My Tinnitus / Pulsatile Tinnitus / Hyperacusis / TTTS Continue Improving After 5 Years

Discussion in 'Success Stories' started by StubbyJ, Jun 18, 2020.

    1. StubbyJ

      StubbyJ Member

      Tinnitus Since:
      05/02/2016
      Cause of Tinnitus:
      Loud Noise Exposure
      Thought I would post as I seen a great deal of newcomers in rough shape. Please feel free to PM should you have questions or need to vent to someone whom understands.

      I continue to improve with big strides being made mid 2019.

      2015 acoustic shock onset but I think poor spinal health was a contributing factor.
      Developed bi-lateral-multi-tonal tinnitus, hyperacusis/reactive tinnitus, pulsatile tinnitus, chirping and TTTS.

      Tinnitus Level: According to Tinnitus Handicap Inventory, I have gone from Catastrophic (5) to between moderate and mild (2-3). Of note, my onset level went from mild to almost gone then I made the mistake of listening to binaural beats shooting it to what I consider beyond catastrophic levels. I'm not kidding when I say it was like a hair dryer blowing in my ear. I told my wife I was going to kill myself and to forgive me. I should note that my tinnitus is never constant in behavior but always morphing. About two years ago it came in too many forms to count but now there's about 5 versions that come and go at random. Make no mistake there's always a version present. For the most part it's a whispy, leaky air compressor sound. Onset was constant whole tone... B to be exact. Binaural beats video gave me 2 new tones tea kettle, jet engine and cicada. Year after pulsatile, somatic and chirping tinnitus were added.

      Hyperacusis Severity: From sitting in dead silence due and constant, substantial pain to now tolerating 85 dB pretty well. I was home bound as the human voice would cause my face to "burn" and my TTTS to go insane. Tolerance is frequency dependent but all in all I can live a normal life. I was able to mow my lawn for the first time this year with acrylic "full" dB cut ear plugs. Setbacks from years, to months now days resulting in slight pain and elevated tinnitus.

      TTTS: From sharp staccato spasms upon any sound to "firing" occasionally beyond 85 dB. About 2.5 years ago it would make me dizzy. Overall, I lost some balance but now 97% of it is back.

      Reactive Tinnitus: Almost gone, but still sensitive to certain frequencies. Elevated levels last a day or so. Many consider reactive tinnitus a non-"thing" but rather a symptom of hyperacusis. Heated debates occur over this but I have other stuff to worry about.

      Pulsatile Tinnitus: from intermittent 6/10 to 1/10.

      Chirping: from shotgun stutter and electrical shock sensation to short-lived intermittent with minimal sensation. At one time this was soul sucking.

      Somatic Tinnitus: Right side of face/head only. When I push on heat it created an independent static sound. Volume has gone from 7 to 3 but this is hard to quantify. Doesn't bother me now after getting past initial disappointment.

      The really good part is all symptoms are getting better with big changes happening mid 2019. Interestingly, although the Tinnitus Handicap Inventory places me at a moderate level, having experienced what I have without knowing the inventory I would put myself now at a 1. I feel very, very fortunate. There are days (1 day/month) where I think it's going away but I've learned my lesson not to get my hopes up... Ha! This to illustrate how much better it's gotten and just to be sure it's not habituation but actually volume level.

      The frustrating part of all this is there's no concrete "rules." Some get better while others stay the same or get worse. However, I do think in most cased it does get better. Another thing to keep in mind is that if tinnitus levels don't actually decrease, chances are you'll get used to it. I've come to know many people who have had it since child birth. According to the Inventory (sound level) a few are considered between 4-5 and guess what, it doesn't bother them in the least; more of an awareness.

      Thus stuff sux complete arse, but your situation is most likely to get better.

      Stubby
       
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    2. Lilah
      Bashful

      Lilah Member Benefactor

      Location:
      USA
      Tinnitus Since:
      12/2018
      Cause of Tinnitus:
      Unknown
      Such an amazing story that your tinnitus improved after several years.
       
    3. AUTHOR
      AUTHOR
      StubbyJ

      StubbyJ Member

      Tinnitus Since:
      05/02/2016
      Cause of Tinnitus:
      Loud Noise Exposure
      I think I'm now at what my T was supposed to be like. The past 4 years have been a slow recovery from the binaural beats. I can't advocate enough for people to stay away from these sorts of things. Only natural sounds...stream and bird video/audio works wonders for me.
       
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    4. serendipity1996
      No Mood

      serendipity1996 Member Podcast Patron

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Unknown but suspect noise-induced
      Amazing recovery and so glad that you are back to normal now. Do you ever struggle with anxiety/intrusive thoughts about sound levels etc? I suffered a hyperacusis setback at the end of last year and am now 90% recovered but my short-lived relief has been replaced with ruminating about dangerous noise levels. I can handle most everyday noise but I am incredibly fearful of things like fire alarms and the prospect of all my progress being erased and ending up back at square one. Unfortunately life and the real world is unpredictable and you have to learn to live your life - I try and mitigate this by always having a pair of earplugs handy but this fear is honestly starting to hold me back. Have you dealt with similar situations?
       
    5. Mi1

      Mi1 Member

      Tinnitus Since:
      2 months
      Cause of Tinnitus:
      firework
      I also feel the same way!! You have to be careful but also learn to relax I think. Not every sound will damage your ears but I would not go to concerts and stuff.
       
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    6. Mister Muso
      Inactive

      Mister Muso Member

      Location:
      Scotland
      Tinnitus Since:
      2007 / April 2019
      Cause of Tinnitus:
      Loud music
      Great success story! I experience all the same symptoms you describe. My worst time was almost a year ago, but gradually improving.

      When you say to avoid binaural beats, did you still use other sounds apart from nature sounds? I enjoy various selections of ambient backround music, acoustic/musical neuromodulation, bell melodies etc. But I do stay away from binaural beats, for some reason I can't quite put my finger on - they just don't feel right to my ears. By the way I think everyone with hearing problems should avoid "Tibetan bowl" music - I nearly damaged myself within the first seconds of one such video on YouTube. Also I used to find white noise/pink noise helpful when my tinnitus was loud, but now that it's quieter I find those sounds irritating to my ears. River and birdsong sounds can still be helpful unless they make my tinnitus louder which happens on certain days.
       
    7. AUTHOR
      AUTHOR
      StubbyJ

      StubbyJ Member

      Tinnitus Since:
      05/02/2016
      Cause of Tinnitus:
      Loud Noise Exposure
      I'm not back 100%, but I don't worry or obsess about sound levels within reason. I had to use a chainsaw too weeks ago for an extended period of time using acrylic musicians IEMs as plugs and muffs with no issue. Last summer this would have not been possible; not even close. This stuff is crazy. I was on hold (telephone) the other day and some thing produced this crazy high pitched squeal. This irritated my ears more than the saw did. I hear that many people once reaching a certain state of healing, progress sky rockets. I would agree with this based upon my experience.
       
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    8. AUTHOR
      AUTHOR
      StubbyJ

      StubbyJ Member

      Tinnitus Since:
      05/02/2016
      Cause of Tinnitus:
      Loud Noise Exposure
      For the past two years I only use birds and river sounds here and there (2/month). I try to stay away from masking as I don't want to depend upon it. I may go back to using it if for some reason I digress, but at this point I'm so very lucky to be where I'm at. As I type my bad ear is a whisper. Never would have imagined this 3 years ago. Interestingly, about 4 months ago both ears volumes lowered to what I would call a .5. I actually started to panic a bit due to the odd silence. Think of the experience people encounter in sound proof rooms.
       
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