COYS

Hello. I'm doing well at the moment thanks. T is still mild and I haven't noticed my hyperacusis for ages so I think it's all but gone

Good news. I hope you get rid of T completely.

How’s your TTTS?

T is better but still there. Kind of used to it now

Do you still have ear spasms? 1 month and seems to get worse. Reacts to doors closing, faucets myself talking etc.

I do sometimes but its definitely improved. I dont notice it as much as I used to either. The spasms I could deal with but the ear pain was horrible

Are you taking any supplements/meds for sleep?

Nope. For me it’s slowly getting back to normal. I use a waterfall sound to distract me from the T. At first I was getting barely any sleep at all

I can only hope. My T and H got worse again after being at barbershop... But I am glad you have it better!

Wow you did. That’s great How is it now?

Went for a ride yesterday as well! Nice to be in nature.

Think it does me good to take my mind off it and the excercise obviously

Right on, yeah mine is triggered from noises in a more quiet environment (my own voice, crisp packets like yourself, cutlery hitting etc). Not sure if I should baby the ear (keeping an earbud in the problem ear seems to stop it from spasming at all) or just carry on as usual. Shame that this issue is not well understood.

I used to get a tingling sensation around my ear as well. Its very on and off now and seems to be getting less and less. I dont have ear pain from noise specifically just the spasming or popping sensation. Its very irritating. I went with the logic of dont over protect them against everything but protecting when doing DIY etc.

For some reason I can't find the area to respond to your conversation COYS. Can't find a place to type to respond.

Don’t want to jinx it but I’m assuming it’s a positive

That is positive! But I found out if I overwork my ears, the beeps and so on start to feel bad again. So it's physical?

I guess it is! My spasms seem to be getting less but then the odd day they come back again

Yeah mine seems low in the morning as well. Is yours in both ears? Mine is just one ear. But it seems to be moving to in my head. Idk anymore.

Mine is mainly in the right. If I plug each ear separately the right seems to be louder

Hello. No I’d say mine is ok average 2 and sometimes a 3. When I wake up in the morning it’s sometimes a 1. Which makes me hopefull that it’s fading

Never both ears at the same time. Sometimes my left sometimes my right. What does that mean?!

Yes, the spasm are worst and the strange tingling sensation.

I mean don’t get me wrong I’d rather that than sharp pains. But it’s so random that’s it’s only ever one ear at a time

That's good. Hopefully you wont be able to hear it anymore.

I definitely will be . Just want to recover as much as possible :)

@Contrast was your healing linear in terms of the ear pain and spasms ? Mine was really good for 3/4 weeks and now it’s back slightly for some reason

Ears didn’t hurt either... but cutlery still makes my ear spasm!?

just because the noiceptors in the cochlea aren't activating doesn't mean you should expose yourself to noxious noise. Pain hyperacusis will come back

Plugs your ears next time. Don't test what your ears can and cannot handle.

They will disappear. My ear spams have reduced to almost zero. Let's keep fighting!

4 months in so far. Still hopeful they will stop

Same here, If my ears are shit, they are for the day. at least sports takes the mind off it. I hear my T less out in the wood mtn biking

I agree. My ears didnt hurt so ill take that. T didnt really spike that I noticed so I'm going to carry on cycling.

Good for you! I mountain bike often and play soccer 3x a week. Both always spike my T but it's not permanent. It usually settles down by the next day. Regardless, I won't let T deter me from doing the activities I love spike or no spike!

Good for you!

Do sounds make it feel more like that? If I am exposed to sounds, it startd to feel like rubber ball is behind my ear, inside my head.

Yeah its a weird sensation. sometimes for no reason at all then it can be fine for hours on end.

I think it might be cochlea Imflammation.

Fingers crossed, Sir. I'm sceptical by nature. I've got some hope now that I can at least function with this level of noise. If it never improves beyond this, but doesn't worsen, I think I can live a decent life. I hope you are well.

Unless you experience a new trauma, there is no reason for your T to not continue to fade. Of course, the more it fades, the slower it tends to fade, but nevertheless all of this fading eventually begins to add up.

Thanks, that is my hope. I've been told that I'm prone to catastrophic thinking, so I'm trying not to focus on the possibility of it getting worse on its own. I'm doing all the protective measures I can and will stay well away from concerts or clubs for the foreseeable future. I would ask how yours is doing, but my understanding is that you've stopped discussing it in public.