asey20
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Birthday:
Jul 2, 1997 (Age: 23)
Location:
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Occupation:
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asey20

Member, Male, 23, from Toronto

There has to be a correlation with why my R ear hurts and why it has T. The ENT said no inflammation but I doubt it. Maybe jaw? Any ideas? Jan 25, 2021 at 1:53 PM

    1. asey20
      asey20
      There has to be a correlation with why my R ear hurts and why it has T. The ENT said no inflammation but I doubt it. Maybe jaw? Any ideas?
      1. aot likes this.
      2. twa
        twa
        Could be jaw, if there is inflammation in the TMJ. Also there can be inflammation in the ear that is not seen. Those of us with arthritis or RA are familiar with inflammation in synovial joints, tendons, ligaments, etc. that can have an effect without many visual manifestations, but can definitely impair function.
        Jan 25, 2021 at 6:06 PM
    2. asey20
      asey20
      Place your bets now. Comment what year we will see a treatment/cure. I have my bets on 2027 for treatment.
      1. View previous comments...
      2. Drachen
        Drachen
        Sorry about the reply chain, but I think there's good chances based from what I've read that there will be improvements this decade. I know some of the older crowd have said "this hype and optimism has come and gone before", but like YOU said, technology is more advanced in the future. The 2020s are not the 1990s, etc.
        Jan 22, 2021 at 4:49 AM
        asey20 likes this.
      3. SadMan
        SadMan
        When the rich get this disease.
        Jan 22, 2021 at 6:18 AM
      4. twa
        twa
        The reason why I think there are regenerative treatments around the corner is because of the use regenerative therapies in other areas of medicine with success. Stem cells and platelet rich plasma are currently be used to treat the spine and other joints. Regenerative medicine is no longer science fiction.
        Jan 25, 2021 at 6:11 PM
        Drachen and aot like this.
    3. asey20
      asey20
      Tinnitus is being completely supressed again. Honestly wish I never knew about this. Pretty sure a lot of people have it but don't realize.
      1. aot and Drachen like this.
      2. asey20
        asey20
        Oh man and just like that... A fleeting T moment in my left ear causes my tinnitus to go haywire... Fascinating. Truly amazing.
        Jan 21, 2021 at 1:28 AM
      3. Drachen
        Drachen
        This is something I wonder about very frequently, especially for cases that just spawn seemingly out of nowhere. I have to wonder if it's just a case of your mind just focusing on it and maintaining focus for no discernible reason other than to cause distress.
        Jan 21, 2021 at 1:45 AM
        Steph1710 and asey20 like this.
      4. asey20
        asey20
        @Drachen literally. It became so loud but I can't hear it again!
        Jan 21, 2021 at 2:31 AM
    4. asey20
      asey20
      Determined that this is all hopeless. I have too many problems that I shouldn't expect to ever get solved. Life was not what I expected.
      1. View previous comments...
      2. Steph1710
        Steph1710
        Asey! Don't be so down on yourself. :( your posts have always been so positive! Life isn't what I expected either. I've gone from perfect health, to being overwhelmed with problems. I was climbing mountains - now I can barely leave the house because I can't breath properly, on top of a number of issues. If I lived closer to you, & covid wasn't a thing, I would come hang with you.
        Jan 20, 2021 at 9:00 AM
        twa and convolution like this.
      3. Steph1710
        Steph1710
        We could suffer together. Luke is right - hang on x
        Jan 20, 2021 at 9:00 AM
        twa likes this.
      4. asey20
        asey20
        @Steph1710 thanks, but I've just given up. My brain is exhausted. I miss my old self. It's hard to stay positive when I don't know if this will ever get better. I even found the person I want to marry but I'm afraid that I'm not good enough for her due to all my problems. I'm just tired of this.
        Jan 20, 2021 at 12:48 PM
    5. asey20
      asey20
      Pretty sure my tinnitus isn't from loud noise exposure... Unless that noise exposure happened much before I got tinnitus.
      1. MBH, Lucifer and Steph1710 like this.
      2. Lucifer
        Lucifer
        Sometimes theres a delay when symptoms appear. Before your tinnitus onset when was the last time you did something loud like attending a club or concert etc?
        Jan 18, 2021
      3. asey20
        asey20
        @Lucifer I'm not sure. Like 6-8 months prior.
        Jan 18, 2021
      4. asey20
        asey20
        The reason I think this is because my ear will hurt or it will feel a tingling sensation across my ear and to my face. Probably was a virus or something. I also don't necessarily have my Tinnitus get louder when I plug my ears. Idk it's strange. Tbh, not sure if there will be a treatment.
        Jan 18, 2021
    6. asey20
      asey20
      Tinnitus is pretty shitty, but honestly visual snow is some straight up bs
      1. Bill Bauer likes this.
      2. Shizune
        Shizune
        Hope you've been keeping well!
        Jan 12, 2021
        asey20 likes this.
    7. asey20
      asey20
      No tinnitus atm. Correction: little bit of tinnitus atm.
      1. Bill Bauer, anark, Kriszti and 3 others like this.
    8. asey20
      asey20
      Finally checked my MRI results (had the results for 1.5 months). Everything is mostly ok. Nothing major. Pretty happy.
      1. Steph1710
        Steph1710
        Well that's brilliant news. Hope you're doing okay asey? Don't know if I've seen you on here for a while.
        Jan 1, 2021
        asey20 likes this.
      2. Tanni
        Tanni
        Amazing news! And so pleased to see that you are doing so much better. Keep it up :)
        Jan 1, 2021
        asey20 likes this.
      3. asey20
        asey20
        @Steph1710 I'm doing well. Still not the same as before but maybe eventually ahah. I'm just glad that there is no major issues! Hopefully time heals things nicely. I haven't been on here lately cause I found it better for my mental health to distract myself from these issues. However, I still lurk here sometimes.
        Jan 1, 2021
        Ken219, Steph1710 and Tanni like this.
    9. asey20
      asey20
      My tinnitus has gotten 80% better. My vs has gotten better. I haven't updated in a long time, but I'm sure it's getting better.
      1. View previous comments...
      2. twa
        twa
        Are you doing anything in particular to help your recovery?
        Dec 26, 2020
      3. asey20
        asey20
        @anark thanks. I have it for 5 and a half months now. Started seeing big improvements around 4 months.
        Dec 27, 2020
      4. asey20
        asey20
        @twa not really. Just time. Improved greatly after my MRI, however was super loud during my MRI. Have never heard sounds like that before. Tbh, I kinda just woke up one day after that MRI and noticed it had improved a lot.
        Dec 27, 2020
        anark, Steph1710 and twa like this.
    10. asey20
      asey20
      Ugh it was so low today and it just got so loud tonight. I just wish it was consistently that low. Like wtf is this. Get better already.
      1. LilSass, starrynights and Steph1710 like this.
      2. Bill Bauer
        Bill Bauer
        It is getting better - you are getting the lows that most people wait years for.
        Oct 15, 2020
        asey20 likes this.
    11. asey20
      asey20
      Today is 3 months with T. Couldn't hear it at all this morning for an hour. Still hopeful it will go away. Mood is better now.
      1. twa, Bill Bauer and Steph1710 like this.
      2. sleepingsiren
        sleepingsiren
        Mine is fuzzy when I wake up too. :)
        Oct 14, 2020
        asey20 likes this.
      3. Bill Bauer
        Bill Bauer
        Eventually it will (mostly) go away for good, but that won't happen for months.
        Oct 15, 2020
        twa and asey20 like this.
      4. twa
        twa
        Wow! I'm 3 months in, that would be great to have silence. I had one lower day and it was encouraging.
        Dec 26, 2020
    12. asey20
      asey20
      So I woke up and my T is worse but more tolerable sound. I also lost almost all of my visual snow. What's left was prob there to begin with.
    13. asey20
      asey20
      I was doing so well but everything is getting worse again. Honestly, tinnitus ruined my life. I'm so sad.
      1. LilSass, ASilverLight and Nadia231 like this.
      2. View previous comments...
      3. asey20
        asey20
        Thanks @Steph1710. I'd appreciate that hug. Hopefully we both improve lots!
        Oct 10, 2020
        twa, Steph1710 and LilSass like this.
      4. Bill Bauer
        Bill Bauer
        I hope that knowing that this is most likely temporary and that you won't be listening to it 40 years from now is making it easier for you to handle it.
        Oct 11, 2020
        Steph1710 and asey20 like this.
      5. Bill Bauer
        Bill Bauer
        By the way, please feel free to share your feelings here! I apologize for sounding unreasonably aggressive. I guess I got to express My feelings truthfully. I am convinced that you are going to eventually get better. I don't say this to everyone here! Those setbacks Are scary and frustrating, but they are to be expected.
        Oct 11, 2020
        Christiaan, Steph1710 and asey20 like this.
    14. asey20
      asey20
      ENT appointment was so useless. Told me to live with it. Thank god it's gotten better on its own. Useless docs. Hope it goes away.
      1. asey20
        asey20
        Not even a joke. Audiologist was so nice. We even spoke about how it could be TMJ disorder and to discuss it with doctor. Doctor walked in, dismissed me right away. Must've gotten referred to wrong one. Well hopefully I continue to improve.
        Oct 5, 2020
      2. Zugzug
        Zugzug
        Sadly, the way it goes is that a good ENT is one that doesn't recommend dangerous tests unnecessarily.
        Oct 6, 2020
      3. Bill Bauer
        Oct 6, 2020
        Steph1710 likes this.
    15. asey20
      asey20
      Pretty sure my T is related to ear inflammation because my right ear hurts more and it causes an increase in T. No it's not H.
    16. asey20
      asey20
      I'll be gone for a long while. Just wanted to update by saying my T is a lot better and goes away almost completely sometimes.
      1. aot
        aot
        Congrats!
        Sep 20, 2020
        LilSass and asey20 like this.
      2. Kriszti
        Kriszti
        Glad to hear you are better, and take care!
        Sep 20, 2020
        asey20 likes this.
      3. all to gain
        all to gain
        Great stuff. Now protect those ears and don't be careless.
        Sep 20, 2020
        asey20 and Steph1710 like this.
    17. asey20
      asey20
      Does T becoming higher pitch mean it's getting better? What about lower pitch?
      1. HeavyMantra
        HeavyMantra
        I think the only thing that can be said about that is that changing tones/pitch can be good. Unrelenting, constant tinnitus with the same tone/pitch is probably less likely to change/get better. But changing tinnitus might not mean anything.
        Sep 7, 2020
      2. Bill Bauer
        Bill Bauer
        There is something to what HeavyMantra is saying. T being relentlessly at the same level and pitch is the worst. Nevertheless, on its way to "can hear it only in quiet rooms" stage, T goes from high pitch to a buzz, to a high pitch hiss and then to a low-pitch quiet hiss. So I would say that when the pitch is higher, it's not a good sign, whereas if the pitch gets lower, it's a great sign and a major milestone.
        Sep 8, 2020
        GBB likes this.
    18. Steph1710
      Steph1710
      Hey Asey! How's your T today? Has it settled since the onset? I've had T since April this year. Mine varies day-to-day. Never becomes better, never becomes worse. It destroyed me to begin with, and still annoys me now - but I have at least 99% of my life back. It definitely gets easier. :) Just can't use headphones anymore.
      1. LilSass and asey20 like this.
      2. asey20
        asey20
        I would say there has been some improvements. However, I experiencing so many other symptoms it's hard to know anymore. It has definitely gotten better tho.
        Sep 6, 2020
        Bill Bauer and Steph1710 like this.
    19. asey20
      asey20
      Received a free google nest mini with my Spotify premium account. "Hey google, play relaxing nature sounds." Nice! Just what I needed.
    20. asey20
      asey20
      I wanna stick around for the research, but sometimes I stray to other sections and get depressed. I may have to leave TT.
      1. View previous comments...
      2. asey20
        asey20
        @Diesel that's a good idea. I should still probably spend less time on this site as well.
        Sep 1, 2020
      3. all to gain
        all to gain
        Sep 1, 2020
      4. Gabriel5050
        Gabriel5050
        @all to gain you can go on the research section and create a bookmark in your browser. Or you can Google tinnitus talk research news.
        Sep 1, 2020
        all to gain likes this.
    21. asey20
      asey20
      Just wanna say I had a dental appointment a few days ago and my tinnitus hasn't spiked. I took precautions tho. :)
      1. Tanni, Bill Bauer and Lucifer like this.
      2. all to gain
        all to gain
        What precautions did you take?
        Aug 31, 2020
      3. Gabriel5050
        Gabriel5050
        What precautions?
        Aug 31, 2020
      4. asey20
        asey20
        I took NAC and magnesium a few days before. The dentist didn't drill for more than 10 seconds at a time.
        Aug 31, 2020
        all to gain likes this.
    22. asey20
      asey20
      TIL, they can fix a damaged nerve by removing it, graft onto it and put it back, giving sensation back, but they can't cure tinnitus.
      1. Bill Bauer
        Bill Bauer
        What do you want them to do - remove the brain, fix tinnitus, and put the brain back in?
        Aug 29, 2020
        lucy_snow and asey20 like this.
      2. asey20
        asey20
        Aug 29, 2020
        Bill Bauer likes this.
      3. Bill Bauer
        Bill Bauer
        If they remove the brain, T Will in fact fall silent and it will stay silent even after they put the brain back in!

        We're onto something.
        Aug 30, 2020
        lucy_snow and asey20 like this.
    23. asey20
      asey20
      Even if I am making progress, I can't help but feel sad. :( What do I do?
      1. LilSass and aot like this.
      2. View previous comments...
      3. Watasha
        Watasha
        It takes time. Focus on healthy habits consistently. Emotional reasoning is no help. Feeling sad is not a reason to not go for a walk, etc. Turning sadness around is like doing a 180 with a cruise ship, it just takes time. I'd also recommend spending a "limited" amount of time giving back on something. Write your representatives and request funding for research.
        Aug 25, 2020
        Bill Bauer and asey20 like this.
      4. asey20
        asey20
        @Watasha Well I haven't allowed this to prevent me to stop going for a walk. It's one of my joys rn. I also am trying to give back to people i various different ways rn.
        Aug 25, 2020
      5. asey20
        asey20
        I guess I'm getting better everyday, but it's a very slow process.
        Aug 25, 2020
    24. asey20
      asey20
      Yesterday was shitty, but I heard silence today! Gonna try to think about T less now and get my life back.
      1. Bill Bauer, Kriszti and aot like this.
      2. asey20
        asey20
        It's super depressing though when it gets louder at night. I need to learn how to function again.
        Aug 24, 2020
    25. asey20
      asey20
      Today my T was 97% gone for a while. It was amazing feeling. If it stays permanently like that I'm basically cured. I really needed that.
    26. Shizune
      Shizune
      that you in japan?
      1. asey20
        asey20
        Yeah
        Aug 20, 2020
      2. Shizune
        Shizune
        That's cool. Which area? I was able to go earlier this year before all this bs struck. I hope you can go back again one day (because I don't know if I can)
        Aug 20, 2020
      3. asey20
        asey20
        Aug 21, 2020
    27. asey20
      asey20
      I must've messed up somewhere to be here. I wish I could go back in time and fix it.
      1. WillBeNimble
        WillBeNimble
        Same.
        Aug 19, 2020
        Bill Bauer likes this.
      2. sensualmosquito
        sensualmosquito
        Feel you there.
        Aug 20, 2020
        Bill Bauer likes this.
    28. asey20
      asey20
      Kept getting fleeting T today. Tinnitus is louder now after a few days of mostly quiet. Idk if good or bad sign. Disappointed...Or not. lame
      1. Bill Bauer
        Bill Bauer
        Ignore the daily trend. What matters is the monthly trend. Few quiet days early on is a great sign.
        Aug 18, 2020
        asey20 likes this.
      2. asey20
        asey20
        Aug 18, 2020
      3. asey20
        asey20
        Thank god. I woke up and it's quiet again. It was so loud last night.
        Aug 18, 2020
        Bill Bauer likes this.
    29. asey20
      asey20
      I had a few "silent" moments today. Gentle hissing is almost silence...
      1. Bill Bauer, aot and Kriszti like this.
      2. asey20
        asey20
        It's not a fluke. My tinnitus is actually reducing after a month.
        Aug 17, 2020
        Bill Bauer likes this.
    30. asey20
      asey20
      Are we all being delusional or is some relief (treatments) coming within the next 5 years?
      1. Lilah, ShaunR, Orions Pain and 2 others like this.
      2. View previous comments...
      3. Bill Bauer
        Bill Bauer
        My uneducated guess is that there is a 35% chance of something that might work for T being released sometime over the next 5 years.
        Aug 16, 2020
        asey20 likes this.
      4. all to gain
        all to gain
        I'm 50-50! Some days I think it's delusional, other days I think our saviour (or at least a little help) is around the corner.

        You are still very new to this. Protect your ears and stay away from loud noise and ototoxic medications.
        Aug 16, 2020
        Bill Bauer and asey20 like this.
      5. asey20
        asey20
        @Bill Bauer Those aren't bad odds. Guessing the odds of something being released the next decade is even higher.
        Aug 16, 2020
        Bill Bauer likes this.
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  • About

    Gender:
    Male
    Birthday:
    Jul 2, 1997 (Age: 23)
    Location:
    Toronto
    Occupation:
    Computer Science
    Tinnitus Since:
    July 13, 2020
    Cause of Tinnitus:
    Not sure.
    一日一歩。One step at a time.

    Elon Musk's neurolink will cure tinnitus. Calling it right now.

    Currently trying:
    Omega 3 with coq10
    NAC
    ALCAR
    Vitamin B12
    Vitamin D3
    Curcumin with black pepper
    Magnesium
    Zinc (sometimes)

    Shakes with ashwaghanda, spirulina and moringa

    Signature

    Can't wait to get Neuralink implanted into my brain and turn me into a cyborg.
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