Tinnitus & The Body: Take the Survey

Discussion in 'Support' started by Tinnitus Talk, Jan 11, 2020.

    1. Rogi Cetpla
      Frustrated

      Rogi Cetpla Member Benefactor

      Location:
      Europe
      Tinnitus Since:
      T 2010 / IT 2015 / VIT 2019
      Cause of Tinnitus:
      Noise exposure / Head trauma
      Done.
       
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    2. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      We need more people to fill out the survey, please!
      It is extremely important that you do.

      survey.gif
       
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    3. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
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    4. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      Done.
       
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    5. Shaz1
      Gloomy

      Shaz1 Member

      Tinnitus Since:
      03/2019
      Cause of Tinnitus:
      Wellbutrin / Noise Exposure
      (y)
       
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    6. Nanny chocolate

      Nanny chocolate Member Benefactor

      Location:
      Devon
      Tinnitus Since:
      1995
      Cause of Tinnitus:
      Unbelievable caused by audiologist!
      Done.
       
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    7. GoatSheep

      GoatSheep Guest

      Took it on Saturday, but if we are keeping a log of active users participating here then consider me done.

      @Markku @Hazel
      Some questions I would like to see that I don’t on any surveys I’ve taken are in regard to ear issues arising post-tinnitus onset (as some people say some of these things are natural prior to onset).

      - clicking when swallowing
      - air getting trapped in the ear when swallowing
      - pressurization problems when traveling (sometimes on car rides my ears now pop a ton and this never happened before.)
      - patulous eustachian tube-like symptoms

      Can’t think of any others presently but I’ve seen plenty of threads on these issues so it would seem to be useful data for researchers to acknowledge and factor into looking at tinnitus in my opinion.
       
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    8. Ruse
      No Mood

      Ruse Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      NIHL & TMJ
      Done!
       
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    9. Kste Adams
      Studious

      Kste Adams Member Podcast Patron Benefactor

      Location:
      USA
      Tinnitus Since:
      03/2011
      Cause of Tinnitus:
      TMD, Noise?
      I had the same experience with the question about hearing loss. Mine is in the mid-frequencies, but the options were only for low and high frequencies. I added this as a comment at the end.

      Another thing I noticed was that the survey only wanted to know about other conditions that had been diagnosed by a clinician. This meant I had to choose None for a few questions even though I actually do have some of the conditions. (I usually don't bother seeing a doctor for things that have no effective treatments. And with the craziness in the US healthcare/health insurance, I avoid being diagnosed for things that aren't serious or life-threatening.)
       
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    10. brokensoul

      brokensoul Member

      Location:
      Belgium
      Tinnitus Since:
      02/05/2019
      Cause of Tinnitus:
      unknown:medication,cannabis,stress,sleep deprivation
      I answered them as if I was actually diagnosed with it. It seems to me this is valuable information for the study so I didn’t care if I actually was diagnosed or not, at least when I’m sure I have it.
       
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    11. brokensoul

      brokensoul Member

      Location:
      Belgium
      Tinnitus Since:
      02/05/2019
      Cause of Tinnitus:
      unknown:medication,cannabis,stress,sleep deprivation
      I’ve noticed there is often some ambiguity here when it comes to audiograms and frequencies and not everyone uses the same definition. I believe many here have never done an extended audiogram.

      What should we consider as high frequency?

      What exactly is low, mid and high?

      8kHz is only halfway an extended audiogram. It’s not even halfway the full spectrum.

      Do we presume that everything over 8kHz is is high frequency or is it rather ultra high frequency, which is not mentioned.

      Perhaps it was better to add some definition to it to optimise data quality.
       
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    12. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
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    13. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
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    14. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
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    15. Fifth Business

      Fifth Business Member Podcast Patron

      Tinnitus Since:
      2018
      Cause of Tinnitus:
      Deafening applause (ppl clap loudly after reading my posts)
      Guys after a long stretch of good days my tinnitus and neck are both going wild! Please ONLY hug react this post!!

      And thanks for doing this interesting study ;)
       
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    16. MrCrybaby

      MrCrybaby Member Benefactor

      Tinnitus Since:
      2014, 10/2019
      Cause of Tinnitus:
      School Band, Noxious Car Radio
      I’m dealing with this right now. To go from quiet swallowing to clicking hundreds of times a day is harder to deal with than the tinnitus itself for me.
       
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    17. Barbara777

      Barbara777 Member Benefactor

      Location:
      USA
      Tinnitus Since:
      2/2015
      All done!
       
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    18. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      I hope there’s been a fair few thousand fill this out as it’s such a meaningful and useful thing to do, and it’s so easy as well.

      If you haven’t filled it in yet, what’s stopping you? Get cracking otherwise I’ll grass you all up to @OnceUponaTime!
       
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    19. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      My ears squelch and click all the time. If you stop focusing your attention on it, you’ll eventually filter it out and you’ll stop noticing/caring.
       
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    20. Badger19

      Badger19 Member

      Tinnitus Since:
      2019
      Cause of Tinnitus:
      Unknown
      Done! How many respondents do you have?
       
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    21. Dosman

      Dosman Member Benefactor

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Noise Trauma
      Done.
       
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    22. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      We're over 4,000 now, although not everyone has filled it in completely. Our previous record was 6,000 fully completed responses so I really want to pass that!

      Please share the survey wherever you can!!!
       
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    23. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
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    24. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
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    25. morgothaod

      morgothaod Member

      Tinnitus Since:
      03/2009
      Cause of Tinnitus:
      Ear infection
      Done.
       
    26. Jcb
      No Mood

      Jcb Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      December 2017
      Cause of Tinnitus:
      possible TMJ, came on after severe cold and chest infection,
      Done, not as painful as I thought to complete.
       
    27. annV
      Fine

      annV Member Benefactor

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      Thank you. Done.
       
    28. Audiophile_bg
      Furious

      Audiophile_bg Member

      Tinnitus Since:
      08/2018
      Cause of Tinnitus:
      Olanzapine/MRI
      I also did the survey.
       
    29. Rafalek73

      Rafalek73 Member

      Location:
      Poland
      Tinnitus Since:
      11/2018
      Cause of Tinnitus:
      Hearing loss
      Done.
       
    30. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      Have we cracked 10,000 yet? If not, why not!?

      Don’t make me inform Steve about this; he won’t be happy.

      B50856E5-F869-4FBD-A40F-947A75EA2E69.jpeg

      And I’m pretty sure Dr Rauschecker wants access to this information also.

      4EEB776C-D731-4CAB-8F8A-444A70CB6564.jpeg
       
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