Diesel

no sore arm or anything? good it went ok!

It was way less sore than the first 1. I guess I forgot about that, it cleared on the first day.

Also, submit the comments form re: living with SNHL/Tinnitus/Hyperacusis/whatever else. I couldn't think of a better place to get our conditions in front of the FDA and all of these therapeutic companies.

Glad you are doing well!

I remember reading that noise induced hearing loss/tinnitus has a higher Synaptopathy factor than hair cell loss, so maybe Synaptopathy drugs can help NIHL people the most?

Honestly put me to sleep until these treatments are out lol

I woke up with vertigo 5 days after the 1st vaccine, resolved in one day. I woke up with vertigo 13 days after the 2nd vaccine. I'm on day 16 of vertigo/dizziness, feeling much better though.

@twa I am glad to read that you're feeling better. I have been thinking of you lately. Sending you good thoughts right now.

@Diesel, thanks so much for the kind words and good thoughts. I appreciate the support.(in my Southern drawl):-D

Oh! What do you think I sound like?

@Steph1710 - you obviously sound like Carol Cleveland, since Monty Python is my entire frame of reference for English voices and personalities. ;)

@Shelbylynn - How they write, and what their little profile thumbnail says.

@aot - A typical 20-year old midwesterner

@Steph1710 - Chloe Veitch

"Eh, your life already sucks enough. NEXT."

@Zugzug, hope all goes well. Mine is 5/7, first thing in the morning. I hope I make it through work. Already got some trash movies queued up on Netflix for the weekend recovery.

@Diesel, glad you are doing well.

Take care, hydrate, eat well and rest. Both my reactions were at 5 and 10 days after the vaccine.

@twa so far, doing things normally as possible. Decent diet, normal sleep. I'll check back in at Week 2.

Just got mine today! I’m nervous about what could happen but I know it will probably be ok. Your case comforts me :)

I think of "reactive" as quick both in starting and stopping, so it overlays sounds and fades as soon as the triggering sound ends. But it can have varying ramp-up and ramp-down speeds, from instantaneous to several seconds. That's my take, based on experience.

@Keith Handy, Ok, I've experienced this description of reactivity early on with my T/H. This description seems to be much more rare now that I'm 2+ years in. What I experienced last night was like a spike at a certain frequency (a scream) but without spiking the normal T I experience. Really wild, don't know if it has an official name.

I've been getting insane fleeting low, medium, high T lately too that sticks for minutes.Been taking more ginko lately....

keep us posted out to 2 weeks!

@Keith Handy, appreciate the kind words. Science can be unpredictable. The FX-322 project is an attempt to make the body do something it has not done in human evolution. I continue to be optimistic that we are at the tipping point for treating SNHL. Once we've all had our dose of FX-322, I'd be happy to host an Alumni get together. Music will be at a responsible volume, and the foods will be low in sodium.

Curious if you had a preference, regarding tinnitus and hyperacusis. I couldn't conclude one way or another, as tinnitus is a real side effect that's not super common. My instinct was that J&J was slightly higher risk.

@Zugzug - My parents both got Pfizer. Both have tinnitus (Noise-Induced), both had no issues re: tinnitus. My order in preference is Pfizer, J&J, Moderna.

I did both moderna and so far it was fine

what do you mean?

@Tezcatlipoca - Prior to COVID, it was often to read about new members having an earbud mishap leading to their T. Now, half the posts I see on here are about COVID/Vaccine giving them T.

yea so do we gamble with the Vac or Covid...

I've currently been 100% remote since my firm shut down in March from covid. At first it took some adjustment, but now it's working out well. My current job req's a ton of communication, which I do well remotely. I def don't miss the commute, put about 100 miles on my truck since march, 2020. There are talks about "everyone coming back" .. not sure I'm feeling it.

I agree with @ajc . It's probably a double edged sword. At the moment I am living in a country which is not my own and we are "strongly encouraged" to work from home, so I am completely isolated. I think I would have confronted my tinnitus better if I had my old routines of going to the office and meeting few colleagues...

Even though I am somewhat reserved, I'm finding that I miss the camaraderie of working with people and being part of a team. Ironically, most of my career I was on a team and hated it. My husband went back to his office about 2 months ago and it has helped him mentally. He said he is more productive in the office without the distractions of home. He is asking his staff to return in June.

Rushing to eat something nasty. No, bad jokes aside, get well soon and fingers crossed your T remains quiet.

Very interesting! Sorry about the food poisoning though. That really sucks!

Interesting, people with inflammatory conditions tend to feel better (joint and pain wise) when they have food poisoning. Inflammation goes down in the absence of inflammatory foods, maybe?

You're a visual learner. :-D

What do you mean by "see digits"?

Even the trailer for the film made me well up. I will attempt to watch it soon. Hope you found something nice to watch in the end.

It sounds way to heavy for me. Ironically, I saw A Star is Born about a year before my acoustic trauma. The depiction of his hearing loss is pretty spot on.

It wasn't an easy watch but was good to be able to tell my other half about how relatable some of it was as she watched it with me.

For three years I had very faint cicadas. I heard someone say recently their T sounds like angry cicadas. I never knew my faint cicadas could change, they never changed and never came into my consciousness unless I listened intently. Now I also have morse code in the ear that experienced the acoustic trauma.

Hi @twa! Was yours originally cause by an acoustic trauma? Mine was caused by meds but I'm concerned that it will get worse - that is my biggest fear. 1.5 years in and it is the same, not better but not worse.

@LilSass Hi! I'm not exactly sure what caused my original T. I had a back injury 5 years ago and I was prescribed several meds. I also had an MRI which I remember the tech said the ear plug doesn't fit in your left ear. She continued with the MRI w/o any protection and I thought she would tell me if it wasn't safe. I remembered the very faint cicadas started after I did a micro-taper of Clonazepam.

See ya in 6 hours. ;-)

I know it's already been said, but it can't be said enough: you have performed a considerable service to the forum. Please take whatever time you need.

My turn for a break...

FT is another mistery to unravel. I wish it was a mathematical problem.

@convolution it blows my mind. I got weeks, WEEKS without fleeting T. Then suddenly, I'll have days were they are random throughout the day, back to back in sequence. Always the same pitch, always the same-ish duration. I saw some people mention ETD.. but I dont know if its related? Or what I would experience with ETD?

@Diesel same here. During the Christmas break I had a shitload of episodes, several/day. Three weeks ago I had one that lasted 30 minutes. Last two weeks nothing.

I read that as "breaking some old school computer games" and though why would you do that. I was shook. I missed the out part. lol

What old school computer games are you talking about?

Quest for Glory

@Diesel, I read a journal article that possibly linked fleeting T to dynorphins stimulating NMDA receptors.

Yes, it is likely your body re-calibrating itself, in an attempt to get rid of your T.