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Also, does anyone used a Tinnitus Clinic and if so, what were the therapies and did they work at all? Mine is so bad right now that I need to try something : (

Does anyone else's tinnitus get really bad when they are ill? Just did a week of the flu and my head is still screaming - yikes!

Hello and welcome to the club that nobody wants to be a member of. I have been part of it for over 33 years, so I know quite a bit. I saw many hopeful signs in what you shared. First, you wear earplugs at concerts. That should reduce your sound exposure by at least 20 decibels, bringing it...

With all due respect, you're mostly wrong. You're right, the FDA doesn't regulate who a company can raise money from, only how the device is marketed. So, private fundraising from accredited investors is fine, but public crowdfunding that promotes or pre-sells an unapproved device would likely...

If you do try it, let us know how it goes. I’ve been taking Liposomal Glutathione, which is said to be the compound that makes NAC effective for hearing loss. I’ve found that, in this form, it doesn’t seem to have a negative effect on my tinnitus.

I’m new here and just wanted to express my deepest sympathy for everyone suffering from tinnitus. Mine started nearly ten years ago for idiopathic reasons, as I don’t have much measurable hearing loss. My ENT mentioned there could be hidden hearing loss that can’t be picked up on routine tests...

I use noise-cancelling headphones on flights, and they work quite well at reducing airplane cabin noise, which is a fairly low-frequency sound.

Hi everyone, I’ve been a lurker here for a few months, but I’m posting now. (Sorry, this is a long one.) I’m a 31-year-old woman, and I first noticed around January or February that one of my in-ear headphones was slightly quieter than the other. I assumed it was just the headphones acting up...

I’ve gotten worse after 10 years of diligently wearing NRR 33 earplugs in environments above 75-80 dB.

I was so tired of all the doctors saying there was nothing that could be done. I needed to know if something was clogged. Two days ago, I went to the emergency room because the pulsing sound was terrible. They ended up giving me a scan from my head down to the bottom of my neck. I figured, I’m...

With all due respect, and just to clarify, the FDA doesn’t control private fundraising or investment. They only regulate the marketing and sale of unapproved devices. So, a company can accept funding from investors before approval; it’s only public promotion or selling that’s restricted. It’s...

I developed unilateral tinnitus in 2024 for no apparent reason. My hearing is excellent, and the ENT gave me a clean bill of health. A few weeks later, the other ear became affected, and in the following days and weeks, I developed middle ear myoclonus (ear rumbling and buzzing), teeth...

The burning sensation disappears after a few hours. Other than that, I do not have any positive news to report yet. I think that after 50 years of tinnitus, I will have to be very patient and continue with the treatment I am giving myself. There is still a lot that needs to be fixed. @EricL...

Update 8: I just woke up from a nap or two, and now I hear an echo in my own voice, and sounds feel blocked. Is this normal after a steroid shot?

Can someone explain the paper? I am not a native English speaker.

i got stockholm syndrome with ear plugs

From the paper: It seems we should discount the 4th non-responder, then. So, two out of three had clinically relevant improvements after one year. That’s good news.

There is no safe medicine for musical hallucinations or musical ear syndrome. I have visited ear specialists, ENTs, and neurologists. They do not understand the condition and cannot even experiment with what medicines might work. Psychiatrists often prescribe antipsychotics, which come with...

Are there any mild side effects you noticed besides a burning sensation that lasted for a while?

The volume of the ringing has gone down. The fluctuations still occur, but the peaks do not seem as loud as before. There have even been moments when the ringing was either gone or completely masked. At this point, the real victory is the temporary relief. I have had tinnitus for years, and I...

It’s been five months, and I hope this is the peak of my musical hallucinations. They’ve become louder when the room is quiet. I even hear them when I row on the river, and they seem to come from the hills. I can cover the sound when I drive with the radio on. Recently, my left ear has started...

had like 4-5 weeks that i "didnt stress out" about sounds making my TT worse. Now i for some reason get stressed out and freaking out all over again over sounds that it might have damage my tinnitus (like the incident under) or when i took a walk today and some hunter fired a rifle when 10-15...

@AnnieMac, I developed tinnitus after receiving a COVID vaccination. May I ask how long it took for you to notice a significant improvement? Mine started two years ago, and although it’s better than it was in the beginning, it’s still quite troublesome for me.

A good reason why they should probably respond to those who do inquire. It is definitely a high-risk investment.

Give yourself time to habituate. I’ve had tinnitus since 1989, twenty-four hours a day, seven days a week. Thankfully, it was mild for the most part until June 13, 2023, when out of the blue I developed reactive typewriter tinnitus in my left ear, along with a low buzz to keep my long-term...

This is part of my journal that I have been keeping since August 2025. October 25, 2025 I started using a combination of DMSO2 and organic cayenne pepper powder (capsicum) today. I mix the drops with the powder to form a paste and apply it liberally in, around, and behind both ears. I...

death is tempting but so hard to achieve

Thank you for your kind words, love it! I am doubtful, though, on the "build it and they will come" quote. Maybe I misunderstand what you're saying, but the HUGE challenge we face is reaching a) as many people as possible, which takes major marketing efforts, and b) reaching the right people...

Duh… I thought the Bionic Lab Institute of Australia, in Adelaide, I think, had already taken care of that. There’s a lengthy thread about it here. Is there some kind of “Chinese wall” between the various researchers or what? FYI...

My left ear static is back. Annoying as hell. At least it doesn’t hurt accept when I blow air up my left Eustachian tube with my EarPopper.

The minimum investment is $50k, I think. It’s not something the average tinnitus patient could invest in, and there’s no guarantee it will show positive results in another trial.

Thank you, @AnnieMac, for coming back to share your recovery. It adds to the anecdotal database that forms the functional strength of this forum, giving hope to those who have not yet recovered.

Hi everyone, I am a 25-year-old woman and very new to tinnitus. It has been a little over a month since this started. I am devastated and looking for people who understand, because those around me do not. I have had two hearing tests this month, both normal. I have gone to many concerts, more...

Hi @emmie, Your post describes me perfectly. I’ve had pulsatile tinnitus since August this year, and I’m not coping well. I’m on antidepressants and sleeping medication, but I feel sick to my stomach, can’t eat, and can’t sleep. I’m waiting for my MRI and MRA results next week. I’m praying they...

How is that? Doesn’t every company out there, even medical ones like the Hough Ear Institute, ask for donations? Even the University of Michigan itself keeps sending me emails asking for donations after I gave just 10 euros on the page they had for Susan Shore.

Dear @ZFire, It’s Saturday night here. I’m in bed, lying next to my wife. The boys are downstairs, gaming or doing whatever they do. We had pizza tonight—a big treat here, though not as big a treat as seeing that you’ve checked in. I’m not in the USA. I’ll leave that to you, bro. I see things...

I am just bitter at this point. Bitter and numb.

What’s your protocol? Are you putting DMSO in your ear?

Update 7: Since I took the steroid shot 10 days after it started, which was two days ago, I’m beginning to notice some improvement in my hearing. I can now hear my own voice normally, and the toilet flush sounds clear without any distortion. I think that’s an accomplishment.

I wonder if NAC can help with severe hearing loss like mine. I had a steroid shot in my eardrum two days ago, and it was incredibly painful. I don’t want to get a cochlear implant because it’s expensive, and I don’t want to lose my natural hearing. Most people probably wouldn’t understand why I...

Interestingly, I’ve heard people say their tinnitus gets worse for days after a steroid shot, but during the injection it becomes loud only temporarily and then calms down within seconds.

Hah! I wish I did know that initial donor, I'll work on that... And that's awesome. I love hearing it. There's a famous movie line here in the states..."If you build it, he will come." I believe that the existence of an endowment could help secure its funding, and it also provides a convenient...

Do you mean they hadn't contacted you to start the verification process?

Eight-year-olds, dude!

It becomes clear that we need an objective tinnitus test to measure its existence and loudness. As long as we do not have that, it will remain too difficult, if not impossible, for anyone to develop a treatment that can reliably pass clinical trials. I had hoped the Shore device would work and...

Has anyone had Auricle get back to them regarding investing? We did not receive a response. We would meet the criteria to invest.

Did you experience any withdrawal from it? There’s a story on Reddit about Tofisopam withdrawal causing tinnitus.

Before Trump's election in 2016, Sir David Attenborough quipped, "We could shoot him," in an interview about how to address a potential Trump presidency, adding, "It's not a bad idea" before chuckling. This is a person who thinks that he is better than Trump and his supporters. People have, in...

Today is a good day, my tinnitus is probably a 2 out of 10. If it were always like this, I’d consider myself cured. But it’s frustrating that days like this are so rare. It’s unbelievable that my brain is capable of giving me days like this, yet can’t make them happen more often, or all the...

I’m so glad! Your story gives me a lot of hope that mine will also resolve. I’m getting close now. It has reduced dramatically over the last three months, and I feel like I’m in the final stretch. Stories like yours remind me that recovery is possible.

Hi Ernie, I dropped off because my tinnitus got much better, just as everyone had said it would, although it took time and a lot of work. I was even hospitalized for severe depression. I also stopped posting because I didn’t want to get caught up in talking about it all the time, which I now...

ur not real person imo

Sometimes the truth comes out. There’s the case of Kim Philby, who trained the fledgling U.S. counter-espionage agency, the CIA, in the 1940s and 1950s. Incredible but true. He spent his golden years not in England but in Moscow, along with McLean from the British Ministry of Defense and Burgess...

I fired up an old account to reply to this. It sounds like you’re also suffering from depression and anxiety. Have you spoken to a mental health professional? Tinnitus activates our inner alarm system and can greatly increase anxiety, creating a feedback loop of distress. The sudden loss of...

I had very faint tinnitus since childhood, and I’ve returned to that baseline. It’s barely noticeable in a completely silent room. To be honest, it might as well not exist at this point, as it makes no difference to me.

starting a clomipramine who gives a fuck after this point. first i need to taper my clonazepam my psych already agreed to give me clomipramine. and i bet i know it will fuck my tinnitus and visual snow even more since i am the unluckiest piece of shit in the entire planet

How are your ears now? I remember you were pretty severe. I hope you’ve been getting at least a little better! Do you play without sound?