Vote for University of Michigan (Susan Shore) Tinnitus Research — Winner Gets a Write-Up

Discussion in 'Awareness & Fundraising' started by Tinnitus Talk, Mar 12, 2019.

    1. Tanni
      Heartbroken

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      Me! Was a great feeling to be working towards something and actually feeling like we were making a difference.

      I keep going to vote again, and then remembering that it's finished! :)
       
      • Funny Funny x 3
    2. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      Oh no! No more please!!! :eek: :LOL: First thing that popped in my computer this morning was the STAT website!!! :eek::wacky::LOL:
       
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    3. annV
      Fine

      annV Member

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      ???

      There will be an "Editors' Pick"?

      The winners, including both the STAT Madness Champion and the Editors’ Pick, will be announced on Monday, April 8 at 4:30 a.m. ET.

      Taken from STAT website.
       
      • Good Question Good Question x 1
    4. PerturbedDude

      PerturbedDude Member Benefactor

      Location:
      Pennsylvania
      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Unknown
      Looks like it. Better not be Baylor! And 4:30 AM... gonna be an early morning!!
       
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    5. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Oh shit. It could be Baylor. That'd be a wild turn of events.
       
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    6. Pero1234

      Pero1234 Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      home theatre system + high pressure washer
      Or the children’s thing?
       
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    7. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Uhmmm, what?! Michigan is the winner, so that's getting a write-up right?

      Otherwise we have been royally screwed! :/
       
      • Like Like x 1
    8. Deamon22

      Deamon22 Member Benefactor Ambassador

      Tinnitus Since:
      06/2018
      Cause of Tinnitus:
      Head Trauma/Cold?
      The 2019 STAT Madness bracket is now closed. The winners, including both the STAT Madness Champion and the Editors’ Pick, will be announced on Monday, April 8 at 4:30 a.m. ET.

      They probably pick another topic they find interesting as Editors' Pick. Michigan is the STAT Madness champion so two will get a write-up.
       
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    9. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      Oh sorry... didn't read that properly. Pheww, I got nervous there.

      But I still think it is a joke that another team will get a write-up too. Will they feature alongside each other I wonder? Because that could take all the attention away from tinnitus/University of Michigan :(
       
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    10. Julien87
      Happy

      Julien87 Member Benefactor

      Location:
      France
      Tinnitus Since:
      2006
      Cause of Tinnitus:
      Noise exposure (concert)
      Yes, voters' pick will of course not be dismissed.
       
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    11. annV
      Fine

      annV Member

      Tinnitus Since:
      2005
      Cause of Tinnitus:
      unknown - possibly hereditary
      I agree and if they somehow end up promoting the Editors' Pick more than the Michigan one, it's a fucked up contest!

      When the contest was running, was there even a mention of there being an Editors' Pick? I never saw any mention of that?

      Or did they add that after the fact because their editorial team didn't like tinnitus winning?
       
      • Agree Agree x 6
    12. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      It was always mentioned since the beginning.

      "Editor’s Choice Winner. Following the tabulation and identification of a Consumer Bracket Winner, the Judges will, applying the Judging Criteria to select an Editor’s Choice Winner among the remaining Potential Winners. The Consumer Bracket Winner and the Editor’s Choice Winner can be the same Potential Winner."

      This means we can get both! Imagine that!!!!!
       
      • Informative Informative x 4
    13. Amv

      Amv Member

      Tinnitus Since:
      16/7/2017
      Cause of Tinnitus:
      -
      Hi all!

      I agree completely, as we have been saying, I feel it is a good idea to email Susan Shore and their team and let them know how Tinnitus Talk supported their campaign and that they have our entire support (so they know that we are very excited about their innovation and we are here to support the product launch!).

      And yes! What's next? Let's keep the momentum!
       
    14. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      Hi Guys,

      Why spend time worrying about the editor's choice? It's out of our hands and we have to trust it will be handled properly.

      My concern is with the write-up and that the full spectrum of tinnitus be represented.

      This is also an opportunity to promote the need for research for effective treatments and a cure to students and attract them to the field of tinnitus research. So the fact that the number of studies of tinnitus is on the rise is important. As is the effect on Veterans and the funding provided by Department of Defense. This can generate some excitement in academic circles.

      I saw that ATA had something about the competition on their Facebook page. As we know they can be a fountain of misinformation.

      So, it's important that Markku and Tinnitus Talk are represented to not only promote the good here but also to balance off ATA.

      TC
       
      • Agree Agree x 7
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    15. spedgas
      Depressed

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      My only concern is if this write-up says “What’s more typical is that it’ll fade away over time” or “It goes from 99 percent of your life to one percent”. Or perhaps “you need to try harder to habituate”. I’m just waiting to see another chance at large scale exposure destroyed by statements like this. This completely undermines the message of urgency we are trying to convey. Please get this right STAT Madness.
       
      • Agree Agree x 6
    16. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      This.

      Oh please Lord, don't let them ruin this for us!
      Why you guys got me thinking now! ughhh :nailbiting:
       
      • Agree Agree x 2
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    17. david c

      david c Member

      Tinnitus Since:
      01/2012
      Absolutely, this is a real concern. Given how important Tinnitus Talk has been to the success of Susan Shore's research getting the write-up it would be reasonable if Tinnitus Talk contacted STAT Madness to ask for copy-approval of the write-up. As Tinnitus Talk represents the global online tinnitus community that is a reasonable request. That way we can be a lot more reassured about the content of the write-up.
       
      • Agree Agree x 1
    18. AUTHOR
      AUTHOR
      Tinnitus Talk
      Balanced

      Tinnitus Talk Knowledge Base

       
      • Winner Winner x 15
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    19. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      We did it, we are changing the course of history.
       
      • Agree Agree x 5
      • Optimistic Optimistic x 3
    20. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Let's hope. I have faith that hopefully STAT's write up will be compelling, and hopefully, really explain how severe and horrifying this condition can truly be for so many people.
       
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    21. Pero1234

      Pero1234 Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      home theatre system + high pressure washer
      I don't thing we were ever a serious contender for the Editors' Pick.

      I assume the editors are looking for more theoretical pharmaceutical or scientific breakthroughs.

      Tinnitus is not sexy.

      So I am relieved that we won the STAT Madness thing... It emphasizes to the pharma world that there are A LOT of people waiting for tinnitus relief. And a lot of people = a lot of cash.

      Don't worry... they will notice us.
       
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    22. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      We have to make sure the attention is focused on biomedical research, Susan Shore's device, Neuromod, hearing loss restoration research and not TRT/CBT and Pawel Jastreboff's dogma that held the field back.

      Tinnitus research needs to be cross disciplined with hearing loss research and hyperacusis research.
      They should not be treated as totally separate issues, that's how palliative medicine holds back research
       
      • Agree Agree x 6
      • Winner Winner x 2
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    23. Pero1234

      Pero1234 Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      home theatre system + high pressure washer
      PS: they will talk to Susan for the write-up, right?

      I am more than confident that she knows the condition.

      Let's stop worrying (it's bad for our tinnitus) and just savour the moment while we wait and see!
       
      • Like Like x 3
    24. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      TRT/CBT doesn't work for everyone. The article that someone posted recently has PROVEN that. That really needs to be spread around as much as possible - to the higher-ups and such - so they know that their old thinking no longer supplies here.
       
      • Agree Agree x 3
    25. Contrast

      Contrast Member Benefactor Hall of Fame

      Location:
      Retrovile
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      injury from noxious noise
      I think TRT only benefits one type of hyperacusis (loudness hyperacusis), I don't think it does anything for noise induced pain or the trigeminal nerve irritability tensor tympani spasm's people experience. I think other types of hyperacusis heal on their own usually and are falsely attributed to TRT.

      It's going to be needle and pins to get clinic research on this, audiologists won't hear about it or care either.
       
      • Like Like x 2
      • Agree Agree x 1
    26. Jcb
      No Mood

      Jcb Member Benefactor

      Location:
      UK
      Tinnitus Since:
      December 2017
      Cause of Tinnitus:
      possible TMJ, came on after severe cold and chest infection,
      131C2FA2-DCBC-49DA-BD6B-3ECE0D92A4AC.png
       
      • Agree Agree x 6
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    27. MBH

      MBH Member

      Location:
      Upstate NY
      Tinnitus Since:
      06/2017
      Cause of Tinnitus:
      Overloaded stress
      IMG_20190407_124542.jpg
       
      • Like Like x 1
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    28. Autumnly
      Wishful

      Autumnly Member Benefactor Hall of Fame

      Tinnitus Since:
      July/August 2013
      Cause of Tinnitus:
      Noise induced
      Great video and Twitter post! Succinct, sincere and professional. Also, thank you so much for saying that tinnitus can be debilitating, I truly think it’ll make a difference if more people learn about the whole tinnitus spectrum.
       
      • Agree Agree x 6
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    29. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      I think so.

      Can you share the article??

      @Hazel Excellent video! Thank you for your hard work. :huganimation:
      I hope you shared it with Susan Shore and STAT News.

      @Jcb Stop biting your nails now! hahaha :nailbiting::nailbiting::nailbiting:
       
      • Like Like x 3
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    30. Tanni
      Heartbroken

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      I have confidence that STAT will cover this properly - a brief background search shows that they're a highly reputable and ethical news site. They're also obviously going to speak to Dr. Shore and her team, and it won't be in their interests to downplay tinnitus any more than it will be in ours.

      I know it's a medical journal, but it may add a bit of human interest to know about the people behind the push for this win. Perhaps we could send them a kind of group statement?

      @Markku is there any plan to send them an official Tinnitus Talk statement?

      I just think that whatever we do we should remember that it isn't our news site, so even though we voted we don't get to make demands of them editorially and shouldn't be emailing them in an entitled way, as this will just alienate us.
       
      • Like Like x 4
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