Tinnitus Research Initiative (TRI) 2019 Conference

@Hazel
Very best wishes to your ma Hazel,
Take care
Dave x

 

@Hazel thank you. The traveling sounds so difficult and you are forging ahead for our cause. I am thinking of you and your mom who must realize how special you are. Words are hard to find and I write this as I am out of the door this morning.

Can we donate towards Tinnitus Hub to help cover your expenses? Will have to check in later today.

Again thinking of you.

 

@Hazel you're amazing! I hope you'll find at least a little enjoyment among the health worries and the discomfort of the trip. Wishing all the best to your mom.

 

Good luck @Hazel,
We are lucky to have you.
Take care,
love glynis

 

Hi Hazel,

Sorry to hear about your mom. I sincerely hope she is on the road to recovery.

And an extra big thank you for making such a long trip, especially at a time like this. Please know that we all appreciate the long hours Markku and yourself put into the tinnitus cause.

Wishing you a safe trip-
TC

 

Love and respect for everything you do @Hazel and @Markku, and all the others who grind for the cause.

Sincerely,
Stu

 

The TRT status quo'ers will be attending the 2019 TRI conference and this time they are going to be spreading outdated views on hyperacusis that can result in serious maltreatments of patients.

Tinnitus Talk's goal could be to ask them if there is a difference between pain and loudness hyperacusis and how in the world sound therapy could manage both?

Research suggests loudness hyperacusis is related to the central gain mechanism in the auditory brain which also can cause tinnitus.

Research suggests pain hyperacusis (noxacusis) is related to cochlear nociception and/or peripheral neuropathy.

https://www.entandaudiologynews.com...iological-mechanisms-of-hyperacusis-an-update

This monopoly in the field can't go on. I personally don't believe it's entirely Dr. Jastreboff's fault TRT is a monopoly in the US. It's because audiologists are just not innovative since they are too focused on selling hearing aids, and hyperacusis is rare, while noxacusis is even rarer. It's just that the field was stagnant due to the conditions being rare and Jastreboff's model went unchallenged for decades.

 

Thank you @Hazel and @Markku for all you do on behalf of all the members and the tinnitus community at large. Your dedication is admirable. It must be very hard for Hazel to leave her mom while she suffered a stroke. Hope she will recover gradually and be well.

 

Heartfelt gratitude to you Hazel! May you travel safely and your mom swiftly recover.

 

Well IMO the hearing field is less dominant than the research field. But Jastreboff's model needs a big update.
Simply saying that more stress is more tinnitus does not count anymore.

Good luck @Hazel and best to your mom. There is a big interview with Dirk de Ridder in this weekend's Dutch newspaper Trouw were he also mentions Winfried Schlee.

https://www.trouw.nl/home/bij-oorsuizen-is-de-piep-het-signaal-van-een-schattend-brein~aa1074cf/

 

Hazel, wishing your mum a speedy recovery and good health. Thank you for all of your hard work. xx

 

Good luck and be safe. Thanks for trying to help us.

 

Great to hear you'll be there Hazel. Like you, I also have one sided hearing loss with no known origin. My hearing loss was sudden and complete, on right side with tinnitus and hyperacusis, so I am looking forward to seeing what you report following this trip.

Godspeed!!

 

@Hazel
Looking forward to your report.

From Germany, Prof. Langguth is also there (as a speaker). He is the one who was mentioned by Neuromod when talking about collaboration with Germany. Hence, I assume that he will tell something about it.
Susan Shore is also there as a speaker. Would be good to get the latest news.

I am also in contact with someone from Regensburg (where Prof. Langguth) is located. If I get anything from there, I will let you know.

Take care.

 

Thank you @Hazel, this is awesome and you are so pretty!! In all my years involved with tinnitus organizations and in different arenas this is by far the most professional representation of our online community that has been ignored.

This traveling and time you give are beyond what I can express with gratitude.

Hope your mother is doing okay.

Many hugs...

 

Hazel is AWESOME.

If I saw that spider I would have run screaming too.

 

Thanks a ton @Hazel!

 

Excellent @Hazel!!

Were you able to connect with Dr. Billy Martin yet? If you get the opportunity please tell him Bob and Jen in California want to say hello!

I cannot believe how much time and money is going into this.

I hope everyone understands how dedicated you and @Markku are!!

 

That is professor Dirk de Ridder on the last picture. I hope @Hazel interviewed him or will do so later.

 

@Hazel best wishes! And I hope a fast and complete recovery to your mother!

I hope/wish there was some news concerning tinnitus research...

Looking forward to hearing more about the conference.

 

@Hazel
Do you have any further information from the conference?
Anything about Lenire or other developments?

Thanks and best regards.

@Markku

 

Just keep donating to the cause!

 

Thanks heaps @Hazel for travelling all the way to TRI Taiwan to help keep us up-to-date with current tinnitus research. It is much appreciated

 

Would be good to get some news from the conference.

@Markku @Hazel

Had an eMail exchange with someone who was there.

The statement was:

"Many research projects, but no breakthrough on the horizon seen for curing tinnitus".

Regarding availability of Lenire, it seems it will take some more time (she was even talking about years). I hope this won't be true and is just a personal assumption.

 

Well that sucks, but who knows.

In terms of Lenire availability... what does that mean exactly? Not available in the USA or something? Surely it'll be available in Ireland?

 

Wow. Hazel...

Thank you for your hard work... and you look strong, pretty, and great.

Take your time... take care of your mom.

Thank you so much for helping us...

Thank you Markku and all the people behind the scenes.

Massive gratitude.

Daniel