Tinnitus Research Initiative (TRI) 2019 Conference
- Thread starter Markku
- Start date
Member
- Jun 6, 2013
- 1,373
- Tinnitus Since
- January 2002
- Cause of Tinnitus
- Dental Surgery
@Hazel thank you. The traveling sounds so difficult and you are forging ahead for our cause. I am thinking of you and your mom who must realize how special you are. Words are hard to find and I write this as I am out of the door this morning.
Can we donate towards Tinnitus Hub to help cover your expenses? Will have to check in later today.
Again thinking of you.
Hi Hazel,
Sorry to hear about your mom. I sincerely hope she is on the road to recovery.
And an extra big thank you for making such a long trip, especially at a time like this. Please know that we all appreciate the long hours Markku and yourself put into the tinnitus cause.
Wishing you a safe trip-
TC
Sorry to hear about your mom. I sincerely hope she is on the road to recovery.
And an extra big thank you for making such a long trip, especially at a time like this. Please know that we all appreciate the long hours Markku and yourself put into the tinnitus cause.
Wishing you a safe trip-
TC
The TRT status quo'ers will be attending the 2019 TRI conference and this time they are going to be spreading outdated views on hyperacusis that can result in serious maltreatments of patients.
Tinnitus Talk's goal could be to ask them if there is a difference between pain and loudness hyperacusis and how in the world sound therapy could manage both?
Research suggests loudness hyperacusis is related to the central gain mechanism in the auditory brain which also can cause tinnitus.
Research suggests pain hyperacusis (noxacusis) is related to cochlear nociception and/or peripheral neuropathy.
https://www.entandaudiologynews.com...iological-mechanisms-of-hyperacusis-an-update
This monopoly in the field can't go on. I personally don't believe it's entirely Dr. Jastreboff's fault TRT is a monopoly in the US. It's because audiologists are just not innovative since they are too focused on selling hearing aids, and hyperacusis is rare, while noxacusis is even rarer. It's just that the field was stagnant due to the conditions being rare and Jastreboff's model went unchallenged for decades.
Well IMO the hearing field is less dominant than the research field. But Jastreboff's model needs a big update.
Simply saying that more stress is more tinnitus does not count anymore.
Good luck @Hazel and best to your mom. There is a big interview with Dirk de Ridder in this weekend's Dutch newspaper Trouw were he also mentions Winfried Schlee.
https://www.trouw.nl/home/bij-oorsuizen-is-de-piep-het-signaal-van-een-schattend-brein~aa1074cf/
Cape crusader
Member
- Sep 29, 2018
- 138
- Tinnitus Since
- 09/18/18
- Cause of Tinnitus
- Microsuction ear wax removal
JohnFox
Member
- Mar 12, 2019
- 253
- Tinnitus Since
- 02/2019
- Cause of Tinnitus
- Unknown. Sudden loss of 100% hearing R ear with Tinnitus
Great to hear you'll be there Hazel. Like you, I also have one sided hearing loss with no known origin. My hearing loss was sudden and complete, on right side with tinnitus and hyperacusis, so I am looking forward to seeing what you report following this trip.
Godspeed!!
Godspeed!!
@Hazel
Looking forward to your report.
From Germany, Prof. Langguth is also there (as a speaker). He is the one who was mentioned by Neuromod when talking about collaboration with Germany. Hence, I assume that he will tell something about it.
Susan Shore is also there as a speaker. Would be good to get the latest news.
I am also in contact with someone from Regensburg (where Prof. Langguth) is located. If I get anything from there, I will let you know.
Take care.
Looking forward to your report.
From Germany, Prof. Langguth is also there (as a speaker). He is the one who was mentioned by Neuromod when talking about collaboration with Germany. Hence, I assume that he will tell something about it.
Susan Shore is also there as a speaker. Would be good to get the latest news.
I am also in contact with someone from Regensburg (where Prof. Langguth) is located. If I get anything from there, I will let you know.
Take care.
Founder
- Jun 6, 2013
- 1,373
- Tinnitus Since
- January 2002
- Cause of Tinnitus
- Dental Surgery
Thank you @Hazel, this is awesome and you are so pretty!! In all my years involved with tinnitus organizations and in different arenas this is by far the most professional representation of our online community that has been ignored.
This traveling and time you give are beyond what I can express with gratitude.
Hope your mother is doing okay.
Many hugs...
This traveling and time you give are beyond what I can express with gratitude.
Hope your mother is doing okay.
Many hugs...
@Hazel's second day at the TRI conference in Taipei!
On the way to the conference arena, Hazel came across this. We don't tend to see these kinds of eight-legged monsters back home. Hazel was unfazed - I would have screamed like a little baby and ran away.
Welcome to the conference.
Today consisted of recording interviews (on video) with almost a dozen tinnitus researchers.
I want to highlight how much time and effort this takes. To arrange the interviews, plan for them, hire a professional video person, the actual day of shooting, the work that ensues after that, editing, publishing. We are talking hundreds of hours of work.
Overall, the second day was a success. We are looking forward to bringing you interviews and lay-friendly summaries of what we thought were the most interesting talks/sessions and which Hazel was able to attend besides organizing the interviews. We also were able to ask some awesome ESIT/TIN-ACT PhD students to help us with attending some of the sessions and forming summaries.
Now, as I'm writing this, it's evening in Taipei and Hazel is currently attending the networking dinner.
Hopefully we continue to make some new valuable connections!
On the way to the conference arena, Hazel came across this. We don't tend to see these kinds of eight-legged monsters back home. Hazel was unfazed - I would have screamed like a little baby and ran away.
Welcome to the conference.
Today consisted of recording interviews (on video) with almost a dozen tinnitus researchers.
I want to highlight how much time and effort this takes. To arrange the interviews, plan for them, hire a professional video person, the actual day of shooting, the work that ensues after that, editing, publishing. We are talking hundreds of hours of work.
Overall, the second day was a success. We are looking forward to bringing you interviews and lay-friendly summaries of what we thought were the most interesting talks/sessions and which Hazel was able to attend besides organizing the interviews. We also were able to ask some awesome ESIT/TIN-ACT PhD students to help us with attending some of the sessions and forming summaries.
Now, as I'm writing this, it's evening in Taipei and Hazel is currently attending the networking dinner.
Hopefully we continue to make some new valuable connections!
- Jun 6, 2013
- 1,373
- Tinnitus Since
- January 2002
- Cause of Tinnitus
- Dental Surgery
- May 8, 2012
- 1,601
- Tinnitus Since
- 04/15/2012 or earlier?
- Cause of Tinnitus
- Most likely hearing loss
That is professor Dirk de Ridder on the last picture. I hope @Hazel interviewed him or will do so later.
Ken219
Member
Would be good to get some news from the conference.
@Markku @Hazel
Had an eMail exchange with someone who was there.
The statement was:
"Many research projects, but no breakthrough on the horizon seen for curing tinnitus".
Regarding availability of Lenire, it seems it will take some more time (she was even talking about years). I hope this won't be true and is just a personal assumption.
@Markku @Hazel
Had an eMail exchange with someone who was there.
The statement was:
"Many research projects, but no breakthrough on the horizon seen for curing tinnitus".
Regarding availability of Lenire, it seems it will take some more time (she was even talking about years). I hope this won't be true and is just a personal assumption.
- Oct 21, 2018
- 999
- Tinnitus Since
- 1997
- Cause of Tinnitus
- Ear infection
Well that sucks, but who knows.
In terms of Lenire availability... what does that mean exactly? Not available in the USA or something? Surely it'll be available in Ireland?
- Oct 24, 2017
- 862
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- one-sided hearing loss (of unknown origin)
Well, yes that is a correct assessment, but also rather black and white. I prefer to think in shades of grey. If there was a big breakthrough we'd all be celebrating now. But just because there isn't one yet doesn't mean these conferences are pointless. The TRI conference might well turn out to be the very thing that leads to the breakthrough, because such events facilitate collaboration and knowledge-sharing between many different disciplines and geographies, which is much needed if we're ever going to find the cure. So while I understand your disappointment, I'm quite a bit more optimistic about the event than your acquaintance.
We are working very hard on this, but please do keep in mind that we're just a very small group of volunteers and we have other things going on in our lives. In this case, the task is entirely on me, since I was alone at the conference, and I am also dealing with a sick mother at the moment.
I solemnly swear that you'll get to hear plenty about the conference, but please try to be patient! It's a lot of work to put together a good conference report and I'm juggling many different things at the moment. Sorry if this seems like a rant
Wow. Hazel...
Thank you for your hard work... and you look strong, pretty, and great.
Take your time... take care of your mom.
Thank you so much for helping us...
Thank you Markku and all the people behind the scenes.
Massive gratitude.
Daniel
Thank you for your hard work... and you look strong, pretty, and great.
Take your time... take care of your mom.
Thank you so much for helping us...
Thank you Markku and all the people behind the scenes.
Massive gratitude.
Daniel
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