Sointu
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Sointu

Member, Female

Every time I feel like yay I am making progress my symptoms suddenly get worse and I get spike. Habituation feels impossible. Oct 18, 2022

    1. Sointu
      Sointu
      Every time I feel like yay I am making progress my symptoms suddenly get worse and I get spike. Habituation feels impossible.
      1. tracyNYC likes this.
    2. Sointu
      Sointu
      I feel like I can't take anymore tinnitus/hyperacusis spikes. It has been a spike after spike after spike for months.Really hard emotionally
    3. Sointu
      Sointu
      I got COVID after concussion. What next. My tinnitus is really weird at the moment and COVID has definitely made me more sensitive to sound
      1. NYCGuy likes this.
      2. Sointu
        Sointu
        Today I have experienced some ear pain, also COVID has triggered vertigo. I lost my sense of taste and smell almost completely two days ago and I just hope they return soon :(
        Oct 8, 2022
    4. Sointu
      Sointu
      Just when my last spike was showing some kind of signs of calming down(it took weeks) I get another one. Life with tinnitus....
    5. Sointu
      Sointu
      I hit my head on the edge of kitchen cabinet hard 3 days ago.I have felt a bit off and dizzy, I had a headache lasting for 2 days. T spiked.
      1. NYCGuy likes this.
      2. Sointu
        Sointu
        Went to doctor who told me I had a mild concussion.
        Sep 28, 2022
    6. Sointu
      Sointu
      Reactive tinnitus is worse and my ears are making weird seashell sounds and whistling sounds again.
      1. Wrfortiscue, KP26, JPGL and 1 other person like this.
    7. Sointu
      Sointu
      I had made so much progress before it I thought I could just try to live my life. But Nope. Thankfully my hyperacusis did not get worse
      1. Wrfortiscue, JPGL and NYCGuy like this.
      2. Wrfortiscue
        Wrfortiscue
        Yeah be careful that gets me every time
        Sep 14, 2022
        Sointu and Steph1710 like this.
    8. Sointu
      Sointu
      Now I have a sensation of clogged ear, I also have had muffled hearing after it and tinnitus spike that has lasted for weeks.
      1. JPGL and NYCGuy like this.
    9. Sointu
      Sointu
      I made a huge mistake going to friends party a month ago. I haven't gone to any events like that for a year. I thought earplugs would help
      1. JPGL, NYCGuy and Nadia231 like this.
    10. Sointu
      Sointu
      I have made progress with my hyperacusis after my long lasting setback.
      1. Leila
        Leila
        That's wonderful to hear, hopefully your hyperacusis will continue to improve!
        Aug 15, 2022
      2. Sointu
        Sointu
        Thanks, @Leila. Yes I really hope it does.
        Aug 16, 2022
        Leila likes this.
    11. Sointu
      Sointu
      Someone was listening to music in the car so loudly that the bass tortured my hyperacusis ears when I walked to my car from grocery store.
      1. Wrfortiscue and NYCGuy like this.
      2. View previous comments...
      3. DimLeb
        DimLeb
        I used to be that guy too and I am a music producer. If you told me that there were such disorders, I would think that you're crazy or just "too easily annoyed" by normal things. Tragically ironic how things can change. I got no hyperacusis tho, only some TTTS so I can't really speak.
        Aug 15, 2022
        Sointu and NYCGuy like this.
      4. DimLeb
        DimLeb
        @Sointu Funny thing is most people never get ear problems, no matter how much torturous blasting they do. Personally I have done it with headphones, live gigs, car etc, but it never affected me tbh. My T came about with minor balance issues, so I believe noise isn't always the reason. That doesn't mean that people shouldn't be careful with noise and there must not be more regulations for noise pollution!
        Aug 15, 2022
        Sointu, Gabriel5050 and NYCGuy like this.
      5. Sointu
        Sointu
        Aug 16, 2022
    12. TheCapybara
      TheCapybara
      Hi Sointu, I hope you're doing better lately. Have you had any improvements in distortions and the typical seashell/whistling/metallic sounds?
      1. Sointu likes this.
      2. Mal25
        Mal25
        I haven't had much I go up then come back crashing down . Any suggestions?
        Aug 4, 2022
      3. TheCapybara
        TheCapybara
        I cant say I've had much or any improvement in a month yet unfortunately. But hoping time will make it better
        Aug 4, 2022
      4. Sointu
        Sointu
        I am doing a bit better but I get setbacks easily if there is any louder sound. Yes, there have been a bit of improvements with my distortions.
        Aug 8, 2022
    13. Sointu
      Sointu
      My symptoms were improving until I experienced another setback again. The burning pain in my ear feels awful. I am so tired of this :(
      1. NYCGuy and Wrfortiscue like this.
    14. Sointu
      Sointu
      This can be my new baseline instead of just my symptoms spiking temporarily. I have not experienced improvement in 2,5 weeks.
      1. NYCGuy likes this.
      2. Alycat
        Alycat
        I just joined this board and Im wondering if you tapered off benzos and how that affected your tinnitus? Im struggling with that now.
        Jul 1, 2022
      3. Sointu
        Sointu
        @Alycat I got acoustic trauma while tapering benzos. I decided to take a break in tapering while my symptoms (hyperacusis especially) were really bad. And then I continued tapering few months ago but have took another break after I got setback. It has been hard, I must say.
        Jul 2, 2022
        Alycat likes this.
      4. Sointu
        Sointu
        I am not sure how benzo tapering has affected my tinnitus. I haven´t recovered from my tinnitus after my acoustic trauma. But I am pretty certain benzo taper made me more vulnerable to get worse hyperacusis and tinnitus because of acoustic trauma.
        Jul 2, 2022
    15. Sointu
      Sointu
      Can in-ear-maskers make feedback sounds that are harmful for (hyperacusis) ears when they are programmed and connected to a computer?
      1. NYCGuy likes this.
    16. Sointu
      Sointu
      After my setback: New reactive hissing/sizzling ear piercing noise in my better ear combined with burning and needle sensations.
      1. NYCGuy likes this.
      2. View previous comments...
      3. Sointu
        Sointu
        @Jerad Yes. It is so weird. Do you have similar symptoms?
        Jun 10, 2022
      4. Sointu
        Sointu
        Also external noises cause this same needle sensation in my ear. But also my tinnitus does it. When I use earplugs, this type of tinnitus drives me crazy.
        Jun 10, 2022
      5. Jerad
        Jerad
        @Sointu i didn’t see your message before. I have this type of tinnitus too. It causes physical sensations of pain I’m guessing due to the frequency of the t. How is yours doing now?
        Aug 26, 2022
    17. Sointu
      Sointu
      My tolerance of sound dropped. My own voice burns in my ear and computer fan hurts. This is my tolerance at the moment. I can't believe it
    18. Sointu
      Sointu
      How to emotionally deal with setback that triggered pain hyperacusis symptoms again? The constant pain was gone for months.
      1. Steph1710, NYCGuy and Wrfortiscue like this.
      2. Wrfortiscue
        Wrfortiscue
        Unfortunately this journey has many setbacks.
        May 29, 2022
        ZFire, Steph1710 and Sointu like this.
    19. Sointu
      Sointu
      I can't sleep because I experience burning sensation in my ear and ear piercing hissing sound. I can't mask it because masking hurts.
      1. NYCGuy and JPGL like this.
      2. View previous comments...
      3. aura
        aura
        The sleep is still acceptable though. I go to bed at 3-4 AM. But at least i m getting a few hours of sleep.
        Reactivity sucks.
        May 28, 2022
        Sointu likes this.
      4. blamingeverything
        blamingeverything
        What meds have you tried for sleep? Trazodone?
        May 29, 2022
      5. Sointu
        Sointu
        I have tried similar stuff like mirtazapine in the past and I mostly get RLS symptoms from drugs like that. Not worth it. But thanks.
        May 29, 2022
    20. Sointu
    21. Sointu
      Sointu
      I think I will stop trying in-ear-maskers for now. Symptoms spiking too much.
      1. View previous comments...
      2. Sointu
        Sointu
        I regret trying In-Ear-Maskers. I will not ever put those maskers anywhere near my ears again. This is intolerable at the moment. I just hope this setback resolves.
        May 24, 2022
      3. CC_16
        CC_16
        What prompted you to try the in ear mask? Sorry it caused the spike!
        May 27, 2022
      4. Sointu
        Sointu
        Therapist specialized in hearing issues recommended them at first. I hoped they would help with tinnitus and hyperacusis.
        May 27, 2022
    22. Sointu
      Sointu
      Nice. I woke up to really high pitched tinnitus in my right ear that usually is silent. Yesterday evening the same thing.
      1. View previous comments...
      2. Sointu
        Sointu
        I am feeling suicidal thoughts too. I can cope better if I can sleep and mask my tinnitus and sounds don't hurt.
        May 28, 2022
      3. Sointu
        Sointu
        I try to concentrate on things I can do and what I am grateful of instead of what I can't do and what is missing. It has helped.
        May 28, 2022
      4. Sointu
        Sointu
        But during setbacks and spiked hyperacusis or tinnitus I sometimes have major issues to cope and I have suicidal thoughts.
        May 28, 2022
    23. Sointu
      Sointu
      I got in-ear maskers. Like I thought, the white noise just makes my reactive tinnitus climb on top of the masking sound.
      1. Wrfortiscue and Marshall like this.
      2. View previous comments...
      3. Wrfortiscue
        Wrfortiscue
        You need to find a sound that works. White noise does that and apparently I think pink is doing that for me too. Keep at it
        May 23, 2022
      4. Sointu
        Sointu
        My tinnitus climbs on top of pink noise too. It is more gentle for my hyperacusis ears though.
        May 23, 2022
        JPGL and Wrfortiscue like this.
      5. Sointu
        Sointu
        Unfortunately there aren't a lot of masking sound options available in these cheaper ear-maskers. I have to pay a lot of more to get better ones with more sound options. I have a possibility to try and use these for free. Unfortunately white noise hasn't ever worked for me during my hyperacusis and tinnitus.
        May 23, 2022
        JPGL and Wrfortiscue like this.
    24. Sointu
      Sointu
      I am constantly losing my train of thought and have constant difficulties to concentrate because of tinnitus. I hate what T did to me.
      1. View previous comments...
      2. CC_16
        CC_16
        Can you work? Or are you on fmla? I am working but I constantly check my ears
        May 28, 2022
      3. Sointu
        Sointu
        I was studying before I got acoustic trauma. I am not able to do it at the moment. I have been thinking about restarting my studying if these hyperacusis symptoms would get more tolerable
        May 28, 2022
      4. Sointu
        Sointu
        I also have been trying to learn to concentrate with tinnitus for months. Still major issues with it too.
        May 28, 2022
    25. Sointu
      Sointu
      My sound distortions: Seashell sound, whistling sounds and metallic sounds. My tinnitus is also reactive.
      1. Guywithapug and Wrfortiscue like this.
    26. Sointu
      Sointu
      Going through grieving process and not being able to hear silence and ears ringing and roaring all the time is horrible. No peace and quiet
      1. CC_16, NYCGuy, tracyNYC and 1 other person like this.
    27. Sointu
      Sointu
      My old dear friend, my dog, passed away two days ago. It helped me to cope with tinnitus and stay positive. I am really sad.
      1. View previous comments...
      2. Sointu
        Sointu
        I have to use earplugs outside because of my hyperacusis at the moment. I am not sure would I hear it without them. Now my right ear has started to ring and it has rang for days.
        May 26, 2022
      3. CC_16
        CC_16
        Is your t constant or on and off?
        May 26, 2022
      4. Sointu
        Sointu
        I think it more constant but the volume changes. Sometimes it is louder and sometimes quieter. How is your T?
        May 26, 2022
    28. Sointu
      Sointu
      I am planning to try In-Ear Maskers soon. I don´t have high hopes these work for me though.
      1. Michael Leigh
        Michael Leigh
        If you think negatively about the maskers not helping you then they won't. You should also be having counselling for best results. This treatment is not a quick fix, it takes time.
        Mar 7, 2022
      2. Sointu
        Sointu
        I used to have really bad hyperacusis and I was not even capable of masking my tinnitus some time ago because of hyperacusis. My tinnitus is also reactive. That is why I am not sure will maskers work for me.
        Mar 9, 2022
      3. Sointu
        Sointu
        I still have hyperacusis. I also feel like my tinnitus is not easily masked because there are multiple tones. Of course I really hope the maskers would help me.
        Mar 9, 2022
    29. Sointu
      Sointu
      I got acoustic trauma while tapering benzos. It has been a nightmare. I don´t know will my tinnitus get even worse after stopping benzos.
      1. NYCGuy likes this.
      2. View previous comments...
      3. Sointu
        Sointu
        I also have noticed my tinnitus is a bit quieter after taking a benzo but I think they aren't worth it when thinking of adverse effects/benefits.
        May 28, 2022
      4. CC_16
        CC_16
        I saw your original post, how loud were the music when you were at the concert? How long were you there?
        May 29, 2022
        Sointu likes this.
      5. Sointu
        Sointu
        It was a rock concert. I dunno the decibels. I went too near the stage/speakers without earplugs, it triggered pain. Spent there only minutes until I decided to leave further away. At the festival area I spent hours, maybe it played a part too but I did not go anywhere near speakers but was standing far away. How did you get your T?
        May 29, 2022
    30. Sointu
      Sointu
      My T.Hissing sound. Quiet jet fan noise that reminds me of a mosquito sometimes.And high pitch crickets/electrical noise.Sometimes whistle
      1. View previous comments...
      2. Wrfortiscue
        Wrfortiscue
        @JPGL yeah but my ears were already going down the tube
        Oct 16, 2021
        JPGL likes this.
      3. Sointu
        Sointu
        I have felt too scared to take the covid vaccine because of these worsening symptoms I am experiencing at the moment. I am sorry you got harm.
        Oct 16, 2021
      4. Maria Francesca
        Maria Francesca
        I have a theory about the benzo hissing/electrical tinnitus. I have had it when tapering. Some random days I still get that sound, I measured my blood pressure in that days, it is above my baseline values. The theory is that that sound is caused by withdrawal vasoconstriction in the ears. It improves a bit with ginger tea, two-three bags in a cup. If you try this I am curious to know if it also works for you.
        Oct 30, 2021
        Sointu likes this.
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  • About

    Gender:
    Female
    Tinnitus Since:
    08/2021
    Cause of Tinnitus:
    Acoustic trauma (also maybe med withdrawal)