MuteButton

[GamesB2]

Waiting is so difficult, I'm maintaining optimism that this will do hopefully do something for me, got my audiogram done, got funds and I'm ready for a chill weekend away in Ireland, just need some concrete announcements.

Daydreaming of a life without tinnitus (or at least just reduced to mild) keeps me going

 

[_Patrick_]

Waiting is so difficult, I'm maintaining optimism that this will do hopefully do something for me, got my audiogram done, got funds and I'm ready for a chill weekend away in Ireland, just need some concrete announcements.

Daydreaming of a life without tinnitus (or at least just reduced to mild) keeps me going

Same here, exactly.

 

[Heinrich_S7]

Neuromod is taking their sweet time.

If they wanna make bank, they're going to have to use a widespread distribution system.

I don't think everyone really wants to fly to Ireland like we do.

 

[Paulmanlike]

We are just gonna have to hold fire til this alleged miraculous treatment comes out, I don't understand why there isn't a lot more publicity if it's that good.

 

[hans799]

before you expect (as per the context) some celebrity with tinnitus (like Pete Townsend or Sting) to donate their entire net worth to the cause

That's a straw-man argument, literally nobody implied in this thread that celebrities should just "donate their entire net worth".

All I did say was that I can't fathom why an immensely rich person won't use a to them insignificant, but in absolute value still huge amount of money to counter an ailment that's torturing them. After all, what's the point of being uber-rich if you don't use your wealth to better your life?

But I don't really care any more about Shatner and all these celebs. Hope they had a wonderful few decades suffering from tinnitus without doing anything about it. Competent companies are finally here now.

 

[Bam]

How does conventional wisdom say it can't be cured? Please drop some science about this on me because I am beyond interested.

Just because there isn't a cure or treatment for something doesn't mean it will never or can't happen. That line of thinking is fucking retarded, excuse my french. Do you suggest we sit back and wait for a tinnitus treatment to fall in our lap? Also, are people suffering immensely and having quality of life issues due to color blindness. Tinnitus is a different story, which can't wait for something to just come along.

The only way to progress and get closer to a cure is to keep researching and trying. The answer isn't clear cut, but by asking questions and pursing a cure it is 100x better than waiting for it to come along by accident.

The point of bashing the "habituation" thought process is that people repeat it as a cure for ALL tinnitus sufferers. This is not the case. This leads people to also believing "oh tinnitus isn't a big deal since people can just habituate. Why should I donate money to help fund research if it resolves on its own?" Then this bullshit is repeated on national television by the FUCKING ATA giving a huge audience of people the notion that tinnitus isn't a big deal and goes away on its own. Thus destroying all of the hard work to bring awareness and fundraising to find a cure.

Well said @Jack Straw

Sadly there is a barely disguised 'I've suffered for twenty years so you should all suffer like me' attitude from older veteran tinnitus victims.

I get it. This shit makes you jaded and bitter and I can totally understand that it's galling that we are now seeing the world possibly on the cusp of effectively treating the affliction that's blighted and ruined people's entire lives.

Without doubt some should have cut their losses many moons ago rather than let it drag on. But they nor the ATA will concede that EVER. Tinnitus is a filthy business I'm afraid. A mass cover up that has led to huge suffering for many many people.

 

[GlennS]

All I did say was that I can't fathom why an immensely rich person won't use a to them insignificant, but in absolute value still huge amount of money to counter an ailment that's torturing them.

How do you know they're not? Do you have access to their accountants?

I still think the easiest thing to do as far as Neuromod goes is to get this device tested by celebs and if it works for them, they'll plug it.

 

[Paulmanlike]

Why are we talking about celebrities on the MuteButton thread? This thread should be used to talk about MuteButton and neuromodulation. If you want to start talking about celebrities why not start a thread elsewhere.

 

[hans799]

How do you know they're not? Do you have access to their accountants?

Fair point - conceded.

I still think the easiest thing to do as far as Neuromod goes is to get this device tested by celebs and if it works for them, they'll plug it.

Let's hope they do that, anything that helps this device spread (if it really works, of course) is welcome in my book. Neuromod seems to be a smart bunch, I'm sure they've thought of this.

 

[GlennS]

A mass cover up that has led to huge suffering for many many people.

You haven't made the case for this at all, I'm afraid. Feel free to start a thread or point me to one if it means so much to you, though.

 

[Benoves]

How do you know they're not? Do you have access to their accountants?

I still think the easiest thing to do as far as Neuromod goes is to get this device tested by celebs and if it works for them, they'll plug it.

If it really works marketing isn't needed. It's marketing on its own.

 

[Helheim]

If it really works marketing isn't needed. It's marketing on its own.

I disagree. Marketing is huge and having someone famous like will.i.am or Shatner or whoever vouch for the device would help a lot.

 

[Heinrich_S7]

If it really works marketing isn't needed. It's marketing on its own.

If this thing eliminates mild tinnitus like mine then I'm buying a plane ticket the day after =p

 

[Contrast]

Good news!

 

[Bam]

View attachment 26051

Good news!

If Aidan was one of the best testimonials from 500 people then God help us!

What does intensity even mean?? Volume Aidan!! Is it quieter? Do you hear it less?? He just makes the whole thing look sketchy as hell.

And where the hell is he?? Come on Aidan. Show yourself!

Wherever you are I hope you found some sunshine your translucent mother******!

 

[Eric N]

Is it illegal to hire paid actors to make false testimonials? Is it possible that none of these people were on the trial?

 

[Agrajag364]

Greetings fellow TINNITIANS.


€24 million for marketing haha but what I'm curious about is what they are using the €24 million for? Further trials? Contract negotiations? Marketing?

I'm wondering as well, how far are they at testing different parameters to achieve the best outcome for most subjective tinnitus sufferers?

Also, didn't ACRN have all this fuss and optimism with clinically 'valid data' and look where that went? How do we know this is going to be any different?

Was there a study with 500 people for ACRN? One of the existing "treatments", I think one of the ones that the tinnitus clinic type places offer at great expense, was criticised by an ENT I saw as lacking a proper control group because the control group was not matched to the treatment group for time of onset for tinnitus, which often improves within the first year, he said.

 

[Agrajag364]

What does intensity even mean??

Wherever you are I hope you found some sunshine your translucent mother******!

lol I'd accuse you of racism towards Celts if I wasn't laughing.

But yeah what the heck does he mean the intensity has changed but the volume hasn't changed. I guess everyone describes it differently but that's confusing.

Video does come off a little bit like Neuromod might be waving fivers off camera. But I do hope not. I hope the poor chap is genuine and enjoying a better quality of life. Clare B was very convincing!

 

[Agrajag364]

This lady is pretty clear! Wanted to cry when she said she woke up and it had gone.

 

[Eric N]

But yeah what the heck does he mean the intensity has changed but the volume hasn't changed. I guess everyone describes it differently but that's confusing.

Maybe he means reactivity? The worst type of tinnitus is the one that reacts to sound and also that type that keeps getting louder when siting in quite room for long periods.

 

[OnceUponaTime]

I check this thread compulsively multiple times everyday with hope to see the release date.

I am tired of this life......................

I'm expecting @Markku will add a GIANT RED BANNER - front page - with the news!

I want this thing to work so badly. Please Lord!
I just want to live again!

C'mmon Neuromod!
We are rooting for you!
Make it happen!

Once....

 

[JohnAdams]

I'm very interested to know how this works.

Like, with FX-322 we know exactly what would be the mechanism of the reduction of tinnitus and exactly how that would be achieved.

KNOWING that noise-induced hearing loss causes tinnitus:
Chemical cell signaling -> hair cell regeneration -> restoration of auditory function -> reduction or elimination of tinnitus.

So... with this it's:

Play sounds timed with tongue zaps -> ???? -> reduction or elimination in tinnitus.

Can someone please better explain this for me because I'm very interested.

 

[hans799]

Is it illegal to hire paid actors to make false testimonials? Is it possible that none of these people were on the trial?

Yes, that is illegal in Ireland, see this: http://www.citizensinformation.ie/e...ion/consumer_rights/consumer_advertising.html

 

[hans799]

Was there a study with 500 people for ACRN? One of the existing "treatments", I think one of the ones that the tinnitus clinic type places offer at great expense, was criticised by an ENT I saw as lacking a proper control group because the control group was not matched to the treatment group for time of onset for tinnitus, which often improves within the first year, he said.

I found the ACRN study that was mentioned a few times: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4362296/

As we can see, sample size was 50-70 people (so only a tenth of what Neuromod has), there was no control group, and the participants were actual paying ACRN customers. Even the study itself says that its results must be taken with a huge grain of salt. This "study" barely merits the name, it is evidence of nothing.

We haven't seen the actual Neuromod study but based on what they did say (500-700 people, double-blind, several groups, financially uninterested people) that seems to be proper hard science.

 

[Bam]

This lady is pretty clear! Wanted to cry when she said she woke up and it had gone.

She didn't. She just put the kettle on and forgot all about it.

 

[_Patrick_]

Maybe he means reactivity? The worst type of tinnitus is the one that reacts to sound and also that type that keeps getting louder when siting in quite room for long periods.

That's exactly what I have.

I think I understand what he means by intensity, sometimes mine are intense but the volume is not perceived as louder (it probably is), in a way that I can hear it "everywhere" and it's almost as if my ears were hurting.
And sometimes it's loud as hell.

Watching the video, I really realised how we all have different tinnitus, I have multiple pitches, at least 3 different pitches in my right ear, and two in my left. When they are mild, they sort of all blend in together. When they are high, they can create some "harmonies" which makes it unbearable.
I kind of envy people with just one pitch and just one ear affected... But then again, we're all different, and some of us may struggle with what would be easily manageable for others.

 

[TLion]

Maybe he means reactivity? The worst type of tinnitus is the one that reacts to sound and also that type that keeps getting louder when siting in quite room for long periods.

Could also be maskability.

 

[Agrajag364]

She didn't. She just put the kettle on and forgot all about it.

No.

 

[Heinrich_S7]

I like how you guys are dissecting apart this chap's words like it's some massive science experiment.

I've watched all the videos, and I'll admit the people on them aren't too good at descriptive information. They're average joes you meet on the street. They really could have gotten better candidates. The guy with the 'TV Volume' especially, was pretty horrible at describing tinnitus.

I care about what the trial actually said, 42% volume reduction is a colossal improvement and for a lot of people this device should be enough to knock out mild to moderate tinnitus completely.

 

[GamesB2]

Watching the video, I really realised how we all have different tinnitus

This is an important point to remember. I also have multiple tones that sometimes come together to form a mild tinnitus (not as often as I'd like ) but when they become intense individually it can be horrendous to deal with.

I hope that, alongside this working, one day we may get answers to why our experiences with tinnitus are so unique, I (and it seems quite a few others here) have no significant hearing loss or other obvious causes, maybe these 23 and me type things could shed some light on it as to whether it's a genetic predisposition or a product of random bad luck!