The Day I've Been Dreading

Edd209,
We are all thinking of you at this distressing time !
Know that we are all here for you and hope the meds kick in quick and no infection in the bones too as like my dad it's hard to treat but it can and takes time.
keep us all updated..lots of love glynis

 

Don't forget life is a rollercoaster. Good Times Bad Times...

 

Very true. I've said in the past that without knowing pain you can never truly appreciate happiness.

 

Have they got you doped up I'm oralmorph?
When do you have your scan?
Love glynis

 

Yes 40 is definitely more concerning than 38...

Makes sense. Especially in your case, the sooner you can deal with signs of infection the better.
Good luck!

 

No idea Glynis I've spoken to 3 Drs, 2 consultants, and 2 thoracic surgeons so far and they keep changing their minds. They've changed my antibiotic to metronidazole. The CT mentioned earlier hasn't been mentioned since so I have no idea what they are planning.

 

Hi Ed

Little steps...concentrate on resting, then drinking or eating or whatever they tell you, nothing else, forget about the bigger picture because right now it's too big, but u will get there.

The antibiotics may help with the ETD, you never know...all of us st some point could be confronted with a major op or an emergency and it will be a choice between taking heavy drugs or protecting the ears with not much time to evaluate things in between. We can't control everything unfortunately.

One step at a time, concentrate on getting better.
Forget work, family commitments.
Tinnitus won't go anywhere either so you will have time to deal with that and it will probably stay the same after your treatment.
ETD will go gradually, have had it - real pain and here in the UK you don't get anything for it.

Lots of love x

 

Had two hospital stays a week each one for tests Markku put a post up to members and the next was galbladder out... just go with the flow and take good care of yourself.
So glad you have a signal so we can all keep you company.
Love glynis x

 

Morning Ed,
How are you today ? X

 

Bit rough and in pain but I'm alive.

 

We are all thinking about you and hope the medication starts to clear the infection.
I know it must be so hard for you at the moment but try keep your chin up.
We can keep you company too .
Love glynis

 

Just had a CT scan. My temperature is still raised though. Whilst I was away apparently one of my students, who's a consultant at the hospital, came down to see me. It's a shame I missed him since I'm never out the ward.

Hopefully, I might find out more later.

 

Thinking of you and fingers crossed your CT scan is ok....
Hope you have some inmates chat too !
Love glynis

 

Thanks so much for the updates on your ordeal Ed. And hopefully you will again "truly appreciate happiness" soon. I know I do not post very often but when someone like yourself is in agony I know how much support means.

I hope changing the antibiotic helped and is there any news on when you will get sprung from the hospital?

Love to you and your wife and parents while you get better. They seem to be a wonderful support for you.

 

Thanks starthrower, it's just one thing after another, but I suppose I've got no choice but to deal with it. Sepsis is no joke and I count my blessings that I erred on the side of caution and went to hospital.

It could always be worse, so I always try to remain positive, but this in particular is digging up shit that I thought was buried and gone.

 

We are with you Ed and here when you get home as that's when it gets very emotional recovering at home.
You can get through this so keep posting we are all here for you xxx

 

Ed, please lets us know how it goes.
i feel so sorry that you have to go through this.
but im pretty sure that everything will be back to normal soon, this might be the darkest but it shall pass soon.
youll be back to normal and healthy pretty soon.
you are n my prayers.

 

Hi Ed,
How are you doing ?
Hope your meds have kicked in .
I'm on sofa and bed rest as lungs really naughty.
Anyway hope you have some nice company on the wards and behave with the nurses...
Love glynis

 

I was released last night as I'm no longer deemed a medical emergency and they need the beds. I'm still really ill but have been discharged with the meds to treat myself at home. The company on the ward was what got me through; I was lucky to be in a bay where I got on really well with two other guys. Tragically, the older guy was terminal and only had months to live, but he was hilarious and had an infectiously positive personality.

Right now I've got to continue on antibiotics and head to London on Friday to be cut open and irrigated again. I'm not sure how any infection can be avoided when I went septic in two days last time round. It has to be done though because I have a collection of fluid there. I'm still waiting for the pain to subside which is felt any time I move, so I can only imagine having it done again on Friday is going to be incredibly painful.

 

Aww! Not nice going have to have that operation but I'm sure you will be in the best of care and hope home soon after.
It's not nice so make the most of some relaxing days in the sun if you can or open a few windows.
I'm so worn out with crappie lungs and raging ears so resting up at home ....
You take care,
Love glynis

 

You too Glynis, and thanks for the support. I'm sorry to hear that your lungs are playing up. Get some rest and take it easy.

 

I wish you all the best @Ed209 and hope the procedure goes well in London.
Michael

 

Yes I understand that very well. Trauma from the past is so hard to deal with when it is brought back again. I guess you search for that strength you have developed over the years and focus on how you made it through. The emotional and physical pain from this will ease. Even after the next draining procedure in London.

It is always the days leading up to it that are the hardest. Having to think about it for days or weeks.....and not easy to get out of your brain when the pain is there reminding you.

I really thank you for the updates and hope you know the responses here are hopefully giving you some peace of mind.

Glynis is so wonderful with her advice and love for people.

Rest up at home and try to keep busy with something.....not sure what that would be. Hard to concentrate on reading and such. You are a great writer.

Just thinking of you....be well.

 

Good Luck Ed for tomorrow and hope they take great care of you.
Keep us posted on how you are doing and will keep checking on here....
Stay strong and we are all routing for you!
Love glynis x

 

Hi Ed,
Have you had it done yet......? X

 

Had it done at 5:30, and I'm now on the train heading home. This time he tried to manually extract as much as he could to try and reduce the invasiveness. I'm quite bruised around my chest and they said this will get worse and become quite painful. I've been given 450mg dose of clindamycin to take on top of the 500mg of flucloxacillin that I'm already on. I'm taking both of these 4 times a day, and I won't lie, the concerns of ototoxicity at these high and prolonged doses is bothering me a bit. Even though neither drug is ototoxic, I have been taking a heavy and prolonged hit of these drugs both orally and intravenously.

 

Glad it went on ok and keep lots of painkillers in.
Make sure you rest up at hope and hope keep your chin up as it can be emotional in the aftermath of it all.
You take good care of yourself and we are here keep you company too,
Love glynis x

 

Thanks Glynis, but I've got to go back on the 5th of June, so it ain't over yet. It will be a check up/ further drainage job. In the mean time I've got to hope I don't end up in A n E again.

 

Aww....let's hope the meds help you and your chest soon starts to feel better and the brushing settle....
You have been through so much and your a wonderful person whom I have got to know on here... fingers crossed for you...
Love glynis