Search results for query: TTTS

...in the process of evaluating my TMJ issues, which include joint and facial pain, Eustachian tube dysfunction, tinnitus, and sometimes MEM or TTTS symptoms. I'm not necessarily doing this to eliminate the tinnitus, as I admit that I don’t believe medicine can fully help me at this stage...

...though I don’t actually feel any vibrations—that's just the best way I can describe it. It doesn’t seem to match the typical symptoms of TTTS (Tonic Tensor Tympani Syndrome) or MEM (Middle Ear Myoclonus). Does anyone have any ideas on what this could be? I was starting to feel a bit more...

Hey! Would love some advice on dealing with pain and TTTS if you are able to share? Thank you!

Thanks for your message. I wasn't exposed to any noise above 95 dB, and I wore my custom-made silicone earplugs with maximum attenuation, as I always do at louder events. However, this time it still seemed too much, possibly due to the bass being transmitted through bone conduction. I'm hoping...

Concerts are too risky. I haven’t attended one since my first acoustic trauma eight years ago. If you’re experiencing TTTS (Tonic Tensor Tympani Syndrome) symptoms, such as a fluttering sensation when you hear music, the likely cause is the DJ event from 10 weeks ago. Even though you wore...

Thanks for helping this person. Do you have musical tinnitus on top of your regular tinnitus? Would you say that your tinnitus has improved over time?

Yes, I have heard about Endolymphatic Hydrops. Could Tonic Tensor Tympani Syndrome (TTTS) occur in people who have previously experienced severe hyperacusis (in my case, 20 years ago and again 10 years ago), causing the tensor tympani muscle to be affected for weeks after a new loud event? I...

TTTS (Tonic Tensor Tympani Syndrome) is not caused by hyperacusis, but hyperacusis can be a result of TTTS. I also experience it in my right ear. There's a fluttering sensation inside when I hear sounds, and it's not my eardrum—it's a muscle spasm caused by the acoustic trauma I had. The tensor...

@tomytl, thanks for the clarification on TTTS. When I visited my PCP while waiting for my ENT appointment, I was told the same thing — that my tinnitus symptoms are due to fluid buildup in the middle ear. While researching this, I came across a condition called Endolymphatic Hydrops, which is...

Can TTTs heal?

Nobody understands how bad TTTS is

...and the differences in volume levels are becoming more "normal." Unfortunately, the tinnitus has gotten louder. The pressure A (which might be TTTS) has slightly decreased, but the pressure B on the left side—feeling more like Eustachian tube dysfunction and cracking three times during...

...20 hours a day. After about three weeks, I experienced musical tinnitus for the first time. Then, about two months later, I began experiencing TTTS (Tonic Tensor Tympani Syndrome) symptoms, with non-stop clicking in my ear. Two months after that, I realized this approach wasn't working, so I...

...CVS today. I’ll give them a try and hopefully get some relief from this. When I visited the ENT, they performed a tympanometry test and told me that my eardrum movements are normal. Does this mean my hyperacusis is not caused by muscle movements in the ear or TTTS, and is instead nerve-related?

...had a "reflex" in my ears when I spoke or when something fell. I thought this was due to my hyperacusis, which has also since improved (possibly TTTS?). In late June 2024, I decided to do some health tests for my 30th birthday, including a urine test, as I wanted to get an overall picture of...

...fluttering sensation in my ear sometimes when I hear sounds or music. This is most likely a spasm of the tensor tympani muscle (commonly called TTTS). It’s slowly improving over time. I've read stories from people who had severe TTTS, and after gradually exposing themselves to normal sounds...

Hello, @LukeYoung. How do you do that? Sometimes, if I press my finger under my earlobe where there is a slight depression, it helps calm the spasms. I apply full force and hold it until the TTTS subsides. What do you do?

Thank you for sharing your amazing success story. You’ve gone through so much and survived it. My tinnitus has become very severe over the last few months. I have several tones, and it’s incredibly intense. I’m three months in, and I also have hyperacusis. It brings me to tears of joy to know...

Hyperacusis caused by TTTS vs. the nerves; does one have a better chance of recovery than the other?

Welcome to the forum! It seems like your tinnitus might be somatic in nature. It could be related to TMJ, TTTS, or your neck alignment. You can search for TMJ or TTTS in previous discussions to see if the symptoms match yours. Wishing you a speedy recovery. God bless!

My TTTS settled for a bit but it’s been back again for my birthday which sucks. Hopefully it dies back down

...doesn’t seem to be severe pain hyperacusis, but rather loudness hyperacusis with possibly reactive tinnitus. Ear burning, pressure/fullness, and TTTS (Tonic Tensor Tympani Syndrome) are not uncommon with this condition. Even so, regardless of what you call it, this is a traumatic...

...sounds as being louder, but I do experience pain and a sort of muscle contraction at the eardrum level in response to noises. It seems to be TTTS, which also triggers my vertiginous state. I ask because I haven't found much hope for pain hyperacusis. I've noticed that most people who have...

...in intensity. New tones would pop up and disappear, sometimes mimicking external sounds. I also dealt with Tonic Tensor Tympani Syndrome (TTTS) that would occur randomly or be triggered by certain sounds, including my own voice. Needless to say, I went off the deep end for a while (and who...

Thank you for your message. I'm thinking about starting Clomipramine, but my PTSD is so severe that I might need to take Venlafaxine, which is specifically indicated for that. My PTSD is mostly based on the false testimonies at work regarding the accident, and it makes me suicidal. I'm not...

I'm so sorry this happened to you. My acoustic trauma in a nightclub was in early 2023. I have been robbed of a life since that evening in a foreign country with strangers. What about trying something like Clomipramine potentially for hyperacusis? It's a tricyclic antidepressant that...

...Retraining Therapy (TRT) doesn’t do much beyond potentially masking the noise. If you have reactive tinnitus and Tonic Tensor Tympani Syndrome (TTTS), it could aggravate your condition. However, I’ve found that certain frequencies and sounds, depending on the pitch, can mask my reactive...

...helping my recovery at all. Here are some things I’ve tried: TRT (Tinnitus Retraining Therapy), but the white noise increased the pain from my TTTS symptoms and gave me vertigo. Eye Movement Desensitisation, as the situation at work made me suicidal. Antidepressants, benzodiazepines...

...head a year and a half later. After leaving the company, I hoped my symptoms would improve. I had no idea what was coming—painful hyperacusis, TTTS, and reactive tinnitus. In the months that followed, and even now, my life became increasingly limited. I went from being a music lover to...

I had a really good day. T down, H down, no ttts, no clicking crackling ears and no sbutts. Let’s goooooo.

My ENT confirmed that no neurologists prescribe nerve pain medications for Nox/TTTS in my state... Why the fuck this happened to me.

Is getting fake neuropathy diagnosis hard? I've called 9 neurologists in my state. They refuse to treat Nox nerve pain/TTTS. Time for plan B

Day 3 of severe fever. No change in T/H/TTTs/Nox

@snizzleberry Hang in there. You and I have similar issues, with distortions and TTTS and all of that. Mine improved after the first year, and my TTTS was absent most of this year. Having a flare up of it right now, but it’s happened before and eventually goes away. Hopefully yours subsides!

I literally have evidence of TTTS going away because it’s gone away many times for me. But my OCD is like “nope, it’ll never go away again”

I just wanted to chime in and say that it sounds like TTTS. I experienced something similar: I had tinnitus, and after an additional acoustic shock, I developed multi-tonal reactive tinnitus, dysacusis, mild hyperacusis, and TTTS. The TTTS is still present—I can feel it vibrating when my head...

...advise against reading too much online about tinnitus, especially conditions like middle ear myoclonus (MEM) or tonic tensor tympani syndrome (TTTS), which you may not have. Self-diagnosis can lead to unnecessary stress, as I mentioned earlier. Keeping things simple when dealing with tinnitus...

Day 4 or 5 of TTTS flare up. If I remember correctly, past flare ups were ~ 1 week. Hope it settles soon. My anxiety is def making it worse

...almost feels like a game to see if I can make it slow down. I’ve read posts about middle ear myoclonus (MEM) and tonic tensor tympani syndrome (TTTS), and I know they can occur after acoustic shock. Could it be one of those? I did experience a physical flutter in my ear about five years ago...

Trying not to worry about my TTTS reappearing is harder than I thought. I just want to be okay, I don’t wanna go through this again

My TTTS has made a reappearance. It’s hardly happened at all this year. Trying not to stress… it’s settled before, it can/will again

Called 7 neurologists and no one works with nerve pain related to noxacusis or ear spasms (TTTs). I just want 10 capsules of gabapentin...

The gym spiked my H and ttts today fml. Fullness and sore ears after. Should I go when it’s more empty or wear anc headphones there?

It took me almost five months to make any headway at all. About two to three weeks later, I started exercising and found that it helped me sleep better. I pushed myself harder and harder. I listened to talks and sometimes music while I exercised. It made just a little difference. When I started...

...my tinnitus varies a lot from day to day and can vary in sound and intensity even over the course of a single day. I also have hearing loss, TTTS, loudness hyperacusis, anxiety, insomnia, and pains (stomach). My baseline anxiety is pretty much as high as it ever has been in the last 2 1/2...

Yes, I have reactive tinnitus as well. What did you do to ease pain or recover from pain, especially with a baby? I can’t avoid all the noise.

...the external sound. As soon as the external sound stops, so does the beep. I have a history of neck pain, a closed lockjaw (TMJD), and TTTS, and I might have experienced an acoustic shock in June last year that led to my worsening. (Tinnitus was low-level and non-reactive up until that...