cyberspace

Great. Keep chugging along.

That was me. No actually I have quiet Kawasaki motorcycles. I’m refurbishing one and started it today.

I know.

@tpj so true. It's like the ambulance, firetrucks, everything waiting for the moment you open your door to corner and assault you.

Same

I used to sit in the shower with my, thankfully, removable shower head and ensure the water hit either me or the wall at a quieter angle. Now I have a bath, which is a game changer.

Every time I get fleeting T I cringe. Hope it goes down.

@Tryn2BHopeful It seems to have gone down but the background tone from it is still there

I’ve been having more and more frequent fleeting T, doesn’t seem like a good sign

Doctors have helped me when in need of acute treatment, surgery or antibiotics. Nothing else. They are not miracle workers or healers.

I agree Doctor’s have helped me. I needed help and they said I was crazy and now have irreversibly damaged me. I need them to help me with this and they want to drug me more or shove me to the next. They are just as flawed as everyone else.

@cyberspace - I feel as if sometimes we go just for hope but know that most of the time there is nothing they can do.

Not for everyone. Most people I know seem to be very grateful and happy. If it was not for chronic illness we would be just like most other people.

@BB23 there’s good things in life that make it worth living for, but that almost makes it worse, because those good things in life are gatekept from us by the same things making us suffer

We must be cursed

In fear of having to take other drugs...

@BB23 that’s the dilemma I’m in right now too, my POTS from long covid disabled me, but drugs to try and save my functionality and life could worsen T permanently

@cyberspace what you said above. 100 percent. Had my first night of not sleeping in a long time. I’m not at peace. May need to take a benzo for a nights rest.

My stubborn attitude towards meds is what is going to be the death of me. I feel that meds help you for the short term but screw you in the long term. I know many saved by meds.

@4Grace for tinnitus there isn’t anything really worthwhile on the market

For POTS there’s at least ivabradine and midodrine that I could try

@cyberspace - so sorry for all your suffering. I really am. T would have been more than enough. Anytime I get something in addition to T I fall apart.

@4Grace honestly I’d be okay with just having T if my POTS would go away

Because they are idiots with no inner life and therefore scared of silence

Pessimism and Whatifs seems to be your biggest roadblocks at times I believe. Habituation almost demands a more positive outlook. I know that seems impossible but it's really kind of all we got at the moment. This is an ugly truth.

I don't see it happening many months later. Plus you already had a COVID spike and it already subsided. You're probably good.

I couldnt deal with all that without T let alone with it.

@Anomalous Take a look at cyberspace's profile and scroll through a few pages. He spikes very easily. Many of his spikes are from sounds that are far less than 75 dB TV. He also mentioned that he gets spikes from iPhone audio at the lowest volume, but not from showers.

I'm not trying to scare him, or be a doom and gloomer. But with how unstable his T currently is, I think he should be cautious.

@Anomalous As for my artifical audio comment, I had a terrible worsening from listening to TV in the 65-75 dB range, and that worsening never fully healed. And there are other people on this site who have worsened from less. Artificial audio sensitivity is a real thing (especially to phone/laptop speakers). Check out some threads about this stuff.

I wouldn't do it, myself.

@Nadia231 In the middle of the night could be brain zaps/exploding head syndrome, Ive been having it

@cyberspace it's literally a new tone that appears in the night, it wakes me up and stays for a few minutes sometimes hours. Some of those tones have stayed with me, permanently.

I have a loud hissing sound that starts at night and lasts all day until bedtime.It tapers a little in the evening, but the next day it will be very little noise. I have been experiencing this cycle for years. Occasionally, I get one or two good days with very little noise during the week.its crazy.

:(

I have experienced this many times and I hate it. I will doze off for a second and then wake up to listen if there is any hissing sound that gradually gets louder by the second. At that point, I know I'm going to have a terrible night. I developed insomnia because I was afraid to fall asleep.

Hmm difficult, personally i put earplugs in my ears when at home sometimes. But if that car is there regularly, maybe it be good to try to check out, and explain about your t. There are no black or white answers i guess.. it's difficult, personally i'd just start with hearing protection

@L along the way I have absolutely no idea which car it is

I'd personally give it some time, but if the problem persists, i'd be checking around the area, maybe ask some people around.. find a way to find out, if it is a real bugger. Other than that, i personally would be more of the type to just wear hearing aides, and not get involved too much if not nessesary

Pfft.. sorry and same here.. i don't wanna be egocentrical and always come back to me, but yeah well.. it's experience that can be shared. Lived an unhealthy lifestyle from 10 years of smoking (a lot). My lungs feel bad, and there is the t.. my body feels just so uncomfortable :(.. hopefully it may heal with time

How is it now, @cyberspace?

@Joshua Macleod seems to be down a bit

@cyberspace
To reassure you, I experienced spikes 4-5 times a week for eight years, but they always decrease. It's your nerve sending signal once it calms down, and so will your T. Lay off the salt. It will make a difference and work on your stress,sleep and anxiety, All will cause spikes.

:(