Support Group Worth Attending?

Discussion in 'Support' started by Michael R, Nov 13, 2015.

tinnitus forum
    1. Michael R
      Woot

      Michael R Member

      Tinnitus Since:
      6/2015
      Cause of Tinnitus:
      Unknown
      There is a support group meeting in my area tomorrow that I found out about on the ATA website. I've had T for about 4 and a half months now. I was wondering if anyone has been to these support group meetings and if they are positive and perhaps uplifting in a way. I really don't want to go out of my way to go somewhere that might make me feel worse about my condition, I am not habituated but do have alternating good and bad days. Anyone any thoughts?
       
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    2. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Hi Michael R ,
      It should be a positive experience for you and make some friends going through the same feelings and dealings with tinnitus and given sound advice in person.
      I run a tinnitus group with another lady and would recommend them...lots of love glynis
       
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    3. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      Hi @Michael R: I was not a big fan of the support group in my area that was listed on the ATA web site. But I definitely would encourage you to go. We are lucky to even have support groups near us; many people don't.

      Groups will vary greatly, according to the mix of people they attract and the facilitator. I would recommend you try to go at least two or three times before you make up your mind. A good support group can be invaluable. I have been involved with several, just not one regarding tinnitus. The worst that can happen is it will not be a fit for you and you will move on.

      One caveat, though: One reason I didn't like my support group is that it was run by a couple who sells hearing aids and maskers. I sensed one of their main reasons for having the group was to sell product. So: I would ask questions about who is sponsoring the group and why. The ATA does not check these things out. Anyone who says they have a group can have it listed.

      I would be much more interested in going to a group facilitated by a kind and helpful fellow T patient, like @glynis-harbron. Alas, she lives across the pond.
       
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    4. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      I've personally found general chronic pain support groups more useful than the tinnitus specific ones I've gone to -- but I also have a wide range of issues...
       
    5. Tweaker
      Doubtful

      Tweaker Member Benefactor

      Location:
      UK
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      Noise exposure
      I go to a support group here in the UK. I look forward to going and for me has been the best treatment for my tinnitus. I always come away feeling like I'm not alone and have others who really understand. Family, friends and work colleagues dont understand the suffering it causes. Only those with this wretched condition truly understand. I am fortunate to have a great group of people. I guess each group varies but I wouldn't think twice about giving it a go. For me it has helped me more than any doctor has.
       
    6. Phil-O

      Phil-O Member

      Location:
      Lancashire UK
      Tinnitus Since:
      02/2015
      Hi @Tweaker
      We are setting one up in the north west, Blackpool, Lancs. can you give us any tips / topics you discuss. Thanks Phil
       
    7. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Our group is free and weekly and just a 30p charge for a hot drink.
      It is listed on the BTA support group under dDeaflinks .
      We talk about tinnitus and other non related things to help positivity and on hand all week if they need to talk to us for support....were a cheery lot and sometimes cheeky ....lots of love glynis
      Thank you @LadyDi for your kind words too...lots of love glynis
       
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