Tinnitus & The Body: Take the Survey

Discussion in 'Support' started by Tinnitus Talk, Jan 11, 2020.

    1. Tinnitus Talk
      Balanced

      Tinnitus Talk Knowledge Base

      tinnitus-body-take-survey.png
      Do you want a cure? Help us collect data!

      Dearest members,

      Have you wondered whether chronic pain, diabetes or dental problems are somehow related to tinnitus? Or have you noticed that your tinnitus is worse on days when your neck hurts?

      To kick off 2020, we are launching a new survey. It focusses on the physical aspects of tinnitus, meaning how tinnitus relates to certain physical ailments and health conditions. The results will hopefully provide new clues about neurological triggers for tinnitus and treatment pathways.

      Please help move tinnitus research forward by filling in the survey!

      ➡️ TAKE THE SURVEY

      It will only take about 7 minutes of your time.

      As you may know, Tinnitus Talk contributes to research by collecting data from people with tinnitus and sharing it freely with researchers. This has already led to a number of academic publications co-authored by us.

      See for instance:
      Somatic Tinnitus and Treatment ⁠— New Evidence
      Tinnitus Heterogeneity — Our Small Contribution to Defining Subtypes

      As always, let us know if you are interested in helping out behind the scenes with our (research) projects. As a volunteer-based organization we can always use an extra pair of hands. Of course, you can also support our work through a financial donation.
       
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    2. Michael B
      Supportive

      Michael B Member Benefactor

      Location:
      San Diego, CA
      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Stupidity
      Done.
       
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    3. Watasha
      No Mood

      Watasha Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      Unknown
      Done.
       
      • Like Like x 3
    4. Candy

      Candy Member Benefactor Advocate

      Tinnitus Since:
      06/2016
      Cause of Tinnitus:
      Unidentified
      Done.
       
      • Like Like x 3
    5. Autumnly
      Wishful

      Autumnly Member Podcast Patron Benefactor Ambassador Hall of Fame Advocate

      Location:
      Germany
      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      Done!
       
      • Like Like x 3
    6. Ed209

      Ed209 Member Podcast Patron Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      Done it ages ago what took you all so long!
       
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    7. Mymlan

      Mymlan Member

      Location:
      Sweden
      Tinnitus Since:
      04/2019
      Cause of Tinnitus:
      Acoustic trauma
      Done.
       
      • Like Like x 3
    8. jimH
      Caffeine

      jimH Member Benefactor

      Tinnitus Since:
      30 years+
      Cause of Tinnitus:
      Acoustic trauma
      Done.
       
      • Like Like x 2
    9. Labyrinthine
      Balanced

      Labyrinthine Member Benefactor

      Location:
      The Netherlands
      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Sex, drugs, and death metal
      Yes. Done.
       
      • Like Like x 3
    10. UKBloke

      UKBloke Member Podcast Patron Benefactor

      Tinnitus Since:
      1991
      Cause of Tinnitus:
      Loud Music / family history
      Done.
       
      • Like Like x 2
    11. FGG

      FGG Member Podcast Patron Benefactor

      Tinnitus Since:
      01/2019
      Cause of Tinnitus:
      Multi-factorial
      Done. Will we be able to see the results?
       
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    12. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Of course! But we'll let it run quite a while first, want to get at least a few thousand participants. We will then present the summary data here for all to see.

      The raw data (at individual level) will be supplied to researchers; we have two contacts who will definitely be working on it, but we'll make it available for free to any qualified researcher.

      We will also try to do our own statistical analysis with the raw data, but for that we're as always dependent on qualified volunteers.
       
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    13. brokensoul

      brokensoul Member

      Location:
      Belgium
      Tinnitus Since:
      02/05/2019
      Cause of Tinnitus:
      unknown:medication,cannabis,stress,sleep deprivation
      Done.
       
      • Like Like x 3
    14. Trudy in Tucson

      Trudy in Tucson Member

      Location:
      Tucson, Arizona
      Tinnitus Since:
      1990
      Cause of Tinnitus:
      Unknown
      Done, and it gave me a little hope, as I just started physical therapy for neck pain. The physical therapist thinks my tinnitus might be from lifelong neck pain and stiffness, and I think so too, as those 2 things have been a constant all my life.

      I was encouraged when I saw all the questions on the survey about neck pain!

      As I have heard before, the tinnitus has increased a bit since starting physical therapy (only 1-1/2 weeks), but my neck is sure improving.
       
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    15. OnceUponaTime
      Frustrated

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      Done!
      Do you need me to get people here to take the survey??? :LOL:
       
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    16. IAmCalifornia
      Wishful

      IAmCalifornia Member Benefactor

      Location:
      Pennsylvania
      Tinnitus Since:
      this year
      Cause of Tinnitus:
      i wish i knew
      Done.
       
    17. Gman
      No Mood

      Gman Member Benefactor

      Tinnitus Since:
      07/2016
      Cause of Tinnitus:
      Ototoxic earwax drops, worsened by MDs (Muppet Doctors)
      Done.
       
    18. jeas

      jeas Member Benefactor

      Tinnitus Since:
      October 25, 2018
      Cause of Tinnitus:
      TMJ/Neck
      Done.
       
    19. Snake
      Scared

      Snake Member

      Tinnitus Since:
      08/2011
      Cause of Tinnitus:
      Long term playing computer games on headphones.
      Done.
       
    20. Mark A
      Wishful

      Mark A Member

      Location:
      California, USA
      Tinnitus Since:
      06/05/2015
      Cause of Tinnitus:
      Noise exposure
      Done.
       
    21. TracyJS

      TracyJS Member Benefactor

      Location:
      Illinois
      Tinnitus Since:
      2/2018
      Cause of Tinnitus:
      Acoustic trauma
      Done.
       
    22. Star64
      Kick ass

      Star64 Member

      Location:
      Melbourne Australia
      Tinnitus Since:
      2001
      Cause of Tinnitus:
      Noise induced
      Done.
       
    23. Lane

      Lane Member

      Tinnitus Since:
      February, 2018
      Cause of Tinnitus:
      Ototoxic Drug
      Done -- I don't know @OnceUponaTime, I have a hard time imagining you being able to "crack the whip". :D You're just too nice! :)
      ........................................................................

      BTW, I've been thinking about passing along some information I got from an email from the Wellness Website that asked the following:

      "By the way, Is there a specific health topic, recipe, or DIY tutorial you'd love to see me write about or interview someone on the Wellness Mama Podcast about? If so, please reply back to this email and let me know!"

      From what I know about this website, I would think they'd be interested in doing a podcast on tinnitus. @Hazel, would this be of interest to you?
       
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    24. HeavyMantra
      Bugridden

      HeavyMantra Member Benefactor

      Location:
      Sweden
      Tinnitus Since:
      01/2017. Worsened 10/2018
      Cause of Tinnitus:
      Headphones and/or HPPD?
      Done. I've wondered about how somatic tinnitus and noise induced tinnitus relates to each other for a while now.
       
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      • Good Question Good Question x 1
    25. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Yes, please! You're good at rallying people, I know :)
       
    26. AVIYT
      Wishful

      AVIYT Member Benefactor

      Tinnitus Since:
      January 2019
      Cause of Tinnitus:
      Pregabalin
      Hope it helps, finished mine.
       
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    27. all to gain
      No Mood

      all to gain Member

      Tinnitus Since:
      June 2019
      Cause of Tinnitus:
      never trust a doctor
      Done.

      I found a few questions difficult to answer as there didn't seem to be an appropriate answer or a 'not applicable' answer. But I had to give an answer to complete the rest of the survey. Can't remember which questions they are now.
       
    28. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Hey there, sorry to hear that. We did test the survey extensively with a group of test users and made a lot of fixes based on their feedback, so we thought all ambiguities had been resolved. But some things will always remain a matter of interpretation and in the end there's no such thing as a perfect survey (unfortunately).

      You did the right thing though by just answering all questions to the best of your ability. If the 'right' answer isn't there, just pick whichever option seems to come closest. Thanks!
       
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    29. all to gain
      No Mood

      all to gain Member

      Tinnitus Since:
      June 2019
      Cause of Tinnitus:
      never trust a doctor
      I think they were something to do with hearing loss and having had an audiogram. I'm pretty sure i have hearing loss, but I haven't had an audiogram due to one thing and another.
       
    30. Hazel
      Dreaming

      Hazel Director Staff Podcast Patron Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Ah, I know what happened there. There's a question asking whether you've been diagnosed with hearing loss by a clinician. If you answer 'yes' there you will get follow-up questions about your audiogram. But you're only supposed to answer 'yes' if you have indeed been formally diagnosed. Hope that makes sense :)
       

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