Juliane

Not this kind of suffering.

You don’t deserve this, nobody does. This never should have happened to you, me or any of us.

@Juliane ❤️

You're just trying to survive

Sorry @Juliane. I know how you feel.

@tpj ❤️ I am sorry you know

100 percent

I think there is more similarity to MS or Parkinson's than the doctors know. Some researchers may be finally getting some clue, but it is a long road ahead.

@Juliane. In my case it seems it is full blown neurological disease, and it is progressing with noise input.

I'd rather have a terminal illness. Maybe I secretly have Prions disease slowly unfolding the proteins in my brain.

In my case, i know it has been caused by acoustic harm. This scares me, because i know how much off limits the volume was, it shivers my spine when i think back about that event.

I've come to realize, our natural bodies have to operate within natural limits. It's like.. natural harmony is just ahh, and everything that's not that is.. uff.. still i try to believe in healing with time, it's basically the only thing i got regarding to t.

But i have no guarantees, which can be frightening. But then, there are basically no guarantees in life at all.. i just try to find hope, calmth, spiritual inspiration, untense, healthy lifestyle, and go with the day. Nice to read from you again btw

I also grew up in a broken family, sadly enough. I've seen how complicated life can be, and i think that harmony is something we all naturally long for. Disease, dis-ease, something not at ease, i mean.. we feel something is not right, and just naturally wish to find harmony again i feel like.

I would love to feel like life is a gift, but most of it has felt like something to endure, sadly enough. Maybe a next life may be better, or i hope we can find healing in this life

Thalamic dysrhythmia. Inhibition gets fucked up. I always get minor floaters (since maybe late teen years), got immediately worse with T. Visual Snow is the next stage of brain collapse that some have.

They get annoying from time to time, but I am so used to them I don't notice unless I'm in really bright light or looking at a bright screen.

They're just clumped up pieces of collagen. If you move your eyes up or down or from side to side they will scoot out of the way.

Always had minor but visible floaters before and after T first came around. I ran a course of oral prednisone a few weeks ago and ever since then I’ve noticed more floaters. I guess it’s a possible side effect.

@gameover So so sorry. How are you handling work? Can you go on sick leave? Thinking of you. Hugs

Not too well for the past two weeks. Took some days off. I was doing okay before, but the couple "traumas", especially the last audiogram fucked me. The brain is disintegrating. This is not tinnitus, it is a form of a brain cancer.

@gameover how was your last audiogram?

I've gotten interested in mindfulness.. but the thing with this is.. if there is actual harm to the physical auditory nerves, like... how to find ease & stillness with this condition. The inspiration i've found for natural wellbeing.. feels so disturbed by this one.

Also, if it were just 'annoying sound'.. but it's painful too, something has been truly harmed.. and it may be safe to say, it has a negative effect on our cognitive & emotional wellbeing states. I notice that i get a lot of thoughts around t.. and i feel like.. if i try to stop, and be with the actual experience & sensations, it's just painful and distressing, and i feel the want to escape that.

That's why i maybe always crave for a better tomorrow, because the actual experience with this.. i find it hard to just be and settle within.. because it's just so discomfortable and it feels like it's disturbing more than it just is an 'annoying sound'. I guess.. i say again.. a better day.. i don't really know another way. Wishing it to get well and that we be okay.. pppffffttttt stay strong guys..

Yeah, blow this place up.

I like to think of the sentiment as muscle building. You workout to fatigue, then rest your muscles to get stronger. But you *need* to rest. Tinnitus and its adjacent auditory related conditions do not relent. There is no rest period.

Well, if I ever heal from this, then I guess I can say I've learned a lot and became stronger. That's only if it heals though. If not, then I'd rather never had to go through all this. There has to be a better day awaiting us.

Medical fact: stress makes you die sooner. Tinnitus causes catastrophic amounts of indominable stress. Therefore...

Prob not. ❤️

I tried two hearing aids, neither worked for me. I have the rare reverse slope which is the 1% of hearing loss, while they are made for the 99% high frequency loss. If you have high frequency loss and tinnitus they could help.

Thanks all! As I have reactive T, I guess this is out of the question for me.

@Juliane - if you truly have bad reactive T please continue to be careful. Don’t mean to scare you. I wish I listened but I think mentally I just could not endure.