Juliane

Often, but not always. Both my parents had cancer in 2019. They got an operation. No chemo. Chemo is usually the last resort these days. For those who are in life-threatening condition.

We can surely understand the sentiment when it was first said. Depending how bad someone has it ….

Thank you for your understanding. Tinnitus has definitely made me despair and wish for bad things. But lately it has made me feel guilty to do so. It is not easy.

No immediate difference? Did it come later?

I had a CT scan in July. It was very quiet and didn't affect T or H at all. I know it's a lot of radiation, but for me, it was the lesser of two evils, the other evil being the amount of noise that an MRI would make.

No, no difference at all, at least that I could directly correlate to the CT Scan.

I got one last year. It wasn't particularly noisy although there is some noise. It had no effects on my T.

There is a lot of controversy about the chemical they inject if they do a "contrast" CT

It’s not noisy. You can do it with or without the contrast.

Yeah, it seems to tear us down little by little. I have eye floaters, but I had them years back when my T was much more mild. I think I notice them more now because people mentioned them so when discussing T.

❤️

I've had IBS since I was 14. Psyllium husk (metamucil) is magical. If you have IBS-C, Magnesium Glycinate (Qunol Extra Strength is very affordable) is very helpful and easy on the stomach. Ask your doc about pelvic floor therapy. IBS and Pelvic Floor Dysfunction are closely related.

❤️ for me, no question.

Same

i live in a box now

I’m so sorry to hear this. Unreal. I tried this … I go outside to my own demise. I can’t do inside anymore. I’m Fd for sure

Long, hot showers.

I feel like I have exhausted almost all reasons

@Pinhead - that’s my last place of some peace.

<3

Back at you @Juliane x

I’m about 9.5 months since they acoustically assaulted me. How are you?

@MatthewR I am so sorry. I am struggling a lot atm

Yes. Agree. We also deserve to be at peace. Just peace. The other day I saw a homeless man sitting under a tree. Reading a book. He had a massive tent. Set up in a park. That can’t be easy, I might be naive in saying this… I felt he was much better off than me. Is that sad? Is that wrong? That’s what I feel like. No money is worth health.

Nothing wrong about thinking. That's all you do. Reflecting over life. We all do. Some more than others. Especially when we are going through the dark night of the soul, which these years are for me. Hope this dark journey ends very soon and will be replaced with light.

@SamRosemary ❤️

I don't mind floaters because I can just close my eyes and not see them

@Varda It is for sure a different hell than tinnitus but nonetheless a hell. And when the two are combined, I just want to give up since obviously something or someone does not want me to trive

Go to the hospital that is not good

I am so sorry!! Thinking of you.

Thank you. This started in recent days. Think it may be fear or sorrow.

❤️

Thinking of you

@crescentsky Yes. Basically useless. Told me everyone has floaters which obviously is a lie. And that nothing can be done

@4Grace I know :-( when I stay in I do feel a bit more at ease but also incredibly lonely. I love my boyfriend dearly and he listens to me but I cannot talk to my family about my problems. They all more or less ignore me at this stage.

I understand. I wish you better days.

Me too.

In my humble opinion. Please try to keep working. If you don’t you will have nothing to do but get up and stress about T. I do understand you wanting to leave. I have been home close to 2 years. I cannot work with this.

Yes. I agree with @4Grace. Not working made it worse.. for me at least. Are you able to take some time off instead if you need a break?

I almost quit in the first 6 months, but stayed on and talked to my manager. I told him I needed time to adjust to this horrid Tinnitus. He gave it to me.

@cyberspace Oh no! So sorry to hear that

@4Grace I am sorry :-( Do you think the shots may have caused all this?

@Juliane - I would be guessing. I know for me it was something else but maybe the shots caused some damage. Some people did claim to get T just after the shots but who knows. So complicated a condition. Yours seems to be directly related to your ears due to noise trauma.

@tpj Yes it is. A nasty one :-(

Massive hugs @Juliane. Feel better soon.

@tpj ❤️❤️

Dec 2019

I want so bad not to care about it.

Sending hugs.

In my case, I was unhappy and had issues long before hearing became a problem. Tinnitus/distortions just added to the long list of life problems lol.

@Verify_Checked What is happening to us?

I wish I knew. I had a full work up on my eyes. The guy said I had too perfect of vision that I “notice everything.” I 100% never had floaters before. Doctors give me the woman hypochondriac look and brush me off. Awful

Gosh I am sorry. They are so full of sh...

I responded to someone on the Susan Shore thread about how people just like vent on this forum and I said well yeah, it’s a SUPPORT forum. That’s what it’s for. You will get all colors of the emotions wheel here and that’s okay. It’s what it’s for. It’s why we’re here for each other.

@Juliane - I cannot imagine not having this place. Not one doctor knows anything about reactive T, H and N. Although sometimes I still feel like the only one,

Hang in there.

Thank you @snizzleberry

@Juliane - no judgment. I so understand. What ever you do I wish you the best always. You deserve it.

I hope the downtime will allow you to unwind so that your body can heal at a faster rate. Christina Applegate, who has MS and walks with a cane, said that when she went on vacation to Paris, she didn't need to use the cane as much as she expected.

I'm guessing that either the relaxation of being on holiday, or the distraction of novel stimuli, did something to her nervous system that enabled her legs to work better than usual. So maybe taking time off work and finding some relaxing things to do will help your ears and eyes.