Not taking this lying down!

Discussion in 'Support' started by Anne, Jan 17, 2012.

tinnitus forum
    1. Anne

      Anne Member

      Location:
      Florida
      Tinnitus Since:
      10/2011
      have made an appt for next Tuesday with the ENT Specialist of Florida. This will be the 3rd doc.
      My primary wants either a ct scan or an MRI done to rule out Acoustic Neuroma. Aside from the T, she feels I have a lot of symtoms associated with AN (pressure, headaches, unbalance and hearing loss) and with my right ear history (cholestoma) and the issues I've had with it, She feels these test SHOULD be done. Finding an ENT to do this is turning out to be more difficult that thought....
      Hopefully Tuesday will go my way!
       
    2. calin
      Inspired

      calin Member Benefactor

      Tinnitus Since:
      Oct 2011
      Hi Anne, Nice to meet you.

      Gosh, my ENT insisted I have an audiologist check my hearing before he would even see me. And then he cleaned my ears and gave me a RX for cardiology workup, MRI with and without contrast and a sonagram for the carotid artery.

      I haven't had anything done except the hearing tests so far.

      I wish you luck with the ENT. Are you asking on the phone if they will consider such tests before you see them?
       
    3. insane_inspiration
      Inspired

      insane_inspiration Member Benefactor

      Location:
      India
      Tinnitus Since:
      09/2013
      What happened to your report? I'd like to know, if it's no problem with you. My mother's had T for about 4 years now, and she's showing many symptoms related to AN and that scares me.
       
    4. Per

      Per Member

      Tinnitus Since:
      06/2013
      How can a MRI scan rule out acoustic neuroma?
       
    5. Golly
      Bookworm

      Golly Member Benefactor Team Awareness Team Research

      Location:
      New York City
      Tinnitus Since:
      01/2011

      According to the NY Eye and Ear Infirmary, "The definitive diagnostic test for an acoustic neuroma is Magnetic Resonance Imaging (MRI) of the nerve of hearing and balance." ( http://www.nyee.edu/faqlist.html?tablename=faq&key=70 )

      I had an MRI in my early stages of tinnitus onset. I think it's acoustic neuroma and other tumors that doctors are trying to identify with this procedure.

      -Golly
       
    6. carlover
      English

      carlover Member Benefactor

      Location:
      London
      Tinnitus Since:
      1986
      Hi ,wouldnt worry too much about this.I have never read on any forum about anyone being diagnosed for this.By the way if it isnt inherited then its symptoms in one ear only .

      The MRI will come back fine "you will have to learn to live with it" or " take some serc and see us in a year"

      Yoweeee another satisfied customer.
       
    7. Golly
      Bookworm

      Golly Member Benefactor Team Awareness Team Research

      Location:
      New York City
      Tinnitus Since:
      01/2011
      Agreed: I thought about putting this caveat in my post. Neurologists often proactively request an MRI because this is the type of medicine they practice and the types of problems they solve. My understanding is that in most cases, tests come up negative. As Anne said, the MRI allows one to rule out unlikely, but serious causes of tinnitus.

      -Golly
       
    8. Per

      Per Member

      Tinnitus Since:
      06/2013
      @Golly,

      I think its important to rule out things because it's not negligible. Seems to me that many medical people believe that we don't need to know the cause of the problem, that's an awful response and it undermines our significance. The ENT surgon that diagnosed my T said "well, it doesn't really matter what got you here, T is T and it will never go away anhow." In other words he drew vast conclusions on the behalf of me, not very trustworthy. Actually, the cause of my T is one of my utmost important issues. I'm looking forward to get to the bottom of this, I need to know why I have severe T because then I can attack the problem in a more accurate manner. This demands some testing to rule out causes as well, so I understand everyone who wants to take all the tests they are able to get.

      I guess that ENT "expert" would like to know what created his cancer if he had that. Or pehaps he would be satisfied with "it doesn't matter what the cause is, cancer is cancer and you will never get well from it." o_O
       
      • Like Like x 1
    9. Golly
      Bookworm

      Golly Member Benefactor Team Awareness Team Research

      Location:
      New York City
      Tinnitus Since:
      01/2011
      Hi Per;

      Good points. Perhaps I used the wrong term when I said negligible. Instead, one should view the possibility that tumor is the cause of tinnitus as low-probability, but worth investigating because of the potential seriousness of such a cause.

      I quite agree with you that anyone suffering from tinnitus should attempt to unearth the cause. This is what I have been attempting for two-plus years!

      -Golly
       

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