asey20

Could be jaw, if there is inflammation in the TMJ. Also there can be inflammation in the ear that is not seen. Those of us with arthritis or RA are familiar with inflammation in synovial joints, tendons, ligaments, etc. that can have an effect without many visual manifestations, but can definitely impair function.

Sorry about the reply chain, but I think there's good chances based from what I've read that there will be improvements this decade. I know some of the older crowd have said "this hype and optimism has come and gone before", but like YOU said, technology is more advanced in the future. The 2020s are not the 1990s, etc.

When the rich get this disease.

The reason why I think there are regenerative treatments around the corner is because of the use regenerative therapies in other areas of medicine with success. Stem cells and platelet rich plasma are currently be used to treat the spine and other joints. Regenerative medicine is no longer science fiction.

Oh man and just like that... A fleeting T moment in my left ear causes my tinnitus to go haywire... Fascinating. Truly amazing.

This is something I wonder about very frequently, especially for cases that just spawn seemingly out of nowhere. I have to wonder if it's just a case of your mind just focusing on it and maintaining focus for no discernible reason other than to cause distress.

@Drachen literally. It became so loud but I can't hear it again!

Asey! Don't be so down on yourself. :( your posts have always been so positive! Life isn't what I expected either. I've gone from perfect health, to being overwhelmed with problems. I was climbing mountains - now I can barely leave the house because I can't breath properly, on top of a number of issues. If I lived closer to you, & covid wasn't a thing, I would come hang with you.

We could suffer together. Luke is right - hang on x

@Steph1710 thanks, but I've just given up. My brain is exhausted. I miss my old self. It's hard to stay positive when I don't know if this will ever get better. I even found the person I want to marry but I'm afraid that I'm not good enough for her due to all my problems. I'm just tired of this.

Sometimes theres a delay when symptoms appear. Before your tinnitus onset when was the last time you did something loud like attending a club or concert etc?

@Lucifer I'm not sure. Like 6-8 months prior.

The reason I think this is because my ear will hurt or it will feel a tingling sensation across my ear and to my face. Probably was a virus or something. I also don't necessarily have my Tinnitus get louder when I plug my ears. Idk it's strange. Tbh, not sure if there will be a treatment.

Hope you've been keeping well!

Well that's brilliant news. Hope you're doing okay asey? Don't know if I've seen you on here for a while.

Amazing news! And so pleased to see that you are doing so much better. Keep it up :)

@Steph1710 I'm doing well. Still not the same as before but maybe eventually ahah. I'm just glad that there is no major issues! Hopefully time heals things nicely. I haven't been on here lately cause I found it better for my mental health to distract myself from these issues. However, I still lurk here sometimes.

Are you doing anything in particular to help your recovery?

@anark thanks. I have it for 5 and a half months now. Started seeing big improvements around 4 months.

@twa not really. Just time. Improved greatly after my MRI, however was super loud during my MRI. Have never heard sounds like that before. Tbh, I kinda just woke up one day after that MRI and noticed it had improved a lot.

It is getting better - you are getting the lows that most people wait years for.

Mine is fuzzy when I wake up too. :)

Eventually it will (mostly) go away for good, but that won't happen for months.

Wow! I'm 3 months in, that would be great to have silence. I had one lower day and it was encouraging.

Thanks @Steph1710. I'd appreciate that hug. Hopefully we both improve lots!

I hope that knowing that this is most likely temporary and that you won't be listening to it 40 years from now is making it easier for you to handle it.

By the way, please feel free to share your feelings here! I apologize for sounding unreasonably aggressive. I guess I got to express My feelings truthfully. I am convinced that you are going to eventually get better. I don't say this to everyone here! Those setbacks Are scary and frustrating, but they are to be expected.

Not even a joke. Audiologist was so nice. We even spoke about how it could be TMJ disorder and to discuss it with doctor. Doctor walked in, dismissed me right away. Must've gotten referred to wrong one. Well hopefully I continue to improve.

Sadly, the way it goes is that a good ENT is one that doesn't recommend dangerous tests unnecessarily.

No, most of them are like that. This explains the results of the poll below:
https://www.tinnitustalk.com/threads/poll-was-the-advice-you-got-on-this-forum-more-useful-than-your-ents-advice.28006/

Congrats!

Glad to hear you are better, and take care!

Great stuff. Now protect those ears and don't be careless.

I think the only thing that can be said about that is that changing tones/pitch can be good. Unrelenting, constant tinnitus with the same tone/pitch is probably less likely to change/get better. But changing tinnitus might not mean anything.

There is something to what HeavyMantra is saying. T being relentlessly at the same level and pitch is the worst. Nevertheless, on its way to "can hear it only in quiet rooms" stage, T goes from high pitch to a buzz, to a high pitch hiss and then to a low-pitch quiet hiss. So I would say that when the pitch is higher, it's not a good sign, whereas if the pitch gets lower, it's a great sign and a major milestone.

I would say there has been some improvements. However, I experiencing so many other symptoms it's hard to know anymore. It has definitely gotten better tho.

@Diesel that's a good idea. I should still probably spend less time on this site as well.

How do you do that @Diesel?

@all to gain you can go on the research section and create a bookmark in your browser. Or you can Google tinnitus talk research news.

What precautions did you take?

What precautions?

I took NAC and magnesium a few days before. The dentist didn't drill for more than 10 seconds at a time.

What do you want them to do - remove the brain, fix tinnitus, and put the brain back in?

@Bill Bauer lol yes!

If they remove the brain, T Will in fact fall silent and it will stay silent even after they put the brain back in!

We're onto something.

It takes time. Focus on healthy habits consistently. Emotional reasoning is no help. Feeling sad is not a reason to not go for a walk, etc. Turning sadness around is like doing a 180 with a cruise ship, it just takes time. I'd also recommend spending a "limited" amount of time giving back on something. Write your representatives and request funding for research.

@Watasha Well I haven't allowed this to prevent me to stop going for a walk. It's one of my joys rn. I also am trying to give back to people i various different ways rn.

I guess I'm getting better everyday, but it's a very slow process.

It's super depressing though when it gets louder at night. I need to learn how to function again.

Yeah

That's cool. Which area? I was able to go earlier this year before all this bs struck. I hope you can go back again one day (because I don't know if I can)

@Shizune I replied to you in DMs.

Same.

Feel you there.

Ignore the daily trend. What matters is the monthly trend. Few quiet days early on is a great sign.

@Bill Bauer Thanks. I feel really shitty tonight.

Thank god. I woke up and it's quiet again. It was so loud last night.

It's not a fluke. My tinnitus is actually reducing after a month.

My uneducated guess is that there is a 35% chance of something that might work for T being released sometime over the next 5 years.

I'm 50-50! Some days I think it's delusional, other days I think our saviour (or at least a little help) is around the corner.

You are still very new to this. Protect your ears and stay away from loud noise and ototoxic medications.

@Bill Bauer Those aren't bad odds. Guessing the odds of something being released the next decade is even higher.