Tinnitus & The Body: Take the Survey

Discussion in 'Support' started by Tinnitus Talk, Jan 11, 2020.

Page 1 of 4
    1. Tinnitus Talk
      Balanced

      Tinnitus Talk Knowledge Base Staff Hall of Fame

      tinnitus-body-take-survey.png
      Do you want a cure? Help us collect data!

      Dearest members,

      Have you wondered whether chronic pain, diabetes or dental problems are somehow related to tinnitus? Or have you noticed that your tinnitus is worse on days when your neck hurts?

      To kick off 2020, we are launching a new survey. It focusses on the physical aspects of tinnitus, meaning how tinnitus relates to certain physical ailments and health conditions. The results will hopefully provide new clues about neurological triggers for tinnitus and treatment pathways.

      Please help move tinnitus research forward by filling in the survey!

      ➡️ TAKE THE SURVEY

      It will only take about 7 minutes of your time.

      As you may know, Tinnitus Talk contributes to research by collecting data from people with tinnitus and sharing it freely with researchers. This has already led to a number of academic publications co-authored by us.

      See for instance:
      Somatic Tinnitus and Treatment ⁠— New Evidence
      Tinnitus Heterogeneity — Our Small Contribution to Defining Subtypes

      As always, let us know if you are interested in helping out behind the scenes with our (research) projects. As a volunteer-based organization we can always use an extra pair of hands. Of course, you can also support our work through a financial donation.
       
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      Tinnitus Talk, Jan 11, 2020
      #1
    2. Michael B
      No Mood

      Michael B Member Benefactor

      Location:
      San Diego
      Tinnitus Since:
      '11
      Cause of Tinnitus:
      Noise Induced
      Done.
       
      • Like Like x 3
      Michael B, Jan 11, 2020
      #2
    3. Watasha
      No Mood

      Watasha Member Podcast Patron Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Done.
       
      • Like Like x 3
      Watasha, Jan 11, 2020
      #3
    4. Candy

      Candy Member Benefactor

      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Unidentified
      Done.
       
      • Like Like x 3
      Candy, Jan 11, 2020
      #4
    5. Autumnly
      Wishful

      Autumnly Member Benefactor Hall of Fame

      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Noise-induced
      Done!
       
      • Like Like x 3
      Autumnly, Jan 11, 2020
      #5
    6. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      Done it ages ago what took you all so long!
       
      • Like Like x 2
      • Funny Funny x 2
      Ed209, Jan 11, 2020
      #6
    7. Mymlan

      Mymlan Member

      Location:
      Sweden
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Acoustic trauma
      Done.
       
      • Like Like x 3
      Mymlan, Jan 11, 2020
      #7
    8. jimH
      Caffeine

      jimH Member Benefactor

      Tinnitus Since:
      30 years+
      Cause of Tinnitus:
      Acoustic trauma
      Done.
       
      • Like Like x 1
      jimH, Jan 11, 2020
      #8
    9. Labyrinthine
      Moonlighting

      Labyrinthine Member Benefactor

      Location:
      The Netherlands
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Music
      Yes. Done.
       
      • Like Like x 2
      Labyrinthine, Jan 11, 2020
      #9
    10. UKBloke
      No Mood

      UKBloke Member Benefactor Hall of Fame

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      Done.
       
      • Like Like x 1
      UKBloke, Jan 11, 2020
      #10
    11. FGG
      No Mood

      FGG Member Hall of Fame

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      Done. Will we be able to see the results?
       
      • Like Like x 2
      • Good Question Good Question x 1
      FGG, Jan 11, 2020
      #11
    12. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Of course! But we'll let it run quite a while first, want to get at least a few thousand participants. We will then present the summary data here for all to see.

      The raw data (at individual level) will be supplied to researchers; we have two contacts who will definitely be working on it, but we'll make it available for free to any qualified researcher.

      We will also try to do our own statistical analysis with the raw data, but for that we're as always dependent on qualified volunteers.
       
      • Like Like x 1
      • Informative Informative x 1
      Hazel, Jan 11, 2020
      #12
    13. brokensoul

      brokensoul Member

      Location:
      Belgium
      Tinnitus Since:
      02/05/2019
      Cause of Tinnitus:
      unknown:medication,cannabis,stress,sleep deprivation
      Done.
       
      • Like Like x 2
      brokensoul, Jan 11, 2020
      #13
    14. Trudy in Tucson

      Trudy in Tucson Member

      Location:
      Tucson, Arizona
      Tinnitus Since:
      1990
      Cause of Tinnitus:
      Unknown
      Done, and it gave me a little hope, as I just started physical therapy for neck pain. The physical therapist thinks my tinnitus might be from lifelong neck pain and stiffness, and I think so too, as those 2 things have been a constant all my life.

      I was encouraged when I saw all the questions on the survey about neck pain!

      As I have heard before, the tinnitus has increased a bit since starting physical therapy (only 1-1/2 weeks), but my neck is sure improving.
       
      • Like Like x 1
      • Winner Winner x 1
      Trudy in Tucson, Jan 12, 2020
      #14
    15. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      Done!
      Do you need me to get people here to take the survey??? :LOL:
       
      • Like Like x 1
      OnceUponaTime, Jan 12, 2020
      #15
    16. IAmCalifornia
      Wishful

      IAmCalifornia Member Benefactor Hall of Fame

      Location:
      Pennsylvania
      Tinnitus Since:
      this year
      Cause of Tinnitus:
      i wish i knew
      Done.
       
      IAmCalifornia, Jan 12, 2020
      #16
    17. Gman
      No Mood

      Gman Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Ototoxic earwax drops, worsened by MDs (Muppet Doctors)
      Done.
       
      Gman, Jan 12, 2020
      #17
    18. jeas

      jeas Member Benefactor

      Tinnitus Since:
      October 25, 2018
      Cause of Tinnitus:
      TMJ/Neck
      Done.
       
      jeas, Jan 12, 2020
      #18
    19. Snake
      Heartbroken

      Snake Member

      Location:
      Poland
      Tinnitus Since:
      08/2011
      Cause of Tinnitus:
      2011 - Gaming on headphones. 2020 - Severe by breaking glass
      Done.
       
      Snake, Jan 12, 2020
      #19
    20. Mark A
      Wishful

      Mark A Member

      Location:
      California, USA
      Tinnitus Since:
      06/05/2015
      Cause of Tinnitus:
      Noise exposure
      Done.
       
      Mark A, Jan 12, 2020
      #20
    21. TracyJS

      TracyJS Member Benefactor

      Location:
      Illinois
      Tinnitus Since:
      2/2018
      Cause of Tinnitus:
      Acoustic trauma
      Done.
       
      TracyJS, Jan 12, 2020
      #21
    22. Star64
      Kick ass

      Star64 Member

      Location:
      Melbourne Australia
      Tinnitus Since:
      2001
      Cause of Tinnitus:
      Noise induced
      Done.
       
      Star64, Jan 12, 2020
      #22
    23. Lane

      Lane Member Hall of Fame

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      Single 25 mg dose of (anticholinergic) drug Promethazine
      Done -- I don't know @OnceUponaTime, I have a hard time imagining you being able to "crack the whip". :D You're just too nice! :)
      ........................................................................

      BTW, I've been thinking about passing along some information I got from an email from the Wellness Website that asked the following:

      "By the way, Is there a specific health topic, recipe, or DIY tutorial you'd love to see me write about or interview someone on the Wellness Mama Podcast about? If so, please reply back to this email and let me know!"

      From what I know about this website, I would think they'd be interested in doing a podcast on tinnitus. @Hazel, would this be of interest to you?
       
      • Like Like x 1
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      Lane, Jan 12, 2020
      #23
    24. HeavyMantra
      Bugridden

      HeavyMantra Member Benefactor

      Tinnitus Since:
      Steadily worsening since 2018
      Cause of Tinnitus:
      Unknown
      Done. I've wondered about how somatic tinnitus and noise induced tinnitus relates to each other for a while now.
       
      • Like Like x 1
      • Good Question Good Question x 1
      HeavyMantra, Jan 12, 2020
      #24
    25. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Yes, please! You're good at rallying people, I know :)
       
      Hazel, Jan 12, 2020
      #25
    26. AVIYT
      Wishful

      AVIYT Member Benefactor

      Tinnitus Since:
      January 2019
      Cause of Tinnitus:
      Pregabalin
      Hope it helps, finished mine.
       
      • Like Like x 1
      AVIYT, Jan 12, 2020
      #26
    27. all to gain
      No Mood

      all to gain Member Podcast Patron Benefactor Hall of Fame

      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      Done.

      I found a few questions difficult to answer as there didn't seem to be an appropriate answer or a 'not applicable' answer. But I had to give an answer to complete the rest of the survey. Can't remember which questions they are now.
       
      • Agree Agree x 1
      all to gain, Jan 12, 2020
      #27
    28. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Hey there, sorry to hear that. We did test the survey extensively with a group of test users and made a lot of fixes based on their feedback, so we thought all ambiguities had been resolved. But some things will always remain a matter of interpretation and in the end there's no such thing as a perfect survey (unfortunately).

      You did the right thing though by just answering all questions to the best of your ability. If the 'right' answer isn't there, just pick whichever option seems to come closest. Thanks!
       
      • Like Like x 2
      Hazel, Jan 12, 2020
      #28
    29. all to gain
      No Mood

      all to gain Member Podcast Patron Benefactor Hall of Fame

      Tinnitus Since:
      -
      Cause of Tinnitus:
      -
      I think they were something to do with hearing loss and having had an audiogram. I'm pretty sure i have hearing loss, but I haven't had an audiogram due to one thing and another.
       
      all to gain, Jan 12, 2020
      #29
    30. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Ah, I know what happened there. There's a question asking whether you've been diagnosed with hearing loss by a clinician. If you answer 'yes' there you will get follow-up questions about your audiogram. But you're only supposed to answer 'yes' if you have indeed been formally diagnosed. Hope that makes sense :)
       
      Hazel, Jan 12, 2020
      #30
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