Please Don't Say There's No Cure for Tinnitus

Discussion in 'Support' started by Greg Sacramento, May 2, 2022.

    1. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      It all depends on the level of pain or suffering one has, and if they can deal with it. Everyone’s different. I know life can suck but other than killing myself, what can I do?
       
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    2. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      It sucks man. All I know is I rather be annoyed than anxious/scared when I get my tinnitus changes. It changes and reacts a lot, and I have pain too. I have good periods though which allow me to recover and prepare for when the next wave of wtf happens lol.
       
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    3. AUTHOR
      AUTHOR
      Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      There are cures, or as close as it gets, for many whose tinnitus was caused from illness or injury.

      Been there, done that - with many - and with many their physical tinnitus has either greatly improved or gone.

      I'm also one of the older sufferers with very severe everything.

      Having grown up outside of Boston, I would very much like to see one more Fenway night game and the Celtics, but it's not going to happen. I still have my Boston accent.
      For children, tinnitus caused by otitis media, infection, ear wax and high fever is usually temporary. It can be difficult to get some parents to make an ENT appointment. Some parents won't seek medical when their child has a head injury. Welcome to California. With kids, 90% experience no hearing loss.

      Some children do have coping problems and when various injuries are involved.

      I really don't have anything more to add that I didn't already say in this thread. I appreciate all the comments. All very special friends. Thank you and Lots of Love.
       
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    4. Marshall

      Marshall Member

      Location:
      ND
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Not sure/virus/noise trauma/cumulative noise damage
      My friend who is my age, 28, suddenly went deaf in one ear and has pretty mild hearing loss in his other ear. He had tinnitus for about 2 years and then it went completely away. He showed me his audiogram and it’s pretty severe. He also kept living his life like normal when it happened, no hearing protection or anything. Some people are lucky.
       
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    5. Marshall

      Marshall Member

      Location:
      ND
      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      Not sure/virus/noise trauma/cumulative noise damage
      Reaction is a lot of it too. People commit suicide over tinnitus they can only hear in a quiet room. And I know people with severe tinnitus like my dad who doesn’t let it bother him.
       
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    6. Wrfortiscue
      Cowabunga

      Wrfortiscue Member Benefactor Hall of Fame

      Tinnitus Since:
      1999
      Cause of Tinnitus:
      Trauma
      Most definitely.
       
    7. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      Ya, I feel that. I personally believe that repairing damage in our ears is not as likely to happen in the near future. I liken the ear’s anatomy to a very complex watch in the 1800s. Remember those watchmakers who were masters at their craft? The watches used to be so intricate that it required a specialist to perform surgery on them. Many were built by hand and had tiny, delicate parts that — as a whole — made the system work, and tick. Now, multiply that by 100,000+ and you got the ear. With all its parts, I think we might be able to reconstruct it 100-200 years from now, but it’s more likely that we’d just replace it entirely with a completely artificial ear, right? That makes more sense.

      But not all hope is lost. In the meantime, scientists and doctors ought to be able to come up with a device or medication that can bypass the madness, like what the potassium channel modulators strive to do or benzos. In those cases, you’re not really fixing the damage, you’re just rerouting the traffic. Like imagine a road that’s fucked-up and they close it as a result. It has big-ass potholes or needs repaved. They’d just set up a detour so traffic can still move effectively. That way there’s no jams or craziness. But imagine the road never gets repaired and the alternate route becomes permanent. That’s how I envision ear treatments in the near future, too — detours, not repairs. Which I’m totally fine with. If we can just silence things, why’s it matter what the mechanisms are behind the silence? I do feel bad for those with hearing loss, though. But maybe hearing aids and such could still help them in combination with the “detour” drug or device.
       
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    8. Juan

      Juan Member Hall of Fame

      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      Several causes
      That's what cochlear implants aim to do, but they are no substitute for natural hearing. Apparently, nothing can resemble natural hearing nowadays.

      Wearing a hearing aid is not like wearing glasses. Hearing aids cannot help users hear as they used to do when they had no hearing loss.

      The problem with hearing loss is one still hears sound but the quality is worse. For instance, one hears the vowels and the consonants are totally missed or very dimmed. So language sounds like wah-wah-wah, blah-blah... with some random consonants (the one that specific person hears a bit better) pour on to the soup (a soup with some pieces of meat on it). In this scenario, people guess a percentage of what they are told using context.

      When hearing worsens more or there is speech with background noise, there is just soup (the vowels) and consonants are almost inexistent... people do not hear them.
       
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    9. beefling

      beefling Member

      Tinnitus Since:
      10/2021
      Cause of Tinnitus:
      Cumulative noise/Dysacusis
      Not to go off-topic or anything, but reading this immediately made me think of adults from the Peanuts/Charlie Brown cartoon. Had a good chuckle.
       
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    10. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      So your tinnitus went down or you just stopped "focusing" on it? Because if you can't "hear" it during the day and only "hear" it at night that is definitely not severe.
       
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    11. NYCGuy
      Wishful

      NYCGuy Member Benefactor

      Location:
      NY
      Tinnitus Since:
      10/2021
      Cause of Tinnitus:
      Neck, Jaw or Stress, who knows.
      I know it is severe because I have been able to hear it over everything for as long I can remember but now during the day I can go without caring about it. I think habituation is possible even for extreme cases but again, everybody is different.

      I think we should stop saying everybody suffers the same because we don't.
       
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    12. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      Definitely true. Tinnitus can be all over the place and experienced differently by many. I worry that habituation is impossible when it becomes a painful feeling, too, and not just a sound — not like a vibrational feeling, but an electricity type. Maybe I’m wrong, but I was able to habituate pretty good to a bass hum with deep vibrations because it didn’t hurt. It was annoying, yes, but the brain can kind of get used to it or block it out because it’s still “soft.” Tinnitus can be loud and still soft frequency-wise. However, I have this new high frequency, pulsating tone that sounds like 2 knives sharpening against one another and it feels like electrical currents; when it randomly peaks, it aggressively zings, which is like a shrill, sharp zap. That happens often, sometimes a few times per minute. And often, it literally feels like I have currents running through the side of my head. It fluctuates a lot, too, making it hard to get used to it. So I worry that it’s not possible to habituate to tinnitus like that, which has become almost sadistic in nature.
       
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    13. TomBradyGOAT

      TomBradyGOAT Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Who knows
      Tinnitus has multiple causes. Drugs can cause it and it can go away. TMJ. People on here put their eggs in one basket even when it comes to cures. A cure may fix it for some and not the others.

      @Greg Sacramento, sorry to hear you came from Boston. I am from Maine. Guess it isn't true that all people from Mass are Massholes.
       
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    14. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      In my opinion "habituation" is only possible if the case is stable or not catastrophic. I have had tinnitus that I "heard everywhere", but "hearing it" and having your head exploding from the sheer volume and number of tones are two different things. It's honestly impossible to "not care" about 70+ dB tinnitus that spikes permanently from literally everything.

      Yeah it's true not everyone suffers the same, but not everyone has the ability to "habituate" (99% of people who have tinnitus have it mild/moderate/stable, which is why imo they can "habituate" or not care about it). Stability is everything.

      In any case I'm glad you're doing well.
       
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    15. AUTHOR
      AUTHOR
      Greg Sacramento

      Greg Sacramento Member Benefactor Ambassador Hall of Fame Advocate

      Tinnitus Since:
      04/2011
      Cause of Tinnitus:
      Syringing + Somatic tinnitus from dental work
      I grew up in Massachusetts, but outside of Boston in an area that had miles of woods, ponds and lakes. I also lived in New Hampshire. My grandparents were born in Maine. I have done some camping in Maine. We would go to L.L. Bean late in the night as back then; they were open 24/7.
       
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    16. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      Yes, it's possible if you remove from all consideration the truly shocking frequency of suicides (especially when they are validated by these various VAD agencies) that are reported on Tinnitus Talk and on other news sites.

      I can only imagine the impossibility of habituation for Kent Taylor when he was able to get no more than 2 hours sleep every night for 60 consecutive days. This is even more brutal than the sleep deprivation tortures that the Chinese Communists inflicted on our captured soldiers during the Korean War. Even they knew that such deprivation as Kent Taylor's would utterly destroy the most fortified, stable ego; their techniques for eliciting propaganda would be defeated because the prisoner would be incapable of even recognizing a statement that censured the USA.

      You're goddamn right that everybody is different.

      It's the emotional-fascist ballyhooers on behalf of habituation (like Jastreboff and Michael Leigh) who maintain that everybody is in fact not different, and if you fail at habituation this is solely because of your own weaknesses and character defects.
       
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    17. blamingeverything

      blamingeverything Member Benefactor

      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      high frequency hearing loss
      I'm sick of the negativity. Thank you @Greg Sacramento for posting something positive.
       
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    18. Ken219
      Frustrated

      Ken219 Member

      Location:
      New York Area
      Tinnitus Since:
      Summer of 1990
      Cause of Tinnitus:
      Noise exposure?
      Why do many children have tinnitus?
       
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    19. volsung37

      volsung37 Member Benefactor

      Tinnitus Since:
      2014
      I healed completely from severe tinnitus after two years.

      I lived in lovely silence for 3.5 years until November 2021 when I took the Pfizer jab. Now it's back at twice the volume along with pulsatile tinnitus.
       
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    20. volsung37

      volsung37 Member Benefactor

      Tinnitus Since:
      2014
      I’ve been getting an average of about 3 hours sleep for the past 5 months.

      Habituation is difficult for severe tinnitus but it can be done. It takes a lot of time though. Maybe a year or more. I did it when I first had tinnitus. Once I habituated sleeping became easier and the noise itself abated.

      I am now cursed with vaccine induced tinnitus which seems to be in a whole different league. It will be very hard to habituate to it.
       
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    21. bobvann
      Badass

      bobvann Member

      Location:
      Inside the vortex
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      Loud shit
      Or as per the YouTube video I posted in General Chat>Tinnitus Truths, you are mentally ill.
       
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    22. Frayact

      Frayact Member

      Location:
      Greensboro, NC
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Unknown
      Last night was one of the worst I can remember since the late 90s. The low-pitched hum in my ears was so loud, I didn't fall sleep until around 6AM. I had to take a Valium in order to get some semblance of sleep. But that barely did anything. I felt like a complete freak lying there with the noise permeating my skull.

      I mention this not to gain sympathy, but to reiterate that we all have our own private hell when it comes to this affliction. I've considered suicide, but I would never go through with it until I had tried literally everything to regain feeling functionable again. My doctor has added a new drug to the antidepressant I'm taking to see if that will improve my life. I'm also going to make an appointment with my ENT (again) to get another hearing test and talk to him about possibly getting a CT scan to find any abnormalities that might exist in my ears. Of course, from 26 years' experience, it's safe to say that nothing new will be found, and my hearing test results will be normal for my age (61). So I may be throwing money down the drain again even though I do have health insurance.

      I feel so trapped as I write this. Nothing makes sense, and I have no desire to do anything. The new antidepressant I started a month ago hasn't kicked in, but my doctor said to stick with it. He's a good man and a wonderful physician, so I trust his judgement. But last night I just wanted to go to sleep and never wake up.

      You'd think after all these years of dealing with this low-pitched hum off and on, that I could just ignore it and even laugh it off. But the brain doesn't get used to every stimulus. Some noises are so loud they can't be ignored. I have a high-pitched hissing as well, but that sound never interferes with my life. It's like crickets in the background that don't matter. But the hum is a physical sensation that vibrates and turns my pillow into a pneumatic drill when I lay my head upon it. Without proper and regenerative sleep, it's practically impossible to function at 100%. I still go to work and fulfill all my obligations, but I no longer have any hope for the future. My entire view of the world and life has been skewed. I have no appetite. My friends sympathize, but they have no idea what it's like.

      Thank you for reading this and letting me contribute to the forum. I'm hoping that one day none of us will need to be here.

      Craig
       
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    23. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Hi @bobvann -- Apparently some people have improved their interstitial cystitis with ozone therapy. In case you're interested, the section below on bladder infections is from the book The Ozone Miracle, by Frank Shallenberger, M.D. In the book, the author talks about how a person can set up their own system of ozone treatment at home, but there are also easier options. You can purchase things like ozonated olive oil capsules that a person can take internally to get started. Here's what he had to say about bladder infections, with a focus on interstitial cystitis:

      Bladder Infections
      Bladder infections are usually best treated with antibiotics. If they are resistant, the bladder insufflation technique can be used in addition. But the most incredible use of the ozone bladder insufflation technique is for a very severe bladder disorder known as interstitial cystitis (IC). In 2015 I presented a study to the Cuban Ozone Therapy Society of 18 patents with severe and long standing IC that had not responded to any form of therapy.

      Of this very difficult group 55% were completely cured and 30% were substantially improved after only three weeks of ozone therapy. However, because it is such a difficult and painful problem, patients with IC should only treat themselves while under the supervision of a practitioner trained in treating this dosorder. You can find doctors trained in ozone therapy at (American Academy of Ozonotherapy).​
       
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    24. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Hi @Frayact -- Sorry to hear how things have turned more difficult for you. I couldn't help but notice that your increased tinnitus levels seem to be coinciding with your taking a new antidepressant. Any chance that is what could be causing your spike? Best...
       
    25. Frayact

      Frayact Member

      Location:
      Greensboro, NC
      Tinnitus Since:
      04/1996
      Cause of Tinnitus:
      Unknown
      No. My most recent tinnitus relapse happened on March 27. I didn't start the new AD until several weeks later. I switched because I had been on Lexapro for 15 years and had very good success with it. But my doctor said that ADs can lose their efficacy when taken for that many years. The relapse caused my life to spiral into that deep, dark well of depression again. Now, if the new AD makes the symptoms worse, I'll come off of it. But some ADs can take 6-8 weeks to work. I'm just glad I have insurance.
       
    26. DaveFromChicago

      DaveFromChicago Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2014
      Cause of Tinnitus:
      Headcold/Flu
      If you are sick of the "negativity", @blamingeverything, then you should get off this forum.

      I have no intention of having whatever it is that irritates you so much about these reports that describes the full, real symptomatology of this condition (and its more than occasional tragic consequences) acting as a justification for muzzling and censoring our struggles.

      Harry Truman would have shouted in your face, "If you can't stand the heat, then get out of the kitchen."
       
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    27. blamingeverything

      blamingeverything Member Benefactor

      Tinnitus Since:
      12/2021
      Cause of Tinnitus:
      high frequency hearing loss
      It is possible to express your experience without being such a toxic presence, as you are.
       
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    28. AnthonyMcDonald
      Confused

      AnthonyMcDonald Member

      Location:
      Russia
      Tinnitus Since:
      06/2021
      Cause of Tinnitus:
      Noise induced
      @DaveFromChicago makes a valid point. I find nothing worse than toxic positivity or gaslighting of severe/catastrophic sufferers of being "toxic".

      If you want happy la-la land and waves of positivity then maybe you really shouldn't be on this forum, even though there are some specimens here who preach toxic positivity and worship big J.
       
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    29. Jerad

      Jerad Member

      Location:
      Ohio; United States
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      Medication ototoxicity
      I’m sad to see all the suffering on here. I understand and see both sides, to be honest. I understand why some people are so upset and why some may see them as confrontational. I understand why they’re confrontational. There are no viable treatments yet. These conditions can be one of the worst things imaginable — when they’re catastrophic — and the medical community still hasn’t come up with anything, and still often doesn’t acquire the appropriate funds to expedite their efforts. So ya, I get the rage, but I also understand why some encourage positivity ‘cause sometimes, hopes and dreams are all we got. If there’s nothing to believe in or we can’t point to something as a shot for refuge, we have nothing left in life — just a bottomless pit.

      There’s a lot of trauma on this board and that’s why the tensions are high. For some, severe tinnitus and hyperacusis are so intrusive — literally painful, physically and emotionally — that it’s like being raped or molested nonstop, violated by a force that hides in plain sight. The penetration hurts and the scars it leaves behind, mentally. Only we can see and feel what we’re experiencing, and how we experience it is weighed against the levels of torment endured.

      For some, it’s like a horror movie come true. My experience with very severe tinnitus and hyperacusis reminds me of the movie, “Hellraiser,” for example, where the sufferer is Frank or Fran Cotton, their curiosity meets catastrophe, and the blood keeps running like a sadist’s wet dream. It’s the stuff of true terror, where pleasure’s replaced with pain, pain devours all the light, and life procures a sordid tale… you hope there’s an end in sight, but you just don’t know. The thought of it being eternal is just so scary.
       
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    30. tpj
      Depressed

      tpj Member Benefactor

      Tinnitus Since:
      08/2008
      Cause of Tinnitus:
      probably noise
      There is a success stories category here you could focus on.
       
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