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Flyingsheep
1.5 years on the same dosage of oral minoxidil for tinnitus reduction. Even more improvement than last update. It's very controlled and mild except for a few bad days here and there, but the bad days are manageable and I can easily forget it. Biggest quality of life upgrade I could have ever asked for. If anyone else is willing to experiment with this like I did, I hope it helps you.
Nes
I'm having a huge spike. My hyperacusis has been insanely sensitive, to the point I have nausea when exposed to sounds. My ears feel weird, it's painful but at the same time it's not. I'm not sure if I removed protections too quickly as it happened the night after a discord call. Going to see ENT on Thursday.
R
Hi Adam, I do not know the details of what happened to your ears (acoustic trauma?) or what treatment you underwent. Have you tried CBT? I am asking because I am also from Poland and I am seeing on regular basis a very good CBT person who specializes in tinnitus. She is helping me a lot. She also does on-line visits.
adpolandam
Hi. CBT won't work for me. The problem lies in the middle ear, inner ear, and trigeminal nerve. Thank you for the suggestion. Where are you from?
delta784
If i had no tinnitus i think i could deal with ear pain better. Its just easy tinnitus is relentless its in your brain non stop doesn't even give you time to relief.
kingsfan
Stable tinnitus that wouldn't worsen and no ear pain would be good enough for me. Trying to avoid pain and worsening is mental torture beyond just the horrible ringing and hissing.
delta784
i want to go back in time and not get these IV injections then i could be happy again this isn't me i know it :)
adpolandam
Karbamazepina, Okskarbazepina, Gabapentyna, Pregabalina, Lamotrygina, Baklofen, Klomipramina. Are these medications effective for stabbing pain in the middle ear caused by sounds, as well as for worsening tinnitus?
delta784
clomipramine yes
adpolandam
What dose are you taking and what are the positive and negative effects (t, h, n)?
delta784
my right ear exploded since 3 -4 days after my sickness it was lowest since 14 months now right ear cuts everything 15 khz very loud it has to go away again. please :(
kingsfan
What kind of illness?
delta784
cold flu like illness its gone now and my tinnitus went up like crazy
delta784
If i don't believe this happened to me and i am constantly saying its not real am i lunatic? Or am i having hard time accepting this is my real life from now on
tobyharrixon
I completely understand you. I will turn 30 in January. Can't accept this is my life. I've found a method to end my life when I'm ready. Also dealing with chronic foot pain which makes even going for a walk and sleeping even harder. I get stressed and panicked every day but that just keeps increasing the T. So even though I'm angry and upset, even the luxury of crying or yelling in anger to release brings more suffering. I used to be able to calm myself. I just can't anymore. Sleeping is getting harder and harder. Ending it is so tempting, everyday is meaningless and I lost the strength to fight through it.

Sorry I know none of this helps. Just saying I completely understand you. Maybe if you don't have any physical pain (except your ears as I understand?) then that's a positive..
S
Give it time. I had to give up so much. Years later, I am believe it or not, a better versio of myself. Injury changed my life - forever. And strangely, for the better. Yes, I would rather have healthy ears, but without the accident, I wouldn't be the person I am today. It made me realize how fragile we are.

After years of therapy and working with myself and not giving up made me different, better man. Quite literally.

Sooner you accept your new life, the better. Think it as an new beginning. New start.
kingsfan
@Strife_84 My empathy has gone through the roof since my tinnitus began, but my patience is now nearly nonexistent. My previous self was an incredibly patient person.
Marina Moon
It's strange how easily things can change, for better or worse. Yesterday morning started off okay, worked through pain that got better in the afternoon, but then things spiraled in the evening and progressed into today. I'm so tired of being hurt. I still cannot believe that this is my reality.
delta784
Life is so unfair since 14 months and i don't think its real i just turned 30. I was harmed by a clueless doctor now she lives her life and i am having panic attacks nearly everyday. I am in pain, i am on the verge of giving up i have no emotions since 14 months. Never laughed truly. I don't think its possible to live this way. We came to this life once and i fucked up unreal.
Marina Moon
Happy almost thanksgiving everyone! I haven't logged in a quite a while but I hope and pray everyone is doing well. I'm excited for thanksgiving, my jaw pain has been acting up lately, but I hope it lets up next week because I really want to stuff my face in peace 🦃
in_the_shadows
Hi Nes! I've been reading your posts, and things have been developing very similarly for me: nine months of overprotection, earmuffs at home and double protection outside, and for the last two months I've been gradually weaning off them. I can now be at home with just earplugs and even sit in silence without any protection. While my hyperacusis and regular tinnitus have definitely improved, my reactive tinnitus has gotten much worse, it reacts with many tones to water, bedsheets, even my own breathing. The tones alternate daily. I'm dealing with the same question of whether I should take a break or push through. Just wanted to say hi and wish you a speedy recovery!
Nes
  • Nes

    Nes

Hi! It's so nice to hear from someone with a similar experience! Yeah, my tinnitus is very unpredictable too, as well as my hyperacusis. Lately, I was doing great. I even went to a friend's house and wore just loop earplugs and nothing happened. For me, my reactive tinnitus got better, but the overall tinnitus got a bit worse (nothing too dramatic though). However, 2 days ago, my hyperacusis got way worse overnight, my ears are feeling weird, and my tinnitus has been very annoying. So I'm taking a break from weaning off, and I'm back to overprotecting as long as I'm having this spike. Hi to you too, and I hope we will figure this out someday!
in_the_shadows
I'm glad to hear you're making progress! Hyperacusis spikes are normal, especially when you're re-acclimating to sound. I had a setback in August where I couldn't tolerate the sound of human voices even with earmuffs, but I kept my protection at the minimum needed to avoid pain, and the spike gradually faded over 2–3 weeks. You might also want to look at u/RonnieSpector's posts on Reddit about central sensitization theory, I've found them very helpful. Hope things keep improving for you!
Nes
  • Nes

    Nes

@in_the_shadows oh I know about RonnieSpector, thanks for reminding me ! Yeah the spike has been hard on me, it's my first one in 8 months. It's already getting a bit better after 3days though, and I have my emergency clonazepam which helps tremendously. Trying to stay as calm as possible. Thanks for the kind words !
Kain
right ear is feeling more sensitive and thumping a lot more in response to noises and it's starting to agitate me
just1morething
I got the report from the CT scan I had on Tuesday. It was similar to the report I got last March. Apparently I have a hole in the bone above my left middle ear from what I understand.
hubast
I had an acoustic trauma event where I was exposed to a hammer striking metal for about 5 minutes. This put me into a medium tinnitus and hyperacusis situation for about 1 month, after that, my tinnitus was mild enough to be able to cope with. THEN, only 1 day later, I was fixing a 250 watt stereo and someone pushed a button on the remote while my ear was next to the speaker and wham! 130DB of white noise to the ear that was 2" from the speaker!
Now my tinnitus is loud and hyperacusis is really bad. So my question is this: Should I start counting my potential recovery time from the 1st event or second event? I am 2 months out from 1st event and 1 month out from the 2nd event. Thank you kindly everyone
2049v
I think your 2nd one is just a spike, or a temporary thing. I'd say you can count from the first. Hopefully you'll feel a lot better soon!
MindOverMatter
Unfortunately, the question you ask is impossible to give a certain answer to. Only time will tell. Did you get a course of prednisone after that last incident? Have you had a hearing test?
kingsfan
Count from the original index event.
delta784
Is tinnitus common?
2049v
Very mild ones yes, severe ones no
delta784
i was very mild for 7 years stable before iv prednisone and i know how shitty severe was. thats why i used prednisone to prevent worsening. after my mild sound trauma im idiot and dumb
2049v
@delta784, sorry what was the cause for your initial tinnitus incident?
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