My Posting Place

Discussion in 'General Chat' started by threefirefour, Sep 2, 2017.

    1. PDodge
      Cowboy

      PDodge Member Benefactor

      Location:
      Woods of Alberta
      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Bear ate my Cochlea
      Sorry to hear about that :(
       
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    2. Kain
      Disappointed

      Kain Member

      Location:
      California
      Tinnitus Since:
      March, 2018
      Cause of Tinnitus:
      excessive loud music through earbuds
      first world problems, amirite?
       
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    3. PDodge
      Cowboy

      PDodge Member Benefactor

      Location:
      Woods of Alberta
      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Bear ate my Cochlea
      haha I used to agree. I don't think like that anymore though. Our problems are still our problems regardless of what's happening in the globe!
       
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    4. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
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      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      FWP= problems that will effect everyone once they develop to our level.
       
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    5. IAmCalifornia
      Wishful

      IAmCalifornia Member Benefactor Hall of Fame

      Location:
      Pennsylvania
      Tinnitus Since:
      this year
      Cause of Tinnitus:
      i wish i knew
      17-chucky_w700_h700.jpg "Mimbo Shim be out savo"
       
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    6. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Hahaha when I was 12 years old I got stuck on the final Sephiroth and couldnt beat him because I didnt develop my abilities and materia or whatever. I remember that game was incredible.
       
      Last edited: Nov 27, 2018
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    7. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
    8. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
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      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Looks like he has.
       
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    9. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      John, be very careful and diligent. Why hasn’t any of Dr Shim’s work been peer reviewed? I can’t find a single paper where he is named.

      Try for yourself. A good place to start is here:

      https://www.ncbi.nlm.nih.gov/m/pubmed/

      If he has made a breakthrough, then where is the recognition? This is why we have the peer review process. Firstly, it filters out bad science and inaccuracies, and secondly (and more importantly) it allows diligent people to filter out potential quacks and dangerous practices.

      His website his very oddly worded and I know English won’t be his first language, but if I was in his position, my first priority would be to get a decent translation published. Lack of care here, to me at least, shows a huge lack of professionalism which further degrades his integrity. The way he writes is very unusual and salesman-like. It’s not medical at all. I would not trust this guy whatsoever as there is no reason to.

      I’ll paste some of his site below:


      For all who have interest in our treatment for sensory neuronal hearing loss and tinntus


      Dear all,

      I am Minbo Shim who is operating my clinic in South Korea, Seoul.

      smb-150x150.jpg

      Recently I’ve read the numerous talks about my treatment on the Tinnitus Talk forum.

      I am very interested in that you the Westerners have been excited by my treatment results.

      The statistic result posted in my blog is definitely based on real cases.

      results.jpg

      http://cmclinics.com/2016/05/25/hearing-tinnitus/

      If I had tried to manipulate the statistic result, I would’ve make the result more dramatic.

      But as you can see, the statistic results are ‘expectable’ rather than dramatic.

      And there are some individual differences about the final result, so I do not guarantee the degree of improvement.

      That means some will experience a big difference and some will not.

      Only I can say is ‘ You will be the better hearing status after getting our treatment’.

      Getting back the pt’s hearing to a better status is a realistic and ‘possible’ goal than making pt’s hearing a perfect status.

      Whenever the patient got better from hearing loss , the pt’s annoying tinnitus was gone as well.

      You may also have interest in the total treatment period needed.

      We usually do intratympanic injections every 3days(twice a week) for 2weeks, total 4 times.

      Any further questions, just text me.

      Our official skype ID is ‘ cmclinics’.

      Best regards,

      Minbo shim, M.D.


      To me this screams scam, and a potential bodge job on your ears. Be really careful!
       
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    10. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      Lots and lots of talk and news released from Neuromod but where's the trial results publication? Come on, you're scheduling a product release but no published evidence?? Are we bring taken for yet another ride? Please tell me I'm wrong!
      Does Ireland have regulations requiring evidence of efficacy for medical device claims? (Like the FDA in the US for certain medical items?)
       
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    11. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      This is the whole point to the peer review process and organisations like the FDA and MHRA.

      You never heard of Dr Shemesh in Israel and others like him? How do you think they stay in business? They prey on desperate people.

      All I’m saying is be very careful and do more due diligence. You have no idea what this Dr has achieved because none of his data is verifiable. He can literally publish anything he wants, because as far as I can see, none of his work has been replicated. This would ring huge alarm bells for me personally. I’m just looking out for you but you are free to do as you wish.
       
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    12. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
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      May 1st 2018
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      Aspirin Toxicity/Possibly Noise
      I highly doubt that an Asian person's defecit in English language skills makes them a scammer.
       
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    13. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      I never said it did. I said a professional would make sure to publish an accurate translation with relevant information that is in a peer reviewed journal at least. I see no replication of his work, unless I’m missing something? I can’t find any relevant information about him or his work except on his website.

      Do you not find this sentence particularly odd?

      Surely this goes without saying?

      Just be careful, John. You seem to believe anything you read and I’m just concerned that losing your money may be the least of your concerns. If you have definitely made your mind up then good luck to you.
       
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    14. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      This from Dr Hubert Lim at Neuromod.
      "ALL patients...doing well" seems a bit unlikely... Thoughts?
       
    15. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
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      Dr. Minbo's patent describes his method in exact detail and I, despite your insinuation that I dont look at peer reviewed papers, posted 2 papers from Pubmed that claim the growth factors that he is using do in fact have regenerative properties on the damaged parts of the inner ear.

      I dont see how you can claim there arent any peer reviewed evidence that the growth factors he is using can regenerate inner ear damage, I have posted Pubmed peer reviewed papers that do in fact say that. Maybe go read them and get back to me.
       
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    16. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      John, how do you know what he is using and more importantly: why do you trust him? He isn’t named on any study (that I can get my hands on) using this method or any other method. As far as the medical community would be concerned, he is like a ghost.

      I will ask a consultant endocrinologist I know (who goes all over the world doing seminars) if he can access any of his work using his network and contacts. Something doesn’t quite add to me.
       
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    17. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

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      Ed, it's in his patent. Go read it.
       
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    18. Zeneth
      Wishful

      Zeneth Member Benefactor

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Maybe noise?
      I honestly don't even think they look at this forum, and there's actually so much information here. Someone needs to take the liberty to let them know about this stuff.

      I'd even call them myself but my hyperacusis hates phones.
       
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    19. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      John, I’ve read it and I’m not sure what part you are getting excited about. It is essentially a patent based on PRP, which is something that was developed in the 70’s. It is currently renowned as something sports stars often have to treat injuries along with a similar but different treatment called Orthokine (which was developed by
      Dr Peter Wehling in Germany). I know Dana White went to him to treat his menieres and he reckoned it worked. I’ve seen numerous interviews over the years about this and many famous sports stars have tried Orthokine and PRP. It’s often referred to as blood spinning and sometimes incorrectly - as Dana White once did - stem cell therapy.

      However, there is some controversy surrounding it.

      As far as Dr Min Bo Shim is concerned, I see a very broad and easily replaceable patent that essentially adds a bunch of B vitamins and other components to the age old method of PRP.

      I’ll copy an extract below that he uses many times:

      The second, pharmaceutical composition may be dexamethasone, vitamin B1, vitamin B6, vitamin B12, thiamine hydrochloride, pyridoxine hydrochloride, nicotinamide, D-panthenol, cyanocobalamin, riboflavin, biotin, Pan-B-Comp injection, or a combination thereof.

      I’m no patent expert, but it’s not exactly watertight or a unique compound or anything that he is using. This is presuming it’s the same person and that he uses what he says he does. There is no mention of him in any medical documents that I can find which doesn’t exactly fill one with confidence.

      I also find it odd that he talks about Tinnitus Talk like that’s his main claim to fame. Does none of this ring any alarm bells for you?

      Maybe I’m wrong, and at the end of the day, it’s your call.
       
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    20. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
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      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      So you think all of those audiograms are faked?
       
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    21. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      I’m just saying where’s the evidence? I could create a website tonight saying I treat Parkinson’s Disease, and then write up a load of unverifiable evidence. He isn’t mentioned anywhere else other than on his own website, which is also bizarrely written. There’s a lot of red flags for me.

      I’m just saying be careful. Don’t jump in with two feet. Do your research.
       
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    22. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
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      I've done research Ed, and posted it, which you have ignored and he didnt just make a website, he has been practising for a number of years, and if he was hurting people why woudnt he have been shut down? They have medical regulatory agencies in S. Korea.
       
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    23. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

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      upload_2018-11-27_13-1-52.png
      Moment of Silence

      Grand respect for this awesome man.
       
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    24. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      John, I’ve read his entire patent. What else is there? Who told you how long he has been practicing and how many of his patients have you been in contact with?

      They have regulations in the UK but that doesn’t stop bad practices and negligent surgeons from operating. People should always choose their surgeon or clinician wisely when going private.

      I’m just looking out for you, buddy. At the end of the day it’s your call though.
       
    25. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
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      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      What!!!
       
    26. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      Oh shit that is sad.
       
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    27. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
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      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      If he was a scammer why would he be using a method that could rationally work, and not openly advertise how it works? On the contrary, if you read the thread he doesnt like to reveal his method at all. You have to use the non intuitive korean patent search site and then translate it. Then you have to look into what prp even is, the connect that to hair cell regeneration technology. If this were a scam he could just squirt vitamin b in peoples ears. He has also been practicing for a while and if those audiograms were fake then he would have been shut down by the ministry of food and drug safety.
       
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    28. AUTHOR
      AUTHOR
      threefirefour
      Peeping tom

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Why did Stephen Hillenburg have to leave us?

      raw.png
       
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    29. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
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      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
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    30. Kappdog

      Kappdog Member

      Tinnitus Since:
      07/2018
      Cause of Tinnitus:
      Unknown
      Hi threefirefour, what did you do to clear up your ETD? :)
       
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