nocticolor
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Gender:
Female
Location:
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nocticolor

Member, Female, from Germany

Just imagine how fucked up I’ll be if there’s gonna be a treatment for hearing loss and it turns out my T isn’t hearing loss related :D May 13, 2021 at 8:12 PM

    1. nocticolor
      nocticolor
      Just imagine how fucked up I’ll be if there’s gonna be a treatment for hearing loss and it turns out my T isn’t hearing loss related :D
      1. Tatsopa and kuromi like this.
      2. Tatsopa
        Tatsopa
        Honestly, THIS is why I try to stay away from every treatment bandwagon. Sometimes I even imagine me being the last one on earth with ringing ears.
        May 13, 2021 at 8:42 PM
      3. Tezcatlipoca
        Tezcatlipoca
        Chances are it is
        May 13, 2021 at 9:05 PM
    2. nocticolor
      nocticolor
      Why oh why does my brain insist on fucking me over.
      1. Bill Bauer, tracyNYC, Kriszti and 3 others like this.
    3. nocticolor
      nocticolor
      First time I ever heard cicadas was in Greece. Thought ‘Thank God we don’t have them at home’. Joke’s on me, now I have them in my head!
      1. Bill Bauer
        Bill Bauer
        I've had that exact experience with the cicadas in Hawaii! I also had to use masking sounds of cicadas.
        May 3, 2021
        Steph1710 and nocticolor like this.
      2. Steph1710
        Steph1710
        Haha! Yeah, funny cause I remember thinking a similar thing when I was in Greece.
        May 4, 2021
    4. nocticolor
      nocticolor
      The chirping birds noise is by far the worst lol hope it goes away again like it did last time
      1. Vassili likes this.
      2. Tezcatlipoca
        Tezcatlipoca
        same here, its been a week with one of my worst sounds, I really hope it goes away but im starting to lose hope
        May 1, 2021
        nocticolor likes this.
      3. Vassili
        Vassili
        Angry Birds!!! LOL
        May 1, 2021
        Steph1710 and nocticolor like this.
    5. nocticolor
      nocticolor
      I love rainy days. If the rain’s strong enough it pretty much masks all my noises and I get to experience a slither of silence.
      1. Tatsopa
        Tatsopa
        Yeah same here but, even with no rain, my tinnitus is much less intrusive on cloudy days. I guess there's some kind of pressure "thing" going on.
        Apr 30, 2021
        nocticolor and Steph1710 like this.
    6. nocticolor
      nocticolor
      Got woken up by a new annoying noise. Curiously enough, the static is almost entirely gone for the first half an hour or so after waking up.
      1. convolution
        convolution
        How are you doing, overall?
        Apr 30, 2021
        nocticolor likes this.
      2. nocticolor
        nocticolor
        @convolution If I’m busy or outside I’m doing pretty good, thankfully. My original T from March last year has generally been pretty bearable, other than a few bad days here and there. Now the static I’ve been experiencing since this February I find much more difficult to handle, especially if it gets high-pitched. Doing my best to stay positive though. What about you?
        Apr 30, 2021
        convolution likes this.
      3. convolution
        convolution
        @nocticolor during these days I am doing quite ok too, thanks for asking. I have a lot to do - teaching, studying for a course and writing a paper - so I do not think often about my tinnitus.
        Apr 30, 2021
        kuromi likes this.
    7. nocticolor
      nocticolor
      My static is so quiet today compared to yesterday, when I had a couple of mental breakdowns due to it. Wish I knew what makes it fluctuate..
      1. Sayeed
        Sayeed
        Enjoy the more calmer moments my friend
        Apr 29, 2021
        PortugalTheMan likes this.
      2. PortugalTheMan
        PortugalTheMan
        I wake up every day with this static, then the other sounds appear with the ambient noise that overlaps the static.
        Apr 29, 2021
    8. nocticolor
      nocticolor
      Today has been rough.
      1. kingsfan, Guywithapug and Steph1710 like this.
      2. twa
        twa
        So sorry, hang in there. Praying it gets better.
        Apr 27, 2021
        nocticolor likes this.
    9. nocticolor
      nocticolor
      Original T very low again, with earplugs in. If it was daytime I probably wouldn’t even hear it if I took earplugs out. Static unchanged.
      1. Bill Bauer and Steph1710 like this.
      2. Keith Handy
        Keith Handy
        Does yours compete with external sound?
        Apr 30, 2021
    10. nocticolor
      nocticolor
      Love fleeting T. My brain’s like, “Yo I dawg I heard you like hearing noises so I put another noise on top of all of those other noises!”
      1. Syb and Steph1710 like this.
    11. nocticolor
      nocticolor
      I’m definitely pro vaccines but I’m also scared of this particular vaccine making my T worse or giving me new noises. Ugh.
      1. starrynights, Lilah, Kriszti and 3 others like this.
      2. convolution
        convolution
        Yeah, me too. The problem is that in this forum we read only of people whose tinnitus got worse... but I bet that from a statistical point of view they are an unfortunate minority
        Apr 4, 2021
      3. asey20
        asey20
        My tinnitus did not get any worse from Pfizer. Imo the fear of getting COVID and that making your tinnitus worse should be greater than the vaccine.
        Apr 4, 2021
        Steph1710 likes this.
    12. nocticolor
      nocticolor
      Holy shit, my original noise is about 85% down right now. I know it’s not gonna last, but baffled that it can happen at all.
      1. twa
        twa
        Anything is possible. Wishing you continued health and healing.
        Apr 3, 2021
        nocticolor likes this.
      2. convolution
        convolution
        Fingers crossed for you!
        Apr 3, 2021
        nocticolor likes this.
      3. nocticolor
        nocticolor
        That’s so kind of you, thank you! I hope we’ll all get better with time.
        Apr 4, 2021
        Keith Handy likes this.
    13. nocticolor
      nocticolor
      Hopefully the fact that COVID can trigger tinnitus will result in more research towards viable treatments.
      1. Steph1710, Lucifer, wwtsai and 2 others like this.
    14. nocticolor
      nocticolor
      Been taking much more care of my ears and as a reward I’m now getting noises in my once noiseless ear. What a joke.
      1. Drachen
        Drachen
        Life's just a complete bitch sometimes. You can do whatever you can think to do and it hits you with curveballs regardless. With some luck this may just be a temporary occurrence.
        Mar 25, 2021
        nocticolor likes this.
      2. nocticolor
        nocticolor
        @Drachen I sure hope so! It’s so frustrating that I’ve been dealing with my original as well as I could so this really is a blow to me...
        Mar 26, 2021
        Drachen likes this.
    15. nocticolor
      nocticolor
      Looking at older pictures or reminiscing with friends can be hard at times because all I think is, “Wow, I didn’t have T back then.”
      1. LilSass, FGG and Steph1710 like this.
      2. convolution
        convolution
        The user @KMc24 wrote something very inspirational: "I would hold onto to memories of how I used to be, but I vowed not just get better, but better than before". This hit me quite strongly. I also would like to become better than before.
        Mar 21, 2021
    16. nocticolor
      nocticolor
      I miss only having noises in one ear, man.
      1. Steph1710 likes this.
      2. View previous comments...
      3. Steph1710
        Steph1710
        Same! Only used to be my left, but now it’s both.
        Mar 21, 2021
      4. nocticolor
        nocticolor
        @just1morething I’m definitely going to make an appointment with a TMJ specialist after I’m done with physical therapy. It’s so frustrating to not know the cause. Maybe it’s just hidden hearing loss but I literally have better heating than anyone around me so...
        Mar 21, 2021
        just1morething likes this.
      5. nocticolor
        nocticolor
        @Steph1710 For me it used to be my right ear, now I have the static head noise and fleeting T in my left. It really is the gift that keeps on giving!
        Mar 21, 2021
        Steph1710 likes this.
    17. nocticolor
      nocticolor
      In retrospect, 90% of my problems before the onset of my T have been mostly irrelevant, not that it makes this any better ¯\_(ツ)_/¯
      1. LilSass, BrOKeN_1 and Steph1710 like this.
      2. Bill Bauer
        Bill Bauer
        Have you experienced any fading?
        Mar 17, 2021
        nocticolor likes this.
      3. nocticolor
        nocticolor
        @Bill Bauer I’ve had some good days with the original noise in my right ear, although I’m not sure if that counts as fading. I know this doesn’t have to mean anything but it’s been pretty loud the past few days so I’m not feeling very optimistic lately :D
        Mar 20, 2021
    18. nocticolor
      nocticolor
      Love how fucking stupid the human brain is. Like bro, do you want me to take us both out or are you gonna calm down with the noises?
      1. roy1159, Bill Bauer, Kriszti and 2 others like this.
      2. just1morething
        just1morething
        Sorry you are doing bad. My noise is bad too. Mayo Rochester didn’t want to do anything with my TMJ but another surgeon in Illinois thinks my My left TMJ is bad enough to see him. Maybe you should look at having an MRI of your TMJ if you think its related to your noise.
        Mar 12, 2021
        nocticolor likes this.
      3. nocticolor
        nocticolor
        @just1morething It’s not all that bad, I’m honestly just being a little whiny because it’s that time of the month lol but I’m sorry to hear that you’re not doing great. I hope the surgeon in Illinois is able to help you! I’m trying to see if physical therapy will help but I’m planning to see a specialist for TMJ just to check!
        Mar 13, 2021
        just1morething likes this.
    19. nocticolor
      nocticolor
      T was so low yesterday I couldn't hear it in a quiet room with opened windows. Today my regular noise is back, and at it's regular volume...
      1. Ilias T
        Ilias T
        I think my left ear got some impacted wax. Fluctuates more. Smh.
        Mar 7, 2021
      2. kuromi
        kuromi
        The fact that you experienced a low level once means you have everything to play for in regards to the future. You will succeed and overcome this, take heart!
        Mar 7, 2021
        nocticolor, Steph1710 and Anniz like this.
      3. Bill Bauer
        Bill Bauer
        It never just turns off. You are on the right track, eventually you will get there.
        Mar 8, 2021
        nocticolor and kuromi like this.
    20. nocticolor
      nocticolor
      Need a shirt that says “my best friend is pregnant and all I get is random new T noises”. I’m sure someone out there could relate lmao
      1. Charburchar, aot and Anniz like this.
      2. Bill Bauer
        Bill Bauer
        Sounds like you are the lucky one.
        Mar 6, 2021
        nocticolor likes this.
      3. nocticolor
        nocticolor
        @Bill Bauer Hah :D Some days I feel that way, other times not so much. At least I can pester my best friend about protecting her kid's hearing in the future.
        Mar 7, 2021
    21. nocticolor
      nocticolor
      I usually prefer single player games anyway, but I miss the occasional multiplayer game. Giving up on headphones completely definitely sucks
      1. Steph1710 and Anniz like this.
      2. View previous comments...
      3. nocticolor
        nocticolor
        @Charburchar Ohh I need to give LoL a try some time. Just put 250 hours into Cyberpunk 2077 so now I’ve moved on to Baldur’s Gate 3 :D
        Mar 5, 2021
        kuromi, Charburchar and Anniz like this.
      4. Charburchar
        Charburchar
        Nice! I remember playing Baldur's gate on my friends computer in primary school - must have been 18 odd years ago! LoL is really difficult at first because everyone's so good. But super fun once you get the hang of it. I'm rather addicted..
        Mar 5, 2021
        nocticolor likes this.
      5. nocticolor
        nocticolor
        @Charburchar That’s neat! A friend recently got me into DnD so I thought I’d give Baldur’s Gate a try. Not like you can do much else in this pandemic so this is the best time to be gaming I guess ¯\_(ツ)_/¯ I might have to check out some Let’s Plays first so I don’t embarrass myself then :D
        Mar 6, 2021
        Charburchar likes this.
    22. nocticolor
      nocticolor
      Haha tinnitus goes EEEEEEEEEEE
    23. nocticolor
      nocticolor
      Happy one year tinnitus anniversary to me. I have to laugh at past me thinking I'd be lucky enough to have my tinnitus resolve :D
      1. View previous comments...
      2. Steph1710
        Steph1710
        Those are obviously the main ones, but London is home to many awesome smaller museums too. I could take you on a tour of the darker, quirky side of London, and we could go to all the old little pubs that still exist.
        Literally, southern Germany is the best. I've been to Stuttgard a few times, but only driving through. I usually take my van across. I can't tell you how jealous I am over where you live.
        Mar 5, 2021
        nocticolor likes this.
      3. nocticolor
        nocticolor
        @Steph1710 Yeah she’s my favorite historical figure, though I love history in general and pubs so your suggestions sound great to me!

        If you’re coming to Germany definitely let me know as well. I’m
        probably not the best guide but I know some nice spots :D
        Mar 5, 2021
      4. nocticolor
        nocticolor
        Not gonna lie, I’m not great at appreciating what I have here sometimes because I love big cities and Stuttgart is often called a “large village” but I do love our vineyards!
        Mar 5, 2021
    24. nocticolor
      nocticolor
      Really ties this entire shit show together!
      1. Steph1710, Ilias T and aot like this.
      2. just1morething
        just1morething
        I did get an auriculotemporal injection in my left jaw yesterday. Was worse early on this morning, good now, knock on wood. I did sleep on a new firm bed too last night. I will update in a couple days.
        Feb 28, 2021
        KWC and nocticolor like this.
      3. nocticolor
        nocticolor
        Have no idea where these new noises are coming from. I’m kinda hoping it’s just a spike because I think I might be getting sick, but noise in my right ear was usually a bearable tone that was relatively easy to mask and now it’s morphed into a very high pitched tone. Happy one year tinnitus anniversary to me I guess
        Feb 28, 2021
    25. nocticolor
      nocticolor
      Love the fact that in addition to the relatively new static I have new noises on top, in the ear that was perfectly fine.
      1. Ilias T and aot like this.
      2. Ilias T
        Ilias T
        I'm 2 weeks spike free. I went from beeing a broken piece of blood sack to someone that improves. It's hard to see the improvement but, who else is going to help. I changed my diet from a sugar bomb to a balanced calorie intake from actual foods, no more gaming to eliminate the extra adrenaline, showering only at evenings when things are calm. My only problem now is sleep. Try to make a change for better days
        Feb 27, 2021
        nocticolor likes this.
    26. LilSass
      LilSass
      Hi! Mine's just like yours. Let me know if you want to chat!
      1. nocticolor likes this.
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  • About

    Gender:
    Female
    Location:
    Germany
    Tinnitus Since:
    03/2020
    Cause of Tinnitus:
    Unknown