2019.

    1. spedgas
      Gloomy

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      I think I have a pretty good idea just how bad my tinnitus is. Thanks for letting me know. I'm just a few happy thoughts away from being cured.
       
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    2. ruud1boy

      ruud1boy Member Benefactor

      Location:
      Huddersfield, UK
      Tinnitus Since:
      c.2006
      Cause of Tinnitus:
      An enthusiastic youth
      I don't understand this Allan.

      If Neuromod aren't bothered about you posting about your treatment, how would doing so 'affect that relationship'? I'm not trying to be arsey, I just don't follow the logic.
       
    3. carlover
      English

      carlover Member Benefactor

      Location:
      London
      Tinnitus Since:
      1986
      Hello Ann, bless you for asking... I've spent so much money on my tinnitus you wouldn't believe, I'm cleaned out :)

      I'm just grateful for my hearing aids, they knock my tinnitus out 50%, otherwise I really don't know how I could manage with the tinnitus, it would be very difficult, maybe impossible.

      All the best Ann.
       
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    4. PeterPan
      Nerdy

      PeterPan Member Advocate

      Location:
      Sydney
      Tinnitus Since:
      09/2016
      Cause of Tinnitus:
      Heat Exhaustion
      Hello,

      It's Simon here, the volunteer who is helping with managing the Lenire User Experience Group activities.

      Just a short update on progress:
      • The Survey which will be going to members in the group has now been finalized. The Survey incorporates feedback received from leading researchers in the Tinnitus field.
      • The Survey will be low burden, and members will be asked to fill in a brief questionnaires at the device fitting stage, the 6-week checkpoint, the 12-week checkpoint, and then at 3, 6 and 12-months post-treatment stages.
      • There are now 63 members in the group who have left contact details and agreed to Terms and Conditions.
      • The way in which the Survey will be presented to members has been agreed.
      • A brief introductory email will be sent to members over the next day or so. It is anticipated that we will commence to send out Surveys around the week commencing 14th July.
      Thanks so much to everyone who has signed-up, and if you haven't signed-up yet you can do so by clicking the banner at the top of this thread!

      PeterPan (aka Simon).
       
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    5. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      How have you been feeling, @kelpiemsp? Do you plan to eventually try Lenire?
       
    6. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      I’m doing very well! My tinnitus is so low currently, I wouldn’t feel good spending money on it.
       
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    7. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      It is simply wonderful that the treatment you received has made such a long lasting impact on your tinnitus!
       
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    8. Allan1967

      Allan1967 Member Benefactor

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      I'm presuming they aren't bothered.
       
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    9. Snake
      Scared

      Snake Member

      Tinnitus Since:
      08/2011
      Cause of Tinnitus:
      Long term playing computer games on headphones.
    10. BrStan@

      BrStan@ Member

      Location:
      London
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic trauma
      If your tinnitus spikes from every little noise then Lenire will definitely worsen it. Unfortunately this is the case with me. No I have not tried Lenire but this is how my tinnitus is. I have high frequency hearing loss but I can't wear my hearing aids as my tinnitus is very reactive. Wearing hearing aids will make it worse.
       
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    11. Ninix

      Ninix Member

      Tinnitus Since:
      12/2017
      Cause of Tinnitus:
      Sound
      I wonder if it would be possible for someone to ask at a future appointment if the people of Neuromod know how to identify the population for whom Lenire does NOT work for!

      I do not understand it. Isn't it the brain that generates tinnitus and we all have the same model of brain, no?

      Sorry for this simplistic reasoning.
       
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    12. Allan1967

      Allan1967 Member Benefactor

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      I don't think that's the case.

      Ken said in his testimonial that his tinnitus is no longer reactive.
       
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    13. Allan1967

      Allan1967 Member Benefactor

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      I'm very encouraged because Hubert Lim led the trial you were on, isn't that correct?
       
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    14. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      Nice to see you @carlover. I recall you saying you’ve spent around £20,000 on tinnitus treatments with zero effect on your tinnitus apart from the hearing aids?

      Will you planning on trying Lenire yourself, assuming the feedback is good?

      Like you I understand the reluctance of forking out on new treatments due to the stubborn condition that little, if anything, works to reduce tinnitus. Hopefully this will be a breakthrough and just the beginning of things to come but I remain highly cautious.
       
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    15. BigNick

      BigNick Member

      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Unknown
      Two of the testimonials mention their tinnitus spiking from everyday sounds. One was snapping a plastic yogurt pot and the other was a door slamming at home. Both had major improvement from Lenire.
       
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    16. Allan1967

      Allan1967 Member Benefactor

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      They don't know who it does not work for.

      We don't have the same model brain. Read up on SPECT scans.
       
    17. spedgas
      Gloomy

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      This sounds amazing. I expected to have to sift through individual stories of usage and piece together what I could on my own. I appreciate your time and effort to make this rush of information more accessible. I’d also like to add that 63 people is a decent sample size for the initial public release of the device. Hopefully some trends will develop from the data and we can all make an informed decision on if it’s right for us. Thank you.
       
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    18. BrStan@

      BrStan@ Member

      Location:
      London
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic trauma
      Sorry if this has been asked but how is Lenire different from MuteButton that we know was not effective?
       
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    19. BrStan@

      BrStan@ Member

      Location:
      London
      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Acoustic trauma
      Hi carlover, what brand your hearing aids are? Mine are Siemens. I have them from NHS. On low days they help a bit but when my tinnitus is loud and it is all over my head they don't seem to help. And also my tinnitus is very reactive. I think if I wore them all the time they would make my tinnitus worse.
       
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    20. AliceW

      AliceW Member

      Location:
      France
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      Acoustic trauma - loud noise
      Do you think by using Lenire, it could calm the tensor tympani muscle? (By the action on trigeminal nerve).
       
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    21. Markku
      Inspired

      Markku Founder Staff Podcast Patron Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Based on this and previous posts of yours in the thread, I would recommend you watch our Q&A with Neuromod:

      Q&A: Tinnitus Hub Meets Neuromod (Lenire)

      It answers questions such as "A few years ago the device was already on the market - what happened to it?"
       
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    22. kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Hall of Fame Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      No. What you are likely feeling is pressure around your ear canal from TMJ. That can also cause fluttering, distorted sounds etc.
       
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    23. carlover
      English

      carlover Member Benefactor

      Location:
      London
      Tinnitus Since:
      1986
      Hi BrStan.

      Mine are from the NHS as well. They have a volume control, and in bed I crank them to max and for some odd reason even though it's silent it knocks the tinnitus out as I said by 50% which is enough for me to endure it.

      With no hearing aids during day or night my tinnitus gets louder and louder, then the pain and pressure starts.

      I had habituated up till 2011 when an ear infection cranked it all right up. I have high frequency hearing loss and my ear consultant said that although I won't believe it hearing aids will help the noise and he was right...

      Sorry yours isn't helped by them... Good luck.
       
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    24. grate_biff
      Alone

      grate_biff Member Benefactor

      Location:
      Oslo, Norway
      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Acoustic trauma, benzo/mirtazapine withdrawal, or combo!
      So, you are saying that hearing aids that enhances your hearing in the lower frequencies range (<8kHz) helps with your high pitch tinnitus (>8kHz)?
       
    25. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      If any of you Europeans aren’t satisfied with your Lenire, just ship it over to me! I’ll be happy to dispose of it for you. Lol ;)
       
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    26. Striveon

      Striveon Member

      Tinnitus Since:
      08/2018
      Cause of Tinnitus:
      Unknown
      Does it fluctuate or is it always mild?
       
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    27. carlover
      English

      carlover Member Benefactor

      Location:
      London
      Tinnitus Since:
      1986
      Hi...

      Not really, at the Acoustic Neuromodulation clinic in London they said my tinnitus pitch was 4 kHz. I have high frequency hearing loss, I think the hearing aids replace that.
       
    28. Liz Windsor

      Liz Windsor Member Benefactor

      Tinnitus Since:
      10/2012
      I remember reading your posts when I first joined Tinnitus Talk in 2013. They were very helpful and made sense to me... everyone's experience is, of course, very different. Hopefully if Lenire helps the majority of people who are trying it, maybe it's something for you in the future.

      Kind regards. Liz
       
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    29. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      I don't think MuteButton had a tongue tippy.
       
    30. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      Germany
      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
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