One of the Largest Tinnitus Trials Yet

Discussion in 'Support' started by Cillian, May 5, 2016.

tinnitus forum
    1. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      Hello everyone just letting people know a huge trial is talking place in Ireland soon.

      I did not know how severe it was in Ireland until I met with the Irish Tinnitus Association last week.

      They told me 1 in 10 have tinnitus.

      Good to see my small country trying to help out :)

      image.png
       
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    2. Sarah Russett

      Sarah Russett Member

      Tinnitus Since:
      unknown
      It's 1 in 10 everywhere as far as we know.
       
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    3. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
    4. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
    5. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      Go for it Cillian if you feel you want to,I think it's a Neuromonics trial which I don't have much faith in personally but who knows you might get some relief.I applied for the sake of it but as with everything for me I was refused yet again.
       
    6. Sarah Russett

      Sarah Russett Member

      Tinnitus Since:
      unknown
      @Cillian I know. It's horrible. Just another example of the stigma surrounding mental health. In that the medical community seems to only take it seriously when they can blame the negative impacts of so-called benign conditions on it. Like NO. It's a rational response to a very horrible condition, like any other horrible condition and you should take peoples' pain (emotional or otherwise) seriously.
       
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    7. valeri

      valeri Member Benefactor Team Awareness

      Location:
      Australia
      Tinnitus Since:
      09/2011
      What is this trial?
       
    8. Rosie_Rose
      Frustrated

      Rosie_Rose Member Benefactor

      Tinnitus Since:
      1989? Maybe longer
      Cause of Tinnitus:
      Car Accident
      ....sounds like it's time for a lengthy stay in Ireland! I'm all for that! :)
       
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    9. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      Ya your spot on T has put a big dent in my life and my mental health :(

      @valeri I'm not sure I'll look into it when I'm finished work and let you know :)
       
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    10. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      I'm sure Cillian will accommodate you while you stay,isn't that right Cillian:)
       
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    11. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
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    12. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Thank you for sharing the information with us @Cillian....lots of love glynis
       
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    13. Jamclem

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      @bill 112 Hey, just out of curiosity why were you refused (again) for a trial? Am sure there is a trial somewhere you could do?
       
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    14. NineNails

      NineNails Member

      Yes, but 90% have minor T, which is exclusively perceivable when plugging the ears or in total silence. Thus they hab eventually and a real treatment, let alone a cure, isn't paramount for them anymore.

      Neuromonics trial.. sound placebo therapy. Awesome!
      Looks like they refuse intelligent people.
       
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    15. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      Have no idea why,maybe because I was wise as to what it was and they felt uncomfortable with my questions.Either way it's one of those"sound based"therapies that basically do nothing.My main suspicion as to why I was refused might have something to do with the fact that I stated in my email"is this just one of those sound therapies that fool people into thinking it's gone?"and I'd say they weren't very happy with that:ROFL:
       
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    16. Nick Pyzik
      Depressed

      Nick Pyzik Member

      Tinnitus Since:
      6/23/15
      Cause of Tinnitus:
      Listening to in-ear headphones & playing in a band
      I'm assuming those in Ireland have been inflicted by hearing damage much more because of their "partying type nature". Quite simply, Rambunctious partying = loud noise = higher risk in hearing damage = developed ringing. I'm sure the decibel levels at a party, especially with tremendously loud music playing from speakers, is incredibly high.
       
    17. jeanoroid
      Yeehaw

      jeanoroid Member

      Location:
      Nashville
      Tinnitus Since:
      2010
      Cause of Tinnitus:
      Loud Music / headphones
      Just read up on Mutebutton.
      Interesting. Do we know of anyone here w experience w this therapy?

      Guess I was a year early.
      Was in Ireland this time last year. D'oh!
       
    18. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      It's all being kept somewhat a secret here for some reason and I can't understand it.Absolutely nobody is aware of Mutebutton and I mean nobody!Ents,specialists you name it have no idea what Mutebutton is.I've emailed them a few times but just got obscure responses back from them.My expectations is extremely low for this.
       
    19. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      There's a party culture here but it's nothing compared to nearly every other country out there,Spain for example is much more a"clubbing"country than Ireland.My opinion for what it's worth is that the Irish are just cashing in on the T game like everyone else,I could be wrong but I won't be surprised if this flops.
       
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    20. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      It's 50:50 like most other countries it's not all party caused haha
       
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    21. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      Another thing to mention is that basically no one here gets treatment for T,mainly because there is none.So if the Irish are let loose with a"revolutionary"T treatment their going to feel results because simply they've never been treated for it before.This might sound stupid to most here but believe me,I'm Irish and I know what the Irish are like and how things work here and this will see results regardless whether it does anything or not.If a trial was held in the U.K it would be a different story.
       
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    22. Jamclem

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      @bill 112 eehh yeah thats probably the reason why you were refused you muppet :ROFL:.

      You will have to find something better then inside :)
       
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    23. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      Haha screw them,what the treatment is should be open to the public not kept secret for mysterious reasons,they got asked a few questions and refused me and I think that speaks volumes in itself wouldn't you agree?
      Either way I have no faith in it,just felt it was at least my duty to try and take part as the info may have been helpful here,I'm not crying myself to sleep over it I can promise you that;)Where are you from by the way?
       
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    24. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      I was refused anyway
       

      Attached Files:

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    25. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      What did you do,ask them a question?:ROFL:
       
    26. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      What exactly is their exclusion criteria?Nobody seems to get that far as to finding what it is,there's nothing on their website about exclusion criteria.Maybe their overwhelmed with the interest?I dunno why they're just outright saying no to people before even finding out if they meet the criteria,seems odd.
       
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    27. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      @bill 112 do you believe the part about thousands applying from all over the country ?
       
    28. bill 112
      Studious

      bill 112 Member

      Location:
      Republic Of Ireland
      Tinnitus Since:
      02/2012
      Cause of Tinnitus:
      Noise exposure
      That I do believe,it's been all over the radio and it seems everyone I talk to mentions it to me so the word is definitely out there.Its false hope Cillian,these devices are just a fancy snake oil in my opinion.
       
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    29. Cillian

      Cillian Member

      Tinnitus Since:
      04/16
      Cause of Tinnitus:
      Sinus infection
      Ya I hear it on the radio non stop I believe we are years away from proper T treatment but hopefully this can be the first step
       

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