Vote for University of Michigan (Susan Shore) Tinnitus Research — Winner Gets a Write-Up

Discussion in 'Awareness & Fundraising' started by Tinnitus Talk, Mar 12, 2019.

    1. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      :(
       
      • Hug Hug x 2
    2. Hazel
      Dreaming

      Hazel Director Staff Benefactor Hall of Fame Advocate

      Location:
      the Netherlands
      Tinnitus Since:
      10/2017
      Cause of Tinnitus:
      one-sided hearing loss (of unknown origin)
      Our video already got over 10,000 views. Huh??!!! Well, that's some good exposure too :D

      Keep sharing it, folks!
       
      • Winner Winner x 10
      • Like Like x 4
    3. Pero1234

      Pero1234 Member

      Tinnitus Since:
      02/2018
      Cause of Tinnitus:
      home theatre system + high pressure washer
      I’m interested in editing someone else’s writings or even writing something. But someone has to point me in the direction of scientific facts :)
       
      • Like Like x 1
    4. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      Why are you sad girl?
       
      • Good Question Good Question x 2
    5. Agatha

      Agatha Member

      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Not sure
      Observation: Samantha Baines, the BTA "celebrity" ambassador, did not tweet ONCE about this voting contest.
       
      • Funny Funny x 3
      • Genius Genius x 1
    6. Ed209

      Ed209 Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      I’ll just add here that the Editors' Pick - the Whitehead Institute - was 15 paragraphs in length, two of which were long paragraphs about the competition itself.

      Compare that to the supposed winner, Michigan, and you’ll find they only received 8 paragraphs, and quite bizarrely, the losers Utah, received 7. Of the winners' article, 4 paragraphs were about the STAT competition again.

      It’s almost as if they ran out of things to say about Susan Shore’s work so decided to add material about Utah to pad it out or something. Why bother having a final round if both universities are going to get an equal write-up anyway?

      In conclusion, it appears that the Editors' Pick had twice the word count compared to Susan Shore’s. The Michigan article was circa 450 words which is really quite measly.
       
      • Agree Agree x 7
    7. Bndsmheowqhe

      Bndsmheowqhe Member

      Tinnitus Since:
      2016
      Cause of Tinnitus:
      Loud noise exposure
      The more I read about Susan Shore the more confidence I have in her work. Her device is going to make a certain similar product look like a toy.
       
      • Like Like x 2
      • Funny Funny x 1
    8. derpytia
      Pooptoast

      derpytia Member Benefactor

      Location:
      Rescue, California
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Hearing loss / ETD
      In the meantime, I'm calling them out on Twitter. My account there is a personal one and isn't affiliated with Tinnitus Talk so this forum won't be getting in trouble. But I'm already calling them out. I've had enough of this kind of crap and I will not take it.

      I just lost more hearing over the weekend and while I'm in agony and have no quality of life these people are pushing tinnitus aside AGAIN while sitting on their thumbs. They should be ashamed.
       
      • Hug Hug x 4
    9. spedgas
      Depressed

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      Then there is stuff like this. Apparently after reading the write-up this guy thinks tinnitus only affects 2 million people. Who is going to get motivated by that. Thanks for spreading this misinformation buddy.

      upload_2019-4-8_14-36-12.png
       
      • Informative Informative x 2
    10. spedgas
      Depressed

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      I couldn’t take it, I had to correct this guy on Twitter. Hopefully he understands the scope of the problem. He’s a managing editor and putting the wrong numbers out there.
       
      • Like Like x 3
    11. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      ....
       
    12. Agatha

      Agatha Member

      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Not sure
      EVERYONE SHOULD tweet to the following people:

      @GideonGil (Managing Editor of STAT News)
      @cooney_liz (Writer of the poor Michigan STAT Madness article)
      @rickberke (Executive Editor of STAT News)

      SHOW that you are NOT PLEASED!
       
      • Like Like x 1
      • Winner Winner x 1
    13. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      Correcting people in a kind manner is a-okay, so they can learn and understand your plight. But you don't want to be angry or revolt against them - they're the people who have a bigger voice than we do.

      We don't want to be silenced or pushed aside because someone informed someone in a tactless matter, so if anyone does this, don't go ape shit.
       
      • Agree Agree x 8
    14. Ed209

      Ed209 Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      07/2015
      I agree. Don’t troll them or get abusive as this reflects very badly on the community and doesn’t help anyone.
       
      • Agree Agree x 8
      • Winner Winner x 1
    15. Starthrower
      Wtf

      Starthrower Member Benefactor Ambassador Hall of Fame

      Tinnitus Since:
      January 2002
      Cause of Tinnitus:
      Dental Surgery
      • Agree Agree x 1
      • Hug Hug x 1
    16. spedgas
      Depressed

      spedgas Member Benefactor

      Tinnitus Since:
      09/2018
      Cause of Tinnitus:
      Unknown
      I politely corrected @GideonGil on Twitter. I simply stated numbers that were more in line with the truth. You would think a managing editor would at least fact check his own website and tweets before sending them out.
       
      • Like Like x 3
      • Agree Agree x 1
      • Winner Winner x 1
    17. derpytia
      Pooptoast

      derpytia Member Benefactor

      Location:
      Rescue, California
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Hearing loss / ETD
      • Like Like x 4
      • Agree Agree x 1
    18. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      Derp, Thanks for posting this. People are finding their way to make comments. Stay cool, cats! (Sorry, been hanging out with @Jazzer for a bit. :) ) - TC
       
    19. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      I'll be sure to write a comment today.
       
      • Like Like x 3
    20. TheDanishGirl
      Sad

      TheDanishGirl Member Benefactor Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      05/2017 (H since 06/2017)
      Cause of Tinnitus:
      long term noise exposure (headphones), maybe some stress.
      I wrote a comment, as I am also a bit disappointed in the outcome of this contest.
       
      • Like Like x 3
    21. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      I read your comment, very kind and open.
       
      • Agree Agree x 1
      • Friendly Friendly x 1
    22. Jazzer

      Jazzer Member Benefactor Hall of Fame

      Location:
      UK
      Tinnitus Since:
      1/1995
      Cause of Tinnitus:
      Noise
      Oh - I suppose it’s my fault !!
       
    23. Jack Straw
      Balanced

      Jack Straw Member Benefactor Ambassador Hall of Fame

      Location:
      US
      Tinnitus Since:
      1990s
      Cause of Tinnitus:
      Infection, Acoustic Trauma
      upload_2019-4-9_16-35-47.jpeg
       
      • Agree Agree x 1
      • Winner Winner x 1
    24. TuxedoCat
      No Mood

      TuxedoCat Member Benefactor Ambassador

      Location:
      US
      Tinnitus Since:
      April 2017
      Cause of Tinnitus:
      high frequency hearing loss
      This is totally off topic, but all you jazz musician types seem to have nicknames. Is yours Jazzer?
      DG, I tried to leave a reply thanking you for your comment on the STAT site, but keep getting a message that I've already left a message. So, I'll like to thank you here.

      Your comment hit the nail on the head. I hope STAT are reading them, there are good suggestions being put forward.

      TC
       
      • Agree Agree x 2
      • Friendly Friendly x 1
    25. Agatha

      Agatha Member

      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Not sure
      I would also email the author of the article:
      elizabeth.cooney@statnews.com

      and the co-founder and executive editor:
      rick.berke@statnews.com

      Can we write a message to them as a community?
       
      • Good Question Good Question x 1
    26. OnceUponaTime
      Fine

      OnceUponaTime Member Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Allergies or Acoustic Trauma, Stress
      @Markku Did anyone re-write the STAT News write-up???
       
    27. Markku
      Inspired

      Markku Founder Staff Benefactor Hall of Fame Advocate

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Not yet. It's not clear to me who might be wanting to take it on. I'm also thinking, should it be an ASAP thing, or be done at the same time when we hopefully have Dr. Shore for our podcast later this year? It could complement the podcast interview nicely. But either way, if nobody steps up to the plate, then I and @Hazel will just add it to our never-ending list of tasks and attempt to take care of it ourselves (in that case it'll probably coincide with the podcast).
       
      • Like Like x 3
    28. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      I never heard of this idea, I don't think, at least not to an extent where I can understand. What is the idea?
       
    29. Tanni
      Heartbroken

      Tanni Member Benefactor

      Tinnitus Since:
      October 2017
      Cause of Tinnitus:
      ???
      I would be happy to have a go at writing it, but unfortunately I'm not very science-minded so I doubt my article would end up being any more in depth than the original STAT article...

      Personally, I think our proposed article would have more impact if it was released now, but it would need to include some up to date info from Dr. Shore and team or we won't really be adding much substance. So if that's only possible with the podcast, it would probably be better to wait until then.
       
      • Agree Agree x 1
    30. GSC
      Owned

      GSC Member

      Tinnitus Since:
      02/2019
      Cause of Tinnitus:
      Acoustic trauma.
      That's my problem too, I can write really well, but my issue is and have always been... fact-based statistics and such. Essays have always been the bane of my existence.
       

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