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I know I’m finding it very distressing, and I’m not sleeping. I’m autistic, so that doesn’t help with the sensory side of things. I just want it to settle back to baseline, and then I’ll be happy and able to accept it.

Update 3: I just woke up, and my hearing loss has gotten worse. I can barely hear my own voice right now.

I was part of a clinical study at the San Francisco VA. Before surgery, I underwent several pre-surgical evaluations, including hearing tests, cognitive assessments, and an fMRI. I had DBS implantation surgery on June 26, 2016, which involved placing a stimulator in my chest and two brain...

Today i was outside in the "factory" where i work and i needed to get past someone that was using an angle grinder. Was like 1 metre away from him when he started to cut thru a big pipe. Very uncomfortable but had mine SNR 35 DB moldex earplugs so i think i will be safe.

Let’s say that when I have a good day, I start thinking the next one won’t be as good. If I have a bad day, I never know when a good one will return. Yesterday, for example, was actually a pretty good day. Today, not so much. As always, I notice that sleep really messes things up. Last night I...

I’m so sorry to hear that. This is such a difficult condition. This likely isn’t new damage, though. Your system is still hypersensitive and will be for a while. Seventy decibels is still a safe sound level, but your ears are re-learning how to process sound and will tend to overreact. It can...

The eligibility criteria for the Phase 2 trial were a TFI score of 17 or higher and a tinnitus duration of at least three months. This may not fully exclude natural habituation, especially in milder cases.

The trial has started on time! This study aims to regenerate auditory neurons, also known as spiral ganglion neurons, in individuals with auditory neuropathy. Tinnitus Talk interviewed Professor Marcelo Rivolta back in 2019, and I believe it was one of their first podcasts. Now, six years...

I feel this deeply. I just had a stretch of good days, felt human again, and now it’s back to the usual routine. But those good days keep me going. It’s bittersweet.

No, it doesn’t mean it’s permanent. No one can truly say whether it will be or not, but there are plenty of stories of people who see improvement with their tinnitus over time. Sometimes the process takes a long while, so be prepared to wait it out. Develop coping strategies as best you can...

Just give your ears a rest and trust that they will get better, because they will. If you have no measured hearing loss, your symptoms will improve. Just avoid exposing your ears to loud sounds.

Hi @ColinUK, I understand and feel the frustration. It’s not a question of whether this device works or not. It works. The real question is how effective it is and for how many people. As for Tinnitus Quest, the progress made in just 14 months sets the tone. “Rapid” is part of our mission...

I have an enameled cast-iron skillet and a 1925 waffle iron, which are just part of my cast-iron collection. There are no chemical pans in this home. The enameled skillet is my daily user, while the waffle iron is just for the collection. I also have a 12-inch BSR skillet with a lid, dated...

I’m sad to report that I was overconfident. I thought I was cured and exposed myself to moderate noise levels in an office that, according to my decibel meter, peaks at 90 dBA but averages around 70 dBA. I didn’t use earplugs for about three to four hours. After that, everything went downhill...

Yes, you want it to reach your sinuses, not just your nose. I lean forward and aim the nozzle toward my eye. If you taste it or feel it going down your throat, you did it wrong. If you taste it, you waste it.

Just to emphasize this, I was in a seminar today where one of my colleagues presented unfavorable data for a new vaccine candidate he was testing. It was heartbreaking. The results in mice and non-human primates were spotless and very encouraging, yet the vaccine didn’t show even a measurable...

@Jammer, you’ve probably shared your experience with DBS many times, but since it’s highly relevant to the discussion about Neurosoft, would you mind sharing it again here? Did you receive an implant? Was there any electrical stimulation involved in your procedure? And was your experience...

4 Month Update I’m still using a DMSO solution diluted with distilled water, 70 percent water and 30 percent DMSO. I haven’t really noticed any changes over the past month, but I’m still better off than I was before I started using DMSO.

This thread started 12 years ago, and we still don’t know if it even works. We might be looking at another 5 to 10 years before there’s a product. There was likely at least a decade of work before this thread even began. That’s basically a lifetime of effort that so far hasn’t produced any...

It’s really awful, isn’t it? I’ve had mine for six months now. I don’t think I get a vibration—mine is around 200–250 Hz, so probably not “deep” enough. But the way it switches on and off with any sound or voices is infuriating. The worst is the TV; it’s constantly triggering it. I can’t watch...

If the results of the next trial match those of the Marks study (the first one), then I would consider it. If they resemble the second trial, there won’t be a device.

Not sure where the sass is coming from, but okay. I’m glad your tinnitus doesn’t cause major issues when it comes to international travel or planning weekends with friends. Appreciate that.

Kingsfan if it's by allergies then it be easier to recover from it, I'm hoping it's a cold like my uncle said, but however unfortunately my cousin grandmother lives around here and smokes outside, so I'm not sure if Eustachian Tube Dysfunction caused by this.

I’m so sorry to hear that. You’re only about a month in, so there’s still plenty of time for things to improve. I would stop taking Neurobion and Aneurin Forte unless a doctor has confirmed that you have vitamin B deficiencies. High doses of vitamin B aren’t good for you and could be the reason...

Had a meeting today at my work. I use jabra speaker for teamcalls. I thought it was very "annoying to my ears" and double checked the volume after like 5 minutes into the meeting and it was on 60% (i always got it on 20% on volume). Probably my coworkers borrowed it and increased the sounds and...

Dr. Hamid Djalilian Dr. Matthew Carlson Cochlear Ltd And Dr. Heidi Olze in Germany is still in the preclinical stage. I think this is the best line of inquiry based on what patients can currently see.

Thank you. I have another question. Is it true that you shouldn’t spray upward when using nasal sprays? https://entsaustin.com/using-nasal-sprays-properly/#:~:text=As%20you%20can%20see%2C%20the%20eustachian%20tube,treat%20sinus%20issues%20and/or%20eustachian%20tube%20dysfunction.

Hi everyone, I’m really scared right now and have been the whole week. I went to a concert on October 12, and ever since then my left ear has been ringing and has mild hyperacusis. I hear it pretty much all the time. I thought it would get better, but I decided to book an appointment with an...

If these tasks pose a major logistical issue, then I imagine planning a weekend with friends must be nearly impossible for you. For the flights, you just need to show up at the right time. As for car rentals, you probably won’t even need one. Time off work can be managed through annual leave or...

I hope this is helpful. It’s so easy to check if you have a heat pump, and I urge everyone to do so. If it helps even one person find some relief from their suffering, I’d be thrilled.

you still take clonazepam?

I don’t know if you’re still following this thread after all this time, but could you elaborate on which treatments regenerate the synapses? I’m experiencing something similar right now, where my own voice causes a buzzing noise in my ears, almost like it’s triggering a reverberation effect.

I think these organoids are going to become one of the biggest game changers in tinnitus research.

Hi there, I’m new to tinnitus. I woke up with it at the end of July. The cause is unknown, as I don’t have any hearing loss on a standard audiogram, but I’ve had Visual Snow Syndrome since birth, so it might be related. I’m also open to the possibility of hidden or high-frequency loss from...

I'm having a tough day today, and that's probably just the result of a weekend where I had to give up my comfortable solitude for two days.

I’m not blaming anyone. I’m just saying that in my experience, whenever I’ve had acoustic traumas, my ears became numb. Even now, whenever I experience an incremental decrease in my hearing, that particular ear has a strange numb feeling. I never had any problems with my ears before, but after I...

I still believe this path of research is one of the most promising and potentially one that could deliver the earliest market-ready solutions. It makes sense to me conceptually. If you think of tinnitus as a neural network failure stuck in a closed loop, then introducing new electrical currents...

I can’t wait for the announcement of the projects that will receive a grant and for the start of the quarterly updates. It feels like only a few months to go before we witness the beginning of a growing wave of news, updates, data sharing, and transparency at a level I haven’t seen in a decade...

@Josh59, Ovid Therapeutics started Phase 1 of OV350 IV this year and is expected to release information before the end of this year or early next year.

Argh, just having a moan because it’s driving me mad tonight. Does anyone else struggle with watching TV? The constant switching between speech and noise from the TV is infuriating. The only way I can manage is by having a fan on high to drown out the oscillating hum.

Hi @Alberte, I am so sorry to make everyone despair, but at this very moment, I do not see any.

I can’t believe they rejected you either, even with a letter. Jerks. Johns Hopkins is one of the best hospitals in the USA, or at least it used to be. If you can afford it or if insurance will help, you should go. Just drive, take breaks, and sleep at a motel if needed. I don’t know if they can...

This thread is also an opportunity to share studies showing that certain investigative tools reveal no biomarkers for tinnitus. In this case, it’s about resting-state qEEG and tinnitus laterality, though I don’t really see the point of focusing on laterality rather than tinnitus as a whole...

I would consider it, but logistically it would probably be a bit of a nightmare when you take into account flights, car rentals, time off work, and scheduling appointments. Not to mention the challenge of bringing the device back into the EU. You could try to get it through customs unnoticed...

That’s sad, although he lived a long life. I spoke with Dr. Shulman a couple of times by phone. I also recently heard that Dr. Paparella, another well-known ENT, passed away in 2024. I had seen Dr. Paparella in person at his clinic in downtown Minneapolis years ago.

Hi @Sonia554, I’m not doing well right now. I’ve been hearing a somewhat high-pitched frequency coming from outside, and even though I know it’s not in my head, I can’t help but feel anxious about it. Lately, I’ve been feeling better and calmer, but that sound makes me miss silence even more. I...

We matched the electrode placement and current exactly. As you can see from my report, I did deviate in duration at times, doing 30-minute sessions instead of 20. But please call them and try it yourself! Just because it didn’t work for me doesn’t mean it won’t work for you.

Flonase and Nasonex are brand names. You can find them next to each other in the pharmacy section near the decongestants. I’m not a doctor, but I do think your hearing is very likely to recover if you have an ear infection, which seems to be what the Amoxicillin is for. Fluid buildup in your...

Welcome to the forum, @Fudgeman. Thank you for outlining the mold investigation you’ve conducted. I find that mold is a hidden health issue that many of us are unaware of. I’m looking forward to your next post.

Hi everyone. Since December 2024, I’ve been experiencing pulsatile tinnitus in my right ear. I went to an ENT and had a hearing test, which came back normal, and an MRI that showed I apparently have twisted blood vessels near my right ear. They might be pressing on a nerve that controls facial...

https://www.tinnitustalk.com/threads/neuromed-tinnitus-program-%E2%80%94-founded-by-dr-hamid-djalilian.54643/page-4#post-720733

Thank you for your advice. I have a few questions. What brand of Flonase or Nasonex would you recommend for me to use? Do you think my hearing will recover so that I can hear voices normally again, like I did two days ago in the morning before the sudden decline from Eustachian tube...

How did it go?

In my opinion, and this is extremely unfortunate as a musician and devoted student of music, we must avoid most live amplified concerts. I would guess we all suspect this is true, but we do not want to admit it. I now know from experience that each amplified concert is like playing Russian...

Afrin can cause a rebound effect and actually make your problems worse. Flonase or Nasonex would be better options.

New here. I’ve browsed this site before but finally decided to register. I wanted to share some information. I moved into my girlfriend’s house in 2014. She and her ex bought it in 2003, and it was built in 1984. The house I left was built in 1948 and had its issues, but her house is a mess...