Nothing I've Tried Has Helped My Ringing Ears — Why Doesn't Someone Develop a Cure?

Discussion in 'Support' started by Ringingwontstop, Dec 18, 2021.

    1. Ringingwontstop

      Ringingwontstop Member

      Tinnitus Since:
      2001
      Cause of Tinnitus:
      Unknown
      I have tried everything I can find to ease the ringing in my ears. Nothing works. The last thing I tried was Apple Cider Vinegar. That made it worse.

      The ringing is so loud now that I am in tears all the time and at times I wish I was deaf or dead. This is unbearable. I can't think straight or concentrate and cannot sleep. I go for days without sleep until I pass out from exhaustion. That's definitely not the way to live. I need relief very badly.

      Supplements are so damn expensive and they are all fake. All the treatments and supplements are just a scam. Doctors don't give a damn about helping. They just want your money.

      Why doesn't someone try to develop a cure?
       
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    2. Michael Leigh

      Michael Leigh Member Benefactor Hall of Fame

      Location:
      Brighton, UK
      Tinnitus Since:
      April /1996
      Cause of Tinnitus:
      Noise induced
      Hi @Ringingwontstop.

      I am sorry to know you are experiencing so much difficulty with tinnitus and note, that you have had it since 2001, and therefore had it for quite a long time. It would be helpful to know when did it start to get worse?

      Something usually causes tinnitus although on your profile it reads unknown. The most common cause of tinnitus is exposure to loud noise and typically it is using any type of headphones at too high a volume. If your tinnitus isn't noise induced, then it's possibly related to an underlying medical problem within your auditory system.

      If your tinnitus is noise induced and you have been using headphones, earbuds or headsets over the years, then this is probably the reason your tinnitus has increased. If you have been playing a loud musical instrument, working in a noisy environment, going to clubs, concerts where loud music is played this can increase the tinnitus too.

      Whether your tinnitus is noise induced or caused by an underlying medical problem within your auditory system, you need to have tests at ENT to check your hearing to determine what is causing the tinnitus? If it is related to a medical problem then your ENT doctor should hopefully be able to suggest treatment. If the tinnitus is noise induced, then a referral to an audiologist that specialises in tinnitus and hyperacusis management would be better for you.

      If you were deaf then you would still hear the tinnitus as the noise is coming from your brain. Please click on the links below and read my posts. Make an at ENT for tests.

      All the best,
      Michael

      New to Tinnitus, What to Do? | Tinnitus Talk Support Forum
      Tinnitus, A Personal View | Tinnitus Talk Support Forum
       
    3. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      You're not alone. We're here for you.

      We need to calm down your CNS. Can you get something to help your sleep and anxiety? I've just started on some herbs... Having a foot massage now. Considering CBT/mindfulness.
       
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    4. GeorgeLG
      Wishful

      GeorgeLG Member

      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Leaf blower after yrs of rock guitar, constr & comp shooting
      When you come across absolute negative statements, remind yourself that they are born out of anger and rage and will only serve to hurt people. I understand the frustration, I have metastatic cancer with no cure after 5 years of surgery, radiation and chemo as well as tinnitus, hyperacusis and ear pain but please don't destroy the hope of people who are suffering that still want to seek and to receive help. Some of the negative people here are suffering too and I am sorry for that but this is not helping them or the people that come here asking for help. Hurting others helps no one.

      Let's break down some of the comments I've seen.

      Are people doing research and working on treatments? Yes and there are many threads here keeping tabs on these efforts such as Susan Shore at Michigan University. Will there be a cure some day? I don't know. Tinnitus does not have just one cause. Sound exposure, medications, deficiencies, nerve issues, tumors (rare), ... Because of this treatments and cures do not all have the same approach. The TMJ sufferer may get relief in a different way than the military munitions operator with hearing damage or the person with a severe vitamin B12 or glutathione deficiency. Some cases involve nerve damage, referred pain, hair cell damage, limbic system imbalance, deficiencies, etc. It's not one disease.

      In the meantime do we get dismissed by doctors, friends, relatives, other members here? Sure. Is there this constant judgement of yours is better or worse than mine, get over yourself, "man" up and stop being a cry baby? Sure but so what. There are haters everywhere in life, I just ignore them. Their opinion of me is none of my business. Suffering is suffering and let's get on with whatever help is available. I don't subscribe to the theory discussed here on occasion that we cannot discuss treatments that can help people like Back to Silence, mindfulness, CBT, TRT, etc because then nobody will do research and find a physical cure. I also do not believe that every success story is a cry baby with a minor case of tinnitus and that something that worked for them cannot translate to someone with a high level of suffering. Knowledge is power. I celebrate every person who came here and found something that helped them, even if it did not help me. This forum is a great resource with many knowledgeable and helpful people.

      Is there at least some relief available now for many if not most of the people here? Yes there is. Relief described by one sufferer may not translate to you. Some trial and error, testing or research into your total symptom complex may be needed to find out what works for you.

      Supplements, snake oil or helpful? That depends. If you have a deficiency of a substance that can cause tinnitus/hearing loss or a broken process needed to convert something necessary for protection of your hearing system then yes that supplement may help you or prevent further damage. If not then that supplement may be a waste of money. We are not all the same. A research paper that I read recently stated that participants experienced a 50% reduction is perceived tinnitus volume if they were supplemented with vitamin B12 BUT only if they were deficient to start with. NAC only helps you if you have insufficient glutathione stores. Glycine only helps you if you don't have enough to convert the NAC to glutathione, etc. So are some supplements a waste of money for some people? Sure, it depends on what you need.

      The effect on our lives is a combination of the sound levels, sound types, pain, sensitivity and our reaction to it. We all have different personalities and emotional make up so we all handle this differently. There are hundreds of stories shared here with people that have gotten significant, sometimes total relief by addressing the emotional component of their suffering, how they relate and react to their tinnitus. Back to Silence, mindfulness, TRT, CBT somatic tracking, DNRS, etc. Will everyone get the exact same response? Of course not. Can everyone get some measure of relief, I believe that the answer is yes. I have experience with these techniques in chronic pain, adrenal system problems and now tinnitus. If these methods have not helped you or you are not ready to try them OK but that does not mean that the OP or any others will not get relief from these techniques. I am an electrical engineer by education and a General Manager by work experience so I am trained and conditioned to doubt any proposed solution to a difficult problem until proven and these techniques have helped me, for 35 years.

      @Ringingwontstop, please do not be discouraged by the people here that have given up and are filled with anger. There are hundreds of uplifting stories here of kind people who have found relief and have shared what worked for them.

      All the best,
      George
       
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    5. Vicki14
      Panicky

      Vicki14 Member Benefactor

      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Stress
      I’ve been listening to this audiobook. It’s absolutely amazing. I have loud intrusive tinnitus and can definitely recommend this one.

      4BC54DA0-1BC6-4253-9319-E7ECE1197EBD.jpeg
       
    6. GregCA
      Jaded

      GregCA Member Benefactor Hall of Fame

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Can you elaborate on what you find amazing/interesting about that book?
       
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    7. GeorgeLG
      Wishful

      GeorgeLG Member

      Tinnitus Since:
      05/2021
      Cause of Tinnitus:
      Leaf blower after yrs of rock guitar, constr & comp shooting
      +1

      George
       
    8. Vicki14
      Panicky

      Vicki14 Member Benefactor

      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Stress
      The author is a vestibular audiologist who has tinnitus herself and talks about neuroplasticity and how healing IS possible and offers real hope.
       
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    9. rewgs

      rewgs Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      Unknown
      What specifically does he talk about with regards to treatments/cures?
       
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    10. Vicki14
      Panicky

      Vicki14 Member Benefactor

      Tinnitus Since:
      January 2016
      Cause of Tinnitus:
      Stress
      She talks about neuroplasticity and how it’s possible to overcome the anxiety associated with tinnitus thus reducing the volume.

      Definitely the best material on tinnitus I’ve listened to!
       
    11. DebInAustralia
      No Mood

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      The only issue with Joey are her fees...
       
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    12. Wrfortiscue
      Probing

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Yeah everyone trying to make money lol.
       
    13. guenguer

      guenguer Member

      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Sudden hearing loss 2004/12/14
      Being deaf won't help you though. Tinnitus will stay.
       
    14. volsung37

      volsung37 Member Benefactor

      Tinnitus Since:
      2014
      I’ve started reading it.

      I’ll let you know what I think.
       
    15. volsung37

      volsung37 Member Benefactor

      Tinnitus Since:
      2014
      You know what? I probably won’t continue this book.

      There is a kind of magic to coming out of tinnitus.

      I did it 3 and a half years ago. I probably did a lot of the things the author is talking about.

      However I don’t want to put a name to them.

      Perhaps in a year or two’s time if I’m no better I will read on.
       
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