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Hello Kam, how's going? Marcello here from Brazil. I've read your story in some posts and I've been facing some situations very similar, I went from mild tinnitus to the point of can't get asleep naturally at the moment. How is your sleep today? What medications do you use? I've trying some combination of them to get the best benefit to the sleep. It would be nice to be able to talk about it and exchange some tips.
L
@Kam75 maybe updose really slow? Dont know where you live but there might be liquid version. Then theres always the possibility to file and weight a pill
N
Hi @Kam75 ! I know we never interacted before, but I'm writing because I'm about to switch from Duloxetine (been taking it for 4 months) to Venlafaxine. Both are SNRIs (not SSRIs). My psychiatrist was very cautious about SSRIs as it's known they can worsen T, but considers SNRIs to be rather safe for tinnitus sufferers. Bon courage pour tout.
Kam75
Hi @Nocca, as I said in my thread in which you have commented, I'm going to ask my psychiatrist to add Duloxetine to my current treatment (Mirtazapine) :) My appoitment with him is in July. Best wishes to you too.
hi Aetos
you mentioned chloe had all 600 milcells through iv infusion but here says some were through her auditory system ?
may i know how many mil cells were through her auditory system ?
pls advise tku

600 million cells were administered by three injections with 5 day intervals. The cells were injected into her veins and auditory system.
Hi Asta, how is your hearing now? Hoping things have improved for you as I too am suffering after recently having had microsuction in both ears.
7 year tinniversary

IMG_7708.jpeg
BrOKeN_1
Definitely "Raaaaaaaaaagh".
I never know how to congratulate someone on these big occasions. So lest just go with FUCK TINNITUS!

But seriously. Hope your coping reasonably well. Big Hugs!
Kain
@BrOKeN_1 Thanks, I've been doing okay I think! Thankful to still push forward! Hope you're doing well too brother man.
If I've had a new tone for a week, it's probably permanent right? Sounds like rapid fire piano keys banging.
vilebubbles
Thanks but I had tinnitus, hyperacusis, and nox before benzos. Nox is why I went on them :/. T just got much worse when I began tapering. But it was already getting bad.
S
How long had you been suffering when you went on the benzo's?

Unless you were years in already, given some extra time after the benzo's to settle, things might gradually improve after and you could get a good bit of your life back...

You said yourself you've noticed an improvement in the nox and that's while withdrawing.

My T/H/N all got a lot worse before they started getting better.
vilebubbles
I'd had T and nox about 4 months before benzos. I'm just scared bc the tones are getting louder and more
Aggressive and none are eeeee or hiss. They're like rapid tones all over
My head
My left ear hissing is intolerable today. I rode my motorcycle a bit as it is 76 degrees today.
LukeYoung
Does that spike it? I had a motorcycle, oddly it seems the wind noise spiked mine every time. I sold it unfortunately, I loved riding for the short time I did get to.
BrOKeN_1
T just can't let you have a Lil fun. I'm having new tires put on the motorcycle Tuesday and wr will see what a bad idea that is. Haha. The weather is nicer and I hate having the bike rot away in a corner of the garage.
HI LJMD

How are you ?
sorry to disturb you
just checking if you have any updates regarding your t after your stemcell therapy ?
your stemcell therapy you did two times correct ?
may I know what was the stemcell count you used for both treatment and where did you do your 2nd treatment
your reply is much appreciated
Hey buddy. ❤️
L along the way
Also, working less, going out more for walks, and finding some more comfort in distractions.. and doing daily mindfulness meditations and inspiration and such. And a better connection with family and friends i'm grateful for.
L along the way
A friend of mine has the perspective on T to accept.. i've been contemplating, but i don't know.. i'd say i still live on a hope that it will heal (lifestyle, time & sleep) or even for a next life that things will be better.
L along the way
But at the same time.. just going day by day.

To just feel at ease, healthy & well.. it's worth the world eh.. i pray some day it will be so.

Happy to hear from you, wishing you a good day my friend!!