University of Minnesota Tinnitus Research with Acoustic and Body Stimulation

Discussion in 'Research News' started by kelpiemsp, Apr 2, 2018.

    1. AUTHOR
      AUTHOR
      kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      The hyperacusis? It was going away for a while...but signal timing definitely helped.
       
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    2. AUTHOR
      AUTHOR
      kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      Still waiting to hear. With the PI being hired by Neuromod (MuteButton), I am not sure how that will play out. They will send us the results when they are typed up. I am not sure if this is after peer review or not.
       
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    3. Johan_L

      Johan_L Member

      Location:
      Sweden
      Tinnitus Since:
      05/2015
      Cause of Tinnitus:
      Noise induced
      Did you ever experience the sound from the device as annoying? Did you discuss the dB level of this sound? (Someone with hyperacusis might not tolerate 70 dB, but can tolerate 50 dB. Would it still work?)
       
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    4. ruud1boy

      ruud1boy Member Benefactor

      Location:
      Huddersfield, UK
      Tinnitus Since:
      c.2006
      Cause of Tinnitus:
      An enthusiastic youth
      PI? As in Magnum PI? Why would Neuromod need a private investigator? Or am I missing something here?
       
    5. annV
      Fine

      annV Member

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      Principal investigator.
       
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    6. jay777

      jay777 Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      benzo/ headphones
      Have you informed them of this?
       
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    7. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      1
      Tinnitus Since:
      1900
      Cause of Tinnitus:
      karma
      @kelpiemsp right on, I too will go back off benzos as soon as this tech is something I can buy ;) For the moment, it keeps the noise at bay...
       
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    8. AUTHOR
      AUTHOR
      kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      They asked a very thorough health and tinnitus history.
       
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    9. jay777

      jay777 Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      benzo/ headphones
      But you said if you had hyperacusis you could not participate in the study?
       
    10. AUTHOR
      AUTHOR
      kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
      It’s a spectrum. I was able to “tolerate” the noise barely when I started.
       
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    11. Adriel93

      Adriel93 Member

      Location:
      Chicago
      Tinnitus Since:
      10/22/2016
      Cause of Tinnitus:
      Allergies
      @kelpiemsp ehy central I find an article about this device at all?
       
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    12. AUTHOR
      AUTHOR
      kelpiemsp
      Swamped

      kelpiemsp Member Benefactor Advocate

      Location:
      United States
      Tinnitus Since:
      birth/ recent spike 2/2018
      Cause of Tinnitus:
      Born with ETD, several acoustic traumas, most recently ETD
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    13. Adriel93

      Adriel93 Member

      Location:
      Chicago
      Tinnitus Since:
      10/22/2016
      Cause of Tinnitus:
      Allergies
      @kelpiemsp thanks for replying I appreciate that. How long is your silence supposed to last?
       
    14. duder12

      duder12 Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      High Frequency Hearing Loss
      Yes I was in the same trial. If @kelpiemsp thinks I signed an NDA in the beginning than I probably did. I remember paperwork just didnt remember it being about not talking. Either way its over.

      We haven't gotten any results yet. In fact Ive had no communication since before the holidays. They werent able to tell me how it would wrap up because they didnt know yet. They hadnt heard from the PI and there was other sessions left after mine still.
       
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    15. duder12

      duder12 Member

      Tinnitus Since:
      2017
      Cause of Tinnitus:
      High Frequency Hearing Loss
      Not in my opinion but still interested in seeing results from them.
       
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    16. PDodge
      Cowboy

      PDodge Member Benefactor

      Location:
      Woods of Alberta
      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Bear ate my Cochlea
      @kelpiemsp I know you're getting harassed by us haha and I'm not sure if you can answer but you hat multi-tonal T correct? One really high pitch? Did they address all these tones at the same time? If you can't answer that's cool.
      Thanks in advance
       
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    17. JohnAdams
      Starving

      JohnAdams Member Benefactor Hall of Fame

      Location:
      here
      Tinnitus Since:
      it started.
      Cause of Tinnitus:
      hearing loss
      Always read before you sign anything homie. Even the iTunes terms of service.
       
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    18. jmasterj
      No Mood

      jmasterj Member Benefactor

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Acoustic?
      I just thought I'd update you guys on some information I received about this trial and phase 3. Since Mr. Lim is on leave with Neuromod they have assigned a new PI and are currently working through all the data assembled from phase 2. At this time there isn't a concrete timeframe for phase 3 to begin. If I hear anything more I will certainly update the forum. @kelpiemsp may hear something before I do.
       
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    19. Manny
      Sad

      Manny Member Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      jmasterj, where did you get this information from?
       
    20. Allan1967

      Allan1967 Member Benefactor

      Tinnitus Since:
      1997
      Cause of Tinnitus:
      Ear infection
      Does this mean the device will not be released in 2019?
       
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    21. Paulmanlike

      Paulmanlike Member Hall of Fame

      Tinnitus Since:
      2008
      Cause of Tinnitus:
      Noise
      The Neuromod will be released in 2019, in Ireland and Europe anyway. Unfortunately the Americans will have to wait for FDA approval. Not sure about this device (Minnesota) though.
       
    22. hans799
      Mellow

      hans799 Member Benefactor

      Location:
      Hungary
      Tinnitus Since:
      Born with it
      Cause of Tinnitus:
      Worsened Dec 2016 by headphones
      You've conflated two different things. Neuromod (the device that's scheduled for 2019) is an Irish project. This thread is for the Minnesota device, which has no schedule for release yet. They work on a similar principle and there's overlap between the teams but they're distinct. So no worries.
       
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    23. jmasterj
      No Mood

      jmasterj Member Benefactor

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Acoustic?
      I was able to get in contact with some of the staff at the University who was able to get me in touch with the new PI. They added me to their contact list when they are ready for phase 3, so I will be sure to let everyone know when I hear something. I think right now it is best to let them work on their data and research to be fully prepared for the next phase, so I didn't ask too many questions.
       
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    24. jmasterj
      No Mood

      jmasterj Member Benefactor

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Acoustic?
      Allan,
      As @hans799 there really isn't a release date on the Minnesota device. They seem to be farther ahead than Susan Shore is at the University of Michigan. Professor Lim who was the PI at the University of Minnesota has moved on to Neuromod as the Chief Scientific Officer. You will see the Neuromod device before the Minnesota device, but the positive is the we have seen good things from Minnesota and Professor Lim has certainly carried some of that knowledge over to Neuromod.
       
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    25. Fabrikat

      Fabrikat Member

      Tinnitus Since:
      1973
      Cause of Tinnitus:
      Otosclerosis then volume then viral infection
      I'd love to know what the difference is between these two machines, other than the location of the electrodes. Configured to a persons audiogram, signal timing will be the same for both for it to work. Regardless, it's a pity Susan Shore has taken so long to get to this point.
       
    26. GlennS

      GlennS Member

      Tinnitus Since:
      1992
      Cause of Tinnitus:
      Loud music
      I don't think all these initiatives are all doing exactly the same thing except for the site of stimulation. The nature of the stimulation (aka signal timing) is going to vary. There is no one set of parameters that works. There is going to be a range of parameters that work. It's just that some are proving to be better than others. Finding the best set of parameters is what all this R&D must be focusing on.
       
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    27. AliceW

      AliceW Member

      Location:
      France
      Tinnitus Since:
      02/2017
      Cause of Tinnitus:
      Acoustic trauma - loud noise
      Hy @kelpiemsp

      Hope you’re doing well and your baby to come too :)

      Are you still enjoying silence right now ? No variations in your T?

      The sound of water you now described to hear is more blood related to blood pressure?!

      Thanks a lot for your answer :)
       
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    28. jay777

      jay777 Member

      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      benzo/ headphones
      @kelpiemsp
      Could you describe the sounds you heard from the device?
       
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    29. Adriel93

      Adriel93 Member

      Location:
      Chicago
      Tinnitus Since:
      10/22/2016
      Cause of Tinnitus:
      Allergies
    30. JRC1

      JRC1 Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      medication
      @kelpiemsp, if you can share - how many hours per day/days per week did you receive the treatment?
       

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