Tryn2BHopeful

Tryn2BHopeful

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  • W
    Interesting that the audiologist suggested white noise. I would have thought that was more important for tinnitus caused by acoustic trauma. Did the audiologist mention anything significant regarding the fact that your cause was medication?
    View previous comments…
    4Grace
    I think going to all the different doctors gives us hope and something to look forward to. Makes us feel, at the very least, that we are being proactive in attempting to find anything that may help. Even if just a better understanding of our specific condition. Same garbage place after place is correct. We have to keep trying until we make peace with this beast.
    Tryn2BHopeful
    its a one size fits all approach...
    4Grace
    Or more like a one size fits none :)
    Tryn2BHopeful
    When do I wake up from this!?!.....
    Marina Moon
    Literally me every single day. Hang in there!
    4Grace
    So many times I hoped this was nothing but a bad nightmare. You are so very kind and really do live up to your user name. You always sound hopeful. I truly think you can beat this based on all your posts. Today you may feel tired, but that's just today. As you mentioned everyone of us is on our joinery.
    Tryn2BHopeful
    Another audiologist appointment today... Hopefully this one goes better than the last.
    View previous comments…
    kingsfan
    jimvee
    That sounds disappointing. Was there any specific treatment that you were hoping to get? And do you have other major appointments in the coming times?
    Tryn2BHopeful
    @jimvee I honestly dont know what I was expecting, a game plan, an idea of how to manage this monster in my head. TRT? CBT? Some confirmation on if I have damaged the actual auditory system since this seems to be med induced.
    Tryn2BHopeful
    Somedays I still wake up in disbelief as to what has happened. I need to say goodbye to what was, and try to live with what is.
    View previous comments…
    Tryn2BHopeful
    Juliane
    I do this every day. It's like living in a dream or involuntarily being a character in a David Lynch movie. Or a parallel universe. I guess we all are still traumatized and in shock by all this.
    Tryn2BHopeful
    @Juliane I suppose at some point I will be like the woman I work with. I just won't remember it being another way. Atm however how, when and what happened are very fresh in my memory. It just hurts in a way I never expected.
    4Grace
    Now that you are coming off of Mirtazapine. Do you think the 7.5 helped you cope a little better?
    Tryn2BHopeful
    I think it helped me sleep better in the beginning. I am not sure if the idea of having some sort of control or the actual medication made it seem like I was able to cope better. The first few weeks I was a wreck. I was mad, upset, depressed. I still have my days but they are not as many. Generally I am just annoyed at this point.
    Tryn2BHopeful
    Generally speaking I think it got me out of a potentially horrible place. If there had been a button to just end it I might of. I now realize that was pretty premature, but I was already in a bad place from all the shit I had going on prior. T makes that all seem pretty trivial now.
    4Grace
    That's what's holding me. Mine is different. Food drink everything
    Tryn2BHopeful
    God help me if this thing gets worse... ugh... Knock, Knock, whos there, T, T who.... TEEEEEEEEEEEEEEEEEEEEEEEEEEE!
    4Grace
    I so understand the emotions behind this post.
    Tryn2BHopeful
    Met someone at work today who has had T so long she doesn't remember not having it. I have talked to them so many times and never knew!
    View previous comments…
    Tryn2BHopeful
    @WCJohn ah yes... the walkman... I am gonna guess his was noise induced...
    4Grace
    @Tryn2BHopeful - she said it was going to take some time. I do think it's possible. I dream of a day that now seems impossible. Imagine it's there and does not bother you much. I can see it,… but not really…. I can see it …. but not really, .. I can see it, but not really,… I can see it!
    Tryn2BHopeful
    @4Grace We gotta have confidence. We are gonna get there. These beautiful pictures of our families are all the motivation we need.
    Tryn2BHopeful
    Another appointment tomorrow at a audiologist that is supposed to "specialize in tinnitus". We shall see.
    View previous comments…
    Ben Winders
    send that money to a charity instead ... or to tinnitus research. better use for the moneyz
    Tryn2BHopeful
    @Ben Winders This will likely be my last attempt. I dont like the the idea of sitting around waiting for a miracle.. but I might have to. I know that TRT and CBT wont fix my problem, but maybe they could help me atleast cope with it. World isn't stopping just because I have T so I gotta do something.
    Ben Winders
    Best of luck.
    4Grace
    I am assuming you took Mirt for sleep or a bit of anxiety? Any reason for coming off? Staying on these meds can be physiologically tough for many people. Me being one. I remember feeling better but at the same time being bothered for being on the meds.
    View previous comments…
    4Grace
    I had more good days when the level was lower. When I try to live a little it gets worse. I often apologize when I am negative because I feel bad posting negative comments. The truth is I am just struggling a little too much. Sorry for leaning more than I am supporting. Pure tone plus loud hiss. When I eat it can spike to x 30. Honest. For days. I try to eat once a day.
    4Grace
    Everyone please do not take my negative comments as something that may happen to you. You should not be discouraged by them. Unfortunately, I think I am in that small percentage. I need to rest physically and emotionally. I have not been able. :( talking is sadly my only refuge.
    SarahMLFlemmer
    @4Grace no need for apologies! That's what we're all here for! It gives me a boost of confidence to be able to encourage others (helps me realize I'll be okay too) and I think it does the same for a bad day for support. People want to encourage!
    Tryn2BHopeful
    The last 8 months I have either been in physical pain, or mental anguish. I keep trying because I have no choice. I am tired.
    View previous comments…
    Tryn2BHopeful
    @WCJohn I certainly hope that better days are to come. 7 months seems like such a long time, I guess I need to learn some patience.
    W
    @Tryn2BHopeful You are correct, it is a long time. I too need to learn patience. I still the mark the 17th of every month, last day I took a pill. Maybe I'll try to skip August.
    Utdmad89
    Well I'm 10 months in to my worsening on the 23rd and it's still awful. I guess I'm screwed. Worst is the optimism fof Doc Shore's device has dwindled with recent comments on the thread about it being placebo based. Justbthe thought this is for life and could get worse os soul destroying.
    Tryn2BHopeful
    Need to be more positive...I wish I knew if things were better, worse or the same. I wish I could just be happy again. Its hard to keep tryn
    Tryn2BHopeful
    Its gonna be one of those days.... ugh... Mr. T is angry today.
    Juliane
    Sorry to hear!
    Tryn2BHopeful
    I shouldn't complain, I know others have it worse than I do here. Seems like some of the struggles are the same no matter what.
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