asey20
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asey20

Member, Male, 25, from Toronto

It's been a while since I've been here. Are things looking better for tinnitus treatments since a year ago? Any major updates? Dec 11, 2022

    1. asey20
      asey20
      It's been a while since I've been here. Are things looking better for tinnitus treatments since a year ago? Any major updates?
      1. kuromi and SamRosemary like this.
      2. Lurius
        Lurius
        Yes. Check the thread for Susan Shore's device. We could be looking at a different tinnitus reality in a few years.
        Dec 11, 2022
        NYCGuy, asey20 and SamRosemary like this.
      3. asey20
        asey20
        @Lurius that's nice to hear for everyone. I was checking that out earlier today and it looks like something that might be good for what I have. I remember a year ago there was a lot of pessimism around Susan shore's device. Did anything change in the last year?
        Dec 12, 2022
        NYCGuy likes this.
    2. Novachrono
      Novachrono
      Hi how are you doing? How is your visual snow doing?
      1. asey20
        asey20
        More or less the same. Has settled down a bit since initial onset, but I have found ways to cope and live a relatively normal life.
        Dec 11, 2022
    3. asey20
      asey20
      My tinnitus just seems worse again. Idk what happened. I guess stress is not good for these things.
      1. NYCGuy and Steph1710 like this.
    4. asey20
      asey20
      Yesterday I had a really loud 30 seconds of T in my left ear. It went down but my left ear T seems louder than before. Anxious and tired.
      1. Steph1710, NYCGuy and JPGL like this.
      2. asey20
        asey20
        Correction: it's the right ear. Left ear is fine lol that's how tired I am
        Feb 8, 2022
    5. asey20
      asey20
      T bad in right ear again. Hopefully it goes down soon. Really tired so may be contributing.
      1. Steph1710, JPGL, kuromi and 1 other person like this.
    6. asey20
      asey20
      A flat tone has come back in my left ear (better ear). It's not super loud but it had disappeared for a long time.
      1. NYCGuy and Steph1710 like this.
    7. asey20
      asey20
      My tinnitus that was kinda consistent tone for quite a while was like oh let's try being high pitched now. Lol idk wtf
      1. JPGL and LilSass like this.
      2. JPGL
        JPGL
        Do you feel better now about the tinnitus ?
        Jan 16, 2022
      3. asey20
        asey20
        @JPGL Yes. Although I still wish it will get better or a cure or treatment will come along.
        Feb 4, 2022
        JPGL likes this.
    8. asey20
      asey20
      Does anyone think that tmj can cause significant tinnitus and ear pain? I still have pain and T on my right side where my jaw cracks.
      1. LilSass likes this.
      2. Christiaan
        Christiaan
        Good question. From what I gather on TT, is that there are quite some people with TMJ with significant tinnitus. Hyperacusis/ear pain on the other hand..... I do not read a lot of those stories in relation to TMJ. Did you go to an ENT to check for TMJ BTW?
        May 30, 2021
      3. asey20
        asey20
        @Christiaan as soon as I went to the ENT and they heard tinnitus they just said there is nothing they can do for me. Maybe I should try going to another ENT or TMJ specialist. It's been quite a while since I had those ENT appointments. I've just been exhausted and gave up trying.
        May 30, 2021
        JPGL likes this.
      4. Christiaan
        Christiaan
        Not all ENTs are created equal:) Perhaps there is one who is more willing to help you than the ones who are stuck in the ''learn to live with it'' routine. I went through a similar situation and finally met the right person (my 3rd ENT) who did extensive research to rule things out, like TMJ. Hopefully you can get a 2nd or even 3rd opinion. I'm sure you will find that ENT who will do everything to help you.
        May 30, 2021
        asey20 likes this.
    9. asey20
      asey20
      Thinking about how Tavares gets kneed in the head and is ok while I experienced emotional trauma and get tinnitus and visual snow syndrome.
      1. JPGL, LilSass and NTV like this.
      2. Tezcatlipoca
        Tezcatlipoca
        Do you think you got tinnitus because of emotional trauma?
        May 22, 2021
        JPGL likes this.
      3. asey20
        asey20
        May 22, 2021
        JPGL likes this.
    10. asey20
      asey20
      I can just imagine that we are always saying "we are at the forefront of medicine" and then nothing happens and we get disappointed.
      1. JPGL and kuromi like this.
      2. Diesel
        Diesel
        Learning that something didn’t work is still progress.
        May 16, 2021
      3. asey20
        asey20
        @Diesel that's true. Just imagine how good it'll feel when something does work. I guess never say never.
        May 16, 2021
        JPGL likes this.
      4. Matchbox
        Matchbox
        @Diesel or a waste of a resources and time on a process without enough comprehension of the actual mechanism. Shooting in the dark imo isn't progress.
        We're more likely to stumble on a cure by accident.
        May 17, 2021
    11. asey20
      asey20
      I miss my friendly folks here. How are you guys doing? ❤️
      1. LilSass, kuromi and Steph1710 like this.
      2. View previous comments...
      3. asey20
        asey20
        @Steph1710 I'm doing alright. Tinnitus has its ups and downs but I can go a long time without hearing it or really being bothered by it. I absolutely hate floaters tho. Those have gotten worse but I guess there is treatment for it, although risky and hard to get at my age. Visual snow symptoms have been improving otherwise. Exhausted tho.
        May 14, 2021
        LilSass and kuromi like this.
      4. kuromi
        kuromi
        Hi! @asey20 It's good to know you're doing well. Your post was one of the first I read when my situation started becauser we had similarities. I'm at a similar stage now where I can say that most of the time I'm completely unbothered by the tinnitus, but it still has it's ups and downs. Hope your VS continues to improve!
        May 14, 2021
        asey20 likes this.
      5. Novachrono
        Novachrono
        May I ask how your visual snow is now??
        Jul 11, 2022
    12. asey20
      asey20
      Right ear still hurts after 8 months. I remember ENT was like "just some jaw inflammation"... Yeah right.
      1. LilSass and Steph1710 like this.
    13. asey20
      asey20
      So nice waking up to no tinnitus in the morning. I may make sleeping my new hobby.
      1. LilSass, Syb, Bill Bauer and 5 others like this.
    14. asey20
      asey20
      Would've gotten my 2nd dose of pfizer yesterday. Instead Canada is trying this thing where they postpone it to 4 months. Great...
      1. Steph1710 likes this.
      2. twa
        twa
        Really? What's the rationale?
        Apr 4, 2021
      3. asey20
        asey20
        @twa the country did not secure enough vaccines.
        Apr 4, 2021
    15. asey20
      asey20
      In the next 10-20 years there will be more advanced drugs than ever before.
      1. NTV, starrynights, Lucifer and 4 others like this.
      2. Sironketchup
        Sironketchup
        I like drugs
        Mar 28, 2021
        asey20 and Steph1710 like this.
      3. Tezcatlipoca
        Tezcatlipoca
        Definitely, and I'm going to do them all
        Mar 28, 2021
      4. Bill Bauer
        Bill Bauer
        In 20 years you will be lucky to have access to indoor plumbing.
        Mar 29, 2021
    16. asey20
      asey20
      Starting to feel better lately. Watching tiktoks of blind ppl have made me humble myself a bit. If they can live happy, I can try too.
      1. kuromi
        kuromi
        You're close to reclaiming your life. Based on what you've said before, you seem to be on the way to healing. Keep faith asey!
        Mar 27, 2021
        Steph1710, Anniz, Lucifer and 2 others like this.
      2. sensualmosquito
        sensualmosquito
        Perspective helps sometimes. I've had a hard time in the last few days but I keep thinking to myself that it will get better, I will learn to live with it, and things will be better in my 30s.
        Mar 27, 2021
        Steph1710, asey20 and kuromi like this.
    17. asey20
      asey20
      Ignored my tinnitus for the whole day today. Subsequently it has been quiet. A long time since I have been able to do that. Great news.
      1. Anniz, Steph1710, Charburchar and 2 others like this.
      2. kuromi
        kuromi
        I've been at the same stage recently. I'm able to ignore it for the whole day and only have to deal with it in the evenings. Glad to know you're doing well.
        Mar 23, 2021
    18. asey20
      asey20
      The hospital I work at just recently acquired a 7T MRI machine. High definition MRIs are finally here. Hoping this will help a lot of ppl.
      1. Steph1710 and Anniz like this.
      2. View previous comments...
      3. asey20
        asey20
        Mar 24, 2021
      4. Lukee
        Lukee
        Awesome. Sunnybrook is the best for neuro in the city.
        Mar 24, 2021
        asey20 likes this.
      5. asey20
        asey20
        @Lukee Yup. They are one of the only hospitals in the world to open up the blood brain barrier. Very good stuff and research going on here.
        Mar 24, 2021
    19. asey20
      asey20
      I have really bad floaters that just keep getting worse. I wish it would go away.
      1. FGG
        FGG
        How is your anxiety level? Floaters are linked with anxiety apparently. The good news is they keep improving laser treatment for them.
        Mar 21, 2021
      2. asey20
        asey20
        really really bad today. I'm feeling horrible right now.
        Mar 21, 2021
      3. TheDanishGirl
        TheDanishGirl
        I also have lots of floaters. It awful!
        Mar 21, 2021
    20. asey20
      asey20
      Wouldn't be surprised if many things wrong with our bodies are simple fixes. We just haven't gotten to that point yet (of fixing it).
      1. Syb, Keith Handy and Steph1710 like this.
    21. asey20
      asey20
      Can depression cause tinnitus or worsen it? I think so.
      1. LilSass and Vassili like this.
      2. Vassili
        Vassili
        Anxiety and depression both can. I've heard that if the cause is rooted in your mental state then psychiatrist can quickly help you. If it's noise induced, like mine, I don't think that antidepressants would help me but one thing's for sure - anxiety better be held under control because not only it increases tinnitus, also constant stress can have a negative impact on your kidneys. My ENT told me that.
        Mar 20, 2021
        Michael Leigh likes this.
    22. asey20
      asey20
      Feeling O so tired. If only I could get rid of one of my problems. That would be lovely. Thanks.
      1. LilSass and Steph1710 like this.
    23. asey20
      asey20
      If I don't make a new status at least every 6 months, then I'm probably dead. I'm doing ok, Just don't want to be forgotten.
      1. View previous comments...
      2. musicblue
        musicblue
        @asey20 Aim for complete silence, but remember it will likely drop in volume at a very slow rate like a radio song fade out. Tbh I think everybody has tinnitus, but like hardened lake ice, ours comes through the cracks due to various reasons. The aim is to sink it back down to an acceptable level and hope it freezes over again.
        Mar 18, 2021
        asey20 and Steph1710 like this.
      3. asey20
        asey20
        Mar 18, 2021
      4. asey20
        asey20
        Mar 18, 2021
    24. asey20
      asey20
      Imo, we aren't even close to a treatment for tinnitus. We aren't even within reach. Might as well give up.
      1. View previous comments...
      2. asey20
        asey20
        @Ilias T it is promising, but is it curative? Not likely. Is it a step in the right direction? Absolutely. Is it exciting? Definitely.

        All I'm saying is that the optimism for fx-322 is overflowing. I'm glad people are getting excited over it, but don't put your eggs in one basket.
        Mar 16, 2021
      3. asey20
        asey20
        For example, they know that amyloid deposits play a factor in dimentia, just like how ear hair cells play a factor in tinnitus. However when they use drugs that target these amyloid deposits, it doesn't necessarily lead to a substantial enough improvement. Otherwise dimentia will be cured or have effective treatments.

        Now, I am not saying this is a great analogy. However, it is important to consider these things...
        Mar 16, 2021
      4. asey20
        asey20
        @Steph1710 Thank you for understanding. Venting is important part of getting through things.

        Just because I'm being a downer doesn't mean I don't want a cure or effectivetreatment. I want a cure or treatment for everything. I just hate to see excitement which could be leading to a dead end. Always good to be a little skeptical. Going on the fx-322 post these days is not even constructive anymore.
        Mar 16, 2021
        Steph1710 likes this.
    25. asey20
      asey20
      Day 245: Tinnitus still not gone yet.
      1. Ilias T likes this.
      2. Ilias T
        Ilias T
        I'm at day 1390 something. Lol
        Mar 14, 2021
        LilSass and Matchbox like this.
    26. asey20
      asey20
      Does anyone else here have visual snow syndrome? Please comment so we can discuss. I would like to not feel so alone.
    27. asey20
      asey20
      Once again waking up to NO tinnitus. None and then it creeps on. A quiet static and pain in the right ear and neck.
      1. View previous comments...
      2. Dolgoruki
        Dolgoruki
        same here! I wake up with near to no tinnitus and to a much smoother tone too. As time goes by throughout the day it start to get louder and it usually peaks at around bed time.

        I still see it as an improvement since until only a few months ago the volume was pretty much the same morning till evening...
        Mar 14, 2021
        kuromi and asey20 like this.
      3. kuromi
        kuromi
        @Dolgoruki We have very similar progressions! In the months right after my onset I had the same level of volume consistently, and now I have that barely audible, softer level for most of the day until the evening where it gets more obnoxious.

        It's pretty much been the only way I've measured progress as with the way it is now, I'm very close to total silence.
        Mar 14, 2021
        Dolgoruki likes this.
      4. Dolgoruki
        Dolgoruki
        @kuromi that's great to hear!

        Sometimes when I get frustrated in the evening I remind myself that my current worst is better than the older best. That thought keeps me hoping I am on a path of further recovery.

        Best of luck!
        Mar 14, 2021
        kuromi likes this.
    28. asey20
      asey20
      Pretty certain tinnitus is forever... And that's sad.
      1. LilSass and kuromi like this.
      2. View previous comments...
      3. asey20
        asey20
        @ASilverLight Unfortunately, I don't even know what the issue is and when this exactly began. I only noticed this on July 12 of last year. All I know is that I experience pain on my right side near and around my ear and neck. Also, this visual snow syndrome I'm experiencing doesn't give me hope that this can go away at all.
        Mar 14, 2021
      4. asey20
        asey20
        @ASilverLight I feel like a lot more people have a lot more to be hopeful for then I do. I'm tackling several problems here. Maybe I'll get lucky. Maybe I can be happy. It's tough. I did definitely improve but I don't know if that will continue.
        Mar 14, 2021
      5. ASilverLight
        ASilverLight
        I have VSS too and reactive tinnitus. I have a lot of issues too and still don't know the exact cause. But this hope is the only thing getting me through each day
        Mar 14, 2021
        asey20 likes this.
    29. asey20
      asey20
      aren't we overly optimistic about finding a treatment soon? People are too excited on fx322 me thinks... Sorry to burst any bubbles. :/
      1. Ilias T
        Ilias T
        Optimistic because of how well it's doing. I don't think there is a better candidate out there. If it succeeds this trial, we are looking for a possible cure in 2023, best case.
        Mar 13, 2021
        starrynights, Steph1710 and kuromi like this.
      2. Ilias T
        Ilias T
        Well, did people say the same thing in 2010? Probably, but now we have something that might actually work. We lived in 2015 with computers 5x slower than today. Science is moving super fast.
        Mar 13, 2021
      3. asey20
        asey20
        @Ilias T I get what you are saying but it was the same thing in 2010, computer got 5x faster by 2015. It's Moore's law, every 2 years technology doubles (as in transistors on a chip). Tinnitus is multifactorial and therefore will be hard to treat, unfortunately.
        Mar 14, 2021
    30. asey20
      asey20
      There is pain/discomfort on the right side of my ear which just won't go away. I'm sure that this is causing the tinnitus. What do I do?
      1. Bill Bauer
        Bill Bauer
        Ent?
        Mar 12, 2021
      2. asey20
        asey20
        @Bill Bauer they said they couldn't see any inflammation
        Mar 12, 2021
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  • About

    Gender:
    Male
    Birthday:
    Jul 2, 1997 (Age: 25)
    Location:
    Toronto
    Occupation:
    Computer Science
    Tinnitus Since:
    July 13, 2020
    Cause of Tinnitus:
    Not sure.
    一日一歩。One step at a time.

    Elon Musk's neurolink will cure tinnitus.
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