TTTS Symptoms with No Trigger

In the past, I would often experience the symptoms of TTTS. I would hear a fluttering in my ear whenever I would stop talking. Sometimes I would hear it when other people stopped talking, or following some other sounds.

Earlier this evening, for about five minutes, I had felt/heard random fluttering in my ear for no reason. I had been sitting in a quiet room and there were no sounds to trigger it. Yet, I still heard and felt it flutter once every 0.5-10 seconds.

Has anyone ever experienced anything like that?

 

Yes, sure many times. It’s like a nervous twitch in your ear. Don’t think it means much other than your middle ear muscles are very sensitive. It can be stress too
I’ve also had myclonus thumps from sitting watching tv with my neck in a certain position.

 

Yep...lots.
Can often happen at night when I first lay down and all is very quiet.
Only ever lasts a few seconds.

 

I can't say that I experience fluttering all the time, but when I'm quiet room I can hear it. I think it's more like something is spasming in my left ear. It fluctuates a lot. It can go from 0-1 to 5-6 to the point that I don't hear tinnitus over the sound of these spasms. At one point it was so loud I could hear it with the water running from the faucet.
It feels like something is physically pushing on my eardrum. It has been reduced by steroids, but now has come back.
Also the more I feel the spasms the louder my Morse code gets in my left ear. From 0-1/10 to 4-5/10.
But I can say with confidence that these spams are different from "normal" TTTS. When I clang the dishes I can feel it and I can hear my left eardrum moving. I know this for sure, because the feeling is identical to the feeling of tympanometry when they change the pressure in your ear canal and force your eardrum to move.

Right now I just finished talking on my phone and I don't feel anything in my ear even if I'm in complete silence with my earmuffs on. My Morse code is at 0.5/10.
But today when I woke up I immediately felt it at 3/10. So I don't think it's related to the sound.

I'm still not sure if it's TTTS or ETD and I'm just allergic to something.

 

@Bill Bauer what is the current state of your ears? Have they improved since you first got it last year?

 

the muscles spasm because the audiotory brain has a lower tolerance level to sound due to the inner ear being damaged. Let's quit pretending TTTS is a seperate issue, it's not.

The whole process of how the brain processes sound gets fucked up

 

Ye I remember reading this was like ears getting accustomed to new quieter level of sound? dunno if it true tho

 

I got it at the beginning of 2017, so I am about to celebrate my second anniversary. I am worried about jinxing it, but I can say that I had observed improvement compared to how I felt during the first few months. This has happened despite numerous setbacks/spikes (a loud phone was the reason of my most serious T spike that had lasted for over three months).

 

Ye lol I think the key is to be silent and not say it's going good etc, it always goes back to the fuckdom after saying "wows im enjoying the silent now"

 

I know! Jinxing is real. We ought to stop asking each other "how is your T"!

 

How loud is your T? Can you hear it while driving? Watching Tv? Showering?

 

I don’t think anyone said it was a separate issue. All these ear things are linked. But I’m not sure you can just say it’s because of damage for everyone (although pretty sure I have damage). Where’s the research to back that up? People may develop sensitivities if they consciously or subconsciously feel sound is possibly doing them harm, whether it is or not. The middle ear muscles are going to be on a hair trigger, in a state of hyper vigilance. Many people without T or H develop TTTS.

Some days I wake up with very low and stable T, very little H with no TTTS. Other days I wake up and have reactive T that is intrusive, H and TTTS comes back. I have been able to rule out noise exposure in many many instances. It’s sleep cycle related.

Neck issues are another possible cause too.

People get twitches/spasms all over their bodies too... I do. Stress, not sleeping well etc are culprits for me.

 

http://www.noiseandhealth.org/artic...;issue=63;spage=117;epage=128;aulast=Westcott

 

I have read this many many times. It helped me a lot when I developed cramping style TTTS. Which, touch wood, is almost gone or at least in remission or weakening.

By the way, it doesn’t make a flat out statement that it is solely caused by inner ear damage.

 

tinnitus and especially hyperacusis with pain seem to develop almost exclusively in hearing loss, tinnitus has some exceptions but not hyperacusis with pain outside of head trauma.

 

TTTS can happen to people with normal hearing and no T or H too. Yes, I realise most hearing tests aren’t comprehensive enough, so it’s likely people in those studies with normal hearing actually have some hidden hearing loss. Doubtful anyone alive has all their hair cells intact.

Anyway, seeing as you quoted my post to Bill, I stand by my statement that TTTS is nothing much other than very vigilant middle ear muscles. It doesn’t do us any damage to experience it. From experience I can say that it is psychosomatic too and thoughts can trigger it.

 

I don't want to jinx it, so I would rather not answer these questions.

 

@Bill Bauer did you get any resolution from the thumping. I have the same thing for a few days now "hear and felt it flutter once every 0.5-10 seconds". I am really freaking out

 

I always hate it when people ask about my T...because i don't like to go into a tirade about protecting one's ears. Most people don't even care and will do whatever they want anyway. But yeah i always freak out a little if i say that my T is doing "well".

 

I haven't had it for several days now. Not sure what the future will bring.

 

The only thing that holds me back from talking about this with my co-workers, with the students, etc., is the thought that one of those people might be assholian enough to set off the fire alarm.

 

Totally agree, I got into an argument with an ex once in my car and he reached over and turned the dial on the radio to 100% volume just to piss me off. He thought it was funny, he knew I had tinnitus, but he had no idea how bad he messed up.

 

I hope the resulting spike ended up being temporary. The silver lining is that you got to know that guy's true nature.

 

@Bill Bauer did you have it reasonably consistently for a few days and then it stopped or did you just have the one episode. My ears do individual thumps every few minutes, since the 7th (so 3 days now). I'm not sure what it really is and I'm wondering if you've ever had this

 

I had three or four episodes all taking place in a 24-hour period.

 

Did that assholeness worsen your T to this day?

 

No, because i reached over and ripped out the usb that the stereo was hooked on to. It was definitely messed up, I don't tell people i have T any more for this reason. They might as well have you over a barrel =\

 

Sooooo do you have tinnitus because of that? I don't quite understand

 

My T was because of a concert, and no that event did not worsen it.

 

After she got T, she asked her then boyfriend to not expose her to loud noises. At one point they had an argument, and he used his knowledge of her T (her weakness) against her.