Levetiracetam (Keppra) — Another Possible Potassium Channel Modulator?

Ivan have you made an audiogram to compare before and after Keprra?

 

Not but i have a lot of audiogram before Keppra. I try to obtain another to see if there are some differences.
Thank you for advice
Ivan

 

Could you send me these papers? I need proof as my doctor is horrible to me, he doesn't believe a word I tell him...I trusts the words of so called specialists. I thinks ENT's will know more about this.

 

@Viking

Ivan have you had any permanent reduction in tinnitus, even if it is a small improvement?

 

Unluky not. No permanent effects on tinnitus. Only transitory spikes the firts week and after a slight lowering but unstable. I wonder about my "hiperacusys free" but i can't talk about tinnitus relief. Sorry. I've tryed!

 

Even Trobalt, it is not permanent ?

 

I don't know! There is only 1 person who have had permanent result on tinnitus then i consider 1 thing: he was not cronic! Probably he was been cured naturally....is a chance that we must consider.

 

Your Tinnitus, it fell thanks to Trobalt ?

 

I could not take much because I gave kidney problems. Tinnitus seemed more "distant" and central. Unfortunately I had to stop because of dangerous (for me) side effects

 

I saw that Tegretol and Topamax they diminished your tinnitus. I will try these drugs

 

Tegretol and topamax should not be taken for 'experimental' reasons.
They are dangerous drugs with some nasty side effects. Talk with a doctor first.

 

Also tinnitus is listed as some of their side effects when I checked

 

Tegretol work on me because i have triple neurovascular conflict + trigeminal nevralgia then contact your neurologist before take it. It has a lot of side effects.
Best wishes

 

I have tinnitus since 2012. I was able to hide it Whithout any problem , but since 4 months ago, it began to increase and became more reactive to the noise, and now it is very difficult for me to hide it. My goal with Trobalt is to stop definitely this reactivity.
According to you, is it possible?

 

Yes, trobalt can do this. It is more subjective. We are not all equal. Trobalt sure take the contorl of tinnitus spyke but i can give more advice on this drug because i have had to stop it due to important side effects.
Take care and talk with people who are taking trobalt and their experience.
Remember that this is only an experiment. If you are able to manage tinnitus, be strenght... i think it will go down to the baseline without drugs.
For more disease, the drugs can help, but after a period they "crash" others....then if you can... avoid any drugs.
I hope that tinnitus will go down or disappear.
Best wishes

 

So far it has not been conclusive that any type of medication would stop the reactivity or hide T.
By the looks of it everyone has his own mix that would work with him. The thing with some of these medication is that you cannot use them for a very long time like trobalt, they have very bad side effects.
For me personally I've had T for the past 2 months and was considering taking trobalt or keppra. But what I have decided is to wait for another 2 months where I have an appointment in brai2n in antwerp I will conduct and qeecg there and depending on the results I will opt on what route to take either one of these medications or conduct some non-invasive procedures like tms

 

Thank you Viking, i saw that you are Italian. I'm a fan As Roma and Naples lol

 

They are G R E A T! You are in good hands. They fight on all fronts!
All the best!

 

Thanks Ivan
They were very helpful when I called to get the appointment, Belgium is an 8 hour flight from where I am

Hence when I called and got the appointment their tinnitus technician called me via Skype and had a 20 minutes discussion with me telling me what procedures they use and what to expect and not to expect and that there was only a 50% chance that they might be able to help.
I will post a review of my experience once I visit them and I hope you find your visit to Switzerland to be helpful and finally get you the silence you are looking for

 

Jesus you're very brave trying all these, I just looked up Keppra and Trobalt and couldn't believe the potential side-effects. They're horrific to say the least. If I could know without a doubt it'd cure my Tinnitus I would take it but I can't.

 

Hello, is there anyone else who has tried Levetiracetam?
I have managed to get 30 pills of 500 mg, I will give it a try to this, hoping that allows me to achieve an improvement... for now my tinnitus is under control, but I want to lowering it to the minimun level possible.

I will mix this with my LLLT sessions.

 

good luck! keep us informed, please watch if your H disappears as happened with Viking. Now im almost Off Trobalt and H is worse than when i was on 900mg

 

My H was worse after trobalt, but it like went of 80% in few days, but newer totaly

 

Does anyone know where I can obtain some Keppra? Really can't handle h. Please help!

 

Neurologist

 

your family doctor
or neurologist

i don't think it's available in the black market

 

Doctor won't give it to me at all. He says there's no evidence it works for t or h.

 

you need to find a doctor who can give it to you off label. its not easy.

 

Tell me about it. Where's the market for keppra lol

 

@Danny Boy
You mentioned in another thread that you are taking Keppra now and it has cured your H. Might wanna do an update in this thread?