My Update — Visit to the Tinnitus and Hyperacusis Clinic at Froedtert

Discussion in 'Support' started by AmericanJosh, Oct 8, 2018.

    1. AmericanJosh

      AmericanJosh Member

      Location:
      Wisconsin, USA
      Tinnitus Since:
      8/2018
      Cause of Tinnitus:
      noise exposure while doing work on home
      Saw audiologist at the tinnitus and hyperacusis clinic at Medical College of Wisconsin. They did numerous tests and found that I have hearing loss between about 15 and 20 kHz. Thankfully not at the hearing floor level, but clearly outer hairs are damaged. No loss up to about 12 kHz at all. Eardrums and canals are great and no indication of middle ear issues.

      Did an hour's counseling session but I already knew most of the things prior to going based on hours of my own research.

      She did mention that fixing hair cells would likely not cure most tinnitus because current research indicates that once you have tinnitus for a while, then it is in the brain.

      They suggested sound therapy and gave me information on how to do this on my own for free.
       
      • Like Like x 2
      • Informative Informative x 2
      • Hug Hug x 1
      • Good Question Good Question x 1
    2. Jack Straw
      Balanced

      Jack Straw Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      I am not sure they are correct.

      There are some theories that once the inner hair cells are repaired and sending correct signals to the brain the problem will correct itself.

      @JohnAdams is more knowledgeable about this than me.
       
      • Agree Agree x 3
    3. Red
      Crappy

      Red Member

      Location:
      Northeast USA
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Noise Exposure (Headphones)
      Oof. That's tough to hear but ultimately important. While we don't know for sure, it is a good idea to set onself for disappointment in case regeneration doesn't work.
       
    4. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      I wouldnt go that far..... we only have presumptions. However I would presume that audiologist is talking out of her ass. We just wont know until data on human hair cell regeneration is released. If that woman was a true doctor she would understand the scientific method and not make such assumptive comments.
       
      • Agree Agree x 7
    5. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      Did you do an audiogram/DPOAE?
      I have also hair cells damaged.
       
    6. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      How much loss in higher frequencies?
       
    7. Michael B
      No Mood

      Michael B Member Benefactor

      Location:
      San Diego
      Tinnitus Since:
      '11
      Cause of Tinnitus:
      Noise Induced
      Depending on your age, it's my understanding that hearing loss at 15kHz and above is normal.
       
      • Agree Agree x 1
    8. PortalNaut

      PortalNaut Member

      Location:
      USA
      Tinnitus Since:
      Late 2/2018
      Cause of Tinnitus:
      Noise Induced
      @AmericanJosh what is your age range? (update, I see your first posts saying in 40's). I'm in my 50's and cant hear much above 13kHz. As one gets older and the ability to hear high frequency decreases, some people (minor portion) get T from the decreased range, while others adjust slowly and T doesn't come up. I had a noise event and I think I did lose some of the high range I had had but maybe not much. If you had a sudden event impacting that range you mentioned, I am very sorry.
       
      • Like Like x 1
    9. AUTHOR
      AUTHOR
      AmericanJosh

      AmericanJosh Member

      Location:
      Wisconsin, USA
      Tinnitus Since:
      8/2018
      Cause of Tinnitus:
      noise exposure while doing work on home
      @PortalNaut . Just turned 40 last week. I've done loud home remodeling work for 10 years on my home and never used ear protection and listened to loud music and podcasts v ou a earbuds for years. I am confident that's what injured me.
       
    10. PortalNaut

      PortalNaut Member

      Location:
      USA
      Tinnitus Since:
      Late 2/2018
      Cause of Tinnitus:
      Noise Induced
      Well it's impressive you have had good high end hearing, but the loss of parts of it in the way that you say must have happened has caused the T and as we all know, T sucks. Perhaps with time it will get better. For what it's worth I do think the brain can "calm down" some and do some remapping. I heard one description that after an event and damage, the brain hearing circuit is acting like it has turned up the gain. And so we have to get that response back to something normal.

      Good luck! :)
       
      • Agree Agree x 1
    11. AUTHOR
      AUTHOR
      AmericanJosh

      AmericanJosh Member

      Location:
      Wisconsin, USA
      Tinnitus Since:
      8/2018
      Cause of Tinnitus:
      noise exposure while doing work on home
      @PortalNaut That's what the audiologist said. Our brains have plasticity which allows new connections. This happens all the time, with new experiences and thoughts. By not perceiving t as a threat and not having a negative reaction to it, it can indeed be ignored for the most part.
       
      • Helpful Helpful x 1
    12. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      • Like Like x 1
    13. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      Was it pure tonal audiometry or did they test for speech in background noise?
       
    14. AUTHOR
      AUTHOR
      AmericanJosh

      AmericanJosh Member

      Location:
      Wisconsin, USA
      Tinnitus Since:
      8/2018
      Cause of Tinnitus:
      noise exposure while doing work on home
      Tonal, then a voice recognition at various volumes.
       
    15. AUTHOR
      AUTHOR
      AmericanJosh

      AmericanJosh Member

      Location:
      Wisconsin, USA
      Tinnitus Since:
      8/2018
      Cause of Tinnitus:
      noise exposure while doing work on home

      She said the current, reliable research indicates that once it gets into the brain and other brain centers, repairing hair cells won't undo those connections that were made throughout the network in the brain.

      The studies you cited are unreliable and do not meet the requirements of a good study. See the elements of a good clinical study here. In the first one you cited, there were only 13 subjects. Studies should have no less than 50 subjects to be valid and reliable. In addition, one study on any scientific question is never enough. Studies must be repeatable to be valid - this is the basis of scientific inquiry.
       
    16. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      where is the study she cited?
       
      • Like Like x 1
Loading...

Share This Page