Randi Zuckerberg Knows a Lot About Hearing Loss

Discussion in 'Awareness & Fundraising' started by Foncky, Oct 20, 2016.

tinnitus forum
    1. Foncky
      Doubtful

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      03/2004
      Cause of Tinnitus:
      An explosion, music, and fate.
      • Like Like x 2
      • Agree Agree x 2
    2. Champ
      Woot

      Champ Member Benefactor Team Tech

      Location:
      Boston, MA
      Tinnitus Since:
      1/2013
      Cause of Tinnitus:
      Acoustic trauma from headphones
      Somehow he got help according to that story to repair his hearing loss.

      So my next question is, how the hell do we get this?
       
    3. Foncky
      Doubtful

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      03/2004
      Cause of Tinnitus:
      An explosion, music, and fate.
      I think he had an infection in the outer or middle ear. So something surgery could fix. Not the same story with inner ear damage unfortunately.

      But we can guess he got the best treatment/surgeon available on earth... ;)
       
    4. Foncky
      Doubtful

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      03/2004
      Cause of Tinnitus:
      An explosion, music, and fate.
      So the world richest man's sister is personally concerned by hearing loss and I'm the only one here who wants to contact her to talk about hearing disorders and how they affect the daily life of millions.

      Mark Zuckerberg and his family are not only rich, they really care about diseases that have no treatments yet.

      All right, I'll do it. Will keep you posted ;)
       
    5. lolkas

      lolkas Member

      Tinnitus Since:
      06/06/2016 ?
      Cause of Tinnitus:
      Don`t know
      Hey Foncky,

      let me know how can i help. My company did some IT move support here in NYC for Facebook and i might be able to get in contact with someone here in NYC from FB but not sure that can what not get to Mark or Randi
       
    6. Foncky
      Doubtful

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      03/2004
      Cause of Tinnitus:
      An explosion, music, and fate.
      Hi lolkas,

      All right, that could be useful ! I don't know how to proceed yet. I'm currently trying to write a good letter for her, I'll have to decide how to send it in a smart way. She must get tons of emails every day.
       
    7. lolkas

      lolkas Member

      Tinnitus Since:
      06/06/2016 ?
      Cause of Tinnitus:
      Don`t know
      Not sure either. We have to ask if she can help raise awarness and assist with pushing this issue to masses. Her kid had hearing issues and she most likely to react to our problem. It would be cool if they would post audio stream (continious) with some high pitched noise and say that this is what tinnitus sufferer experiences and its constant without relief. And in order to give us our lives back - cure must be found to at least supress this symptop to a point where it is barely noticable at all, if not eleminated completley.

      Again, we need to state that we do understand that Tinnitus is a symptom, not a desease, but it is as bad as terminal condition, it just never ends. Point out that if we could supress that, then doors to cure for NIHL (most common cause) could be found and other causes as well.
       
    8. Vinnitus
      Bookworm

      Vinnitus Member Benefactor

      Location:
      Amsterdam
      Tinnitus Since:
      28/04/2016
      Cause of Tinnitus:
      Acoustic Trauma
      Good idea, @Foncky, perhaps something good will come from it. We need people in influential positions to put this issue higher on the agenda.

      Did you already send your letter in the meantime? If I can be of any assistance, please let me know.
       
    9. Foncky
      Doubtful

      Foncky Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      03/2004
      Cause of Tinnitus:
      An explosion, music, and fate.
      I did not send it yet.

      Just tell me what you think is very important to tell her.

      Yep, thank you, I'll include all that.
       

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